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Elderly parents

Another crisis and not sure i can manage this one

60 replies

whataboutbob · 06/12/2015 10:27

Went to visit Dad yesterday. In brief, 2 weeks ago he had a fall when his carers helped him out of the bath (I had requested a bath assessment and bath chair 2 months ago, it didn't happen). He now cannot walk up the stairs, does not leave the house, is doubly incontinent and in pads, and barely speaking anymore). he had been declining prior to the fall but now his state is quite shocking. he's on the living room sofa bed all day, and has the beginnings of a pressure sore.
The washing machine is broken. There was a pile of urine and faeces soiled clothes and bedding on a heap in the kitchen.
My brother is in full on denial mode and just thinks dad is going to continue living at home.
To cap things off Dad's rental flat has flooding because a cowboy builder did not waterproof the new shower, I have got a plumber in he has completely removed the shower and it will take 2 weeks to reinstate because we are waiting on a carpenter, a wall is waterlogged and needs to come down, a new one needs to be built to support the new shower. Will cost at least £1500 to put right and tenants will want compensation for 2 weeks without washing facility.
I have been signed off work for 2 weeks because my blood pressure was dangerously high (also work related stress going on).
I rang a cousin who's a GP and he thinks Dad may have a subdural hematoma, a slow venous bleed around the brain which is impacting his functioning. Only way to know for sure is a brain scan.
All I could do yesterday was go to rental flat to pacify tenants, go to laundrette and wash the stinking pile of stuff, and spend time with Dad and bro.
ICT are delivering a hospital bed, no idea where it will go, Dad was a hoarder, bro is a hoarder, the living room is a hovel and the carpet smells of piss and poo.
Just feel totally overwhelmed and minded to let the professionals deal with it now as i am too weak to take it all on. I have been signed off work for 2 weeks because my blood pressure was dangerously high (also work related stress going on).
I know I should:
Hire a van and do the much needed garage clear out (ignoring my brother's protests as i go along)
Clear assorted junk out of living room
Shift sofa bed into garage
Get on GPs case to get Dad's brain scanned
Attend crisis meeting to weigh up options for Dad's care: respite/ nursing home/ stay at home in micro environment
Chase up incontinence nurse referral, if indeed the referral was made, as I have discovered i can never assume people do what they are supposed to do
Find out why the bath assessment never happened and who is responsible
Get onto council: the wheelie bin has disappeared
Negociate with my manager a further 2 weeks' unpaid leave
Attend meeting with CCG Dad's continuing healhtcare funding is under review in 1 week.
BUT can't face any of it. I feel utterly done in.

OP posts:
thesandwich · 06/12/2015 18:39

Oh Bob I am so sorry to hear how things are. And listen to wise SPT- and think what you would say to any of us if we were in your shoes. Warning bells are ringing- you must look after yourself. Take some time out to restore your sanity. You cannot do it all- there are professionals about and you cannot fix everything. And your children need you healthy. Take care. Put yourself first. You are no use to anyone if you don't.

whataboutbob · 06/12/2015 17:49

Thanks SPT I know you've been there and have the T shirt.
After posting i took the kids and we went to the national history museum which was a nice change. While there got a call from another concerned professional (DN) who tells me she is referring on (to an agency that Dad has already been referred to, ie social services). Who knows what it'll yield it seems Dad is in a loop with professionals referring to other professionals but no real help yet.
I have decided to try and get more time off work unpaid as can't face going back, even in 8 days. Time alone when the kids are at school is like medicine to me these days and i need more of it!
My GP was v sympathetic so I will go back and see her next week.
I am going to try and take a bit of a step back as SPT advises and not try and jump to sort everything, because quite simply I can't. If Dad goes into respite or even care so be it, in a way I'd be a lot less concerned about him leaving the house if bro wasn't in the picture as i fear his reaction. But I can;t let that dictate everything and you're right SPT, I need to think what's in Dad's best interests and at home with a pressure sore and filthy sheets is not it.

OP posts:
SugarPlumTree · 06/12/2015 11:35

Bob I am so sorry, this sounds like a nightmare Flowers

I think maybe today before you start anything just take a moment to think about what you feel is now best for your Dad - do you feel it is in his best interests to continue staying at home or do you feel it is on his best interests to now go into residential care ? My personal view is that he needs respite for a few weeks to get through Christmas and there is no way you are well enough to most of the things on your list.

When my blood pressure shot up and my GP told me to step back for my children's sake you and the rest told me to listen and supported me with that, I urge you now to do the same. It is absolutely OK to say to SS that you can't do this as you are too unwell and step back for a bit. You can monitor from a back seat, write letters etc .

You have managed to keep him at home for an extra 2 years which is a massive achievement but it is affecting your health now the time to make decisions in light of that. I know this is incredibly hard but hang in there.

whataboutbob · 06/12/2015 11:01

Hello, and thanks for all the replies i am genuinely touched. Dad has professional carers from 8am to 6pm. Up till recently bro's role was cooking him dinner and putting him to bed, he has mental health issues and can't do full time care.
There is a dementia team involved which includes a psychiatrist (who i am not sure has seen Dad in the last year) and a CPN, also an OT.
DNs visited yesterday, looked at the pressure sore, and outlined all the things they were not able to do (dress the sore because it's in an "awkward place" , pick him up off the floor- he was lying there after a fall off his chair and bro, carer and me had to pick him up and put him to bed while they looked on).
Anyway I will compose an email to the CPN who seems to be the overall co ordinator. The jist of it is things are barely manageable and we need help and better co ordination between the agencies. Probably also a GP visit no doctor has seen him since the fall and A and E 2 weeks ago, which basically consisted of XRays to check for fractures (none) and a blood sugar level.

OP posts:
ginmakesitallok · 06/12/2015 10:45

Does your dad have a care manager? If so then contact them and they should be able to help. If not, then call ss and ask for one to be assigned.

SecretBondGirl · 06/12/2015 10:44

is your bro your dads carer?

timelytess · 06/12/2015 10:41

Start writing now - your letter to the GP copied to social services. All the gory detail, no saving face. You need help.

Finola1step · 06/12/2015 10:40

Really sorry to see that you are in this situation. I was also going to suggest talking ti the GP about respite care for your dad. Thus will take the pressure of you somewhat while you deal with other practicalities. Flowers

laundryeverywhere · 06/12/2015 10:35

So sorry to hear this Bob I totally know where you are coming from. I would say make the GP your number 1 priority, also maybe he could have a couple weeks respite care in a nursing home where they can help with the pressure sore and incontinence, and then it will be easier to get the house sorted. I would press for this with the GP tell them you are struggling to get everything done and you need help.

PeekABooPinky101 · 06/12/2015 10:31

I have no wise words but wanted to send Thanks - you are doing amazingly well. You are one person and you have to look after you too.

Sending strength and best wishes