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Conception

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TTC for 18+ months and feeling low!

537 replies

Natty2 · 02/09/2023 14:42

I'm fairly new at this forum and decided to join after TTC since the start of 2022
We discovered earlier this year that my DH morphology was low, although all other results were normal. He implemented life style changes straight away, and even went through a varicocele embolisation a few months ago, so we're waiting to see if that's helped.

Having gone through the rest of the year undergoing tests everything seems normal, so the NHS are not letting us even get on the IVF list until 2024. It's been such a long, physical and emotional journey and there seems to be no end in sight.

Anyone else going through similar things? I feel like I live life in 2 week cycles and it's so hard to try and not think about it all!!
Any tips?!

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missmoosh · 27/02/2024 19:07

@Natty2 i was thinking about you earlier! Glad to hear the next round is coming up soon for you! Have they said if they will be changing the protocol for you this time? How are you feeling about it?

I am doing well, still throw up daily at 18+3, but will be worth it. Found out a couple of weeks ago we are having a girl. So just waiting on 20 week scan to make sure everything is going well. 😊

Natty2 · 27/02/2024 17:54

How is everyone doing on here?
An update from me, I'll be starting a second round of IVF in a couple of weeks, hoping for better success next time 🤞

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CatCaretaker · 18/02/2024 07:39

Natty2 · 18/02/2024 07:23

Hi @CatCaretaker
Ended up only having the consultation on Friday as the cancelled it the other week 🙄
Essentially they're not able to pin point exactly what might have happened but it could have been starting me on a low dose first and possibly poor response to the hcg trigger injection. They said it's difficult to know.
Long story short they have said if we're able to then he'd recommend doing another round of egg retrieval, he would put my on completely different meds/ dose and he seemed confident it would be better next time.
They'll put together a plan (and cost 😩) and we'll go from there. Hoping I might be able to start again in a couple of weeks or it could be next month
Not sure if we can use the nhs funding to transfer fresh hopefully next time- but they need to let us know.
It's been a pretty stressful time and really makes you realise how much of a miracle life is! I wish I has answers on why it wasn't working for you, my husbands morphology is low which is our reason for ivf.
Although now I wonder if i have poor quality eggs (or if it was just the meds I was on) the trouble is there's no way of testing quality until the eggs come out!
I hope it works for you soon

Hopefully the fact that it's only a partial IVF procedure that you have to pay for twice will keep the costs down! I really don't know how these things work though, but fingers crossed you guys can manage it one way or another. Good that doctors arr confident that it can improve.

My DP has borderline low morphology. The standard the clinic use states 30% and abo w is normal, and DP was exactly at 30%. Everything else was firmly in normal range range for him though, so surely the borderline morphology isn't completely preventing conception?

Natty2 · 18/02/2024 07:32

@Emz09 I realised I never got round to responding about our tests/ timings
We had our original gp appointment for the referral jan 2023 (after a year ttc)
My scans and blood tests were relatively quick for the nhs but my DH's was a nightmare so we got his done privately
I also went privately for my AMH and AFC tests
My DH had a variocele embolisation in the summer to see if that helped the morphology so that set us back a few months and in that time the nhs organised a hycosy for me.
To get a round of IVF on the nhs you have to be trying for 2 years (we're under 35) so we didn't sign all our forms until the end of 2023. Once we were referred to the private clinic things moved really quickly. We had our nurse planning appointment in December and did our first ivf round in January.

OP posts:
Natty2 · 18/02/2024 07:23

Hi @CatCaretaker
Ended up only having the consultation on Friday as the cancelled it the other week 🙄
Essentially they're not able to pin point exactly what might have happened but it could have been starting me on a low dose first and possibly poor response to the hcg trigger injection. They said it's difficult to know.
Long story short they have said if we're able to then he'd recommend doing another round of egg retrieval, he would put my on completely different meds/ dose and he seemed confident it would be better next time.
They'll put together a plan (and cost 😩) and we'll go from there. Hoping I might be able to start again in a couple of weeks or it could be next month
Not sure if we can use the nhs funding to transfer fresh hopefully next time- but they need to let us know.
It's been a pretty stressful time and really makes you realise how much of a miracle life is! I wish I has answers on why it wasn't working for you, my husbands morphology is low which is our reason for ivf.
Although now I wonder if i have poor quality eggs (or if it was just the meds I was on) the trouble is there's no way of testing quality until the eggs come out!
I hope it works for you soon

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CatCaretaker · 17/02/2024 22:18

@missmoosh thank you! Really nice to hear your positive stories (and congrats) 🙂

missmoosh · 17/02/2024 20:58

@CatCaretaker i have now had my miracle bfp. But like you I had all the tests and in total was trying for well over 2 years. Albeit a part of that I did have a health condition which would have prevented us getting pregnant, but was resolved before we tried for our longest stint (16 months). I never had a bfp/cp/mmc in all that time. We did finally get our bfp days before we were to start Ivf. So don't lose hope!
My SIL also tried for 15 months and had no positive tests at all until she fell, she had also had all the blood tests and nothing showing up wrong there.
I think unfortunately sometimes luck just isn't on our sides, or our bodies are just very good at detecting non viable pregnancies before we would be able to know about them! It is really tough not knowing if you can even get pregnant, so I totally understand the struggle. Sending my best wishes that you get your miracle soon!

CatCaretaker · 17/02/2024 18:39

Anyone who has been TTC for a while, but has never had a bfp, or a cp, only ever bfns, do you have any insight into why / how that could be?

We've had every test going, there is nothing that should prevent conception altogether. Surely at some stage sperm would have met egg, and - even if not viable - there would have been a bfp / cp? I'm just struggling to understand how there can never have been any. Does anyone have any insight into this?

This problem doesn't seem to be very common, as far as I can see from reading threads here. When struggling to conceive people often seem to have cps, MCs or MMCs, not just ... nothing. I'm not trying to make light of those things, they must be heartbreaking, and I don't mean any offence to anyone, I just want to know if anyone can shed light on our particular struggle?

CatCaretaker · 17/02/2024 18:32

Natty2 · 01/02/2024 12:11

Thank you all for your messages 🫶🏼 the last week has been torture waiting for our updates.
Our day 5 was yesterday and they managed to freeze one good quality egg.
The 2 were early blastocysts so wanted to wait until today to see if they were viable to freeze. Sadly they weren't 💔💔
I know we're lucky to have the one, but also know the first transfer might not work. I hope it's our miracle baby but only time will tell.
We have booked a consultation next week to understand what went wrong and our next steps. We want to try and do another retrieval but may have to transfer first before our nhs funding runs out
Thanks for the support 💛

Hi @Natty2 how did your consultation go? Were you able to get some answers about what may have happened?

Foreverhopeful92 · 01/02/2024 15:21

@Natty2 im keeping my fingers crossed this is your miracle baby! I can’t imagine the emotions you must be feeling and I imagine it’ll take time to process it all.
i hope you are able to get the answers you want from the appointment and can make some further decisions based on what they say and hopefully they may provide you with some guidance and advice.
Let us know how you get on once you’ve had time to process and move forward with what happens next. ❤️

Natty2 · 01/02/2024 13:17

Thanks all, just trying to process what has happened and hoping for the one we have to be a strong one 💛

@Emz09 I'll try to respond over the weekend on our tests/ timing etc. unfortunately we are still on our journey 2 years on

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LucyLoopyLu · 01/02/2024 12:34

@Emz09 yes it has moved quite quickly since my hyfosy. I just wanted to say though don't expect yours to be the same as it's such a postcode lottery in terms of how your LA deals with fertility issues (different checklists etc) and of course the waiting lists. Your own age, test results etc could also make things a lot different from my treatment pathway.
Hoping it will be quick for you

LucyLoopyLu · 01/02/2024 12:32

@Natty2 oh I'm sorry the others didn't make it to freezing, I can see why you are so disappointed. Really hoping that 1 frostie is the one for you. It will be good to hear from them what they think the reason was and what could be changed for another cycle if it was needed.
I've seen lots of people on the IVF threads saying that the first round is often a bit of a trial run to see how you respond to medication etc as everyone is different. I know that doesn't help the situation and it's still really shit, but hopefully at least gives some reassurance that it's very common for the first cycle.

On a separate point though, it makes it more frustrating when you live in a LA that only funds one round though (we are in that situation too). The post code lottery is just so unfair.

Hope you're doing ok. Thanks for updating us x

Emz09 · 01/02/2024 12:27

@Natty2

I can't even imagine how you have been feeling waiting to hear the outcome. You made it 💪.

One is all it takes and I will keep everything crossed and pray for you, that this one is your miracle. Sending lots of love 🧡

missmoosh · 01/02/2024 12:16

@Natty2 im so glad you have one, I know it's not the outcome you had hoped for. I really hope this one is your miracle!

Hopefully they can shed some light on what has gone wrong, and make adjustments if you do need to do another retrieval. Wishing you all the best!

Natty2 · 01/02/2024 12:11

Thank you all for your messages 🫶🏼 the last week has been torture waiting for our updates.
Our day 5 was yesterday and they managed to freeze one good quality egg.
The 2 were early blastocysts so wanted to wait until today to see if they were viable to freeze. Sadly they weren't 💔💔
I know we're lucky to have the one, but also know the first transfer might not work. I hope it's our miracle baby but only time will tell.
We have booked a consultation next week to understand what went wrong and our next steps. We want to try and do another retrieval but may have to transfer first before our nhs funding runs out
Thanks for the support 💛

OP posts:
missmoosh · 01/02/2024 09:08

@Natty2 really hoping you get some positive news today, have everything crossed for you. ❤️

Emz09 · 31/01/2024 10:53

@LucyLoopyLu oh wow so quite quickly really once the ball was rolling. Ok that's interesting to know about the IVF process that it's 2 years before being referred, thank you. Our initial appointment was supposed to be January but it got cancelled, really hoping it's not a sign things to come 🫣

LucyLoopyLu · 31/01/2024 10:39

@Emz09 we started trying in March 2022, had some tests privately after 6 months and there was nothing flagged so carried on. Then after we had been trying for 12 months we went to the GP - I can't remember the exact date but maybe June-ish time last year - we had a 2 month break from trying for a big holiday so I wanted to give it 12 cycles. There was quite a bit of waiting for initial appointments but once I had the hyfosy done in November things moved quite fast. I had turned 35 in October as well so that means we didn't have to wait for the 2 year mark to be referred for IVF, which is fairly standard for unexplained infertility I think.

Emz09 · 31/01/2024 10:10

@LucyLoopyLu

Thank you for sharing your experience with me. Suppose I really do just have to wait and see. Do you mind me asking what sort of timeframe this has taken from GP to where you are now?

Praying and hoping everything goes well with your IVF appointment x

LucyLoopyLu · 31/01/2024 09:45

@Emz09 welcome to the thread.
I think it depends on your local authority exactly what the different stages look like and what appointments you have. And also whether they find something they can treat.

We're unexplained, so had tests organised by the local GP, semen analysis for my husband, and then I went to the local hospital for a hyfosy, where they reviewed everything and then referred me for IVF. After that I had my first appointment at the assisted conception unit and now I'm waiting for my nurse's appointment which is the last one before we start IVF.

LucyLoopyLu · 31/01/2024 09:30

@Natty2 I'm so sorry this isn't the outcome you deserve. I've been thinking of you. Hope you are ok and those 3 fertilised are now good quality embryos for you. Let us know how you are when you can x

Emz09 · 30/01/2024 08:45

@CatCaretaker thank you 🤍 praying we get some answers, so far bloods and semen analysis are "normal" so will just have to see what nhs chapter holds.

CatCaretaker · 29/01/2024 22:42

@Natty2 have you had any update, or will you not hear anything until the 5 days are up?

CatCaretaker · 29/01/2024 22:41

@Emz09 welcome,and sorry you're having such a hard time. The frustration and unfairness of it all really gets you down doesn't it?

Hopefully the fertility tests are helpful, and, if anything is found, that it's an easy thing they can fix.