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What the f*** is going on? Advice please !

31 replies

missdt89 · 13/12/2023 16:17

So I have recently come off the mini pill, had my withdrawal bleed then 34 days and a period. I then had a 43 day cycle.

I did a test on the day AF came (before it came) and it was a very faint line but defo a line.

Any AF came and I assumed test must have been wrong, I had medium flow AF Monday and yesterday and very light today.

I did a test just now coz i have been feeling nauseous and just wanted to make sure any line has now gone.

Well there is still a line and it's stronger than Mondays test?

I've called the doctors who have said just test again in a week , but I'm very confused and just wondering if anyone else has had this and what was the outcome ?

What the f*** is going on? Advice please !
OP posts:
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missdt89 · 05/01/2024 16:22

Just thought I would update incase anyone ends up going through the same .

So I have now miscarried, from Boxing Day my levels had started to drop , Christmas Eve HCG was 868 and by Boxing Day had gone down to 558, they asked me to go back in on Tuesday this week where it had decreased massively again to 58. So I will go back next Tuesday for hopefully one more blood test and hopefully HCG will reach a level they can discharge me.

Thankfully the last consultant I spoke to was very helpful , as I was confused as to where the cyst was, it turns it there was not one in my
Left tube but on my left ovary , which they believe is the follicle from ovulation and nothing more .

On my right tube there was something they suspected could have been ectopic but they were not certain .

I have bled now for over 2 weeks but my
HCG is dropping so wherever the pregnancy was it is resolving itself .

I am just looking forward to starting our TTC journey again and pray for a better outcome next time xxx

OP posts:
missdt89 · 23/12/2023 12:57

@Confusedddddddd this is the thing , when they scanned me they said I definitely ovulated from my left, which is where they was the cyst and definitely was on the tube they said although close to the ovary.

This is what they thought was ectopic and as I had some pain on my left side rushed me down to surgery the same day.

Got out of surgery to be told that it was a cyst and not ectopic and they are confident it will resolve itself , so didn't do anything .

My right tube they said it looked as if something very small had been there but wasn't cause for concern currently as it appeared to have resolved itself

So they have said pregnancy of unknown location , but as they've checked my tubes etc they do not think it's in there .

So currently having the HCG tests done , on Wednesday my HCG was 400 and yesterday was 708. So I have to go back tomorrow for another load of bloods .

I'm so confused by it all as literally have no idea what's going on .

Xx

OP posts:
Confusedddddddd · 22/12/2023 23:49

I'm sorry, the limbo is so awful. My first thought when reading your post was ectopic.

When I had mine I didn't know I was pregnant until quite late because "I had a period".

When you say cyst on tube, do you mean cyst on ovary? Your tubes aren't attached to your ovaries. About 30-40% of the time your tube will pick up an egg from the other ovary. I have one good ovary on right, and one remaining tube in left (my left ovary wasn't functioning for a while due to a massive cyst. I was told I'd still be able to get pregnant (hopefully!).

missdt89 · 22/12/2023 23:07

Just keeping this updated in case anyone comes looking like I have been -

Had bloods this morning they have risen from 400 to 708 so not quite doubled as they would like.

I now have to go jack for more bloods on Sunday morning and they have said they will have a better plan by then .

I am still spotting but I don't know if this is due the surgery I had , or the cyst on my ovary or something else 😥

This limbo is horrible. Xxx

OP posts:
missdt89 · 21/12/2023 02:52

Just an update here (sorry it's a long one)-

So went for scan and that morning had continued to have light spotting and some pain in my left side which was fine when paracetamol was taken.

Internal scan done as I have a tiled uterus, nothing to be seen in there. Left side they saw what they suspected was an ectopic pregnancy measuring around 12mm (less than 3cm). But given the pain I had told them about was told I would need surgery that day due to the risk of rupture .

So spent the day an absolute worried mess thinking every little pain was a sign of something life threatening!

Anyway had surgery - no ectopic to be found but I do have a cyst on my left tube and this is the tube I ovulated from. They also checked my
Right and said it looked as if something small and been there but wasn't there anymore / too small to do anything or say it's ectopic . So no tubes removed.

So I have been diagnosed with PUI. My HCG levels are 400 which is too low to see anything on a scan and it needs to be 1500?? I have to go back Friday for more blood to see if it's increased / decreased etc.

I'm so very confused .... would it be possible
To ovulate from the left and have an ectopic on the right ? Why are my clear blue tests (did another yesterday showing) 2-3 weeks with HCG so low ?

I'm not overthinking now as what will be will
Be and at least I know it's not life threatening , they told me my options right now are either I have already miscarried which would explain the bleed last week and my body is holding on to HCG or it's too early to see anything and everything is fine (unlikely)

I've had no more spotting since surgery but still pain on my left side - likely caused by the cyst!

I've been on such a rollercoaster the last 24 hours it's unbelievable! And just trying to gather my thoughts !

OP posts:
egowise · 19/12/2023 08:45

Will be thinking of you!

It's definitely looking promising

missdt89 · 19/12/2023 07:44

@Sodapop1 thank you , I feel slightly happier now , but obviously I won't know for sure until tomorrow and even then as it's so early I think they will want to re scan to see progress as long as there isn't something obviously wrong.

In my head I think if the bleed I had last week was a loss then this test should have read 1-2. But maybe that's wishful thinking !

OP posts:
Sodapop1 · 19/12/2023 07:28

Congratulations OP! Fingers crossed for you

missdt89 · 19/12/2023 06:20

Update - this is todays digi test. There is no denying that result and feels a bit more reassuring. The result matches what I think my dates are .

Just gotta get through today !

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missdt89 · 18/12/2023 21:31

@Sodapop1 it's all so stressful , I have got x 2 other children and never had this with them . It's so confusing .

I've not had anymore since earlier and nothing in underwear.

But now of course I'm checking and my CM has been milky white but this evening I'm sure I've seen specks of pink in it 😫😫

I feel as if tomorrow is gonna be a long day Wednesday cannot come quick enough . I've prepared myself as mentally as possible for bad news so now all I can do is try hope for the best !

Thank you all so much for keeping me sane ! Xxxx

OP posts:
Sodapop1 · 18/12/2023 19:25

Yeah I think all you can do is wait OP, I had spotting on and off for the first 6 weeks, the midwife said it still counted as implantation especially if it’s brown!

missdt89 · 18/12/2023 15:20

Thank you , I'm not holding out much hope as had some spotting again this afternoon , nothing serious just there when I wiped when I went to the toilet and not bright red or anything

But still worrying , so just have to wait and see now.

OP posts:
Olika · 18/12/2023 11:15

All the best for Wednesday!

missdt89 · 18/12/2023 11:02

Just an update , spoke to my GP again he contacted the EPU who called me and have booked me in for a scan on Wednesday morning .

They have told me to keep testing until then and to let them know if the tests turn negative.

They have said any more
Bleeding or any pain I will need to go to a and e.

So I guess a couple more days of limbo and hopefully il have an answer either way.

At this point I'm preparing for the worst but hoping for the best . Just generally really nervous as to what the outcome will be . Xxxx

OP posts:
missdt89 · 18/12/2023 07:28

Thank you everyone.

I think I feel slightly more reassured that it's still positive and darker I also definitely feel very "pregnant", I'm just guarding my heart I think just in case it's a CP. but yea the wait and the not knowing is making me so anxious it's horrible. Either way I would have retested after the bleed because of the nausea I have.

Yea I'm not sure my GP will do much either last week when this all started it was pretty much call back next week if still positive so il call them back today but as you say likely be told to self refer.

I do plan on having an early scan but I cant do that as you say for a couple more weeks yet !

My best friend bled throughout her pregnancy and had a healthy pregnancy, but I've just never had this before with my previous 2 . So it's totally freaked me out tbh !

Coming off the pill is also another factor for me as well , but I suppose just so many unknowns at the moment !

OP posts:
Autumn1990 · 18/12/2023 06:05

It does look positive. I’d just wait and see how it goes. You can bleed quite heavily and frequently and still be pregnant.

Olika · 18/12/2023 05:48

Perhaps it was heavier bleeding because you have recently stopped minipill. The line is definitely there.

Sodapop1 · 18/12/2023 05:46

The line looks darker on your test this morning, I think you’re pregnant too. I bled quite a bit around the time my period was due, 1 day of normal flow then it quickly became a lot lighter so I did a test and I’m 23 weeks now. The doctor is unlikely to do much in my experience, in all the time I’ve been pregnant no medical professional has ever asked me to do a test they just take your word for it!

GreatGateauxsby · 18/12/2023 05:37

Honestly you just seem pregnant 🤷‍♀️
I know several people who bled fairly heavily through out healthy pregnancies.

If you take a clear blue,the kind that tells you "how pregnant" it might reassure/be helpful . For your dates it's about 3 weeks so should give 1-2 weeks or a 3 weeks plus

Depends where you are but my GP basically "don't care if your pregnant" and you just directly self refer to the maternity unit at the local hospital. You can do this online then they contact you with initial app at about 12 week mark

Any kind of viability scan is kind of pointless until about 6-7 weeks.
I was totally freaked out during my first pregnancy and went for one privately at around 7 weeks as I was convinced I had a blighted ovum 🤷‍♀️🙈 and they could see the heartbeat/fetal pole. My dd was basically a tiny dot that pulsed a bit.

The waiting is totally crap though... So sympathy on that front.

flowerchild2000 · 18/12/2023 05:26

It could be a chemical or implantation, I've had both happen! My last pregnancy I had a chemical just before, and then I was confused about the date on my pregnancy because the implantation bleeding could have been a period. It's so intense waiting for answers isn't it.

missdt89 · 18/12/2023 05:21

Update - this mornings test (FMU) still
Positive on less sensitive test.

This is now a week after the bleed started last week. I am going to contact my GP again today and see what they think I should do.

Would I be testing negative by now if it was a CP ? As it would have been a very early
Loss as I didn't even test positive until last Monday when I had the bleed which I thought was AF .

OP posts:
missdt89 · 17/12/2023 17:43

Just an update here - another positive test on a 25 MIU test so less sensitive.

Tomorrow is a week since I had what I thought was my AF

OP posts:
missdt89 · 14/12/2023 09:34

@EliflurtleAndTheInfiniteMadness thank you for your reply , yea I've done a lot of reading the last 2 days and it seems to be fairly common , I just don't wanna get my hopes up in case it is the worst case.

I'm going to try hold off doing any more tests until next week , hopefully by then if it is a miscarriage I should be testing BFN.

This limbo is torture though

Xx

OP posts:
missdt89 · 14/12/2023 09:31

@ThelastRolo20 yes you are right , I'm just so confused by it , so I feel like I'm going crazy .

@CRbear I think likely a chemical , I would be shocked if it wasn't tbh as although the bleeding has now stopped (as suddenly as it started) it was too much like my normal AF . I am gonna try not to test for a few days it's just the not really knowing what's happening is making it so difficult but you are right in making it worse trying to compare tests on a daily basis!

I would love for it to be a sticky bean but ultimately I would just be pleased to know either way rather than being stuck in this limbo .

Xxx

OP posts:
EliflurtleAndTheInfiniteMadness · 14/12/2023 09:29

I understand seeking that progression for reassurance, but a pregnancy test being lighter than previously doesn't mean a miscarriage . Time of day and hydration plays a role too. I've never had implantation bleeding but I know several women who had very heavy period like bleeding. I had bright red bleeding but that was a couple weeks further along. That pregnancy is now my 11 year old. Bleeding doesn't necessarily mean a miscarriage and it's fairly common.

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