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Elderly parents

I despair, I wish I could just not care, but dear god give me strength

332 replies

Kbear · 14/03/2012 21:25

I can't even begin to explain but I am going to blow a gasket. I care for my elderly in laws. It's a minefield, and a nightmare, and stressful and how does life come to this.

I just got off the phone to MIL, she is rambling, she doesn't listen, I try to help, she talks over me, she's had a lovely afternoon while I was panicking at work because I phoned and she was calling out for FIL and saying oh god oh god, what shall I do? then the phone went dead. So I rang BIL, my DH was at work, I was at work, all miles away. SIL drove over there and there they were all happy as larry drinking tea and the phone's on the side off the hook. Tonight she doesn't even remember SIL going over there.

She forgot to give FIL his meds for four months. I just found out last week. Arranged all their meds again, she can't remember to give them. They're in a box marked for the days of the week, she gives Monday morning and Thursday morning instead of Monday morning and Monday evening.

Today they thought they'd go to the pub for lunch - FIL doesn't know his own name or where he lives, he can hardly walk but off they trundle down the garden to waiting cab, he falls over, almost takes her with him.

How in hell can I look after them? I have two jobs, two kids, one DH!

There's so much more, I am too exhausted to explain, DH is on nights so I;m not calling him to talk and stress him out even more.

I want to cry. No response necessary. Just getting it out there.

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gingeroots · 16/03/2012 20:18

KBear - so sorry ,horrible for you .

My mum went through a phase like that - shouting and swearing in hospital ,accusing them of filming her and begging me to take her home .

She was dehydrated and her pottasium and sodium levels were completely wrong .

I'm only saying this to underline the fact that it's the illness making her like this .
But I know you know this .
Be prepared for crap hospital care at the weekend ,things will improve on Monday .

saggarmakersbottomknocker · 16/03/2012 20:09

KBear. Much sympathy; it sounds very hard.

Someone down thread said similar but I think you need to be really hard with hospital when it comes to them being discharged. Do not have them home unless the care is in place and also have you asked for a carers assessment for yourselves? You have a legal right to an assessment of your own needs.

RandomMess · 16/03/2012 20:03
Sad
Kbear · 16/03/2012 20:02

Thank you.

DH just called me from pub, he's gone outside to call me. He said isn't it just so sad. We are strong together, I'm his rock and he is mine. It will be ok. I hope fate intervenes and takes his Dad before he loses any more of his dignity. I want to remember the old man as he was, not like I saw him today.

His brother rang, he's been up there and apparently MIL said she is going to get an Army together and come back and kill everyone.

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RandomMess · 16/03/2012 20:01

Sounds like a horrible visit, she is clearly very unwell. Try to remember you are being kind and loving and she just can't understand that anymore. I really hope that everyone pulls their fingers out and sorts out decent care for them.

kipperandtiger · 16/03/2012 19:58

Kbear - hope you stay strong and have a nice treat for yourself tonight, whether it's a movie or a nice long soak in the bath with scented candles.

You are probably aware of this but I will just reiterate that her reactions on the ward have no bearing on the good you have done - better that she says she hates but you have kept her safe, than for you to have left them alone and have something awful happen to them both. I think it is safe to say that they are both still alive today (like the Highlander analogy!) because you've played a major part in ensuring their wellbeing. Your conscience is clear, you've done the right thing.

It is true that sometimes the main carer gets the venom while visitors get hugs. It's because she knows you will always be there for her, so she lets her guard down (and sometimes the self control) in front of you, because she trusts you. She may say she doesn't, but of course she does, otherwise she won't be ringing you. Dubious honour, my mum used to say, when caring for elderly relatives. But it's true. She has to be nice to other family members and visitors that she doesn't see often because to her they are a novelty - they don't see her as often - and seeing them is a social call. FWIW, I think the nurses and doctors will be very sympathetic towards you, they've seen it all before (and worse).

That said, I hope you make the most of the time they are in hospital to recharge your batteries and rest your mind. I hope your DH is supporting you a lot at this time. Wishing you a lovely day on Sunday - maybe don't go to the hospital that day, just let you DH go on his own perhaps, or maybe they will have other visitors.

WhatWouldFreddieDo · 16/03/2012 19:55

Kbear, so sorry - have a big Wine.

And so true about the main carer/contact getting all the abuse. It's so hard when they're not in their right minds. My grandfather got very abusive at one stage of alzheimers and we just had to remember him before when he was the sweetest kindest person you could meet Sad

Kbear · 16/03/2012 19:52

I have my mum, my rock, to support me/us as well as good friends who let me rant away and get it off my chest. I'm ok. I am going to paint walls tomorrow in DS's room. Bright yellow and all sunny! Painting will soothe me I'm sure.

Thank you all for bothering to post with your support and wise words. Means alot.

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Bohica · 16/03/2012 19:48

Oh Kbear, I have no experience or advice to share but I do really feel for you and your DH. Lets hope the hospital help with a care package now.

googietheegg · 16/03/2012 19:39

Kbear I have no advice but I just want to say how lovely and caring you sound, and what an amazing job you're doing in what must be a very stressful situation. Take care to look after yourself too or everything will collapse.

weekendworrier · 16/03/2012 19:38

It all sounds exhausting. I expect you are emotionally near the end of your tether.
At least they are in the right place and hopefully a care package can be put in for them.
It's good you don't take it all personally. I think when people have a spiteful/grumpy side to them when they are younger, they don't turn into cuddly oldies when they get older unfortunately. Often, their inhibitions come down and they do show that horrible side of themselves more.
Hang on in there.

Kbear · 16/03/2012 19:37

she is in a bad way mentally - I have seen it before in other elderly family members - but you can't say anything to her, she twists everything you say. DH's brothers are going to visit tonight. God help them. Or maybe it's only the people that actually look after them on a daily basis and actually give a toss that get the venom from her. The ones that sail in and never do a damn thing will probably get a big hug.

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CMOTDibbler · 16/03/2012 19:30

Have a great big hug. You know its absolutely its the right place for both of them, and in a terrible way, you want her to be as bad as possible in hospital so that she is accurately assessed. And its not her talking and saying awful things, its whatever is happening in her brain. It sounds like she is really disorientated atm

Kbear · 16/03/2012 19:22

yet here I am crying again over the hopelessness of the situation

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Kbear · 16/03/2012 19:21

and I know not to take it personally, she has been known to be a bit spiteful in the past and never held back from speaking her mind and to hell with the consequences. But when you've tried so hard to get help for them and she says to us she'll never forgive us, well, it takes a lot of strength not walk away and say stuff you then, get on with it.

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Kbear · 16/03/2012 19:19

She said that I put her in there when in fact SHE called the ambulance yesterday because he fell out the front door - turns out an hour earlier he had fallen indoors - we went to their flat today and there are loads of smashed ornaments. She still thought he was ok to walk round the village even after that.

When DH said "Mum, you called the ambulance yourself", she said "yes but that was last week, we've been here a week, I didn't come here today". It was ramble that made no sense.

DH gone for a pint tonight - kids are out. I am glad of the solitude. So upset.

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Kbear · 16/03/2012 19:17

Went to the hosp today - they're not letting either of them come out. He's not in a fit state mentally or physically and I think he may not be with us much longer (although we said that 25 years ago... he is like Highlander and is in fact immortal)....

She attacked us verbally (me and DH) as soon as we arrived. She said "you've put us in here, it's not the first time, you've done it again", "I'll never forgive the two of you for what you've done", "YOU (pointing at me), YOU'VE been spreading it about".

It was horrific - DH had to leave the room. She was threatening to call the police. She has no idea she is in fact a patient and has been admitted - she honestly thinks she can go home. She thinks they gave her a bed for the night so she could stay with him. They're on same ward at the moment.

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CMOTDibbler · 16/03/2012 09:38

I'd def ask to speak to the Dr responsible for your dad and make sure they are totally aware of the state of play. Ask that you be informed of any care changes, and register your concerns about their home situation.
My parents will sit and say complete untruths to the Dr - like mums last admission 'do you ever leak wee ?' 'oh no' - later Dad says to me 'of course shes had to wear a pad night and day for 5 years', and he's supposed to be the sane one !
I felt her emergency admission was really a turning point in getting them on a better track - though am still waiting for her appointment with the cognitive impairment service to turn up

starfishmummy · 16/03/2012 09:13

Kbear I was just about to say that, harsh as it sounds, you could try telling the staff at the hospital that he cannot go home unless they sort out some care: they have a legal duty (I think) to make sure that there is care in place if needed. I had to do this with my Dad, and I felt awful, but it needed to be done.

Hospital may have a team who will arrange interim care for when he is discharged; he was entitled to 6 weeks (?) free interim care, suring which time SS visited at home to arrange ongoing care (which he would have needed to pay for). They are supposed to take into account the needs of the wider family and not just assume that they will look after the elderly people

If they don't have it already, you should consider applying for them bothe to claim attendance allowance, and maybe someone in the family needs to get a power of attorney

QuintessentialyHollow · 16/03/2012 08:35

I would not recommend moving them in with you. Not if you have young children.

QuintessentialyHollow · 16/03/2012 08:33

When talking to them, dont focus on the inconvenience to you, but health and safety of them and others.

The thing that health and safety professionals DONT want, is vulnerable elderly wandering out and about at night, causing possible accidents. And incorrect medication, and to a degree malnutrition.

They are not able to look after themselves.
They have no concept of time.
Night and day have little meaning.
You worry that they will forget food on the cooker and cause a fire.

You worry that medication is incorrect, either because they think they have taken it already, dont understand they need it, or dont remember they have taken it and take it again, so they either under or over medicate.

You worry that fils hallucinations are going to cause harm, and that he start wondering off outside, possibly causing or having an accident in the night.

etc.

Good luck

3littlefrogs · 16/03/2012 08:24

kbear - power of attorney is vital. Without that you can't even begin to sort the other problems out.

I speak from long and bitter experience.

You need to get in touch with AGE uk (Used to be AGE concern and Help the aged I think). They will help you through all the legal stuff.

My mother had dementia, I am caring for my inlaws who are very similar to yours. It is obvious that your MIL has dementia, so you need to have the legal right to manage her affairs. It will be easier for your DH to get this I think. Once you have that you can deal with the bank cards, bank details etc and monitor their bank accounts online.

ssd · 16/03/2012 08:11

that article is so depressing, what they're saying is that even if your elderly relatives get homecare sometimes its so bad you still need to check upon them everyday to backup the care, makes you wonder what the point

my mum had lovely ladies coming in to her, bar one

the council have recently changed it al land now she has no idea who is turning up

but its better than nothing, I know that

stress the bad points today Kbear,, make it something they can't ignore or get away with one visit a day and stress that your MIL thinks everything is fine, also tell them what its doing to you and your family

hugs again, its an awful time, but I think you might get somewhere with the hospitals help if you can summon the energy to fight for it

Kbear · 16/03/2012 08:00

ssd - yes, they do listen to doctors!! very true

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Kbear · 16/03/2012 08:00

your posts since last night have all helped so much - I have carers service visiting me today so I am hopeful of progress. The A&E doc might just have saved us all. I think most of her problem is sleep depravation, which as anyone with a newborn will tell you is a form of madness.

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