Immune/NK cells pred thread #34

OH my love @Meg310532 this is absolutley heartbreaking, i bet you are going through all the scenarios in your head about what could have been done differently. It just will never make sense. Did they just assume the swelling was normal pregnancy symptoms? Did you have to have a C-section? So much trauma I can't even comprehend. I have no words of comfort, just know she was perfect and you created her and you did EVERYTHING you could possibly do to keep her alive. I said to my husband last night if this happened to us - which is so hard to even imagine your pain, i am not sure if i could try and carry again - and surrogacy would be my only option. I know you just need to focus on your recovery and grieving process. I will light a candle tonight for Hallie :(

@Jecca88 yes hun I’m home now recovering. It’s so mental as I was in the hospital the day before as I had swelling of hands and feet and they checked her heart beat and my blood pressure etc and sent me home. Then 4am I woke up thinking I was going into early labour as I had such cramps and I went to hospital and knew straight away she had no heart beat I could tell from their faces. Then only when they took my blood they realised how much I was bleeding internally it went into panic stations and I was rushed for surgery. I think the hosptial said the funeral will be about 20th sep! Ish ! I am really starting to feel like this isn’t going to happen for me now. Three miscarriages and a stillborn surely I can’t go through anymore !!!! X

@Meg310532 Glad Dr Silva gave some comfort. I am so sorry you had to go through all that trauma and near death for yourself, so unbelievably scary and all you're trying to do is have a baby. I have been thinking of you since i read your message and have been so upset for you my love. I just cannot believe the universe would throw this at you. I have read that Plancental abruption is quite rare. Have you had a hoppital debrief? Are you at home recovering? I can't quite believe i have to ask but have you had the funeral? :(

Thanks so much girls ! How are all of your journeys going ?? I called CRP clinic and spoke to Dr Silva and found some comfort in that! Xxx

@Meg310532 I am just so very, very sorry p! This is the most awful news and, as others have said, there are no words to express. Hallie is a beautiful baby and will always be loved by you and your family. I am shedding tears for you all. Once again I question what sense there is in life. X

@Meg310532 I can’t find the words, im am soo devastated to read this, I never thought this would happen to you, How can this world be so fucking cruel. Hallie looks so precious and perfect, it’s just so unfair. I am here if you need anything and I know we have never met but I have always loved speaking with you and know you always rooted for me too. Heartbroken 💔

Oh @Meg310532 im just so so sorry. There are no words to even start. You, your family and your little one I’m just so so sorry xxx

@Meg310532 There are just no words, life is so unbelievably cruel. I just want to give you the biggest hug in the whole world and to squeeze the pain away. Your little girl Hallie is absolutely gorgeous and she will be a treasure in your heart forever. Take time to grieve and we'll be here to support you when you feel ready. You've been through so much, you are so strong. Sending your family so much love 💗

This is the most awful news, I genuinely have no words. I can't begin to understand what you must be going through, but wanted you to know that my heart goes out to you and I'm sending you so much love. Nobody deserves to go through what you have.

Hi girls I can’t believe I am having to give this update it’s the most horrendous and unfair world that we live in. I lost my beautiful girl Hallie who was born sleeping after I suffered a near death placenta abruption at 35 weeks and 2 days. She was absolutely perfect In every single way and I just don’t know how I’m supposed to move through life anymore. 3 miscarriages and a still born how is this fair girls ??? How can I go through all this again!

@Hopeandfaith1990 I’m so sorry sweet it just sucks and isn’t fair. Been thinking of you xxx

@Hopeandfaith1990 I am so so sorry, I'm so devastated, I was crossing everything so tightly for you. Allow yourself to be sad and angry, let it all out and then think to the future. Sending you the biggest hugs in the world 💕

@Hopeandfaith1990 ahh fair enough my love and i too hope you can have another transfer. Try and relax for a few days and enjoy some wine and naughty food. You have such resilience remember that, no1 should have to endure what we do.

@Hopeandfaith1990 So sorry to hear this devastating news, and hope you are getting good support from the clinic and everyone else around you. Wishing you all the best with the remaining two embryos.

@Objectiontime That's great that the pred has helped so much, and I hope you can stay on it as long as you need to. I had been thinking of you...

Oh my love @Hopeandfaith1990 i am so sorry :( thinking of you.

So very sorry to hear this, just rubbish news. Sending you the biggest virtual hug xx

So sorry @Hopeandfaith1990 . It is just so painful. It’s understandable you are devastated. Hope you can give yourself care and all the time you need to process ❤️

Quick update from me (been away so will try to catch up with everything later).
just got results back from my blood assay and my immune system is still flared. I’m down to 5mg Pred today at 16 weeks but it looks like I am going to have to stay on the Pred for some time yet. Doc said it was a good job I had the test re-done. Bit worried tbh. Anyone else had to take it for longer?

Just had a call from the embryologist that another 7 have made it today at day 6. which is insane. So we have decided to pay for 10 to be biopsied as its £450 a pop. Hope i have made the right decision to not test all as it's just so much money.

@Hopeandfaith1990 they say it is about 2 weeks, so need to book back in with CRP and start on Hydroxy again before thinking about a transfer in October, providing that some come back genetically normal. Are you taking Steroids? just remember they mask most pregnancy symptoms. Also if your on progesterone too - can be confusing whats PMS and whats pregnancy.

@Holdinghope2025 where are you doing your IVF? would you go PGTA with this egg retrieval? are you also on steroids? it might make a difference with the hydroxy build up for the next FET.

Thank you @Jecca88 . I’m on the gynae waiting list on nhs just now . I need a lap I know that however I want to do another retrieval first . Hopefully by the time we get past our next retrieval I’ll be near top of list for a lap on nhs. We shall see. I just started hydroxy 400mg 2 weeks ago so 6 weeks to go until we can start prep for another fet. There’s part of me that is glad to be on a break. We have had 2 fets this year already so I feel we need it. And yes I had intralipids before my last fet. Will have them again next time .. who knows if they made any difference to me but sadly no change to outcome.

I see you’re pgta testing , really hope this route is helpful for you and that you’re doing ok in the wait to hear about them . I wish I had tested our embryos to begin with, but you never know the journey you’ll end up on.

@Hopeandfaith1990 thinking of you. It is so hard not to test as either way it totally shifts the reality you are in. Go with what you need right now and nothing else ❤️