Please or to access all these features

Elderly parents

I despair, I wish I could just not care, but dear god give me strength

332 replies

Kbear · 14/03/2012 21:25

I can't even begin to explain but I am going to blow a gasket. I care for my elderly in laws. It's a minefield, and a nightmare, and stressful and how does life come to this.

I just got off the phone to MIL, she is rambling, she doesn't listen, I try to help, she talks over me, she's had a lovely afternoon while I was panicking at work because I phoned and she was calling out for FIL and saying oh god oh god, what shall I do? then the phone went dead. So I rang BIL, my DH was at work, I was at work, all miles away. SIL drove over there and there they were all happy as larry drinking tea and the phone's on the side off the hook. Tonight she doesn't even remember SIL going over there.

She forgot to give FIL his meds for four months. I just found out last week. Arranged all their meds again, she can't remember to give them. They're in a box marked for the days of the week, she gives Monday morning and Thursday morning instead of Monday morning and Monday evening.

Today they thought they'd go to the pub for lunch - FIL doesn't know his own name or where he lives, he can hardly walk but off they trundle down the garden to waiting cab, he falls over, almost takes her with him.

How in hell can I look after them? I have two jobs, two kids, one DH!

There's so much more, I am too exhausted to explain, DH is on nights so I;m not calling him to talk and stress him out even more.

I want to cry. No response necessary. Just getting it out there.

OP posts:
Kbear · 16/03/2012 07:55

headline news today.... www.bbc.co.uk/news/health-17389588

OP posts:
kipperandtiger · 16/03/2012 01:19

Hello KBear, came to your thread quite late but basically I think the A&E doctor has said all I was going to say. (If they hadn't been in hospital, I would have suggested an urgent GP appointment - or if they can't give you an urgent appointment to take them to hospital, who often have rapid access services for the elderly for this sort of thing.) Yes, your MIL herself does have symptoms of dementia or a physical disease masquerading as dementia, eg thyroid disease, etc. But if she is being admitted they will check all that, more than a 10 question screening questionnaire will achieve (of course, those tests can be misleading too - dementia patients can get everything right, and normal people can get a low score!)
If any consolation, a friend had this same problem - her confused mum kept saying she was fine. They used to visit her and find all her uneaten meals in the fridge - even ones they had prepared and put out on a plate for her. The only solution for them was to have her move in with them. It has helped her a lot, but to this day, she still insists she is fine, not senile, doesn't want to be "taken over", but asks you the same question ten minutes after you've just answered it and had a long discussion about it,.....then asks you again. (It hasn't helped my friend that much, although the family chip in to help, this month she is considering trying to get a carer in).
This is draining, yes. And yes, it can often make you want to scream. The irritable mood followed by the sweet mood is part of the process - I am afraid it will continue, you just have to be prepared for it to happen, and not take it personally (as hard as that is). And time to lock up her money and debit cards. You may want to discuss with your DH about the power of attorney stuff.

Cornflakemum · 15/03/2012 22:54

Would they consider gettign deliveries of frozen meals? My 80-year0old Dad has just started getting Wiltshire Farm Food meal deliveries (after many years of "I'm fine eating Morrison's crap" and he is a convert!

QuintessentialyHollow · 15/03/2012 22:49

Good luck. Hope the a&e doc manage to sort something out.

Your mum might feel better when she has had a few good nights of good sleep.

My dad was like a new person after mum was sectioned (it had to get that bad), and he did not have to keep himself awake to ensure she did not burn the house down during her nightly cooking efforts, etc. Amazing what some sleep can do.

But if she has dementia, dont be surprised if she wakes you up at 3 am in panic that her husband is missing.

ssd · 15/03/2012 22:44

good luck again kbear

one thought that might give you hope, your in laws are part of the generation that listen to doctors, if you can get this doctor on your side and talking to her about getting admitted she may listen to him, when she ignores/is rude to you

I talked to my mum about moving for years and was ignored, till one visit from her dr who had a 2 minute conversation with her and then she was all for moving

seriously, this is your chance

Kbear · 15/03/2012 22:27

I'm going to bed now - thanks for your words of support so far. Appreciated. :)

OP posts:
Kbear · 15/03/2012 22:26

I see light at the end of tunnel now and at least she will get some sleep I hope tonight, not disturbed by his hallucinations and bad dreams. If I can get her healthy again that will be one less worry. I need to step in with the meals more and not worry so much about hurting her feelings and not be put off by her insisting she can cope - she can't. Eating and drinking properly will be paramount.

He, I fear, is near the end of his road. I hope his end is at least dignified. I want to think of him as a proud Black Watch soldier, not the way he is now.

OP posts:
RandomMess · 15/03/2012 22:19

I really hope things progress quickly, well done for not giving up on them and the whole lack-of-social-care situation.

gingeroots · 15/03/2012 22:14

KBear I'm sure your mil does say all that .
You get to a point where you have to disagree and point out the 3am phone calls ,her age ,incidents she's forgotten things .
She'll bite your head off ,but it's a process .
Sorry ,I sound harsh and as tho it's simple .
I don't mean to ,your situation sounds grim and complex .

Kbear · 15/03/2012 21:29

Peter the A&E doc is a legend so far! I am envisaging him as a McDreamy. I'm sure he is!

OP posts:
Beamur · 15/03/2012 21:05

Sounds like your A&E doctor could be the start of something - fingers crossed for you.
My Nan had a fall recently and the hospital were quite thorough and made sure her home was assessed and she was properly recovered before they allowed her home.

Kbear · 15/03/2012 19:41

MIL is going to freak out if they say she needs to be admitted. She won't have anyone saying she can't manage. SHe's bitten my head off so many timeswhen I offer to help. "I'm not senile", "I'm not stupid, thank you very much, don't try to take over", "I've managed his meds for 30 years thank you very much".

Then she calls me at 3am because he is swearing at her and being abusive and she doesn't know what to do.

OP posts:
gingeroots · 15/03/2012 19:38

Absolutely - hope he's admitted so that you can try for an assesment .

It is a minefield and of course it would be better if they co operated regarding accepting help ...but sometimes it does come down to be very forceful .

Sure you don't need telling any of this and I'm also sure it's a 100 times more complicated than it sounds on here .

Kbear · 15/03/2012 19:37

So, the fabulous A&E doctor is horrified that they admitted him last week for a day and let him come home again. He is definitely admitting and wants to admit MIL as well and thinks she has dementia and def not capable of looking after him. He said they need a care package. I pray that this is the breakthrough we need to get them some proper help.

Been in tears to my mum. I can't get a grip. I think it's relief that finally someone is noticing how bad it is.

OP posts:
ssd · 15/03/2012 19:01

it is a minefield, kbear, you're spot on

took me literally years to get my mum sorted, almost lost the will to live myself and I;m not being flippant

my situation wasn't helped by mum and siblings who rarely visited telling me I "worry too much"

good luck xx

PS once he's in hospital he becomes their responsibility so now might be your chance to get something like a care package rushed through, have a word with his consultant when he gets one, get him to write to your local ss, above all get him assessed in hospital and dont let them fob you off with "he can live independantly at home"

cry if you have to, in front of the officials, I did

Kbear · 15/03/2012 18:51

He's in hospital... fell today outside the front door... I'm on hold to A&E now. Paramedics didn't take him this this morning but took this afternoon....

It's been going on for months and we've been managed Quint but now it's got worse suddenly. We live in the same place, a minute from them, we go every day, shop for them etc, but MIL is fiercely independent and you can't just barge in on someone's life can you? He's been ill for 30 years, had a bypass when he was 52 - he's now 86! Second bypass at 66. 8 heart attacks, parkinsons and now diabetes. He's had an ongoing urine infection for months which they can't seem to clear up and that has altered his mental state dramatically.

Trust me, we noticed and have been caring for them. Now they need intervention from outside and it's a minefield trying to get it.

OP posts:
ssd · 15/03/2012 18:33

trouble is, as we know, if elderly person says they are fine then they are taken at their word by the social services, gp, hospital, anyone else

if they turn carers away we can do nothing

its ridiculous and infuriating in equal measure

gingeroots · 15/03/2012 18:10

Same here Quintessential about not letting my mother deal with Gps ,nurses ,etc .
She misunderstands ,gets hold of wrong end of stick ,invents things ,doesn't mention others ,is rude and uncooperative .
Though no help to OP - not as if she can clone herself and be in 4 places at once .
You could try leaving notes for nurse ,asking mil to ask them to phone you when they visit pil ?/? But probably wouldn't work .
I wonder if mil did actually refuse a blood test or just not keen ,denied knowledge ?
Good luck Kbear .

ssd · 15/03/2012 18:05

Kbear, jesus what a situation, am sorry Sad

I remember you from your holiday to Florida years ago!

anyway all I can say is keep pestering the social services at the council, also ask if they have an older peoples team

contact ageuk, see if they can help

bombard the gp, if you can

I know how hard it is when you're at work trying to deal with this all, you sound at the end of your tether, hugs to you, I've been there Sad

impossible to get help when the oldies tell everyone they are "fine" and the assessor gets out of there as quick as they can

good luck, all you can do is keep trying to get them help that they can accept,

in fact its impossible all round, whilst not losing the plot yourself

just use this thread to vent away, you need to get it off your chest

QuintessentialyHollow · 15/03/2012 16:08

I found it was impossible to do let my mum handle health care professionals on her own. I needed to be there to talk her around and persuade her.

Not what you want to hear though. Sorry.

How did it become this bad without anybody doing anything about it before? Dementia usually develops quite slowly and over time.

DorisIsWaiting · 15/03/2012 13:35

Thing is with the nurse if MIL refused there is very little nurse can do without the risk of being charged with assault, and you only have MIL version of events...

Beamur · 15/03/2012 13:27

I'm looking into getting power of attourney for my Mum - have you any authority where your PIL are concerned?

Have a good vent on here, it might not solve the problem, but it might save your colleagues ears. Smile
It really doesn't sound as if your FIL is well enough to be looked after in the home without some extra support, your MIL will crack from the strain if this continues.

gingeroots · 15/03/2012 11:44

So sorry KBear - I'm like that with putting it into words ,keep writing long emails to sil and then thinking ,I can't send that .

Nurse was a bit of a major fail then wasn't she ?
Surely she arrives with instructions from GP ?
She has to have instructions/formal request to take bloods ,not rely on client to remind her ?
Phone District Nursing Team /email them ....request another visit ,explain situation ,thinly veiled hints of complaining ?

What can I say - is there a MN emoticon for scream ?

CMOTDibbler · 15/03/2012 10:55

Huge sympathies Kbear. Just about to try and get hold of my parents GP myself

Kbear · 15/03/2012 09:56

so 5 am phone call this morning - she's calling the paramedics. OK I say, but my DH on nights and still at work and I'm at home with the children so can't go there. Called BIL to deal. Called MIL and spoke to the paramedics who were the same ones who came out to him last Thursday when he was admitted to hosp for the day then sent home.

District nurse coming between 8-9 to take blood from HER. She thinks it's for him. So remind her again. "Don't eat or drink, nurse coming to take blood from you". ring her at 9, yes, the nurse has been, taken urine sample from HIM, no blood test for HER. I'm at work in London and about to screaaaaaaaaaaam.

This is impossible.

I'm just ranting, I need to word it. I can't keep ranting to colleague.

OP posts:
Swipe left for the next trending thread