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Elderly parents

Has anyone been successful in obtaining NHS funded 'continuing care' for their elderly parent?

29 replies

oliviaaah · 13/11/2011 14:45

We have just been turned down and are wondering how to proceed.

OP posts:
lookoveryourshoulder · 13/11/2011 19:49

Have you had a look at the paperwork the NHS have sent you to see where your relative has scored in the various domains - do they have any critical or severe scorings etc ect?

There are a couple of online forums where you may be able to get help.. trying Googling "forum free nursing home care"..

From my own research and experience of the subject you will probably be for a long slog.... we started this process nearly 4/5 years ago and still have not managed to get funding..

Good Luck.

catsareevil · 13/11/2011 15:09

There are specific criteria needed to get continuing care, there is more information here

Do you feel that your parent meets the criteria?

pooka · 13/11/2011 14:58

On the other hand, my Step grandmother has NHS continuing care. She hasn't got dementia but has a specific medical need (not sure what and Step mother on holiday so can't ask her - is psychological though, rather than physiological). Has been in an NHS home for nearly 4 years. Is in early 80s.

pooka · 13/11/2011 14:56

I think you can appeal. But the cards are stacked against the families IMO.

OUr experience was this:

my DGM (Mother's mother) had dementia. GOt steadily worse over 5 years. Was cared for at home, but prone to repeated UTIs and so on.

Had massive UTI which sent her into hospital. At the time, was completely incoherent. Stopped eating and then stopped drinking. Was dying (she was 93). Immobile. No drip.

At the point where she had not eaten for 10 days and had had nothing to drink for 4, the hospital declared that she should be moved into a care home (forgotten the acronym, but a dementia care home). OUr take on it was that she was dying and had ongoing medical needs. Social services and NHS had a spat - to-ing and fro-ing. She lost the continuing care case because according to them she didn't need CC. At this point (a Thursday) we were told by SS to organise a care home for her so she could be transferred next day (this is wrong - spoke to Age Concern, and the SS should have been at least assisting us, but preferably sourcing such care).

We appealed. She died on the Friday. At which point she had been well over a week without fluid and much longer without food, and at the time she was having her case refused, she was entering into the final stages of dying - breathing changing, confusion, so on). She was out of it, but distressed, and the fantastic doc gave her morphine.

She won the appeal on the Monday after she died.

Bitter? Yes - I think that the care of our elderly is shocking. What my mother went through in the last week was bad enough, watching her die, having had 5 years of the dementia, but the money wrangling by the NHS bureaucrats and SS just made everything worse.

The nurses and doctors were fantastic and every experience I have had with the NHS and my young children has been amazing. But what happened to my Granny was just not good enough and was downright cruel given her age and her frailty.