Immune/NK cells pred thread #34

@AmzTTC Thank you, I'll start researching 🧐

@Deerdancer34it was via NHS but they did ask me if I had any living children which is why I was eligible so I’m not sure how that would be for your situation. I did look into having it done in Istanbul at Acibadem clinic which apparently really good and they quoted me the following:

Ivf Procedure 3.000,00 USD
Hsg 185,00 USD
Preimplantation Genetic Testing Per Sperm 550,00 USD
Biopsy for Embrio 450,00 USD
Pre-Operational Tests 1,500 USD

I have heard Greece are a lot cheaper though but I didn’t look too much into it.

CRP was also an option but there were a lot of additional amount on top of the IVF amount as it said it didn’t include consultations and medicines

@AmzTTC Amazing news!!! Super happy for you!
Were you going to go through CRP or NHS for IVF if you had continued?

@Hopeandfaith1990@Deerdancer34 saw a heartbeat today at the scan! I can finally breathe. Thank you but so much for your advice and reassurance ❤️xx

@Deerdancer34oh yes that’s the one I mean!
oh I’m so sorry that must be so frustrating- that feeling when things looked okay some months and there was a negative test is a feeling I wouldn’t wish on anyone. Sending loads of love!

so I was due to start IVF so the only thing I was on was the usual prenatals, hydroxy and aspirin. But as soon as I realised I was pregnant I started progesterone and pred again.

Thank you so much, I’ve got my scan at 5pm as my husbands working so just counting down the time…!

@AmzTTC I have the scan before ovulation so I know when I need to trigger - is that the one you mean? Dr E says every time that my lining is good and I have a good response to the letrozole - so its quite annoying its not worked. I'm thinking it must be egg quality perhaps... That's interesting about coming off the letrozole! I think my plan may be to do 1 more SO, a few natural cycles and then IVF. So maybe coming off the drugs may help. Are you on Hydroxy? This pregnancy was a natural cycle?

Hope your scan was ok today 😘 xx

Sorry I meant due to start Stims

@Deerdancer34i did reply early but for some reason its not on the thread anymore so i apologise if you’ve seen the last one!

yes it’s so hard - i always want the day to go fast just so i can get to the next one! Im constantly trying to watch funny shows to get my mind off things.

regarding superovulation are you having the monthly ovulation scans? Although they’re super super expensive- they really helped me understand why I wasn’t getting pregnant each month as I found out I had a thin lining.. I also found out that oddly the higher the dose of letrozole, the less follicles I was producing so the month I came off letrozole was the month I got pregnant. Of course every body is different but have you maybe considered trying another form of SO?

I was due to start stoma a week before my BFP, so although it’s not the same thing, I got advice from someone who had gone through IVF to try and look forward to it and honestly it did help a lot, when I went to my injection lesson and follicle tracking appointments I tried to romanticise it and enjoy it as much as I could. Although it’s so much easier said than done- I hope you get your BFP soon!!

@Hopeandfaith1990thank you so much- I have my scan tomrorow and will update you all, I’m hoping it’s all positive- I will try the affirmations thank you!!

@Hopeandfaith1990 I think just see how you feel closer to the time, I was surprised how flexible the hospital was actually! I kept changing my mind up to last minute! Do you have school this week? 🥵
Thank you, think I was in disbelief today that it could be another negative 😅 I'm starting to feel a bit more comfortable with the idea of IVF and your stories have really reassured me.
Lots of love all 💓

@AmzTTC Its so bloody hard and no one understands unless they've been through it. And its amazing where your brain can go isn't it, the days feel very long...Have good podcasts etc to take your mind away from it all sometimes. I'm very glad you're getting a scan, do update us!
So because I conceived my daughter through Superovulation (after 4 losses), I decided I would go straight with Superovulation to conceive a 2nd baby but I have just done my 11th cycle 😩 I asked my GP about IVF and she seems to think I could get it through NHS but I've read everywhere if you have a live child then you can't, so not sure about that. I'm thinking it might have to be through CRP, I know many go abroad but I think that might be difficult with my daughter but not sure.
Seriously I thought I would know what's what this time round, didn't think there would be more obstacles!

@Hopeandfaith1990thank you so much this gives me so much hope, my family all keep telling me not to get so many scans but I just feel like nobody understand unless you’ve been through it! I know pred makes symptoms but I didn’t realise it completely masks them. I’ve booked a scan for tomrorow so I’m praying everything will be okay… im so happy for you reaching 35 weeks, just over a month and you’ll meet your miracle baby💕

@Deerdancer34thank you so much for this. It’s so true, sometimes I forget that it’s more natural for the body to want to stay pregnan than not but it’s so hard. I’m so sorry about your negative. I’ve been following the thread but not completely, would you do IVF under CRP or NHS? & have you tried super ovulation? Sorry if you’ve already said it!

@AmzTTC Its completely normal what you're experiencing. I didn't really have any symptoms in my First Trimester and really it is just endurance to get through it. I always tried to have the mantra that I am pregnant now, I will deal with anything if and when it comes because honestly my brain would just spiral and the panic would get too much. Be kind to yourself and don't worry about having extra scans etc, if it eases the anxiety then do them. Gentle congratulations and one day at a time, we are rooting for you!

I had another negative, so going to seriously consider IVF now...

I'm absolutely thrilled for you! Rio is a lovely name - what a warrior! Hope you have lots of support around you for the newborn phase, and are making a good recovery from your infection. You have given us all so much inspiration ❤️

Hi all,

i just wanted to ask for some advice to anyone who might be able to help. I’m currently 9 weeks pregnant under Dr Shehatas protocol- the past 2 weeks I’ve been nauseous, in bed and I’ve vomitted a few times too- there’s been 1/2 days I’ve had less symptoms but they were still there.

im 9w 2d but the past 3 days I’ve had absolutely nothing - like the slight nausea here and there, my breasts still hurt but even that’s so up and down. I know prednisolone masks symptoms but I’m so terrified that somethings gone wrong again. I’m on anti cramping medication and progesterone too..

has anyone else experienced this? I’m only 9w but I’ve had 5 scans already because I just can’t take the anxiety but I’m scared I’m taking too many scans now!

Sorry if this triggers anyone PAL has got me overthinking everything and I’m so worried now

@Jecca88 Cannot tell you how delighted I am for you! Your baby boy is here 💙 😍 Soak up every precious minute - know its ok to feel lots of ups and downs. Newborn life is hard and when you've been through such a journey, it adds more to it all. Sending you so much love!

@Hopeandfaith1990 Good luck with the coming heatwave!

Huge congratulations so so so happy for you. I love love love hearing successful and healthy pregnancies after loss💙. Enjoy your rainbow- you deserve it with all you’ve gone through. I’ve been silently reading and rooting for you

you give us all hope!x

Thanks my love, I would send a picture but don’t want to be triggering to anyone.
As much as it was scary - being in hospital was amazing the midwives are incredible - we got so much support and tips. I feel like it set us up for success. So as much as it was sleep deprivation - I defo have fond memories and lots of laughter - mainly through delirium. He is such a brave strong lad too - having canulars and multiple blood tests a day. Made him super resilient. X

Hey ladies, I am pleased to report my baby boy was born on Monday 8th June. Baby Rio came into the world via emergency c section after 52 hours of labour - basically got an infection and his heart rate was going crazy and he flipped so back to back and just safest option was c section. There was a point I thought we were gonna lose him. We are back home now after a week in hospital after he had to be on antibiotics. He is such a good baby and can’t stop staring at him. I still can’t quite believe we have got here. 5 years and 7 miscarriages and - £££ of pounds and tears combined with a concoction of drugs. Sending so much love to everyone on this journey and really hope we can all get there. Xxx

Wow, @Hopeandfaith1990, 32.5 weeks is incredible, and it sounds like the therapy is really productive and doing a lot for you!

@hazeleyesJ Yes, I know of people in the Reproductive Immunology FB group who said they were only on hydroxy rather than pred, and had a successful result.

@Deerdancer34 Rooting for you with Cycle 11 and the next steps in your journey!

@Jecca88 Sending you the very best vibes for the induction tomorrow! Will be thinking of you! The calming music should be helpful!

I am 43 today and my ERA and uterine microbiome results came back on Tuesday. Apparently the only thing they found was that I have low lactobacillus levels, so I need to take probiotics before my FET, which will be in July, they say!