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Elderly parents

Deteriorating again in hospital

182 replies

Theas18 · 11/01/2015 18:32

Argh.
Mum was ok on fri having gone in xmas eve. Plans afoot to get her back on wafarin after the weeken and home ASAP.

Yesterday coughing lots and mysteriously on oxygen. Sta,paed my foot a bit and insisted on seeing a doc. What point is " they'll be here Monday " ? No that not ok. She's not okNOW ! Anyway. Seen and xrayed " don't think its infection ".... Yeah right

Today she's much worse. Away with the faries ( not her at all) scrabbling at the bedding etc. Had oral antibiotic at 3pm but thatsnt going to work fast enough is it? Awaiting more bloods and another doc review.

Darent leave. :(

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ajandjjmum · 16/02/2015 19:03

You spoke the truth.

Just seen your comment on the other thread about dying. Feeling for you so much. Remember being with my Dad and wanting him to slip peacefully away, but still wanting to keep him with us.

Glad your Mum is peaceful and resting. Don't forget to take care of yourself too.

xx

twentyten · 16/02/2015 12:50

Blush!

Theas18 · 16/02/2015 12:04

Oopsy. I might have used the phrase " crap carers" as the carer came in the kitchen whist I was on the phone lol

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twentyten · 16/02/2015 11:28

Oh thea. If you can handle it go for it. So sorry carers are not as you would want. BrewBrew To you.

Theas18 · 16/02/2015 11:21

I think mum is fine now. The driver is working, she's peacefully asleep.

I'm fighting to get better carers.

Neighbours have been to say bye which was very sad. Thry are off on holiday tomorrow to one of mums favourite places ( Malta ) so I suggested they think of her in the sunshine.

Dithering as to wether to call her friends at the centre incase thry want to pop over.

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twentyten · 16/02/2015 08:58

Oh thea. Hope your mum is ok and you got some sleep.

Theas18 · 15/02/2015 23:37

Ajandjj I fear you are right. Suspect the alleged waking night cover is asleep now - at 11 he was certainly at least " contemplating the insides of his eyelids" as mum would say.

Torn between going down at 1am and catching him or trying to sleep myself.

Mum is comfortable on a driver and safe in bed with sides up palliative care lady says unlikely to change much overnight. So on balance I think I'll sleep but the number of used mouth care sponges might tell a story ( should be at least 2hrly minimum) so at least 4x before he leaves at 7am

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ajandjjmum · 14/02/2015 19:00

I'm sure there are some wonderful carers - sadly I've never come across them. Sad

I just hope that next time my PIL need help, they get one of them, as it's really tough to care from 200 miles away.

Difficult work I know.

Theas18 · 14/02/2015 16:33

My hanks pingpong. Going to hide in my bed after I've sorted the washing I think!

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PingPongBat · 14/02/2015 14:18

Goodness Theas18 it doesn't get any easier, does it? In my short experience of carers for the elderly, I get the impression that as soon as there's a relative around they have a tendency to think - oh it's OK, there's someone there so I'll disappear for a bit / let them get on with it. I'm probably being completely unfair as I know there are a lot of wonderful carers out there, but I've found this too many times in just a week & a half of mum being in the NH.

You must be exhausted. Hope you at least get time for a Brew and a break.

Theas18 · 14/02/2015 13:01

YoungGirl thank your dh for his input re praying. I am worried I'm bring unfair to her but it's leaving her without care like this break is. She did say call if you need me, but I wonder what she would have one if I wasn't here- mum has needed significant " care" in that time and St no pint would have thought it been able to call.

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Theas18 · 14/02/2015 12:58

Changing carers Monday. I'm going to be less accepting and thankful and more pushing for what to expect. At 11.40 she went for "a break" as she was tired. It's now 12.51......

I've repositioned given drinks sorted O2 and go her in the chair etc.

I understand she might not have had a good night , but neither did I andshes got the comfy accessible bed ! It isn't that she's been on the go all morning either. Mum has breakfast and a shower then went back to sleep for 2+hrs !
The night chap seemed fine though. Sadly we only keep him till Monday.

Interestingly she's written nothing in her care log. Night guy has times and what happened / was done each time care needed.

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twentyten · 14/02/2015 11:15

So glad you got her home thea. You are doing the very best you can. You must be exhausted. Look after yourselfThanksThanksThankswell done.

YoungGirlGrowingOld · 14/02/2015 10:47

Hi Theas

Been following the thread. Close to my heart as we are caring for MIL at home (with carers) after a menangioma.

Disappearing to pray that frequently and leaving your DM alone is not on at all. (DH is Muslim and a hospital doctor and he agrees!) The most challenging thing for us has been getting on top of the carers. It's not a great job, I know, but most of ours are off sick at least once a week and we are often left without cover. Hopefully this is just teething trouble, as you say.

[Flowers] - you are taking such good care of her.

Theas18 · 14/02/2015 10:40

Well she's home !

Some hopefully teething issues with care. Initially just given 24hr live in but I agitated and they added waking night care - just as well as she was up ever 30 mins eating / drinking / loo etc.

We are changing carer Monday as she's v sweet but inexperienced - connected mum to an off oxygen machine when I popped out today ! Also a devout Muslim, which I have no issues with apart from disappearing to pray 5x a day for 10 mins plus - that's not full time care is it?

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ajandjjmum · 14/02/2015 08:01

Hope your plans have worked out Thea.

MrsMcGregor · 12/02/2015 21:21

Fingers crossed.

Theas18 · 12/02/2015 20:39

They say it should be fine for tomorrow...we'll see. I've booked a gp visit and everything :(

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MrsMcGregor · 12/02/2015 20:35

Oh no .... any commitment as to when they will have something sorted out?

Theas18 · 12/02/2015 20:28

Well I've been and stocked the fridge etc and cooked a couple of batches of yummy soup as well. Love my soup maker in the cramped cluttered kitchen !

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twentyten · 12/02/2015 18:10

Oh no! SendingWine. You must be so frustrated.

Theas18 · 12/02/2015 17:43

Argh!

Not home. No carer available today. And my moan to the coordinator revealed that she didn't know it was a sleep in carer either and mums needs require a waking carer at night

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Theas18 · 12/02/2015 11:01

Thanks twenty. About to drive back over having hit home last night to work this am. frazzled is about right. Hoping to get home again Saturday. That goodness for unlimited internet on phone that's all I'll say.

Hope the carer is the Mary Poppins for the elderly I think she will be :)

I can't see how living in caring for weeks doesn't kill you, they must be tough cookies!

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twentyten · 12/02/2015 07:46

Oh thea. So much to sort- you must be frazzled. Hope the move goes ahead and goes well- getting home will mean so much to your mum. Hope it goes smoothly. BrewBrewTake care

Theas18 · 12/02/2015 00:07

Thanks needmore. Mum was away with the fairies today. Hope home and gin brings her back a bit - it's so not right her bring confused.

( though the phone wants away with the dairies which would be even worse!)

We look like all systems go for home tomorrow afternoon with our own live in " Mary poppins for the elderly" 24hr live in carer.

Except no one told me it was live in till 5.30 so finding a bed and a bedroom floor was a challenge. No chance of storage space lol

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