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Endometriosis talk

4 replies

Banoffeepie27 · 09/08/2026 12:42

I’m 31, ttc for baby no2.
For context, I had missed miscarriage, healthy baby, miscarriage.
My mum had a full hysterectomy at 37 due to severe endometriosis.

I recently had an ultrasound which the sonographer said I had features of adhesions/frozen pelvis. My uterus did not move and was not in the usual position, it was being held down in an abnormal way. Unfortunately she found my ovaries difficult to visualise. But I did get pregnant in May, although it did end in miscarriage, I’m taking it as a good sign that my ovaries/tubes are at least working on one side.

Im currently waiting for the doctor to review this and come back to me, but I’ve been really upset since Friday when I had the scan. I’m so concerned that I’m going the same way my mum did and I’ll be unable to have children.

does anyone have experience with this?

I have quite heavy periods, but to be honest they have always been this way since I was a teen.

has anyone had a similar result from an ultrasound? What happened?

OP posts:
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Banoffeepie27 · 09/08/2026 18:12

BobblyJumperSleeve · 09/08/2026 17:50

In that case, I would advise you to be selective about which consultant you are seen by - when you get to that point. Make sure they have experience with endometriosis.

A GP likely won't be able to diagnose you. If they are dismissive, see another one. It can be exhausting but it's important to seek treatment that will give you some relief.

I have severe endometriosis and adenomyosis - I have seen some useless and insulting consultants over the years and now have a fantastic one. He is doing everything he can to preserve my fertility, although I'm done with babies now.

Through IVF I have 3 children, so endometriosis does not necessarily mean you won't have a baby.

Good luck 💚

Thank you!
I appreciate the advice.

x

OP posts:
BobblyJumperSleeve · 09/08/2026 17:50

Banoffeepie27 · 09/08/2026 17:26

Thank you for your reply!

I’m actually still waiting for my doctor to ring me with the official results, but I can only assume I do have endometriosis at this point. So I would assume I’m at the very beginning of the journey!

In that case, I would advise you to be selective about which consultant you are seen by - when you get to that point. Make sure they have experience with endometriosis.

A GP likely won't be able to diagnose you. If they are dismissive, see another one. It can be exhausting but it's important to seek treatment that will give you some relief.

I have severe endometriosis and adenomyosis - I have seen some useless and insulting consultants over the years and now have a fantastic one. He is doing everything he can to preserve my fertility, although I'm done with babies now.

Through IVF I have 3 children, so endometriosis does not necessarily mean you won't have a baby.

Good luck 💚

Banoffeepie27 · 09/08/2026 17:26

BobblyJumperSleeve · 09/08/2026 16:49

I had a frozen pelvis, discovered before we tried for baby number 2. I had surgery to resolve it before then going through IVF. I sadly miscarried the next baby but later had twins (also IVF). The IVF had nothing to do with my frozen pelvis, I've just never conceived naturally.

Until I had the surgery I hadn't realised how much physical discomfort it had been causing, so I got a lot of relief from it being sorted out. I had to go with a private consultant as the NHS waiting list was years long and I fortunately have health insurance through work.

Have you been given any options for next steps?

Thank you for your reply!

I’m actually still waiting for my doctor to ring me with the official results, but I can only assume I do have endometriosis at this point. So I would assume I’m at the very beginning of the journey!

OP posts:
BobblyJumperSleeve · 09/08/2026 16:49

I had a frozen pelvis, discovered before we tried for baby number 2. I had surgery to resolve it before then going through IVF. I sadly miscarried the next baby but later had twins (also IVF). The IVF had nothing to do with my frozen pelvis, I've just never conceived naturally.

Until I had the surgery I hadn't realised how much physical discomfort it had been causing, so I got a lot of relief from it being sorted out. I had to go with a private consultant as the NHS waiting list was years long and I fortunately have health insurance through work.

Have you been given any options for next steps?

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