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Elderly parents

I despair, I wish I could just not care, but dear god give me strength

332 replies

Kbear · 14/03/2012 21:25

I can't even begin to explain but I am going to blow a gasket. I care for my elderly in laws. It's a minefield, and a nightmare, and stressful and how does life come to this.

I just got off the phone to MIL, she is rambling, she doesn't listen, I try to help, she talks over me, she's had a lovely afternoon while I was panicking at work because I phoned and she was calling out for FIL and saying oh god oh god, what shall I do? then the phone went dead. So I rang BIL, my DH was at work, I was at work, all miles away. SIL drove over there and there they were all happy as larry drinking tea and the phone's on the side off the hook. Tonight she doesn't even remember SIL going over there.

She forgot to give FIL his meds for four months. I just found out last week. Arranged all their meds again, she can't remember to give them. They're in a box marked for the days of the week, she gives Monday morning and Thursday morning instead of Monday morning and Monday evening.

Today they thought they'd go to the pub for lunch - FIL doesn't know his own name or where he lives, he can hardly walk but off they trundle down the garden to waiting cab, he falls over, almost takes her with him.

How in hell can I look after them? I have two jobs, two kids, one DH!

There's so much more, I am too exhausted to explain, DH is on nights so I;m not calling him to talk and stress him out even more.

I want to cry. No response necessary. Just getting it out there.

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hellymelly · 19/03/2012 19:14

Honestly I would never have realised how a UTI could affect an elderly woman until I saw my Mum. She really was like a different person. My friend works for SS and she said they get calls saying that their Granny has got dementia overnight. They then tell the person it is probably a UTI.

BellaVita · 19/03/2012 18:51

Oh love Sad.

My parents are going through very similar with my grandad (86). He has been in hospital for 5 weeks now, they have fixed what was wrong initially but he really isn't on this earth no more. He has gone down hill so rapidly. We went to see him on Sat and whilst he knew who were and he did have a brief discussion with DH about the rugby which was on the tv in the next bay, he thought he was back in North Africa in the war, he then thought we were all on a "vessel" at sea. I just had to agree with what he was saying Sad. He has just shrunk so much and he is now this little old man who is not able to stand without lots of help. SS are now involved and my family had a meeting with them last week. He will not be going back to his own house Sad.

Keep strong and keep fighting Kbear xx

Columbia999 · 19/03/2012 18:32

Very glad to hear that things are looking a bit more hopeful. That's good news.

IDismyname · 19/03/2012 17:36

Kbear - hang on in there..... We had similar situation with PIL's in Norwich and us 3 hours away, with tiny DS. My DH an only child, so it all fell to us to sort out.

My Mum came up with some sage advice when I was wringing my hands in utter despair which was... Just wait for something to happen. It WILL happen, and THEN the wheels will start to turn in your favour - ie someone WILL actually take notice of your/their predicament and something WILL happen.

Sounds like Peter the A&E doctor could be your link.

You get through all the childbirth and early years, read the books, feel the worry - and then its time to deal with your parents or PIL's... and where's the self help book when you need it, eh?

Good Luck. Be Brave - and cry to whoever you think may help your cause.

Kbear · 19/03/2012 17:24

Good news - went to the hosp today and she is back in the land of the living. Walked in, she was all pleased to see us (me, DH and BIL). We had a chat and a laugh and she was like she was last week before the madness struck.

The mental health team came to see us, and occupational health. They will not be discharged until a care package is in place, we have outlined our concerns. They are moving off the acute medical ward tomorrow but being kept together.

He is better, but still confused and not really with us all the time, but did make us roar with laughter with his story about the prostitute that went in to see him and took him some clothes (does he mean me??? lol).

DH went and bought more bottled water and some lucozades and Irn Bru (FIL's favourite being Scottish and all !!) and I had a serious convo with MIL about the importance of drinking more water. The nurse that came in to take their temps and blood pressure etc was really nice and I asked that every time she came in could she please nag them both to drink a bit more.

They will be in another couple of days and I am assured they will not be discharged without the "elusive" care package in place and discussion with me and DH about what exactly their needs are.

I feel so much better. I feel like they listened to us.

I pray the upward spiral continues and they can come home together soon.

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Fimbo · 19/03/2012 15:00

Oh sweetheart, never realised you were going through all this. Sounds absolutely horrendous. Speak to you later Wine

Kbear · 19/03/2012 13:54

Quint - As if I would stand in the way of their diagnosis and care. If he takes a turn for the worse in the middle of the night and she is in another hospital 10 miles away and can't be with him I think that will be the worst possible outcome. I was simply asking them to consider that in their treatment of her.

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QuintessentialyHollow · 19/03/2012 13:04

oh kbear, but you must not stand in the way of proper diagnosis, treatment and care.

My parents had also been married 50 years, but had to be separated for my mum to get the care she needs.

Not all hospitals have proper facilities for geriatric psychiatry!

Visiting them in two places wont be for ever!

gingeroots · 19/03/2012 13:01

Kbear - I just can't post all jokey and positive and also supportive the way some people can .

My posts always read not the way I mean them to .

But I wanted to say that this thread ,your posts ,are really useful ( tho of course I realise awful for you ) and an education .

What I've learnt is that you have to be incredibly forceful ,assertive ,pedantic and on the case all the time -wot hebiegebies said .
I had to move in and live in the hospital to get my mum sorted .
It wasn't easy and actually I think I sacrificed my son's AS grades as a result .

But it worked .

It so shouldn't be necessary ,but it is .

CuriousMama · 19/03/2012 12:42

I hope all goes well today, thinking of you.

jasminerice · 19/03/2012 12:31

Kbear, glad they seem to be listening to you. Well done. And yes, you do need to be firm and over rule your MIL. Good on you.

thirdhill · 19/03/2012 12:26

I've spent the best part of the last fortnight with my late DF's friends and is something almost all of them have started using regularly. One could almost say it's gone viral with them, but they're not that sort of generation.

Kbear hope it will do something to retrieve your in-laws' and your peace of mind.

Kbear · 19/03/2012 11:38

Just back from cleaning the flat - me and DH.

Various calls to and from hospital today - care navigation team helpful until the point she said they are talking about moving MIL to another hospital.... at which point I despaired. I said you can't separate them now, they've been married 64 years. I think that struck a chord because that idea has now been scrapped. How can we visit two different hospitals? Ridiculous.

Anyway, occupation health called me about half hour ago - she apparently is more lucid today, knows her name and address - yesterday she was living in Cornwall... I hope it's not false hope and not a fluke - perhaps the anti-biotics are kicking in and her fluids are up etc etc.

We are picking up a BIL from work at 2 and going up. We have been assured that they will be in for at least another couple of days. The released with a care package - MIL is insisted not necessary but I have overruled her in regard to his care and meds and they are listening to me I hope.

RAMBLE RAMBLE RAMBLE

More later, bet you can't wait. ha ha

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Kbear · 19/03/2012 11:32

I just re-read my earlier post - of course I don't hope he has been in pain all weekend LOL - I mean HASN'T. HA HA

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CMOTDibbler · 19/03/2012 10:17

Thinking of you today.

jasminerice · 19/03/2012 10:02

Good luck today kbear. You are a Godsend. Your family is very lucky to have you

Eglu · 19/03/2012 09:53

Good luck for today Kbear.

ssd · 19/03/2012 09:38

good luck today Kbear

my heart goes out to you, as with many others on this thread, partly through sympathy and recognition Sad

will log on later, hoping for something positive for you all

Hebiegebies · 19/03/2012 09:31

Luck wished
You are a great daughter in law, they are lucky to have you
Sadly we have found with elderly relatives, they need a supporter with them 24/7 to get the care they need. With Granny we took it in turns to sit with her. Thankfully she had a large family as it was exhausting

gingeroots · 19/03/2012 09:08

You're going to be there ( even though they'll say you're not allowed and won't want you to be ) when the docs do their rounds ?
I found I had to be ,only way to get any sense out of the professionals .

Got your tin hat ?

Kbear · 19/03/2012 07:52

Bless you all for your posts - when I log on here I feel the madness is calmed for a short period of time and I feel totally supported.

Today the docs will be round to see the in laws between 9 and 10. Me and DH both off work and going to hopefully arrange an assessment of her mental health so they can't just send her home. I also want to go there and make her drink a gallon of water and knock this bladder infection on the head. If only it were that easy.

We should also get results of FIL's scan he had on Friday - of course, no results available over the weekend so I pray he has been in pain all weekend with a broken bone....

I also have to tackle their flat.... it needs a good clean and this is my chance, while she isn't there to get it shipshape. She'll go mad but I'm hoping she won't notice, if you know what I mean. The dust is an inch thick and the bathroom and kitchen need a good scrub. Poor things, housework been low on their priorities lately.

I have a headache already. But I'm going in, people, wish me luck!!

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kipperandtiger · 19/03/2012 00:29

Hi KBear, sorry I missed your posts on Saturday as I was busy. Just to say I've worked in hospitals (maybe you could tell!) - even on weekends! Hindsight is a wonderful thing of course, but I should probably have posted when you mentioned the bladder infection and dehydration that each of those two things can send a rational, completely sane, balanced and wise elderly person completely bonkers. Totally loopy. And with both combined, well ,that's even worse. It sounds like what happened on Saturday (and just putting two and two together) lunchtime was that they were short of beds and wanted to discharge whichever elderly person had the most simple looking pathology and could walk and feed themselves. Although if I'd been on duty on that ward, I'd probably say that a patient who had been confused and refusing medication the night before was probably unlikely to be significantly cured the next morning, such that I could send her home. That didn't seem logical for them to want to discharge her but then it wouldn't surprise me - worse things have happened, so to speak......anyway, I'm glad you stuck to your guns and refused to let them discharge her.

I think it does sound as though she is septic still, given her mental state today. I'd also be curious to know how much fluids she has actually managed to drink in hospital? It can be notoriously difficult to get an accurate picture of this in elderly patients' wards - they are supposed to measure how much the jug gets emptied, but cups of water often get spilled, tossed in the sink, placed on the wrong tray by patients or staff, etc. Only reliable method is for someone to sit with her and write it all down. I suspect she is still dehydrated if she had refused medication the day before. Repeat blood tests on Monday or Tuesday might give an indication of whether the dehydration is improving.

Hope you and DH can both get as good a rest as possible. It's quite a strenuous week ahead with all the meetings, questions and assessments. But no, they mustn't discharge either of your parents in law until they are truly medically fit and both have been assessed by an old age psychiatry/psychogeriartric/elderly mental health professional first.

Earthymama · 19/03/2012 00:23

Just seen this thread, and want to say I feel so much empathy with you, all of you who are dealing with this, esp kbear.
I looked after my mother for many years before she passed and it made me crazy.
I was so tired and stressed and overwhelmed.
She was a love, funny and so, so kind but bloody awkward in her last years. She was so funny and heartbreaking when she got a urinary infection, she would say the wickedest things, so out of character.
But I cried so often trying to get her to eat or do as the doctors suggested.
She had COPD and used inhalers. Well I say used loosely, just put it in her mouth and hoped for the best.
Sorry I'm rambling, it's Mother's Day and I miss her though I wouldn't wish that she had lived longer.
I am an only child and had to deal with all the professionals. Be very nice but very firm and show the stress and strain you are under. It is so hard, and to be honest, harder with a MIL, you are amazing and very big hearted
Good luck tomorrow will think of you xx

Kbear · 18/03/2012 23:49

DH saw his mum and dad today - he said it was shocking. She has deteriorated and seems to be in a worse mental state than him. She doesn't know where she is. How has this happened in less than a week?

Tomorrow hopefully the psychiatric assessment - me and DH are both off work so will be going up there with one of the BILs.

I am also going to clean their flat. Needs a good scrub. She has been too stressed to do much lately and I want her to come back to it all shiny and she won't let me do it if she's there.

I hope they both come back to it.

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CuriousMama · 18/03/2012 11:11

Glad you've had the weekend without as much stress. I hope this all works out well for you, your family and MIL?