Prolactin raised

@watermelonsugarmum Did you recheck

@watermelonsugarmum Hi, I believe it was TSH and T4 test. They tested TSH as part of my fertility referral.

@Lauralozzle hey what test helped you find out about your thyroid issues was it TSH blood work or did you do a full thyroid panel my GP is not much help so thought I would ask .

@Lulie77777 hi just came across your comment was wondering what it means ? Had a quick google but thought I would also ask . What is the difference between monomeric or macroprolactin ? I had some tests and my prolactin is : Prolactin mU/L: 875 mU/L ( The Range: 100 - 550 mU/L) and then the lab I’m assuming done this . Monomeric Prolactin mU/L : 388 mU/L ( The Range:< 420 mU/L) I wanted to recheck my levels but my GP just fobbed me off and said No , I do get migraines so was so worried when I had a google and it says extreme things etc & my GP is no help at all.

@dall9 Hi I’m also in a similar situation did you have the MRI scan ? Also was it done with a contrast dye or without ? And was the MRI scan off your whole head and looked at everything/ the whole brain or was it just of the pituitary gland ?

@dall9 I’m starting IVF so still haven’t conceived. Because my thyroid was consistently between 4.5-9.1 I basically begged my GP for thyroid meds because IVF doctors said it needed to be below 2.5 so ended up with tiny dose if thyroid meds. I was subclinical based on blood results so ordinarily they wouldn’t have medicated yet.

GP was still concerned about prolactin so referred me to endocrinologist anyway (after a year of having consistently high results). Had bloods rechecked after 6 weeks for thyroid, asked for prolactin tests again and both had gone down since taking thyroxine. By the time I eventually saw endocrinologist he said it’s unusual but thyroid meds have dropped it massively so it’s related to underactive thyroid. Never ended up having to have mri or anything, just need to keep on top of thyroid levels.

I’ll be on thyroxine now for life but I’m happy my levels are normal now so clearly needed it!

@Lauralozzle how did you figure out it was that? I'm waiting for mri atm to see if it's a tumour on my pituitary gland.. did this stop you being able to conceive?

My levels were constantly at the 1,000-900 range.

I have subclinical hypothyroid and taking levothyroxine has dropped it to about 240. So it can be helpful to have your thyroid checked too.

Ah my levels are still over 2000 been referred for mri but no doubt the wait will be months 😨

Hey, my levels are normal now but still no luck :( xx

How did you get on? @Jade1988c

I'm retesting next week I'm hoping it's worked. Yes trying to pregnant for 18 months now. I already have a 4 year old daughter we had no problem creating her. Xx

My levels were in the 10s of thousands. They vary because prolactin is released in bursts and then slowly fades and is released again. Also other things can raise prolactin such as time of day and stress. You need to have an MRI. Hope you are OK! When this is new it can be a big stress xx

Hi. I have very high prolactin. A few things to consider: ask your doctor to test all your other hormones as this can throw them out of whack. See an endocrinologist. Also, ask them to test whether this is monomeric or macroprolactin and this makes a huge difference.

@Jade1988c have you have levels checked? Does one 2.5mg tablet a week bring these down?
Are you trying to conceive. X

Yes, exactly that! And annoyingly after number 2 and we were done, I've had a perfect 28 day cycle. And still have despite being 50 next month 🙄 I also don't recall any side effects so don't worry x

I take 2.5g once a week. The side effects are horrible. X

Hahaha oh wow ok, sorry just another quick one did you take these tablets untill you conceived? Then stopped taking them then again when trying for another..

Hi, sorry I can't remember- the results are 12 and 14 now so it was some while ago!

@TheSnootiestFox hi, how much did you take and what mg please? X

I don't often pop up on these boards as I'm old and single 😂but I just wanted to say to anyone struggling that working out you have raised prolactin is the haard bit, so if you've got that far then you're on the home straight! It took years for 'them' to work out what was going on with me but once the amazing IVF dr did, he sent me a prescription for bromocriptine (I think) and after years of being told I wouldn't conceive naturally, number 1 took 3 months and number 2 took 2 months, at ages 35 and 37, no other treatment needed. Honestly, you'll all be just fine! Good luck x

I cant conceive. Had bloods done again and my levels were over 2000.. been referred for a mri scan now to get to bottom of it.
It's not ideal is it

Has anyone had any luck getting pregnant? I'm currently having the same problem :( x

I've had blood tests this morning for prolactin.. how long did you results take to come back?