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Conception

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***CAN YOU HAVE JUST A LITTLE PCOS?***

31 replies

DungunGirl · 05/02/2008 13:41

Hi ladies

Anyone out theere in the situation where doctors can see symptoms of PCOS but keep saying that they can't totally confirm it?

I have still got loads of tests to have done, BUT I have had blood tests and an ultrasound.

My scan showed one ovary showing signs of PCOS. It has a bumpy appearance and is enlarged. The actual report from the sonographer said it did have symptoms of PCOS but not all symptoms.

In other words....can one just have a very little case of PCOS but enough to produce the undesirable affects of Weight gain/infertility/spots etc?

Anyone?

---------------------

Hi - this thread is a little out of date. We've got some more information on PCOS here. MNHQ

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DungunGirl · 12/02/2008 09:44

Hi ladies

Had the internal ( yuk) scan yesterday and it seems that I have polycycstic appearences on BOTH ovaries. As far as the sonographer was concerned they looked polycycstic.

Straight after the scan I went to see my nurse at the fertilty clinic and she went through all the blood tests I've had done. TYPICAL! My LH and FSH are in normal balance so my blood work does not scream out a problem.

So I soldier on....

Have to have another scan on Monday next week to see if any of the little eggies are ready to pop!

I am going to get soooooo bored of the hospital...

I guess I might be one of those lucky ladies to have PCO rather then PCOS?

how is everyone else getting on?

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DungunGirl · 11/02/2008 09:03

Wow...bizarre how PCO can have the totally opposite affects for some people hey!

It is also interesting that many women have come on the thread saying that pregnancy improved their cycles.

I have got it the other way round....I rpesume I was fine up until 2 years ago. I fell pregnant with DS within 2-3 months of trying ( so quick) but after about a 8 months, the weight started piling on and my periods went a little haywire.

So having a child has done the opposite!

Hopefully I will get given clomid /merformin and have my second....and the balance will be restored..

I can always hope!

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Nataz27 · 09/02/2008 22:57

TM - I have same weight prob. Gonna just be a skeleton shortly lol

Must get pregnany again - need clothes to fit

Twinklemegan · 09/02/2008 22:55

My story is very similar to Nataz's. After nearly 4 years of trying, and very irregular periods plus a couple of possible miscarriages, I was sent for a scan. This revealed at least one polycystic ovary. I was referred to the fertility clinic but I cancelled the appointment because I fell pregnant.

I think things are a little more regular since having DS (certainly more so than the really wacky times). I was never overweight but weight has just been falling off me ever since I gave birth, and it's still going. I don't know if that's to do with hormones sorting themselves out, or what.

Nataz27 · 09/02/2008 22:49

Hi just want to add my story. I was diagnosed with PCO at 25. Main symptom was irregular and almost non existent periods. Was on the pill for quite a while then came off but no periods. A scan showed lots of cysts on my ovaries. Blood tests showed a very high LH/FSH thingy (sorry not quite the right term).
However, when I looked it up on the net I didnt match the symptoms normally associated with PCOS. I am underweight, not spotty/hairy ect.
To cut a long story short, was booked with consultant for drugs (cant remember what) to help get pregnant. A week before the appointment found out I was pregnant. Now my periods are regular (go figure).
You can have PCO without PCOS and you can still get pregnant. Dont loose hope

DungunGirl · 07/02/2008 14:22

ARRGHHHHH fruitloop! Hehehee you crack me up! You are so funny!

Yeah....it is weird.....I never had skin tags before. Well maybe in my entire 30 years of life I might have had 2.

But suddenly in the last 6 months - I have 2 appear out of nowhere!! The one in my underarm area is getting bigger as well! NOOOOOOOOO...

Fruitloop..I think the GPs try not to find anything wrong with people if they can help it! They seem to miss these subtle signs - EVEN when we point them out to them! Grrrrrr...

I am starting to feel more and more like I definitely have PCO or PCOS....they just haven't run enough stupid tests yet to be happy to confirm it!!!! GRRRR....

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fruitloop79 · 07/02/2008 13:56

OH MY GOD - Skin tags too! AArrgghhh! I have those! got two on my neck removed about 8 years ago! plus a couple under my armpit and one at the side of my armpit.
I don't understand why I've always had all these bloody symptoms and PCOS wasnt picked up sooner! I had a scan about 7 or 8 years ago and they said there was nothing there! Does PCOS just come and go when it feels like it?

DungunGirl · 07/02/2008 09:38

Hmmmm...was just reading more about PCOS and never ever realised that skin tags can be a symptom!

Over the last 2 months I have grown a big skin tag in my underarm and I had a little one on my neck ( which I pulled off! Was not pleasant! )

Is it worth me mentioning this to the people at the fertility clinic?

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sfxmum · 06/02/2008 19:52

well done and keep it up
I really need to go back running somehow everything else seems to fall into place

DungunGirl · 06/02/2008 16:21

I am really trying to lose some weight as I put on so much after having my DS. Again...why? Didn't put on any weight worth a mention while pregnant!

Anyway, I am a mere 1.5 pounds away from officially losing my first stone! Hooray.

God...it has been hard...have had to take up jogging 3 times a week, yoga plus have cut back dramatically on portions at dinner time!

Fingers crossed it will all help!

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annoyingdevil · 06/02/2008 15:23

To answer your question, I was pretty lapse using contraception from around the age of 30 - didn't bother using it most of the time, but was not actively trying to get pregnant IYSWIM. Conceived DD at 37 and DS 15 mnths later! Both times I conceived after losing a few pounds

fruitloop79 · 06/02/2008 13:56

ARRGHHHH......

fruitloop79 · 06/02/2008 13:56

ARRGHHHH......

DungunGirl · 06/02/2008 13:52

((( fruitloop )))

Oh my God! I thought I was some freak of nature not being able to breast feed my DS. I am so relieved to have contact with someone who had the EXACT same experience. I know what you mean about the midwives they kept going on and on and on about it.

It angers me more now to know that it is obviously not un-normal..so why wasn't I offered some sort of explanation?

It would save me all this heartache with TTC no.2 and only now finding out that something is really not right!

ARRGHHHH....

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fruitloop79 · 06/02/2008 12:34

DungunGirl I too had no milk let down. I was devastated to say the least! After 9 months of being totally against formula. Plus being told that every woman can breast feed by midwives! Also comments like "that baby needs a bottle" really hurt.
I now know it was most likely down to PCOS. I've also got an underactive thyroid which can also have an effect on milk production.
Next time I'm gonna make sure I get the help to be able to breast feed! I'm sure it's not impossible with the right medication etc..

sfxmum · 06/02/2008 11:58

just to add my experience

I was diagnosed in my early 20's after a depression from a bereavement, my weight shot up my periods stopped.

I was put on dianette but most of the symptoms did not really improve.
It seems that my periods are linked to my weight, as in below a certain threshold I am ok.
fertility was not an issue as I did not want children but periods / weight / mood have always been interlinked and depression has been a major factor.

I had 2 mc before I wanted children, one once I started trying to conceive in my mid 30's the had my dd when I was 36.
am now 39 trying to conceive again, had mc 2mnths ago.

my periods have been regular since dd was born the most regular they have ever been which is surprising as my weight is still a bit too high

bubblagirl · 06/02/2008 11:53

i was told from age of 15 to 22 that i had pcos

had laprioscopys {sorry cant reme,ber how to spell} hysteroscopys scans all confirmed i had it went for scan at 22 and they were all gone

i was told its not uncommon for women at some point to appear to have pcos for years i had lots of cysts saw them on screen on scan pics and then 7 yrs later nothing

had to have lots of investigations took me off all meds at 24 i bled all the time so had tablets to stop me ovulating took me off to test hormones on if could couldnt have children

was told would be 18 mths before my body went back to normal within the month i was pregnant

could not believe it after all them yrs of being told i couldnt but i didnt give it second thought and doctor thinks this is why my body was acting so positively as wasnt stressing about it

DungunGirl · 06/02/2008 11:46

Wow....this is great things are all becoming more and more clear.

I never knew you could have Polycycstic ovaries but not have PCOS.

The nurse at the fertility clinic pretty much said that I had a polycycstic ovary ( my right ovary only ) but stop there and didn't go as far as actually saying that I had PCOS. It all makes sense now!!!

((Twiglett))
I was quite surprised when my GP said the 9 months, but by the time he referred me it was 12 months.

(((Atilla)))
Again...you amaze me with information! I have had a DS already and my symptoms started after I gave birth to him!!! My hormones are all out of sync.

Also, the doctors never explained why I did not have a milk let-down which meant I could not breast-feed my son at all. Only recently have I found out it can be a sign of PCOS.

So...in fact I could have had PCO since I was a teenager but not had the symptoms start to appear until after my hormones where unsettled by having my first child! MAGIC!!! It all starts to make sense!

(((annoyingdevil)))
Do you mind me asking how long it took you to conceive your two children?

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AttilaTheMeerkat · 06/02/2008 10:38

Most couples conceive within a year of trying. Gynaes generally like to see people if they have tried for a year without succes or after six months if they are over 35. If a couple has not conceived after 18 months then there is likely to be a problem with either one or both of them equally.

AttilaTheMeerkat · 06/02/2008 10:36

Around one in five women have polycystic ovaries. This term describes the appearance of the ovaries when they are seen on an ultrasound scan. Polycystic ovarian syndrome (PCOS) is the name given to a condition in which women with polycystic ovaries have one or more additional symptoms. SO not all women with PCO have PCOS, but all women wiht PCOS do have polycystic ovaries,

Doctors are still not entirely clear why some women have polycystic ovaries. There may be a hereditary link, and they are present in women of all ages, many of whom show no symptoms of PCOS. In other words, ovaries do not suddenly become polycystic; but women who have always had polycystic ovaries may develop symptoms at any time.

notmyrtle - I think you are being poorly served by your GP. Multicystic ovaries is another term for polycystic ovaries. You should be referred to a gynae at a subfertility unit as a matter of course. I would not think you are ovulating with an LH/FSH imbalance (I have this and I certainly was not) so cannot understand why the GP thinks you are ovulating. It is also quite possible to have periods without ovulating.
It is also not a condition that should be messed around with by GPs.

annoyingdevil · 06/02/2008 09:09

I have PCO, but very regular periods. took me a while to conceive, but still managed two babies in my late 30's! I believe I have it midly (thought not officially diagnosed)

Twiglett · 06/02/2008 08:55

PCOS is a syndrome that is defined by other symptoms as well such as hirsuitness, overweight etc

one can have polycystic ovaries without having PCOS ...

9 months is not the average for conception .. it's 18 months ... don't know how your GP could believe that

oh I had PCO before conceiving DS and none after so it's hormonally led

DungunGirl · 06/02/2008 08:52

Oh my God! Really? I have started the whole fertility clinic saga as I have been trying over 12 months now and according to NHS guidelines someone my age - 30, should not need to really try for more than 9 months. Well this is what my GP told me.

Anyway, I never knew about this 'cycstic ovaries' condition before....can you tell me more?

All that the I have been told so far is that before they can confirm...they think I may have a mild case of PCOS. But again who knows!!!!

COngrats on the success in the end! So....you had cycstic ovaries too? But you say that you were put on drugs. Was it clomid? Or metformin?

Ohhh this is all so exciting to find others!

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ChristmasShinySnowflakes · 05/02/2008 19:54

I think you can have Polycystic Ovaries and/or Polycystic Ovary *syndrome

See this site for further information:

Verity

soosy · 05/02/2008 19:52

me too notmyrtle, Nobody even mentioned it to me until we had been having IVF for about seven years, male problem! We do have ds now 10th attempt and have found acupuncture most helpful. I don't even have the spots etc. But I do respond really well to IVF drugs this last cycle I had 17 eggs, not bad for a 38 year old. It also means that apparently you are fertile for longer. Good luck