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Conception

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Fertility Appointments and Beyond: Electric Boogaloo

888 replies

thislittlebird · 20/08/2022 13:54

Hit capacity on the old thread, will tag you in!

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JeanieJ · 07/12/2022 18:05

@thislittlebird well, we'll see how my cycle goes next year with my eggs.

It's just so random if I'm honest. I know some people younger than me with unexplained infertility and they're getting nowhere with IVF. I also know someone who is the same age as me - unexplained & they never made it to EC.

Sometimes we have answers & then the rest of the time we're in the dark 🫤

How are people managing the festive season? Are you drinking/not drinking?

Xx

thislittlebird · 07/12/2022 17:23

@JeanieJ yeah, that's what @Beyondshit did I think, found a cheaper option, so we might use the same guy. I can't afford to give Ramsay 6k, we did all the tests and consultations with him and that was enough. 6k is a whole IVF round :/

I heard that about young eggs. It upsets me, I don't want to use other eggs yet, maybe I will in future after more attempts, but I just feel sad we can't do this together. You're probably fine at 35, mine are OAPs now, unfortunately.

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JeanieJ · 07/12/2022 17:15

@thislittlebird it was not cheap.
About £1k for all the tests & about £6k for the embolization of the varicocele.
I'm sure you can get it cheaper with more research and not in London.

It's tough isn't it? When we found out about DH's high DNA frag, my clinic said, just do ICSI & don't waste your money on DH - it was infuriating. Male fertility is 20 years behind 🫤.
Dr Ramsay told us, that younger eggs from your 20s can have a healing effect on poor sperm. It made me feel really bad about myself. I'm 35, so not old, but I'm not in my 20s either.
It all sucks 🫤

thislittlebird · 07/12/2022 17:08

@JeanieJ Trying naturally is hard when you have hope. I have no hope and it's still hard because I can't understand how ZERO motile sperm have made it to where they need to be in 3 years. How much did ramsay charge? I know it'll be pricey with him and he didn't think DH needed it which is....annoying, since ICSI hasn't worked for us now and we're confused.

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thislittlebird · 07/12/2022 17:06

@Tinkerbell098 that transfer is so near to Christmas! Are you expecting people to ask why you aren't drinking?

It's infuriating how with men they just say "do ICSI" and then it doesn't work and the nhs doesn't fund it equally for everyone. No one bothers to care about why the sperm isn't doing what healthy sperm does, they just ignore it and move on.

I do think there's been a decrease in fertility, and it can't be only age, especially where men are concerned and they don't have that same deadline we do, even if age still impacts them. I'm tempted to send DH for some acupuncture before the next cycle too. With the varicocele I feel like we have to try removing it in case it does help.

That's the thing, it takes YEARS to get to the point we're all at and people who just have kids without thinking about it do not get it, that's before the money side of thing is taken into consideration. I'd have loved to have spent all this money on nice things for a kid, but I can't. And yeah, we're in the same boat. Can't move, can't change jobs, and frankly I don't know if I even want to considering how much time I've had off lately and how chill my boss is about it. I don't know if another employer will be as understanding. And we're not out of the woods yet, there's probably another year? 18 months or more? of this for me before we throw the towel in. Depends if we get any embryos, I guess.

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JeanieJ · 07/12/2022 17:03

Hi guys,
I've been following on, but not much happening in my area, so haven't posted much.

@Tinkerbell098 completely get where you're coming from on career stuff.
I'm at the point in my job where I should & want to move on to progress. I also got some great offers on the table, but had to decline because I'm doing IVF in Feb 😕
I'm still so sad about it because IVF isn't a guarantee and I'm afraid I'll be stuck in my job for years.

@thislittlebird my OH did the varicocele surgery in Sept with Dr Ramsay, we should start seeing changes in Jan.
We stupidly tried anyway because you know - hope, but I really regret not taking a break as each time AF came along, I had a breakdown.

Hope everyone is ok xx

thislittlebird · 07/12/2022 16:20

@Beyondshit thank you! I hope you're opk. I can't remember if you had the varicocele surgery or not?

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Tinkerbell098 · 07/12/2022 16:17

@Kay00 how's your cycle going so far? Have they given you a potential collection date yet? Would you transfer this cycle? I've started my frozen cycle (they gave the go ahead yesterday), so I'm on ganirelex and oestrogen tablets. They have pencilled in 22nd as a potential transfer date if all goes well. I'm going to have to be so careful at Christmas and be as stress free as possible (my husband has a big family and it's always chaos when everyone gets together).

Tinkerbell098 · 07/12/2022 16:14

@thislittlebird it's crap the diagnostics for infertility is so limited and mainly focused on women. I really hope things will change in the future as more and more people face infertility. It's definitely not just an age thing. My acupuncturist mentioned that she's increasingly treating more and more patients for infertility than ever before, and mostly younger women. So something's definitely changed in our generation. Some put it down to increased plastic usage in our parent's generation and we're only seeing effects now, not sure if there is a proven link. Think I went a bit off-track, but what I'm trying to say is that you're not alone, and we get it. One of my best friends knows about my struggles, but doesn't quite get it either. She keeps saying I'll have options, but no one really gets all the sh** we had to go through first to get to this stage and then for it to fail and the financial and general implications of it. We have always wanted to move cities, but now we have put away some money for IVF, so the house move is on hold. Likewise, I've had a few great job offers, which I've had to turn down due to IVF commitments and mat leave etc. I know you're also in a similar situation. No one really gets what it's like in terms of my family/friends. I find these threads so useful and supportive to not feel so alone. This is such a cruel journey and I really really hope we all get to hold our babies in the near future X

Beyondshit · 07/12/2022 16:08

Dr Khanna at Wexham Park @thithislittlebird

Sorry not read the thread in ages. Completely taken a break, am considering looking at clinics abroad now. Will read the thread and catch up xx

thislittlebird · 07/12/2022 15:52

And another thing... @99pctpractice do you remember who it was here that recommended a clinic where varicocele surgery was not too expensive? Possibly it was @Beyondshit? But she changes her name so I can't remember if this is the right @.

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thislittlebird · 07/12/2022 14:26

Oh and another thing I want to vent about. I told my friend after we'd done the cycle that it didn't go well, I hadn't really mentioned it before. I said it had gone really badly, but didn't say a lot more than that. She didn't ask about it and just said "oh what a nightmare" and that was it. It really hit me hard, reminded me that everyone is busy with their kids and doesn't get how hard this all is. I didn't reply because I just felt so alone with this, the only one who gets it is DH and even he has a different experience as the male partner.

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thislittlebird · 07/12/2022 14:00

@beckyCarlos thanks! how's things going?

@99pctpractice I agree. All my friends had kinds in their late 30s/40s, why is it just us that has the issue? Obviously something else going on IMO since natural shouldn't be an issue even with low egg reserve etc, we ovulate each month still.

As you said, it's a lot of guesswork. I'm so tired of how expensive it all is too, when they don't seem to know much. I just wish I understood why this cycle had half the number of mature eggs. We went from 12 to 6 which is just terrible odds with his sperm. I've also convinced myself they're picking the bad sperm in ICSI and wondering if there's any chance of them letting us do half IVF/half ICSI if we get enough eggs next time.

@Kay00 fingers crossed you'll get more than zero and they can improve things. Did they ever give you an explanation as to why they think that it happened? We've started all the supplements again, so fed up of them, but it seems like we need to after the first cycle was much more productive than this one.

They changed it to be the same? why? We're going to have to save in the new year while we prep for the next one. Round 3 is already paid for, which is good. I want to discuss things with them like the IVF/ICSI mentioned above, and if we can cut our losses and cancel the cycle if only a few eggs are growing and try another month. If this round doesn't work I'm tempted to try mild IVF with Create. I'm just going round in circles and spiralling about how I'm running out of time to do this, fuck being 40 in a few months :/

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Kay00 · 04/12/2022 21:53

@thislittlebird :-( please don't beat yourself up. It is soul crushing process and you have had some disappointing outcomes. I only got 1 x blast from my first round, and I'm bracing myself for zero blasts this time.

For some reason the consultant has changed our protocol to be exactly the same as the first round, so I'm not expecting a spectacular ok improvement in the results. If I get similar/worse then I'll be saving for a new round, with a new clinic. Onwards and upwards x

99pctpractice · 04/12/2022 12:09

My mum had me at 40 and my sister had her 3rd at 41, so it is definitely not just "age".....

@Kay00 exciting to have started stims - sounds like a great starting baseline too!

I'm sorry you're having such a tough time of it @thislittlebird - there are so many "what if"s with this process and the main problem seems to be that no one has a clue and the science is really just a whole load of guesswork unless they have something really definitive to point to so it's really hard to know what might have made a difference. Try not to blame yourself, it can just be fluctuations in your cycle that impact the no of eggs, which you have no control over. I know it's really hard to drum up the enthusiasm to go again but try to think of the last two cycles as data acquisition : you know more now than you knew when you started the process and you can use that to advocate for yourself and to put yourself in the best possible position for it to happen for you. Sending lots of hugs xxx

beckyCarlos · 04/12/2022 11:10

@kay00 yey for stims! How are you feeling so far? No women in my family have had issues concieving 'older', I'm just special (and was 'only 32' when we started trying). Biology sucks doesnt it!

@thislittlebird I'm so sorry youre feeling like this. This really is the cruelest of journeys. I know its not much, and defintiely doesnt 'do' anything, but I'm thinking about you and sending you lots of love x x x

thislittlebird · 04/12/2022 10:12

@Kay00 glad to hear you’ve started again. Let me know how you get on with meriofert. I’m thinking of asking to try it next time.

The age thing has really thrown me. I thought we’d be ok, we started this when I was 36. It doesn’t make sense to me that I’ve had zero good eggs in over 3 years. Egg quality might be my issue too, but the motility issue is the initial cause imo. And whatever immune shit I might have ongoing. I just feel like the unluckiest fucker at the moment.

I’ve had a real hard time this cycle. Devastated and can’t stop crying tbh. Not even by the outcome, I just knew it would not work. Those sperm were a bad batch and my eggs were few. I’m upset by the constant failure, the 2 rounds and 5 embryos in and nothing but a chemical to show for it. Being told at the start we had a great chance because supposedly high AMH. The no chance of conceiving naturally like other people do. My stupid decision to jump straight into another cycle and not consider dh had just had a wisdom tooth infection and fever. I feel like an idiot who needs to get over wanting a family. I don’t have one of my own really, we’re all very distant, or they’re dead. I wanted one with dh and now that prospect feels like it’s slipping away and it’s so isolating. Not sure how I’ll get through the next few months really, where we go back to depressing natural conception while we try to improve our odds with diet, exercise, supplements. Again.

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Kay00 · 04/12/2022 09:23

@thislittlebird 'age' as a reason is so difficult isn't it. I'm 37 (and a half) and know women who are the same age as me who conceived twice on their first try. Whereas there are women in their early 30s who are struggling due to low AHM or egg quality. So I think the picture is more complicated. We will all reach a point where 'age' is a main factor in our infertility (although really it's about DOR or reduced egg quality), but that 'age' hits some of us sooner than others.

Perhaps really it's unfair to blame it on age? But our ovarian reserves and egg quality aren't getting better with age I suppose. For me egg quality is my problem... I suspect if I'd started trying in my early 20s (which is when all the other women in my family had kids) then I wouldn't have a problem.

On that cheerful note 😂 ...

I had my baseline scan on Thursday 1st Dec and all is looking good, I have AFC of 13 one side and 19 on the other and my lining was thin enough.

I started stims last night with 150 Meriofert

thislittlebird · 01/12/2022 21:40

@beckyCarlos she just said it’s quite a wait because lots of people want to see him. Hmmmm. We’ve got another one on the go with the GP, going to ask for another hospital and see which is quicker.

Male factor is infuriating because there’s not much they’ll do. But to say to me the main cause is age annoys me. All my friends conceived age 35 to 40 with no issue! So it’s not only age, is it?!

@Kay00 thanks, I hope so, but trying to keep expectations low. How are you getting on with everything?

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Kay00 · 30/11/2022 21:46

Hi ladies! Sorry I have been missing in action.l recently.

@thislittlebird sorry you haven't been happy with the quality of your day 5s. I really hope that one/two of the morulas implanted works it's magic. You certainly deserve a break!

Relaxing isn't bad advice... But I'm pretty sure it ain't going to get us pregnant! 🙄

How is everyone doing? I'll try and catch up on messages in the next few days x

beckyCarlos · 30/11/2022 21:10

@thislittlebird I was so surprised I missed your andrology referral 🙈 thats good! Did they give you an indication of the waiting list? It is definitely frustrating that this all focuses so much around the woman and all you get is 'poor sperm, fine, we'll do ICSI' 🙄

thislittlebird · 30/11/2022 19:53

@beckyCarlos @Tinkerbell098 ikr? I’ve come home a little on the bemused side slash annoyed. I’ve just done some relaxing visualisation to try to chill because this wound me up. I said to her in response sex is pretty depressing at this stage, which it is. And how do I relax exactly? The problem hasn’t gone away.

I get she’s saying the sperm were fine for ICSI but we don’t understand why we can’t get to the bottom of why they’re not swimming, we would like a chance to conceive naturally if there’s any chance it could be improved, but maybe that’s not even possible. It makes me so annoyed no one looks into the why with sperm issues.

Breathing issues have died down now, same as last time, lasted about a week. A bit of a cough off and on but mostly back to normal.

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Tinkerbell098 · 30/11/2022 19:15

@thislittlebird omg the infamous “just relax and have sex” comment?? From a consultant?? At least you got a referral to an andrologist, that’s something! How are you feeling otherwise? Are you still having breathing issues?

beckyCarlos · 30/11/2022 19:07

@thislittlebjrd Wait, wait, wait....did she genuinely tell you to relax and it might happen?! I dont know whether to laugh or cry!

thislittlebird · 30/11/2022 17:56

@Tinkerbell098 thanks. I just really wanted to get a few embryos to feel like we had a chance. We’ll make more effort in the build up to the next cycle.

We had a weird follow up appointment at Guys today. We decided not to tell them we’d already done another cycle privately because we didn’t want them to say they couldn’t refer us on somewhere. We withheld that information, and discussed it as if it was the end of cycle 1 not 2.

It was soooo frustrating because she said to me I’m focusing on the wrong thing (the sperm) and we did really well on the first cycle to get 4, great fertilisation rate etc. Said we should transfer two each time in future because of my age. I asked for the sedation report and she said it was probably anxiety (it wasn’t!!!). Essentially we’ve done everything they would have suggested (just like the other clinic did) and ended up with this bad result. It was surreal because everything she’s saying is nonsense since we now know I didn’t respond well a second time on higher meds, we know the fertilisation rate and blast rate were poor this time, we know my asthma/breathing issue wasn’t just anxiety since it happened again. She also said have lots of sex!!!! (????) and I need to find ways to relax which I would love to do but I’m anxious af in life generally and after over 3 years of infertility I’m in a right state so relaxing doesn’t come easily. Sigh. On the plus side she referred us to an andrologist and we’ll get a second opinion on all that in the new year.

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