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Conception

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What's IVF *really* like?

63 replies

JaneHH · 01/03/2008 17:59

Hi everyone

DH and I are almost 99% sure we're going to start on IVF in the next few months - I can get pregnant but I don't want to pass on something hereditary which I have. So IVF will -hopefully- help us in that department.

So I was wondering whether anyone else has done IVF with PGD (pre-implantation genetic diagnosis)?

But I was mainly wondering what it's REALLY like to have IVF... What can we expect besides all sorts of trips to the chemist and self-mutilation with daily hormone injections? Is it manageable or more realistically truly hideous? What do I need to steel prepare myself/ourselves for?

Thanks for all your help, MN'ers!

---------------------

Hi there - this thread is a little old. [[https://www.mumsnet.com/conception/ivf
If you want to find out about IVF, we’ve got more information here]]. MNHQ

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FannyIsYourAunt · 08/03/2008 22:50

We were unsuccessful at our IVF attempts, but have had a baby as a result of egg donation IVF.

My number one tip is to think of it is as a whole series of hurdles (or milestones if you want to be a bit more positive). Between now and having a baby there are just so many things that have to go right and if you spend your time just thinking about the baby at the end of it all you're really setting yourself up for disappointment. Don't think about success or failure in terms of having the baby. Instead, think of every scan, every blood test, every egg collection, every sperm collection, every fertilization, every implantation, every pregnancy test, every scan and so on as another accomplishment on the road to your goal.

It's a very long process, with much waiting (and dozens and dozens of appointments, drugs, injections, nurses, doctors, and so on) and you need to feel good about it along the way.

It's not a nice experience (either physically or mentally) but it's really not that bad. For us the pregnancy and the time after the birth were far worse as it turns out. Of course ultimately, if it works, as it did for us, it all feels utterly worthwhile.

Go for it and good luck.

nomoremagnolia · 08/03/2008 21:46

Come and join the IVF-ers thread, then I'll remember to keep you informed I really hope it works out for you with the IVF.
I'm going for a scan next week and then we'll see what happens next. Am feeling quite nervous about it all now it's actually becoming 'real'

byhisgrace · 08/03/2008 21:33

No more magnolia that sounds great ... I hope we get that lucky with Norfolk PCT!!!

Fertility issues certainly doesn't help me learn to be any more patient, I constantly feel like a puppy pulling on his leach!!

Anyway all the best with Easter ... please keep me posted with how it goes??? We might be just a few steps behind so you could teach us the ropes!!

Take Care :0)

nomoremagnolia · 06/03/2008 16:17

byhisgrace How awful the 4 pgs have not resulted in a baby
We're just starting down the NHS funded IVF route and we've been reffered really quickly but I think we're the exception rather than the rule. Until recently our PCT would automatically put a six month delay on funding couples through IVF but they've recently decided that NHS funded couple shouldn't have to wait any longer than self-funding couples and that they'll find the money from somewhere. As a result we saw the gynae at the end of Jan to discuss what we'd do next (after 6mo of Clomid didn't work), he reffered us and we're already on the books at the IVF clinic with our first consultation after Easter!

byhisgrace · 06/03/2008 15:12

Hello all .... I guess there is lots of us out there!!

we tried to conceive for 2 years with no success and a move to the country just seemed to change all that. We have conceived naturally 4 times in 14 months since the move!!

Unfortunately none of these have resulted in a baby. We had a misscarriage at 12 weeks and have had 3 ectopics ... the last one was removed a week ago ... and as a result I now have no fallopian tubes!! This is really hard to get my head round!! We both come from huge fertile families and are so blessed by all the neices and nephews ... but we'd like to join in!!

We have an appointment to disscuss IVF with the GP .... how long do NHS referrals take? How long does a cycle take? Are there any questions you would reccommend I ask!! Really anxious to know more and would be greatful of any advice!!

swerve · 03/03/2008 10:48

I'm in the limbo stage post transfer, which is the bit I hate the most (this is my 5th harvest and dd was born on 4th). There's some really good advice here. Yes, the injections, scans, etc etc range from painful, scary, revolting etc, but I found comfort in the fact I was doing something rather than just waiting for it to happen naturally (oh, imagine, doing it the old-fashioned way: couple of drinks in the pub, maybe dinner and a shag!).

The bit I hate the most is the 2 week wait. I think I might go and pee on a stick just to get it off my mind for a day. It's driving me mad. The bit my dp hates is the fact I go off my rocker during it. Fortunately, I'm mostly oblivious to it but this weekend I went out and forgot to shut the front door and when I came home left my bag on the doorstep (don't ask how, I don't know!!).

will sanity ever return??

JaneHH · 02/03/2008 10:39

Thanks everyone for all your tips, especially the link to the care fertility web, outinthesticks. No, not depressed me!

Unfortunately I don't think we'll have much choice when it comes to clinics - there's only one place in Holland which does PGD for what I have, and only one other place which does the "IVF bit" for PGD if you can't get to the official PGD place. And all that when you can get "normal" IVF just down the road here where I live . Will see if I can arrange to have the daily (?) checks done here in town rather than driving 2 hours to be told to come back tomorrow...

Very good to hear such a range of stories, too - it's not all bad, I can conclude very hesitantly... Thanks everyone - and good luck to anyone lurking out there who's also doing or planning to do IVF

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outinthesticksmummy · 02/03/2008 09:26

I've had 6 attempts, got our beautiful DD on attempt no.4 now pregnant with twins after attempt no.6. Its bloody hard!!! The drugs mess with your mind and your body. You have so many highs and lows as you go through all the various stages, then the 2week wait is the hardest part of all!!!! analyzing every little niggle in case it might mean something....then if it fails, thats the last 6-8 wks down the drain, never mind the thousands of pounds that went with it (no funding here i'm afraid!)

BUT............. when it works, its all forgotten and its worth every single penny.

Have you been onto this website

www.carefertilityweb.co.uk/phpBB2/index.php

Its great and you can support each other through all the differant stages, even before you get started. Would highly reccommend acupuncture before during and after!!

Good luck, hope i haven't depressed you even more.

xx

thelittlestbadger · 02/03/2008 09:08

Hi Jane. I did 1 round of IVF and found the side effects & drugs etc not really that bad. ~Felt a bit uncomfortable the day before egg retrieval though! I tried to think of it in stages i.e. if down regulation works at least I know that stage is done and we don't need to try anything else; stimulation is working, don't need to try anything else so that is good news etc..

I was very lucky and got pregnant with DD on the first attempt (although am now planning to go back to TTC#2!)

With work, I was working full time throughout (and through the 8 preceding failed IUIs!) I was lucky in that the clinic was very close to my work so I would just pop out for 20 mins. I also got to know the receptionist so she would call me 5 minutes before they would be ready to see me rather than having to wait for an hour or so. When I embarked on IVF I told my boss who was actually very understanding and I told my secretary so that she could come up with excuses. 1 friend at work also knew, but like KC, I had always said I would do 3 goes and that would be it. I found work helfpul really in that it gave me something else to think about.

On the diet etc, we had a fantastic holiday 3 months before we were due to start and ate and drank a lot (to help with relaxation LOL) but then went on a major diet, lots of fruit and veg, fish etc and no booze or caffiene.

I think the emotional side of it is probably the hardest thing to bear and I had a huge amount of support from DH, my mum and the counsellor at the hospital who I ended up going to see about once a week - I also did acupuncture with an acupuncturist who was experienced with IVF etc and was also a great help. It is doable and bearable but not easy. Good luck!

jenkel · 01/03/2008 23:57

Just wanted to add, at my clinic the scans were at different times of the day, depending on how I was responding to the treatment, sometimes in the morning and sometimes in the afternoon, couldnt really depend on the time of the scan until I had the previous one and they could them make an informed decision, not all clinics do it as exact as this. May be worth asking your clinic if they do this, I was happy that they did as I felt that they were likely to catch the optimum time and also felt that they were keeping an eye on me, but this could obviously have implications if you are working.

LadyMuck · 01/03/2008 23:01

In terms of work I think that you need to quiz your potential clinics in terms of their protocols. For my first treatment I went with a clinic local to my home address. This was fairly disasterous as they held all of their scans/bloods at lunchtime so it was almost a 3hr round trip each time. I then moved to a clinic nearer to work, who also did early morning scans/bloods so i could be at my desk shortly after 9 each morning. In that event my work was only really disturbed by the lack of notice about egg retrieval. And in case it isn't obvious dh is needed then too, so you have his work to think about, though usually they are more accomodating as he won't be looking for maternity pay.

FWIW I didn't actually feel that hormonal as a result of the drugs. I was however very emotional about the procedure.

In terms of the number of cycles to think about, I'm not sure to what extent PGD affects the stats. When I last did IVF (5 years ago) I was told that the critical success factor was the ability to select the best embryos from a number, so essentially the more eggs that fertilise and grow, the better. You will be reducing this number through the PGD, so I guess you need to factor in to what extent you are reducing the eggs. So if there is a 50:50 chance that you pass on the condition then you are reducing the number of embryos to half. So whilst an average couple may have an 85% chance of a baby by their 3rd IVF attemtpt, you might need 4 say to get to the same chance of success. Obviously there may only be say a 1 in 4 or less chance that you pass on the condition which brings your odds back to closer to the average.

mistlethrush · 01/03/2008 22:21

Jane coming a bit late to this thread, but know a bit about the pros and cons. I got to the top of the NHS IVF list twice, but managed to conceive naturally just before each time - 2nd time got as far as the appointment to set the day that month... However, 2nd time round I was told that it was really good that it was proved that implantation was OK as this was one of the things that could be a problem and make IVF less sucessful

We had a problem with a mp the first time I conceived - and treatment was such that we decided that if it happened again we would not try a third time but would try to adopt.

Friends of mine went through IVF but stopped part way through the first treatment as it made her feel awful. They decided to adopt and now have a lovely little boy.

I think that its a really good idea if you know what your plan is if things don't go the way you hope - and give yourself a way out and alternative option. It means that the earth doesn't collapse totally around you if things don't work as hoped for.

Oh, and in terms of letter people know at work, my dh has 2 people in his dept at work that are both going through or starting IVF - I think it depends on how understganding you work is.

JaneHH · 01/03/2008 22:20

:-)
Will wave at you too, 1wish! No you did not dominate the thread so don't start thinking that...

I'm (probably) off to bed now... thanks all again for your help.

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1wish · 01/03/2008 22:16

Thanks again, and I'll follow your progress. I don't post much as I never have anything very useful to contribute, and I take over the thread but if I see you about when I'm lurking I'll say hi.
Oh and I'll continue my voluntary work over the period (preens at voluntary work) so I will be doing something constructive.
Enjoy the rest of your weekend, i better get on with doing my uni work, I've been on here for 6 hours eek!

JaneHH · 01/03/2008 22:04

Sorry 1wish the wine had made me forget your degree... doh. Good idea, get IVF "over" with first, then job. Job can always come later, as long as you don't mind doing what Kewcumber did (scare 12 year old recruiters with gynaecological facts ). Perhaps in the time you're sitting around you can think of something "constructive" to be doing for a) cv points and b) taking your mind off things! Oh and c) to avoid having to watch dire daytime telly.

Yes, definitely some positive stories in between the less positive . To be honest I think even if I'd only heard "ohmigod it's awful don't do it" as replies to my thread I would still have gone ahead with it all! We haven't started yet but will be doing so asap - appt next week with the gynae and then we'll be in touch with the ICSI / PGD centre at the other end of Holland.

Good luck with all your exams! Get THOSE out of the way first, THEN think about IVF. Only a few more weeks to go to secure your qualifications then you can go full tilt on babies Good luck with it all!

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1wish · 01/03/2008 21:59

sorry x-posts

JaneHH · 01/03/2008 21:58

Yes, ICSI is what we'd be doing - had forgotten the name, thanks mumwhereareyou!

Wow, having to fly backwards and forwards makes my 2-hour car journey rather pale in comparison! DH and I will (I hope) also be taking the "if it works then it works" approach. Easy to say during the first cycle, but then later on... we'll see...

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1wish · 01/03/2008 21:57

Well I'm at uni untill the middle of may, so can't really handle the stress of IVF and my stupid dissertation and exams.
I've made my mind up anyway, IVF first, Job later. I don't know how i'll manage lazing around all day doing very little, opps I forgot thats what I do already (typical student)

Have you started the IVF process already, or when are you planning to start Jane. People's responses on here have really made me feel better about the whole thing, maybe not as scary as we thought, and some positive stories, don't you think

mumwhereareyou · 01/03/2008 21:54

Hi

I had ICSI a few years ago well we had 3 goes at it and then the Dr told us to stop wasting our time as it would never work as my eggs were too old (i was 32 at the time), best news he gave us really. We were living in Germany at the time as hubby in the army and we used to fly over for our treatment at Hammersmith, have to say we approached it rather factly if it works then so so be it. Didn't mind the injecting or extracting or implantion but hated the bloods as bruise rather easily.

Anyway we went on to adopt a sibling group of three so it all worked out for the best for us.

Hope it works out for you and would just say try and relax about it all.

JaneHH · 01/03/2008 21:49

mmhh difficult. The last thing I want is this to turn into a working-wimmin-thread (which is often my stance )

Can you start IVF any earlier to avoid having to think about this and to be getting on with it? Or are there other factors involved?

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1wish · 01/03/2008 21:46

Thanks for the wine (1wish takes a sip, nods head, good wine )
Were thinking of may/june time, the job i've seen starts end of may, it's a trainee post and I know I could do it, oh bollox why is it such a mess. I don't want to miss a job oppotunity but I don't want to delay the one thing I want more than anything.
My head hurts from trying to figure it out, or is that the wine

JaneHH · 01/03/2008 21:35

What kind of timeframe are you thinking of for starting IVF? If you're thinking of next month, then I would wait a bit before starting work but if you're thinking "well in the next 12 months" then I wouldn't let that put me off finding a job if I wanted one.

Having said that, you're very lucky in that your DP doesn't mind you waiting. (Not that my DH kicks me out of the door to go to work the pressure to work is entirely self-inflicted.) Perhaps you'll save yourself an awful lot of stress and thereby simultaneously increase your chances of success if you do have time off first???

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JaneHH · 01/03/2008 21:31

LOL Kewcumber!

Onlyaphase, thanks for that. I think I will be in the same situation as you if we get that far. Fortunately (or not) I have to have hospital appts for what I'm trying to avoid passing on and I'm quite open about them so I may be able to stretch the possibilities there... or not, we'll see...

The problem is that I don't work in a city with all sorts of jobs going left, right and centre - if I left where I work now (and I have a good job which I love) I don't know where I'd go afterwards! And if anyone's read my posts on the working mothers thread from last week then it won't be a surprise to hear that I'd find it all too scary to stop working altogether!

Perhaps it's best to combine the tmi / giving excuses thing... Use the "in for a minor op" thing but then when pushed to give more information mention something vague and a bit too gynaecological

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1wish · 01/03/2008 21:27

I think it'll be best not to start any job then really (ok I guess if you've been with an employer a while). Dp fully supportive of me not taking a job till we've had a few goes. I was unsure, but I don't think it's wise to start a new job and then go for IVF is it?
But on the other hand it's costing a fortune so i need to work!!
sorry I'm just thinking out loud here...I'll go get another glass of wine I think and stop clogging up this thread

Onlyaphase · 01/03/2008 21:16

I had IVF a few years ago, and had real problems with the work thing - to tell them or not? I was working in a big bank in London at the time, lots of pressure, managing a team etc and truly didn't know what was best to do. I was about 90 mins away from work when I was at the clinic

I ended up not telling them what was going on - simply because I thought they would be sympathetic and helpful for the first cycle of IVF, but what if I needed more? How sympathetic would they be then? So I didn't tell them and used a range of excuses such as dentist appointment, doctors appointment, late trains etc. If it helps, I think all of my scans were in the morning, and I requested scans as early in the day as possible. I booked the day of egg collection off and the two days following as medical leave and said I was having a minor op.
To be honest though, it was stressful having to rush to work afterwards each time, and I hated it.

Best of luck whatever you decide to do

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