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Elderly parents

Does Dad really need to be in a Care Home?

33 replies

NormaSnorks · 26/11/2012 22:07

Dad is 80. Has had Parkinson's for 3-4 years. Has lived alone (Mum died 8 years ago) in sheltered accommodation near me for last 6 years.
Things were getting a bit hard for him, and I had flagged up to his GP that I thought he wasn't coping on his own:

  • he wasn't washing / couldn't get in bath etc
  • wasn't eating proper meals
  • stopped socialising in communal activities of the building
  • Losing weight and very low blood pressure

we had a carer coming in to bath him 2-3 times a week, and I'd just put in place another one to come in and prepare meals, but then he had a fall which put him in hospital.
He was very confused, so discharged to a nursing home for a period of convalescence, and to give us time to assess how he was once he 'recovered'.

That was a month ago, and he's still there. We now need to decide what next.

GP says she thinks he needs to be in care, but not nursing care.
I took him for a trial visit to a nice residential home, but they said they couldn't take him, as he 'needed too much care' - they said he definitely needed nursing care!

He would be self-funding, so social services don't seem very keen to do an assessment Hmm

He seems to find the communal/social aspect of care homes rather stressful, and I'm just wondering if it really is such a good idea, or whether he couldn't still manage at home with numerous carers coming in.

HOWEVER - he was beginning to do things at home which were becoming worrying e.g. putting fresh food away in cupboards until it was green with mould/ putting potatoes in pan on cooker without water/ putting things in weird places (electric razor in fridge/ dirty cereal bowls behind curtains etc)
Sitting in dirty, food-stained clothes, not washing face etc.

I certainly feel a huge relief knowing that he is safe and cared for in a home, but I wonder if it IS the right thing for him?
He can't articulate what he wants Hmm - I just don't know how to decide!

OP posts:
YouReethra · 26/11/2012 22:33

Hospitals discharge people to care homes as a temporary measure as there is funding because it saves money to get people out of hospital beds. The people then develop a dependency and it is very hard to get people back home.

It is a worrying trend as more and more people will end up in homes before they need to.

Push ss for your assessment that he has a legal right to have.

NormaSnorks · 26/11/2012 22:30

RustyBear - sorry to hear that Sad

How much does a live-in carer cost? I'd assumed that it would be more expensive than a home. Dad's retirement income is only about £22k, and he would have to spend another £18K or so a year to live in a home around here (SE England.)

He also only has a tiny retirement flat. It has a 2nd bedroom/ study, but by the time you got a bed in there it would be virtually full! What does a live-in carer do? IS it actually 2 carers on alternate shifts?

OP posts:
CMOTDibbler · 26/11/2012 22:30

It can be difficult when someone needs more care than just residential can offer, but not a full nursing package - we had this problem with my grandmother who didn't fit neatly into a category.

But some places are dual registered, or have a mixture of care levels available, so its worth just ringing round and visiting places to see which is right for your dad, now and going forward

NormaSnorks · 26/11/2012 22:26

Thanks for the responses.
I think the care home who refused him just didn't really understand his Parkinson's - it can make him very quiet and withdrawn. Being in strange situations makes his confusion / dementia worse, so he probably came across as very needy. His tremor means that he struggles with buttons/ zips/dressing etc so needs help with toilet etc.
He doesn't always seem to have much awareness of what's going on around him. The nursing home he is in at the moment moved him onto the ground floor as they said he was 'wandering' initially, and they were worried he would try to go downstairs. He's a bit more settled now, but still quite mobile and likes to walk around between the lounge and his room etc.

We saw another nice residential home today, which has lovely gardens and lots of activities and residents lounges etc. However I just worry that we will be paying for all those things and he won't really notice them or use them!
For the last few years he has spent a lot of time on his own watching TV and reading etc and I think he spends large parts of the day nodding off/ asleep in his chair.

All the homes seem to be really pushing all the 'activities' they do, and I really don't think he's that bothered, and I think he finds all the sitting at meals with other people rather stressful and tiring. (His Parkinson's already makes eating a slow and difficult process).

OP posts:
XBenedict · 26/11/2012 22:24

Aw Rusty I'm sorry to hear that Sad

RustyBear · 26/11/2012 22:19

One option we were considering for my Dad (102, living on his own at home with carers coming in every day, still mentally agile but with balance problems and failing strength, so he couldn't get up from a fall) was a live-in carer which would have allowed him to stay in his own home, which he was very keen to do.

Sadly, he got a chest infection and died a fortnight ago, but would this be an option for your Dad?

XBenedict · 26/11/2012 22:11

It doesn't sound like he's going to be very safe on his own at home even with a maximum care package. I'm not sure from your description why he would need a nursing home.

Can you ask the residential home what nursing needs they think he needs?

Pumpster · 26/11/2012 22:10

You're still entitled to an assessment even if he will be self funding. But you don't need one, the home will do an assessment if you don't need ss funding.
I work for ss finance so pm me if you want to know anything and I will try and help.

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