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Conception

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TTC for 18+ months and feeling low!

537 replies

Natty2 · 02/09/2023 14:42

I'm fairly new at this forum and decided to join after TTC since the start of 2022
We discovered earlier this year that my DH morphology was low, although all other results were normal. He implemented life style changes straight away, and even went through a varicocele embolisation a few months ago, so we're waiting to see if that's helped.

Having gone through the rest of the year undergoing tests everything seems normal, so the NHS are not letting us even get on the IVF list until 2024. It's been such a long, physical and emotional journey and there seems to be no end in sight.

Anyone else going through similar things? I feel like I live life in 2 week cycles and it's so hard to try and not think about it all!!
Any tips?!

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missmoosh · 28/03/2024 19:22

@Natty2 just wanted to check in on how your egg retrieval went?

@LucyLoopyLu i assume you have started your first round now? Hope it's going well!

Natty2 · 21/03/2024 06:47

@LucyLoopyLu ah I have Ganirelex for my ovulation prevention, which is a pre-filled syringe. I had a pen for my FSH last time and now I've got to mix the powder vials/ solution etc, I was so worried about getting it wrong but it's almost as easy as the pen in the end!
My SIL has really bad needle phobia, she's had 2 rounds of IVF so my brother has helped with all, and ironically she started acupuncture which has helped her abit. I hope you get ok!

My EC should be next Wednesday, next scan tomorrow 🤞

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Emz09 · 20/03/2024 21:43

@LucyLoopyLu

Ahh ok this is really good to know, so maybe I should say yes sooner rather than later! I didn't even think about this because they said the ivf clinic would be in contact within 4-6 weeks, never thought about additional appointments. That's really helpful, thank you!

LucyLoopyLu · 20/03/2024 21:41

@Emz09 I know what you mean, I kind of felt the same but even though there wasn't much of a waiting list for us, it's still taken a while to get to this stage. There's a few appointments to get through, lots of forms to sign, then you have to wait for a slot they can book you in and then you have to wait for the right time of your cycle. We had our first appointment at the fertility clinic on 10th Jan and just starting (hopefully) this week. I think that's relatively quick for NHS IVF because there wasn't really a waiting list once we were under the care of the assisted conception unit.

Have a think about it over the weekend. You might as well be waiting for your appointment in the mean time - you could always ask to push it back slightly if it comes around quickly.

Emz09 · 20/03/2024 21:26

Ahh thank you so much for all your kind words!

I think I'm just scared if it doesn't work, so I feel like I'm not ready to grab the bull by the horns just yet. In our area we get one shot so feel like maybe I'll give it a few more months so it's been 2 full years. I should be really grateful that they're not giving me ovulation drugs to drag it out.

@missmoosh I think the timeline for IVF where I am is pretty much imminent, there isn't really a wait. That might be why I'm so scared 🫣

@Natty2 & @LucyLoopyLu
I will 1000% any advice that I can take. Thinking of you and praying for you both, you're doing amazing.

LucyLoopyLu · 20/03/2024 21:26

@Natty2 no I'm on short protocol! I'm glad actually, at least it's a quicker process.
My FSH is fentanyl, which doesn't look as bad as it's just a pen and seems like it'll be much easier. The Cetrotide is added a few days in and it's the one that stops you ovulating too soon. The needle is pretty scary looking (for me with a needle phobia), I also feel a bit guilty that I need help from my husband and feel so grateful he's willing to do it. I feel very worried about him doing it though. I'd feel nervous about messing up if it was me. Hopefully he will get the hang pretty quickly. I've seen a few people recommend using an ice pack. I might give that a go. I'm really hoping IVF will be needle exposure therapy. There's so many needles involved! Literally my nightmare.

Hoping you won't get OHSS, sounds like it can be very uncomfortable. At least they have flagged it and are keeping an eye on you now. Do you know when your EC is likely to be? When are you back in for next scan?

Natty2 · 20/03/2024 19:15

@LucyLoopyLu keeping my fingers crossed that it comes on time for you! Are you on a long protocol?

Is cetroride your FSH injection? Are you worried the prep or injecting? I was worried about injecting on the first cycle and honestly surprised myself by doing them all and this time round feels like second nature! It's over very quickly, and I use an ice pack 5-10 mins before hand which helps to numb the area. If you have your husband to help, that will be even better- you've got this 💪

I'm surprised by this round of stims, it's a different medication and now I'm worried I'm over stimulated! Really is a trial and error process, but hope it works out for us both 🤞

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LucyLoopyLu · 20/03/2024 18:58

@missmoosh yeah, I'm just waiting for my period which should really be tomorrow or Friday then I can call the clinic and get started. I hope my period's not late! I've booked time off work after Easter and also hoping I can do baseline scan on Saturday. It would take a weight off my mind if it came on time!

@Natty2 hi, yeah I think most people are further on. Maybe I should have joined the April one but I'm going to be crossing over the two months if it goes to plan. Wow, 40 is a lot of follicles! Fingers crossed you get quite a few good eggs from those. It's all a minefield how people respond to the drugs isn't it! How have you found stims so far? I'm nervous about the Cetrotide. My husband is going to help me and I'm trying not to think about it too much tbh.

@Emz09 sorry you're in a similar situation. It is quite daunting. I think if you're anything like me once you actually get to the cycle you'll have your head around it a bit more. I was really hoping we wouldn't need IVF too (even up to the start of this year)

Natty2 · 20/03/2024 18:26

I'm getting on ok thank you @missmoosh
had my second scan today and currently on day 7 stims.
I have 40 follicles growing 😳 most of them are really small though so who knows what they'll actually manage to get but hopefully we have better maturity and day 5 success this time 🤞 really just taking one day at a time
Because of the response this time I'm at risk of OHSS so I'm getting regular blood tests and meds were reduced yesterday. We may end up on another freeze all cycle.
Im prepared for the rollercoaster though!

@LucyLoopyLu, guess you are still waiting for yours? I've been tempted to join the other chat but everyone seems like they are in their tww!

@Emz09 I'm sorry ivf is the route they are suggesting and hope that it works naturally in the meantime. Happy to answer any questions as currently on our second round

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missmoosh · 20/03/2024 13:33

@LucyLoopyLu sorry pressed send to soon, how are you feeling? Your cycle is due to start soon right?

missmoosh · 20/03/2024 13:32

@Emz09 yes its normal for it to fluctuate a bit, things like weight gain/loss can also affect it, as well as the menstrual cycle 🙂 I don't think I have ever had the same reading twice in a row lol
I am sorry that IVF is the next step, it is a really daunting prospect. Have they given you indication of timelines?

@Natty2 how is your IVF cycle going?

Emz09 · 20/03/2024 12:47

I hope everyone is getting on ok on their journey's 🤍

@missmoosh thanks for you reply, so I had my bloods re done on NHS and they were 2.1, does TSH fluctuate month to month?
Also had my HSG done, all normal. So they are now offering IVF and I'm really scared to be honest.

LucyLoopyLu · 13/03/2024 16:31

@Natty2 thanks, good luck to you too and hoping this cycle is the one for you 💞

missmoosh · 13/03/2024 14:31

@Natty2 sending all my best wishes for you for this round! Keep us updated ❤️

Natty2 · 13/03/2024 13:33

@LucyLoopyLu good luck for your start soon!
I did see the March group. I set one up in Jan for my first cycle and it's really helpful to chat to people in the same boat, I saw that people are already at transfer stage!

I got my day 1 today and just been given all clear following my baseline scan so injections begin again tomorrow.

Wishing you the best and luck and keep us posted!

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LucyLoopyLu · 06/03/2024 20:22

@Natty2 sorry, meant to say I'm expecting to start around the 23rd March x

LucyLoopyLu · 06/03/2024 20:21

@Natty2 hi lovely, hope you're all good and your next cycle goes ahead without any delays! I imagine having all the medication makes it feel very real.

Not started yet, just in my "last" fertile window, we've had our nurse's appointment so I just need to ring on day 1 of my next period and go in for baseline scan then hopefully get started. We pick up the medication there on the day of the baseline scan but everything else is in place now. We have a sharps box and a few other bits and they've shown us how to do the injections.
Really dreading it but just want to get it over with. I'm over on the March IVF thread (slightly different username) but it's a nice group if you want to pop over there x

missmoosh · 05/03/2024 14:26

@Emz09 sorry for the delayed response! So your T4 is slightly only the higher side, but only just out of range. I actually feel better with mine towards the upper limit of what is considered normal. TSH although technically normal range, it isn't optimal as your fertility clinic said under 2/2.5 is the best in general life as well as for ttc. Have they considered putting you on a small dose of levothyroxine?

@Natty2 ahhh that's come round quickly! Hope AF arrives soon for you, so you can get going! How are you feeling about round 2? Good that they will be checking for cysts etc as well. Really hoping this is the one for you and you get your miracle from it 😊

Natty2 · 05/03/2024 07:47

Meds arrived yesterday, feels surreal to be doing this all again! Waiting for AF to arrive hopefully next week as my cycle has been longer from all the previous hormones.
The plan this time is for a high dose of a different hormone, which may not produce a high quantity but should produce better maturity 🤞 they'll do a day 1/2 scan initially to make sure my body is ready and no cysts from previous retrieval. Hoping we're all good to go this cycle but definitely going into this cautiously now.
Hope everyone is doing ok.
@LucyLoopyLu have you started your ivf treatment?

TTC for 18+ months and feeling low!
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Emz09 · 27/02/2024 22:01

@missmoosh ahh amazing, thank you.
In September it was 2.6, however was retested via a private tests along with a full thyroid panel and TSH is 3. My free T4 is 16.60 pmol/L.

@Natty2 thank you 🤍 xx

CatCaretaker · 27/02/2024 21:44

@missmoosh congrats, I haven't been there but I imagine daily vomiting is a small price to pay, especially after struggling.

@Natty2 when is your next round starting? 40% chance sounds good to me!

Natty2 · 27/02/2024 21:19

Thank you @Emz09
And good news that your call went well and things can progress quickly. I had a Hycosy/ HSG scan last year it was fairly quick and not too uncomfortable.
Hopefully you won't have to wait too long for it.

@missmoosh yes fortunately nhs will still cover the storage of our one embryo for 3 years and we'll just pay for the FET later down the line.

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missmoosh · 27/02/2024 20:47

@Natty2 oh how frustrating about the NHS transfer, do they keep the embryo so you can pay for a FET if needed? Yes I can imagine it's a lot, the price when you need ICSI is just horrific! Good to hear about the insurance, though hopefully you won't need to do more than one more round before you get your miracle. I really am crossing everything that your time is coming soon!

Thank you ❤️

@Emz09 i actually don't have a thyroid, so know a fair bit about it and fertility. What is your level? My endocrinologist upped my meds recently as my level got to 1.9 (up from 0.7 at beginning of pregnancy) and he said that was too high! So I do think under 2 is actually the most optimal but your t4 levels also need to be checked as tsh alone won't give you the full picture

Emz09 · 27/02/2024 20:16

@Natty2 happy to hear round 2 is coming up. Keep positive, keep going. I have everything crossed for you and I will keep you in my thoughts 💫

I had my first NHS appointment last week, it was a phone call. very positive, however I was so shocked that we could have agreed to IVF there and then. I have opted to have a HSG initially so if you have any words of wisdom or tips for this then please share them 🤍

The only the thing the fertility nurse said is my TSH is normal but not optimal because it was over 2.5. Has anyone had experience with this at all?

Thank you

Natty2 · 27/02/2024 20:04

Thanks @missmoosh will find out my protocol tomorrow as I've got a nurse planning appointment, but I think same sort of plan just different medication and higher dose.
We lose our nhs transfer by doing a fresh new cycle, but we were told even though we've got a Grade A embryo, there's only a 40% chance of success. So we think it's sensible to do this now whilst we're young and hopefully have more success next time.
It's an eye watering amount though especially as we need ICSI IVF 😖 we've got an insurance option so if this doesn't work we can do another cycle and they also cover FETs until a live birth. Just can't believe we have to do it all again, trying to stay positive but more prepared for the rollercoaster now I've been through it once!

So pleased you are doing well although sorry to hear you are still being sick! You must be exhausted from it! A baby girl 🩷🩷 So exciting. Hope all goes ok with the 20 week scan

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