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TTC after loss part 6

742 replies

Figtree11 · 24/10/2024 20:14

Previous thread created is nearly full so starting a new one. Will try and tag names

OP posts:
Thread gallery
28
Ncl31 · 24/04/2025 17:02

Figtree11 · 24/04/2025 16:28

@Ncl31 thank you, struggling with this being my reality. Never thought recurrent miscarriages would be something that would happen.
We do sound very similar in terms of timelines. I went with medical management as i was kind of guided down that route, but having to collect the pregnancy & store it to take back to the hospital the next day wasn’t nice.
Thats good that you got your results in 8 weeks. I was told it’s up to 12, but has been a bit quicker recently. So I was hoping it would be 10 weeks max. I guess they’ve given you no indication yet of what the results are? Did they give you much warning of when to go in for the appointment? I hope it goes as well as can be

@BGxxx thank you xx

To be honest it’s pretty rubbish int terms of appointment.
I work in the operating department I had my surgery in. So when I went back to work this week I emailed to chase the results. I was then passed to another consultant as apparently that’s who has my results now…. I’m anxious about this because that consultant deals with high risk antenatal care.
30 minutes after I sent the second email to chase a secretary rang me to give me an appointment for July…. I instantly just broke down on the phone as I felt that was way too long to wait.
So she’s managed to squeeze me in at the end of a clinic next week. Only 6 days notice. Thankfully it’s a Monday and my hubby works from home so he’s able to come with me.

Melusina123 · 24/04/2025 16:59

@Figtree11 @Ncl31 FWIW when I was invited to the mtg about my cytogenetic results I emailed and asked them for an idea of what the results where and the midwife responded in a way that made it pretty clear the outcome was a genetic issue of some sort. So it’s possible they may be willing to give a preview of what the meeting is likely to contain?

Figtree11 · 24/04/2025 16:28

@Ncl31 thank you, struggling with this being my reality. Never thought recurrent miscarriages would be something that would happen.
We do sound very similar in terms of timelines. I went with medical management as i was kind of guided down that route, but having to collect the pregnancy & store it to take back to the hospital the next day wasn’t nice.
Thats good that you got your results in 8 weeks. I was told it’s up to 12, but has been a bit quicker recently. So I was hoping it would be 10 weeks max. I guess they’ve given you no indication yet of what the results are? Did they give you much warning of when to go in for the appointment? I hope it goes as well as can be

@BGxxx thank you xx

OP posts:
Ncl31 · 24/04/2025 15:53

curliegirlie · 24/04/2025 09:23

Just coming up to the end of my second post-MC cycle - temps have nosedived and BFNs so nothing to cling onto - and I just want to scream. WHY can't things go our way for once?! I know I'm incredibly lucky with my two DCs but is it so selfish for me to be longing for a third? The sheer injustice of trying for three years, it happening just when I was making peace with the idea of giving up, and the cruel MC on the 3rd anniversary of the first one (but when I was slightly further on and had been reassured by stronger lines). Surely it's our turn soon?! And of course the MC has thrown all notions of stopping out the window for the time being, even though I'm fairly sure that continuing is pointless. I'm going into the office today (pointless presenteeism because my employer demands a certain amount of in office working) but just want to hide under a rock. I should have had my 12 week scan this week.

I’m so sorry that all sounds really rough.
I hope you get your happy ending soon

curliegirlie · 24/04/2025 09:23

Just coming up to the end of my second post-MC cycle - temps have nosedived and BFNs so nothing to cling onto - and I just want to scream. WHY can't things go our way for once?! I know I'm incredibly lucky with my two DCs but is it so selfish for me to be longing for a third? The sheer injustice of trying for three years, it happening just when I was making peace with the idea of giving up, and the cruel MC on the 3rd anniversary of the first one (but when I was slightly further on and had been reassured by stronger lines). Surely it's our turn soon?! And of course the MC has thrown all notions of stopping out the window for the time being, even though I'm fairly sure that continuing is pointless. I'm going into the office today (pointless presenteeism because my employer demands a certain amount of in office working) but just want to hide under a rock. I should have had my 12 week scan this week.

Nosejug · 24/04/2025 07:13

Goodness, just reading through the last page of messages. I don’t know what to say other than I hope that the awaited genetics results bring some form of comfort or resolution, and the awaited scans/hysteroscopies give good news.

i jumped on here in a panic a week or so ago when i knew something was up with my second pregnancy (first was mmc) and lo, I’m currently in expectant management for an ectopic. I narrowly missed losing my tube so I’ve that to be thankful for, but on the fence whether that’s actually a good thing as of course it might just mean more ectopics. Both mcs have been a narrow miss with surgery actually, so at least my body has half the message. It’s certainly sullied my longing to be pregnant again, but I don’t really have time to wait with v low amh and being 39. I wish someone could tell me the end to my story.

Notsure31 · 23/04/2025 23:58

@Ncl31 it’s been a rough ride, I had another bleed a week after my ERPC and cramps, eventually got seen by a doctor at hospital after initially being fobbed off by epau and I’ve got an infection, endometritis which I’ve had before. And on antibiotics. The weirdest thing is they tested my hcg at hospital and it came out at a level of 5.9 so pretty much negative. I know you’re not meant to but I did another test today on the cheapies and a FRER and both came out faint positive still which I don’t understand as it was 5.9 on a blood test at the hospital a week ago, those tests aren’t meant to detect that sensitivity. The chance of retained tissue is minimal as the MVA was done with a camera. It’s the most confusing and stressful situation ever. Definitely not a new pregnancy either.

@SnakebitesandSambucas thanks that’s given me a bit more reassurance, I’m booked for another hysteroscopy in a few weeks and anticipating the worst that there will be scar tissue or this infection I have won’t have cleared but hoping for the best.

Ncl31 · 23/04/2025 22:16

Figtree11 · 23/04/2025 21:28

Hi guys, hope you don’t mind me re-joining. I started this thread but took a break after TTC was taking a while. However, just recently gone through my third MMC. That was 3 weeks ago, and I’m now waiting on the genetic test results. Been told it could be 12 weeks.
@Ncl31 i’m so sorry to hear you had another loss. You sound in a similar situation to me with the genetic results. I hope your appointment next week goes ok. I am feeling very apprehensive about what’s to come

I’m so sorry to hear you’re back here again. Of course you are very welcome.
it sounds like we’re 4 weeks apart. I know exactly how you feel right now.
ww found out about our MMC at 11+5, our baby stopped growing at 10+1. Had a surgical management as recommended by the hospital.
I hope you don’t have to wait the full 12 weeks for your results, it feels like torture.
it’ll be 8weeks to the hour that we get our results. Weirdly our appointment is at the exact same time I was scanned.

BGxxx · 23/04/2025 21:45

Hi, hope it’s okay to join. Just finished my first cycle ttc again after an ectopic. My cycles are still a bit all over so hoping this next one is a bit more regular

@Figtree11 hope you’re doing okay❤️

Figtree11 · 23/04/2025 21:28

Hi guys, hope you don’t mind me re-joining. I started this thread but took a break after TTC was taking a while. However, just recently gone through my third MMC. That was 3 weeks ago, and I’m now waiting on the genetic test results. Been told it could be 12 weeks.
@Ncl31 i’m so sorry to hear you had another loss. You sound in a similar situation to me with the genetic results. I hope your appointment next week goes ok. I am feeling very apprehensive about what’s to come

OP posts:
Ncl31 · 23/04/2025 21:03

Melusina123 · 23/04/2025 19:39

@Ncl31 i’m so sorry 💕I hope you get some useful information/closure and it helps you move forward. Regardless of the outcome, you are not to blame, trying to have kids is just a sht gig and some of us just get the shttier end of it.

Edited

Thank you, fingers crossed.it certainly is rubbish and life is so unfair

Melusina123 · 23/04/2025 19:39

@Ncl31 i’m so sorry 💕I hope you get some useful information/closure and it helps you move forward. Regardless of the outcome, you are not to blame, trying to have kids is just a sht gig and some of us just get the shttier end of it.

Ncl31 · 23/04/2025 17:23

@Melusina123 so sorry to learn you’ve been through the awful journey too.
i feel very much the same about the appointment too, very torn about what I’d like the results to be I guess. Obviously the only thing I ever wanted was to have a healthy living child. Part of me thinks it might be some closure if we find out there was a trisomy as it will stop me “blaming myself” about all of this. But then im not sure how I’ll react to anything.
i was hoping this appointment would be before I went back to work incase it totally knocks me back, but i needed to get back and with no idea of when it would come I just took the plunge, typically on my first day back I got notification of the appointment.

it’s a strange one finding out the gender, i guess I don’t really know at the moment. I’ve read some people are inadvertently told as of its Turner’s syndrome then we will automatically know as that only affects XX.

Hopefully it will give clarity rather than clouds and we can have some closure and begin to move forwards with TTC once again. I’m just terrified of going through this all again right now.

SnakebitesandSambucas · 23/04/2025 15:14

Hi @Notsure31 I've had over 6 d&c. I had a hysteocospy last year and it came back fine. It did take me longer each time to fall pregnant. But I'm not sure if it caused any of my last 4 misscarriges second and first trimester. I'm currently pregnant 34 weeks

Melusina123 · 23/04/2025 14:41

@Ncl31 we had this after our 3rd loss. I was nervous too, it was a strange appointment. Strange feeling generally. Got more information about what caused the miscarriage, but still don’t really know how to feel about it.

We found out the embryo had Trisomy 15, which I think was maybe the best outcome, because trisomies are usually de novo and having one doesn’t seem to make another more likely. Whereas chromosomal translocations might be passed on from a parent, which is maybe the ‘worst’ result because there’s always a risk that will be passed on? They did karyotyping on us just in case… but we never found out the results…! But it was sad to know that that embryo would just never have made it. Nothing anyone could have done, they lived as long as they were ever going to.

One thing I would say is think about whether you want to know whether there was a XX (girl) or XY (boy) chromosome. It’ll probably be on the paperwork so you need to avoid looking/avoid asking if you’d rather not know, or at least prepare for how knowing might make you feel. I thought I wanted to know, and I looked, but now it haunts me a bit as I will probably now have 2 kids of the other gender and no more, so it’s quite a what-might-have-been knowing how our family would have looked different. (Although of course I feel so grateful for what I have!!)

Ncl31 · 23/04/2025 14:28

Here’s my chart

TTC after loss part 6
Ncl31 · 23/04/2025 14:28

Notsure31 · 11/04/2025 16:48

Has anyone had any experience of having multiple ERPC procedures? I’ve just had my 4th one today because of retained products with my 4th loss. I mentioned about my worry over scar tissue and they said it’s unlikely, it was a camera guided procedure and they think they have gotten everything but have booked me in for a repeat hysteroscopy in 4 weeks to check. I’ve welcomed this for the reassurance before trying again but also worried about why they would have felt this is needed and also worried that they do find something and it causes further delays with ttc. They just said it’s to check everything has healed ok. I’m just wondering if anyone else has ever had this?

I’m sorry I have no experience of this so can’t offer any guidance or reassurance.
how are you recovery from your surgical management?

i think my body is trying to ovulate…let’s see how successful it is with my bbt over the next few days. I’ve attached my chart.

I’ve also just got back to with this week which is really tough but also a relief to have some normality too.

we also have an appointment to get our cytogenetic test results on Monday which I’m super anxious about

Notsure31 · 11/04/2025 16:48

Has anyone had any experience of having multiple ERPC procedures? I’ve just had my 4th one today because of retained products with my 4th loss. I mentioned about my worry over scar tissue and they said it’s unlikely, it was a camera guided procedure and they think they have gotten everything but have booked me in for a repeat hysteroscopy in 4 weeks to check. I’ve welcomed this for the reassurance before trying again but also worried about why they would have felt this is needed and also worried that they do find something and it causes further delays with ttc. They just said it’s to check everything has healed ok. I’m just wondering if anyone else has ever had this?

Notsure31 · 11/04/2025 16:31

Jemmy94 · 07/04/2025 12:35

I was wondering, when did everyone start using OPKs again after surgery? Did you class the day after your surgery as a new cycle or did anyone go from when they had their first period?

I'm debating whether it would tell me much as I'm still waiting on AF and a negative test will be 3 weeks post surgery this Friday.

I’ve just had surgery today and we plan to use them when I’ve stopped bleeding and get a negative hcg, my hcg was only 14 before surgery so it hopefully comes down quick x

EmilyF88 · 11/04/2025 13:22

Jemmy94 · 07/04/2025 12:35

I was wondering, when did everyone start using OPKs again after surgery? Did you class the day after your surgery as a new cycle or did anyone go from when they had their first period?

I'm debating whether it would tell me much as I'm still waiting on AF and a negative test will be 3 weeks post surgery this Friday.

Hi!
I’ve read that you should count the day of loss as CD1 & go from there… however! I did this and it just didn’t work as I was still (and still am 5 weeks later) testing positive. Something about the way HCG & LH work can give false positives on a OPK.

I’ve started testing LH again now as my HCG was 18.5 last Monday so hopefully it’s nearly gone! 🤞🏻 I found it really hard to find the right information on TTC soon after a miscarriage so sorry I don’t have much advice! xx

Ncl31 · 08/04/2025 12:53

Notsure31 · 08/04/2025 11:45

Has anyone got experience with retained tissue following a loss? I’ve been diagnosed with 28mm of retained tissue from my TFMR with a blood supply to it.
I had 600mcg misoprostol last night for medical management however nothing is happening. They said call in a week if nothing happens but from what I’ve read something should happen sooner? My hcg was only 14 so coming down but I’ve continuously bled since my TFMR over 3 weeks ago. I wanted to avoid the surgical option due to worry about scarring as I’ve had 3 surgeries for mmc previously.

Oh I’m so sorry that sounds like a traumatic time you’re having with it all.
from my experience if the misoprostol doesn’t work then they’ll offer a surgical management.
i hope it resolves itself quickly

Notsure31 · 08/04/2025 11:45

Has anyone got experience with retained tissue following a loss? I’ve been diagnosed with 28mm of retained tissue from my TFMR with a blood supply to it.
I had 600mcg misoprostol last night for medical management however nothing is happening. They said call in a week if nothing happens but from what I’ve read something should happen sooner? My hcg was only 14 so coming down but I’ve continuously bled since my TFMR over 3 weeks ago. I wanted to avoid the surgical option due to worry about scarring as I’ve had 3 surgeries for mmc previously.

ttcnumerodos · 07/04/2025 22:25

curliegirlie · 07/04/2025 11:51

AF did arrive for me earlier today, which makes my BBT temps make more sense (and obviously it would have confused FF if it had no sensible baseline), but I'm a bit confused because I had no LP surge around when I'd have likely ovulated. But if it was an anovulatory cycle, the temps certainly did a pretty good impression of post ovulatory temps 🤷‍♀️

But overall, I'm just scared I'm never going to see that double set of lines again - and certainly not ones that will properly stick around 😭🥺. I'm 43 in July. Last month's BFP had taken 3 years/40 cycles. I haven't got another 40 cycles in me. I just feel so broken that briefly March 2025 felt like a miracle, with lines properly darkening for a while and everything. And now it's like it never happened.

So sorry you've had such a rough time. Wishing you all the best for this next cycle lovely x

Confusedmermaid1 · 07/04/2025 13:19

Jemmy94 · 07/04/2025 12:31

I'm hoping my cycles will return to some normality time will tell! I'm still testing positive at 2 weeks post management so AF might be a while yet.

I think it’s one of those things that varies massively between people but both times I didn’t get a true negative until 4 weeks post treatment and my period came less than a week after the negative test which I guess suggests I’d ovulated while still testing positive 🤷🏻‍♀️
I didn’t use Opks until after my first period because of still testing positive and because I knew I wanted to wait until after my first period to try again anyway but that was just my preference

Superscientist · 07/04/2025 13:04

Jemmy94 · 07/04/2025 12:57

Similar to yourself I've got a faint positive but it's still visible. I'm thinking it's gonna take a while for it to come down. I'm just not good at being patient and I hate not knowing but hoping it comes soon.

Remember your HCG drops by half every 2 days. Say it's 50 today, it will be 25 in two days 12.5 in 4 days 6.25 in 6 days 3.125 in 8 days. That's pretty negligible!
Have hope and sending more of patience your way ... It's one thing you need plenty of patience TTC when you have the least! 😂