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Conception

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Thread for sufferers of recurrent miscarriage

134 replies

OracleInaCoracle · 29/02/2008 13:56

There seems to be a few of us, so thought i'd start a support thread.

OP posts:
OracleInaCoracle · 14/03/2008 17:15

oh heythere, im so sorry for your loss. the first thing you should do is get yourself to your gp and insist on tests, they dont normally run tests until you have had 3 mcs but because of your age they should do. i doubt very much that its a "cant carry boys" thing, there is no evidence to suggest that your body favours 1 sex over the other, unfortunately mc is very common and its most often a chromosonal blip in the embryo/foetus. having said that i know thats of little or no comfort to you, so i can just offer you some virtual chocolate and a shoulder to cry/rant on

OP posts:
HeyThereGeorgieGirl · 14/03/2008 16:29

Hi there. Not sure whether I qualify to join the thread but could really really use some advice and a shoulder to cry on right now.

Found out today at 9 weeks scan that our much longed for DC3 had stopped growing. This is my 2nd mc in 4 months. Had mmc and ERPC in Nov07. I think I might mc naturally with this one which is petrifying me.

Am really confused why this has happened and I want to know if there's anything I can do to stop it happenig next time. Any advice? Get my egg quality tested (am 38 in June)? get DH's sperm tested? Have DD1 (6) from 1st marriage and DD(2) with DH. So I can carry to term. Just wondering whether last 2 pg have been boys and whether my body doesn't 'do' boys? .

Think I'm still in shock and have gone onto auto pilot to try and cope. I cope better when I have a plan to follow.

I know that some of you have been through a lot worse than me. But today, my world has crumbled.

Thanks for listening. xx

OracleInaCoracle · 14/03/2008 08:48

not a lot unfortunately. but their antenatal care for women with rmc probs is fab. they will sometimes prescribe blood thinners tho.

OP posts:
wen10 · 14/03/2008 08:27

Hi LL, who is mr F(name) at LWH, what treatment do they offer for recurrent mc's after all the norm tests have been carried out?
wenXXX.

wen10 · 12/03/2008 23:03

Hi LL, thanks for replying,
all tets have shown nothing so it's a case of just keep trying but something can't be right as it goes wrong at the implantation stage! have just been searching consultants and came up with the following:

Dr Beer who has sadly passed away but seemed to be a very knowledgable man and Dr Wanger.

Have you heard of either of these?

wenXXX.

OracleInaCoracle · 12/03/2008 22:40

hi wen, welcome to mn. im sure you will find it v supportive. i have had 8 mcs and 1 ep and am currently seeing mr f at LWH's recurrent mc clinic. have your tests shown anything

OP posts:
wen10 · 12/03/2008 21:06

Hello everybody, i am new to this forum, my name is wen. I have been reading all your posts on this thread and just wanted to say how sorry i am that we are all in this situation, it really is pants to put it mildly!

I have had 8 early m/c's over the past 22months with only one reaching up to 9weeks! The embryo just does not seem to beable to implant. I have had many blood tests etc and all have come back normal. I am at a stage now where i really dont know what else i can do so i am looking into getting a referral to see Prof Regan, dont know though what i really expect he to do, also i think i need to look into KN cells test. Anyway i hope i have'nt waffled on for too long.

I am so pleased i have now found this site, only wished i had found it a lot sooner.

Takecare everybody
wenXXX.

mistlethrush · 07/03/2008 20:39

Hi Poppy - seen you on other threads... Sorry you're here.

I had blood tests done in early Feb and have an appointment to consider results in April.

Blahmode - it wasn't the needling that hurt - that was OK - it was the initial finding of the spot that was the problem. Very occasionally I find that its sore when the needle goes in (I think it hits a nerve or something) - she sorts it out so that doesn't happen. I sometimes get an incredible 'electric shock' type feeling - to a greater or lesser extent.

The most amazing thing I found about accupuncture was when I went when I was pregant. Quite early on I got breathless - and it was clearly nothing to do with reduced lung capacity due to bump. I could be lying on the treatment couch having to shallow breathe, have the treatement and come out able to breathe normally.

My accupuncturist is very pro green tea - and doesn't complain too much about my excessive very weak china tea drinking provided that a reasonable proportion is green tea! I now drink very little coffee - the very occasional espresso for the taste, but otherwise only the odd one at about 2 / 3pm at work when I really need it!

OracleInaCoracle · 07/03/2008 18:03

hello to all the newcomers, some names i recognise...

im studying reflexology at college (well holistics, but the reflexology is what i want to do) and its surprising how much you can tell about someone.

OP posts:
Blahmode · 07/03/2008 18:01

Hello Poppys, sorry about your m/cs. My last one was in October and was told not ttc until appointment at recurrent m/c unit in Jan. This was v hard as I'm 43 and feel like I have zero time left. I really know how you feel. We had our bloods and my scan done end of Oct and got all results mid Jan so the whole process took a while. Heard good things about reflexology but not tried it yet and am getting a lot out of acupuncture so would recommend that, try finding one who specialises in fertility if poss.

Mistle & Bunny I was surprised how much acup can hurt though, especially the foot ones - like a wasp sting sometimes. Bit hard to relax sometimes when you want to kick the acupucturist! She doesn't press hard on me for pulse, its firm but not hard. Diet-wise they talk about reducing dairy, spicy foods, juices from concentrates, sugar, caffeine all the things I like. They also recommend avoiding eating cold things out of season (i.e. salads in winter), so food should be warmed or hot if possible and a big yes to porridge, brown rice, pulses and steamed veggies/fish/chicken.

Period arrived today so its back to CD1 for me, sigh.

Poppys · 06/03/2008 22:07

Hi Every one

Hope you don't mind me joining.

I've had 3 mc's in the last 9 months and the hospital has at last referred me and DH for blood tests. We have to wait 8 weeks to allow my hormones to get back to normal after the last pregnancy and have an appointment for the end of April - is it right that we have to wait this long? It just seems like such a long time and so tempting to ttc in the meantime.

Can anyone give me any idea how long we will have to wait for the results of the blood tests as well??

In the meantime I'm really tempted to try acupuncture or reflexology - has anyone had real benefits from either.

Reading all your stories makes me realise that I am not alone.

Thanks in advance for your advice.

mistlethrush · 06/03/2008 21:05

bunny - it wasn't the needle that was the problem - it was finding the spot to put the needle into to start with.

Heidi, sorry, can't help, no experience of that. I'm just waiting to find out whether there is any chromasone or cimilar reason for mc happening. Its good things are settling down to more like their previous pattern - hope that is a good omen.

HeidiS · 06/03/2008 20:39

Anybody had bits of the lining of their uterus stuck together? I don?t know what the technical term is?but when I had my hysteroscopy a month and a half ago the doc said he found a tiny patch that was a bit stuck. He opened it up but he said he didn?t think it was big enough to explain 3 mc?s (but then another doc said I can?t rule it out as a cause). But I?ve got my af now and it?s so much more like it used to be before the first mc and subsequent d&c.
TMI coming... I used to have af for about a week. It used to start with a bang and be strong for about 2 or 3 days and then taper off slowly to almost nothing towards the end of the week. But after that first mc ? it went funny. It would start with just spotting (which drives me mad when I?m hoping I?m preggers because when it starts I think?okay, it could still be some of that implantation bleeding) and then after a few days of next to nothing it gets strong and then tapers off ? which means my af can be almost 2 weeks if I count the first spotting day as day one (should I be doing that? Or starting form the first heavy day?????)

ANYWAYS (apologies for the rambling) this is my first real period since the doc opened the small sticky bit in the uterine lining and dear af has started with a bang?like it used to before all the problems started?

I?m trying hard to listen to my hubby who reminds me to be cautiously optimistic?and maybe I?m just grasping at straws?but I can?t help wondering if that sticky bit was enough to cause the problems and my af being 'back to normal' means it?s now all gonna be good??

AAAHHHH ? can you tell I?m obsessing? :P

bunnyinheadlights · 06/03/2008 17:31

thanks blahmode and mistlethrush. yeah, i really was confused with all the terminology - googling it made my head spin. best to just trust her. she will put me on some herbs after 3rd visit. hmmm...

mistlethrush - i too yelped out loud on one spot on my thigh i made her take it out it was causing to much pain! but it is the same thigh/hip where i have chronic pain since giving birth to dd, so there must have been 2 years worth of congestion there. amazing stuff!

blahmode - she didnt talk about diet. but i am interested.will ask her next week - i was so overwhelmed with all the other info she was giving me. what did yours say about diet? oh the only thing she said was that i should stop eating dairy for a while coz of my blocked sinuses, but dont think it was related to mc.

mistlethrush · 06/03/2008 10:23

I've been going back to accupuncture for about 6 months - mainly due to sleep problems, but also because got pregnant last time that I saw her. Did sleep really well last night (well, the 6 hours I normally manage to be in bed before ds gets up anyway ). Apparently have some 'liver' issues - but heat main problem, not damp. Perhaps we should get together Blahmode - sounds as though we'd balance out quite nicely! Do you ever get the checking of pulse when they have to push really hard to get anything? One side in particular (R I think) - often much lighter than the L side. Very peculiar. And one spot on my foot she was finding yesterday made me shout out it hurt so much - was fine when she put the needle in once she'd found the spot though, and it doesn't appear to hurt today, so hope its done some good.

Blahmode · 05/03/2008 23:26

Hello bunny, sorry for your losses. I've had acupuncture since Oct after my 3 m/cs last year and find it really beneficial, though expensive. I was told that my kidneys needed unblocking and I had "damp". At the start it made me laugh, the thought I had rising damp on top of everything else, but have come to really get a lot out of the sessions and have lengthened my luteal phase by 1 day which is all good. After 4 months, I feel better all round and apparently my blood flow & kidneys are much better. I went weekly for 2 months and then now have it in the first 2 weeks of my cycle, where its to do with building the egg and womb lining, apparently. She said my body had had so many ups and downs with all the pregnancies that it needed time to strengthen to prepare for the next pregnancy. Has your acupuncturist talked about diet as well?

bunnyinheadlights · 05/03/2008 20:57

hello all - recognise many of you from the mc avengers thread (which seems to be awfully quiet these days) hope you don't mind me popping in here.

have had 2 mcs in 3 mths first one i was 10 wks along, had erpc, 2nd one at 5 weeks, naturally, no erpc needed. just had first af after the most recent mc. and now in real mess in my head whether to ttc or wait.

went to the acupuncturist for the first time yesterday. she said that my kidneys were weak and i had blood stasis. not sure what either means. she thought it would be common sense to wait and get stronger before trying again. anyone been for acupuncture after recurrent mc and had the same thing told to them? drs said to wait after first af. physically i do feel exhausted, but just want to get on and a baby. cant get out of my head that may is coming up and that was the due date of first baby i lost. i was envisioning a lovely summer with new baby.

torn between letting her treat me for a few mths and ttc right away. help!

Nina2 · 05/03/2008 20:43

Thanks lissielou, I found out the middle of Jan, waited 2 weeks and ended up with erpc at the beginning of Feb.

V. annoyed at being so sober and sick over Christmas - just not fair!

Christmas 05 - recovering from ectopic, so not much booze.
Christmas 06 - breastfeeding, not much booze.
Christmas 07 - pregnant, no booze.
Christmas 08 - hopefully pregnant? Doh, no booze

Not known for my timing!

WorzselMummage · 05/03/2008 20:14

I'm not strictly 'recurrent' either but i've had 3, a suspect blighted ovum (only discovered when i started miscarrying and scan showed just an empty sack) which was complete, a mc at 8 weeks and a mmc at 13 weeks which both required an erpc. I had my daughter after the first 2 and she was 8 weeks premature. I've not had any of the tests, i asked this time but have heard nothing, i might go to the GP and ask buy he's been as much use as tits on a bike about ttc it'd probably not be worth the effort !

I too am waiting for AF altough we've been ttc anyway

erpc was 3 weeks ago today.

sorry for all your losses x

OracleInaCoracle · 05/03/2008 20:09

nina, im sorry about your recent mc, how long ago was it?

OP posts:
Nina2 · 05/03/2008 19:59

Sorry to squeeze in. Not recurrent miscarriages as such at this end, but very pleased that someone has started a thread for this. I've just had a missed miscarriage, discovered at the 12 week scan. I've also had an ectopic and my ds was one of twins, one of which died at about 8 weeks and managed to reabsorb.

Although I've conceived 4 babies and only carried one to term, because the miscarriages seem so random I keep being told that they're just 'one of those things' - I'm beginning to wonder how many times 'those things' can keep happening .

Waiting for AF so that we can think about starting to TTC again.

HeidiS · 05/03/2008 18:27

mistlethrush - 1:200 is enough to freak me out.
So completely understand your worry.
I'm also stressed that my next pregnancy with end in mc and what that'll mean for my stats/chances. The docs said that my first mc was twins - which is high risk anyway. And the second was early - where the risk is higher for everyone. And the third wasn't in the right place? But if I have anymore mc's I can't grasp onto that in my attempt at denial - which I'm pretty good at
We just had a story on our news about a newborn baby boy that was thrown in the garbage a few hours after he was born...he was found and rushed to the hosiptal and is doing fine but no one knows who/where his mom is. Makes me quite sick. There is a saying in Hebrew..."God sometimes gives nuts to people with no teeth." When I think of all the couples who are dying for a baby...

mistlethrush · 05/03/2008 12:38

Lissie - same here, except its when I have mc that I'm sure that will get mp again (particularly after the 1st mc after ds took so long to sort itself out and get hsg levels down) - so instead of 'just' dealing with mc, have sleepless nights worrying about how on earth I'm going to cope with treatment with ds being so lively...

OracleInaCoracle · 05/03/2008 12:16

i kind of knowwhat you mean.thats how it is with my ep. I was so sure that it would never happen to me, the odds are slim so when it did and the odds of another one shortened it freakedme out. every pg I have been convinced that its another ep

OP posts:
mistlethrush · 05/03/2008 10:17

Lissie was in a similar situation last autumn (although I ended up on MN to confirm cycle dates ). It's horrid isn't it. And even if you do get bfp, this doesn't guarantee anything.

HeidiS - chances of getting mp to the extent that I did (ie needing treatment other than d&c) is something like 1: 20,000. I think that the chances drop (increase?) to something like 1:200 once you've had it. I know that sounds still quite low, but 1:20,000 is a lot lower and it happened to me, so feels as if its a lot more likely to happen iyswim.