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Elderly parents

MIL should be in a care home, but refusing to go. A rant

38 replies

Rainicorn · 08/03/2015 22:13

MIL has osteoarthritis and a fused spine amongst other medical things. Following a fall last year, she ended up in hospital where they found bowel cancer and resulted in a 6 month stay where she lost mobility because of her refusal to get out of bed. She also has chronic pain which is under control morphine patches.

She has just got out of hospital again, this time a 10 day stay which should have only been a day patient and they diagnosed CPOD and we've been told heart failure last year which she never told us about, or maybe didn't know about as she was pretty ill anyway.

She currently lives in a small one bed flat in what used to be sheltered accommodation but now help can only be given by community care alarm.

She has 2 carers that come in 4 times a day to get her out of bed (hoisted), into her chair. She also likes to go back to bed after lunch for a sleep. They cook for her, dress her, bathe her, give her her medication. Basically all she does is feed herself.

We visit every day. I do a lot of running around for her, shopping, paying bills, taking her to go appointments in her wheelchair etc.

She keeps phoning us for trivial things, like making her a cup of tea, picking up dropped remotes for the TV, and also for things like moving her leg an inch to the left which she could domherself simply by raising the hospital bed but she doesn't see why she should when others can do it for her. This can be during the day, it can be at 3am in the morning.

I am exhausted, DH is exhausted and it is causing arguments between us. We cannot convince her to move somewhere where there is 24 hour care so they can make sure she is looked after. She is happy being cared for the way she is,my apply to wake us up to come move her.

The thing is, if we refuse to do these things then she always seems to get ill, or needs to phone the doctor out for something. I feel like this is what it's going to be like until she dies, and I don't want to wish her dead.

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RandomMess · 08/03/2015 22:50

I agree tell her that you won't be responding to phone calls between 9pm & 8am. Turn everything off and let whoever leave messages you can speak to them the following day and say you are not able to help her overnight and they will have to assess her care needs taking that into account...

Viviennemary · 08/03/2015 22:49

I agree you are a saint. And should switch your phone off after say 8 pm at night and 8 in the morning at the very least. I don't think it's right that you are made to feel guilty for just wanting a normal life without being on call 24/7. And it's the care staff who are being paid to be on call not you. And if it's making you and your DH argue that's simply no good at all.

Adarajames · 08/03/2015 22:48

I've had similar, although not as demanding, from lady I got to know through helping her out through local volunteering scheme, with lots of calls for all sorts of things, including repeated ones as her memory is poor now, and I've had to pull back to protect my health and sanity as it was putting those at risk; so can only imagine how desperate you must be with it being Constant.
Do speak with SS / care agency etc and tell them you have to be allowed peace and rest at night, she has the alarm ge emergencies, and will be doing no one any good when you become unwell yourself from the stress and lack of sleep. Don't look on it as being selfish but as self care, it's very important! Hope you get some peace sorted soon x

meandjulio · 08/03/2015 22:39

'she then calls community nurse/care people who then call our mobiles to let us know she has called them. Have turned off mobiles as well only to be met with lots of answer machine messages.'

So you have messages. if you felt kind you could let the care people know that you need sleep so will no longer be responding between 5.30pm and 9am. Or put that on your voicemail. She clearly has people to call - people who are paid, perhaps? While you take up the slack, believe me, the system will let you.

Rainicorn · 08/03/2015 22:36

Gosh you're all too kind. I expected to get flamed and told I'm terrible.

Wrt turning off phones, we have done, but she then calls community nurse/care people who then call our mobiles to let us know she has called them. Have turned off mobiles as well only to be met with lots of answer machine messages.

The only thing keeping her out of a care home is her. Because she is in sound mind, the SW cannot insist she moves there.

She lives a 5 minute walk, 2 if we run. The care home is across the road. It's not as if she would be moving miles away.

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hairylittlegoblin · 08/03/2015 22:28

You don't sound selfish, you sound amazing. But no, she won't change her behaviour because this suits her just fine. Speak to her GP, social worker anyone you can and explain that the situation cannot go on. And yes, turn the phone off overnight. In a true emergency she can use her care alarm.

PurpleWithRed · 08/03/2015 22:24

She has no independence, she is totally dependent on you and her carers. Being in your old inappropriate home is not independence.

The only thing you can do is refuse to go and do anything for her unless it's life threatening - she will have to wait till her carers come over for that cup of tea etc. if it's really life threatening she can call 999.

FannyFifer · 08/03/2015 22:24

This sounds awful.
Do you go to her in the middle of the night when she phones?

I don't think you can force her into a nursing home though if she doesn't want to go.

She also maybe doesn't meet criteria for 24 hour care package.

meandjulio · 08/03/2015 22:23
Sad

Not enough experience to comment really but could you switch your phones off at night? if she rings the doctor (will she? Aren't these calls really 'notice me' rather than 'I need help') at least that flags up that she is not coping?

Hassled · 08/03/2015 22:22

I have no useful advice whatsoever - but bloody hell, you are a living saint. No wonder you need to rant. I really hope you find a solution.

RandomMess · 08/03/2015 22:20

I think you need to speak to her social worker and perhaps simply turn off your phones at night so you at least get that break from her...

She'll have to use her alarm then for help and they'll soon tell her it's not an emergency etc.?

Really feel for you - very tricky situation!

Rainicorn · 08/03/2015 22:16

It's almost as if she doesn't care who she inconveniences as long as her needs are met. She is a very headstrong woman.

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Rainicorn · 08/03/2015 22:15

I realise how selfish I sound. She has lost a lot of her independence and she doesn't want to lose what little she has, but she fails to see what impact she is having on everyone around her.

We only found out a few weeks ago that when we were refusing she was asking her neighbour to do things. Her neighbour is a lovely caring woman in a wheelchair who has sleep apnea and she was waking her by banging in the wall. We have since taken neighbours key away so she doesn't disturb her.

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