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Conception

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Original poster

Very high prolactin levels TTC

27 replies

pigeon166 · 03/07/2023 19:20

Hi all, wondering if anyone has had a similar situation to this as I’m somewhat freaking out!
I conceived first month of trying in December but had a missed miscarriage diagnosed in late January, used medical management to miscarry.
Been TTC since February but periods have been quite irregular - I was on the pill for 12 years but remember I always had short cycles before going on the pill, however since the miscarriage they were even shorter ranging from 21 to 24 days.
I got a blood test privately and it came back with an extremely elevated level of prolactin - 2,000 vs a normal level of less than 500 according to the medical report.
I have a GP consultation booked for Thursday and I have spoken to my acupuncturist who said this level is indicative of a pituitary tumour, which is benign but prevents ovulation.
Has anyone had experience of successfully treating this condition with medication and going on to conceive? I’m quite scared reading about the side effects of the medication but it seems it can be quite successful. How long did it take to get an MRI scan and be prescribed medication on the NHS?
For extra context I am 31 years old.
Thanks in advance!

OP posts:
Original poster
pigeon166 · 03/07/2023 19:30

Thank you so much for your reply, this is very reassuring! I think I have private medical cover through work, but the complication being I’ve just accepted another job so I don’t think I’ll be covered at my current job during my notice period and I know I won’t be covered at the new job during my probation period. But I will see what the GP suggests 🙂

OP posts:
Bosabosa · 03/07/2023 19:27

Yes I had this! Easily solved with drugs. I got pregnant after 3 weeks of being on them and now have my beautiful child (primary school aged). I was lucky to have medical insurance at work so the MRI and medication were all completed and prescribed pretty quickly. I was 35 at the time. I can't remember what the drugs were called but they did knock me out a bit, couldn't work much whilst on them but as I say, I didn't take them for long. Hopefully your tumour is relatively small as mine was. If it is large you may need an op but I expect you would have had other symptoms if it was very large. I hope this helps. It's called a microprolactinoma.