Immune/NK cells pred thread #34

@Jecca88 Honestly don't worry about the food poisoning, which I know is impossible with the way our brains work! When is your next scan? All I can say is keep taking it day by day and take strength from that lovely 10 week scan you had 💖

@Hopeandfaith1990 Keep going!

Hope you're ok @TammyinCork and @Gems2811

I've been finding the pred really hard the last couple of days, hate the way it makes me feel, all jittery and then the wondering will it be positive, will it be negative - its like a merry-go-round in my head. Anyway I got a negative this morning 😭 I find it so triggering still...Was hoping for some Christmas magic!

Thank you so much, and yes, it was someone who was a mentor to me in my working life.

I think the pred is to keep thyroid antibodies down as any future pregnancy progresses, but I really don't think there is a point to the intralipids at all, and as I am allergic to peanut and intolerant to soya, I won't be going there (I had told Dr Edge this, but she said it was safe due to the difference between protein and fats - still too big a risk if injected into one's veins, I think).

Thanks so much for the advice from your Greek clinic - yes, CRP seemed totally fine with me going abroad (and because of the waiting lists here in Ireland, I didn't have much choice!).

Hey loves,

How are you getting on @Hopeandfaith1990 - do you have anymore blood tests booked? is your first scan booked in? Love these affirmations. Need to remember you are doing everything you can.

@Deerdancer34 you're sooo sweet, sending big hugs. How is your tww? or 10 days?

Thanks @TammyinCork - for my IVF - i too had Fragmin added, i think its to help aid implantation. But when I got pregnant accidently they removed the fragmin from my plan.

Totally get why you have protected yourself again Dr Shahata @Gems2811 - he is rather abrupt, i love Dr Edge, i feel so safe with her and like she really cares and listens and has so much time. I wonder if you would request a consultation with her?

Had food poisioning this week - only lasted less than 24 hours, but wow was that scary and really hoping the baby is ok. As i edge towards the 12 week scan, my anxiety is really building. I almost can't bare an actual ultrasound, as both times i have got to the 12 week point, we have had the tummy ultrasound, rather than the transvaginal scan and when we have found we have lost the baby. I know there is nothing i can do to control, but also what if it was the food poisoning that has effected him. Just want someone to put me in a coma for the next 6 months.

Thanks @TammyinCork , I'm sorry your appt got you a bit down and I'm sorry that you suffered a recent loss in your life, I hope the funeral went as well as these things can do.

Does your Spanish clinic treat immune issues? Well done on your thyroid antibodies. That's really positive! Would you be on intralipids and pred for something else if your NK cells aren't elevated?

I'm doing IVF with a clinic in Greece (I'll be tranferring embryos I have frozen after my naturally conceived loss last month) and they prescribe blood thinners. I wonder why Dr Edge prescribes differently for natural vs IVF. It's all very confusing isn't it. I'll be interested when my Greek clinic say to start the pred, whether it's on positive test or not. I'll dig out my notes from my previous transfer. Progesterone they definitely get you on before a positive test though, I know that from my failed transfer in April time. I think that's because when your eggs are retrieved, you don't produce your own progesterone?

I'm awaiting my results from my D&C to see whether it was chromosomal or not before we put a plan in place for meds. Were CRP okay with you going abroad for IVF? I'm tempted to have intralipids etc alongside my transfer with them but as Dr Shehata is so abrupt, I've stayed away to spare my feelings really. It sounds reckless when I say out loud that I'm receiving treatment abroad, even though I don't feel that way about it at all myself.

Sending love to everyone, and to all the growing pregnancies xx

@Jecca88: Amazing news, and wishing you so very well for the NIPT test!

@Hopeandfaith1990: Fantastic, and glad the blood tests look good! Hope the acupuncture went well!

@Deerdancer34 and @Gems2811: Hope all is good with you!

@Figtree11: So sorry you are here, but it's such a supportive space and has helped me a lot.

My follow-up consultation with Dr Edge was interesting. She said I would need to take intralipids and Fragmin for the IVF cycle, which I didn't need to take when trying naturally... I don't mind Fragmin so much but don't think I need intralipids, since I have no issues with NK cells and my thyroid antibodies are massively reduced. She also said that delaying the pred / progesterone to positive test would not be effective (which runs contrary to Dr Thum's second opinion, that I shared with her). I left the whole thing feeling a bit down, if I'm honest (although I was attending a funeral in London afterwards as well).

The Spanish IVF clinic will probably need to amend this protocol anyway, according to my bloods at the time.

@Hopeandfaith1990 Ahhhhhhh!! Wonderful Wonderful news!! I didn't know how I was going to wait until tomorrow, let alone you having to wait!! Ohhhh I'm so happy for you. Just keep thinking 1 day at a time...plod plod plod!

@Jecca88 🥹🥹🥹🥹 Just gorgeous, how thrilling!

You've both turned me into an emotional wreck, in a good way! 💖 Lots of love to all 💖

ahhh amazing @Hopeandfaith1990 - this is it :)

Found out its a boy this afternoon :)

@Jecca88 amazing news!!!! Enjoy your very waited and deserved joy!!
love Dr Edge and Olivia!! ❤️❤️

Thanks Guys - we are just enjoying this moment. 12 week scan booked for 1st December which is a scary one. We will also find out the gender today - might take a walk just my husband and I and open it the special place we used to take our dog :)

This is such good news @Jecca88 ! So so relieved for you!! That’s an important one, so lovely how invested Dr Edge and Olivia are too and I think CRP put a lot of emphasis on the 10 weeks. Just yay xx

@Jecca88 Ahhhhhhhh!!!!! So so so delighted for you! This is such a major hurdle, what wonderful news! I remember Dr S saying 10 weeks is the important milestone. I know there will still be anxiety but please enjoy this lovely lovely news! Really has made my day 💖

Hey @Deerdancer34 - we got the results yesterday and I am so pleased to say it’s all clear for the major three syndromes. I got a missed called from the clinic and I actually couldn’t speak, Olivia and Dr Edge said they screamed when the results came through - I am so grateful and just in disbelief. I still have so many hurdles to get through, but it’s nice to have some good news on our side.
also really hoping this is your month my love! ❤️❤️

@Hopeandfaith1990 numbers sound great, keeping everything crossed for today’s!

Thinking of you today @Hopeandfaith1990 and @Jecca88 💞

Hi everyone @Jecca88 congratz ❤️ soo happy for u!!

@MC8 sorry u are going through this. I am at the same stage! After 12 months trying I am having a chemical! How are u holing up? X

@Hopeandfaith1990 rooting for u!!!❤️❤️🙏🏽

@Hopeandfaith1990 Oh my goodness 🥰 I'm trying very hard to not get ahead of myself but I'm so excited for you 💖🙏 I'm 3dpo & on my drugs 😆 trying not to think about it too much but then you can't help it can you 😅 Funny how 10days or 7 weeks sounds nothing but in TTC terms - its a lifetime 🤣

@Hopeandfaith1990 Will the numbers give you an idea today? Sending you love!

@Jecca88 great news on your scan ☺️ Thank you for the welcome. It does all feel very daunting. And worried about how much time keeps passing, and the financial side of things too now!

@Deerdancer34 thank you so much. It all feels like information overload at the moment from the chat with the clinic. I’m definitely open to looking at CRP, and think they will be my next port of call. It’s really hard to find the hope, but knowing I haven’t yet explored all avenues is keeping me going that hopefully one day I’ll have a baby. I’m sorry about your tough journey too