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Fertility Appointments and Beyond: Electric Boogaloo

888 replies

thislittlebird · 20/08/2022 13:54

Hit capacity on the old thread, will tag you in!

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JeanieJ · 26/01/2023 14:58

Update from my appointment,
All is fine with me. I had about 8 follicles on each side.
However, we were shown DH's results from his recent sample & everything has gone down 🙄. For example, he was 4% morph in 2021 and now he's at 2%. He's had a varicocele embolisation in Sept for high dna frag & we thought it would at least make a difference on a standard semen analysis. I'm actually in shock that his results are down 😵‍💫
We're still going ahead with ICSI, but I'm feeling less optimistic now.

JeanieJ · 26/01/2023 10:11

@beckyCarlos thank you for the positive vibes. I'm just worried because I had a D&C, but I hope it'll be fine 🤞🏻 I'm sorry you're having such a shitty time with all this nonsense 🫤

@thislittlebird I'm really sorry you're having such a crap time, it sounds like a nightmare. I've also considered anti depression over the past years. I think sertraline is the safest (I was on it in the past), but when I said it to my fertility doc before, he wasn't so keen, but not against it. It's a benefit/risk weigh up & ultimately your choice.

@Kay00 when's your follow up appt?

If anyone has any tips leading up to a cycle, that'd be great. I've limited caffeine, given up alcohol & tried to eat generally healthy (although I'm not too restrictive). I've been on all the supplements for years.
Maybe there's more I can do? I dunno

xx

beckyCarlos · 25/01/2023 22:11

@thislittlebird aw love I'm sorry its so shit for you x x x so frustrating they won't do hormone tests for your partner noones ever considered much for mine, but has like 3 chest hairs (but I assume normal balls?! 🤣) maybe I should suggest it...

Yeah so we selected a donor and the eggs are in the clinic waiting for a potential defrost friday, but not if my pissing large follicle is giving off too much progesterone already indicating ovulation tomorrow, instead of just medicating it with progesterone on Friday :( i literally struggle to grow follicles on stims and then this one is just wanging out there on oestrogen only. Wtaf. No chance for an IVF conversion, or IUI, as we're in for the equivalent of an FET with donor eggs :(

I feel a bit like you @thislithislittlebird ... just why is there always something, I'm getting pretty done with being 'strong' and 'just getting through the next hurdle' eugh.

thislittlebird · 25/01/2023 21:51

beckyCarlos · 25/01/2023 12:30

Hey everyone, how are we all getting on?

Another wtf update from me, had a 12 day oestrogen scan today for the equivalent of an FET next week... my lining if fine but my left ovary is in crack, its got between a 13m and 16m folicle on. I dont get that good ON stims!! Wtaf. Had bloods done and if my progesterone is too high fridays thaw/fertilisation is off, as is transfer next week.

Apparently this is very unusual. There's always one, and its always me 🙈

Hello and what a weird update! Where are you at now? I can’t remember, other than you were egg shopping!

@JeanieJ fingers crossed your scan tomorrow is ok.

@Kay00 that’s so weird, I was only talking about octomum in work this week lmao. when do you think your follow up will be??? We had ours in November for round one and December for round two. don’t feel any more clued up, but they do think DH’s sperm was to blame.

Can’t remember what I last updated, but essentially we asked guys for a urology/andrology referral. They sent one for Feb, I lost my mind and sent mental emails when I saw it wasn’t with an andrologist. Turned out it was a joint clinic (my bad). Before I knew that I’d emailed various departments all INCORRECT REFERRAL and cried loudly on the phone to a nurse. Dh then got a letter through a few weeks ago for a January appointment, we had no idea where it had come from and it turned out to be my moany email 😭. They just sent an appointment out in response. Soooo we saw urology (still not the main man we wanted, but maybe in Feb), they refused male hormone tests because it’s definitely not his hormones, he has lots of body hair and normal balls! 🙃 (when I say I’m sick of this shit I’m not kidding, why can’t they rule stuff out?) Anyway, they said he’ll have an appointment for an ultrasound in 3 weeks and there won’t be a long wait for a varicocele if they think he should remove it because all the fellows are dying to have a go at one of those. So that was reassuring.

I ordered the male hormone panel today from medichecks. £79 isn’t too bad now we’ll be getting the ultrasound and varicocele embolisation paid for.

My tests won’t be as cheap. Need to get immune testing done which is ££££ and maybe consider karyotyping (£££) just to rule out anything genetic before we get to the point of PGA-T testing, if we ever make any embryos again.

Meanwhile my mental health is in the fucking gutter. I was off work for two months, then I went back and I’m still not ok. Triggered by a heavily pregnant woman yesterday, by HR moaning about my sickness and so on. Then between my age (pushing 40) and the waiting for DH’s sperm to improve I’m losing the plot tbh. Had a panic attack about it all at 3am last night. Very tempted to ask my GP for antidepressants, they said no before because we were ttc but that was years ago. Also requested counselling with my clinic and started doing exercise and Pilates again. Going to try to shift the extra weight I’ve gained in time for my 40th and our next round. Anyway, sorry to give such a long, ranty update. I’m so very sick of all this shit.

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thislittlebird · 25/01/2023 21:34

JeanieJ · 04/01/2023 14:19

@thislittlebird oh, I'm sorry about that.I thought poodles were supposed to be good for allergies?

Pets are a small comfort during this whole fertility journey (although not a replacement for what we really want).
We have a cat and adore her.
I'd love a dog too, but I'm not quite ready yet.

xx

@JeanieJ yeah, sadly they’re better but not 100%. The lady let me rub my face on a freshly cleaned puppy and I got freaked out when I had a mild reaction. I kept thinking what if this gets worse once I’m living with a dog and my immune system goes insane again? I could probably cope any other time but with ivf ongoing until I have some kinda breakdown I decided it wasn’t worth the risk. Flaring up my eczema/asthma/allergies didn’t seem like a good idea. :/

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Kay00 · 25/01/2023 19:52

@beckyCarlos wow... That's so interesting. Do you think they will want to cancel your cycle? Or upgrade to IVF? I guess there are too many follicles for IUI... Or natural conception? You might end up as octo-mum?! 😁

@JeanieJ how exciting that you are starting your round soon!! Fingers crossed your scan goes well xx you'll be fine with the injections I'm sure x

I'm just waiting for my post IVF WTF appointment to discuss my abysmal round. I am also lining up a second clinic to discuss potential options with them.

beckyCarlos · 25/01/2023 16:16

@JeanieJ waiting for a phone call tomorrow to confirm what we do! Theres just always 'something' else. Eugh. I'm in a right funk, even though there might be nothing to be in one over. This. Sucks. I'm oestrogen tablets, didnt do a downreg...maybe that'd have been a good idea 🙈

That sounds positive for you! Totally understand the nerves though, hopefully you're all good to go, if you havent had any issues I'm sure you will be :) if it helps, my first post-miscarriage scan was absolutely fine (no pain, nothing that shouldn't have been there, 8 antral follicles)...if anything it lulled me into a false sense of security with my follicle count lol. X

JeanieJ · 25/01/2023 14:32

@beckyCarlos that sounds so random and just like really bad luck, I'm sorry.
What happens now? Are you on meds right now?

I'm getting my baseline scan tomorrow & some bloods (CD3) and then I think the next few weeks are about getting my meds & learning how to inject myself.
AF is due 20th Feb & then I'll start my injections .... hopefully. It's the short protocol.

I'm a little nervous about my scan. It's been more than a year since I've had a fertility scan & I've had a miscarriage, so I'm praying nothing is weird tomorrow 🙏🏻🤞🏻
Xx

beckyCarlos · 25/01/2023 12:30

Hey everyone, how are we all getting on?

Another wtf update from me, had a 12 day oestrogen scan today for the equivalent of an FET next week... my lining if fine but my left ovary is in crack, its got between a 13m and 16m folicle on. I dont get that good ON stims!! Wtaf. Had bloods done and if my progesterone is too high fridays thaw/fertilisation is off, as is transfer next week.

Apparently this is very unusual. There's always one, and its always me 🙈

JeanieJ · 04/01/2023 14:19

@thislittlebird oh, I'm sorry about that.I thought poodles were supposed to be good for allergies?

Pets are a small comfort during this whole fertility journey (although not a replacement for what we really want).
We have a cat and adore her.
I'd love a dog too, but I'm not quite ready yet.

xx

thislittlebird · 03/01/2023 12:55

@JeanieJ happy new year! Your cycle will fly round.

I definitely won't be having a baby this year but 2024 would be ok, not that I'm optimistic :/

I went to view a puppy yesterday, a poodle because I assumed I'd be ok with them allergy wise but then I came home and had a reaction so I don't know if it's the puppy or the other dogs that live there. I'm very sad that my body can't do anything normally, it feels very lonely facing old age without children or any animals to love. I'm going to revisit tomorrow and see if I react again, if I do I can't have the puppy because I can't risk aggravating my immune system during the IVF. I'm fairly sure it's already the cause of our failed implantation.

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JeanieJ · 03/01/2023 12:02

Happy New Year everyone 💕
I hope 2023 is kind to us.
I start my baseline scans & blood end of this month for my first IVF/ ICSI cycle in Feb.
Feeling like it's Groundhog Day, as I was in this exact place this time last year & then the rollercoaster got a bit more tricky💔👼.
Really hoping that this year, I can actually bring a baby home 🙌🏻

Xx

thislittlebird · 27/12/2022 20:52

@Kay00 I can imagine, it sounds horrific tbh and I don’t know how they justify that for the sake of a bit of anaesthetic. Most people get put out, if only briefly but it would be nice for you to not have to experience all that again!

Yeah good plan. Ask all the questions and then do the same again to a new clinic/consultant. The other thing is think about some more tests you can do before trying again. I’m going to use the big gap we’ll have to tick some boxes by seeing an immunes guy at my clinic and maybe consider things like karyotyping just to rule stuff out.

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Kay00 · 27/12/2022 20:31

@thislittlebird sending an email to the consultant in advance of our meeting is a very good idea. I have quite a few questions which I will write down, to ensure they get covered in our call. Thanks for idea!

I certainly need to find a clinic that has a less brutal egg collection technique. I cried to myself whilst walking my dogs this afternoon, just thinking about having to go through that again.

thislittlebird · 27/12/2022 20:11

@Kay00 yeah, I get it. You don’t have age as such an issue yet though so you’ve got some time to think.

In the back of my head I’m thinking of doing a cycle with Create if this one fails. One reason being is that it looks a bit cheaper. I can’t afford to use these mega expensive clinics. We’ll keep saving for now.

Maybe you can prod the consultant to raise it with him before hand? Not sure if you can email in advance. We’re going to do the same regarding the health kick, we both need to lose some weight and get fitter in the lead up to this next attempt. It’ll probably be good for my mental health too.

I definitely think in your case a new clinic and another opinion/protocol would be good. It doesn’t make sense that you have all those eggs and so few make it to blast. Also one that doesn’t have such traumatic egg collection procedures too.

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Kay00 · 27/12/2022 19:15

@thislittlebird it's a predicament isn't it. I'm 38 in July, and I'm thinking I'll have the to do one more cycle before then... But how many can I realistically do? It's so expensive and emotionally draining! To get one chance per cycle (if I'm lucky), it's a really big commitment to do another.

Definitely I'll be encouraging OH to do a DNA frag, although I suspect he may need to hear it from the consultant in our following up conversation. In the meantime I'm going to try and encourage a health kick; we could both do with shifting a few pounds and being generally more fit and healthy.

I want to see what another clinic can offer me. Perhaps a whole new protocol? I like the idea of doing a FET if we get any to freeze, but it too comes with its risks.

thislittlebird · 27/12/2022 17:13

@Kay00 ughhh I’m really sorry 💜. How many days past are you now vs when do the clinic get you to report and stop meds?

Try not to blame your eggs too much, didn’t most of your eggs get to day 3? I think after day 3 it can point to a sperm issue so definitely try to get your dh to get tested for DNA frag.

I was wondering if you were considering anywhere new, definitely worth consulting with clinics and seeing what they’d suggest. We have a round paid for at the Lister but after that (assuming it’ll take more than one more round based on my age alone) I don’t know what we’ll do.

We can’t do anything for some time now which I’m finding very hard since I’m 40 in May. Not sure whether to freeze some eggs while we’re waiting for DH to improve, not sure what to do for the best since I’m just getting older and no progress is being made. But I think I’ve read frozen eggs are less stable than embryos too so I have no idea what to do for the best.

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Kay00 · 27/12/2022 16:33

Sorry @thislittlebird, I think you were being a bit too optimistic. I just tested and it was negative.

I read an interesting study that said the pregnancy rate in women who bled during the IVF TWW (which I did for pretty much every single day to some greater or smaller extent) was very low.

I need to tackle both my appalling egg quality and rubbish Luteal Phase before I can have a realistic chance of success with IVF.

So I need to start thinking about my next cycle. And whether it will be at a new clinic or not.

thislittlebird · 27/12/2022 11:00

@Kay00 maybe I’m too optimistic but weird bleeding could well be a good sign. 8dpt bleeding you had before was the same as me roughly (9dpt) and the only mid cycle bleeding I had was implantation so I wouldn’t count yourself out yet.

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Kay00 · 27/12/2022 10:02

I clearly typed too soon. Cramps and spotting again this morning 😑. I'm will test today/tomorrow when my FRER delivery arrives to put myself out of my misery.

Kay00 · 26/12/2022 22:48

Hi ladies x my bleeding has pretty much stopped. Since the bright red flush of blood of 4dp5dt it returned to spotting and has got lighter and lighter. There is still a hint of it... But it's barely noticeable, watery pink.

It's odd... But, it may be in part due to me upping my progesterone suppositories to 3x per day (self medicating)? Or maybe the bleeding wasn't anything to do with progesterone and was the result of the fairly traumatic egg collection I had (where my body was jumping around all over the bed whilst the needle was in my ovary)? Or, maybe it will just start up again.

In my 1st IVF cycle I started my period bleeding on 8dp5dt, which for me is tomorrow, so it will be interesting to see if I start bleeding again.

I guess I'll need to test soon. My official test day is 11dp5dt which is Friday 30th Dec. But I travel on holiday with my mum on the 2nd Jan and I'd like time with my OH to process the news, whichever way it goes. Plus, if (in the remote chance) it's positive, I'll need time to get extra drugs from the clinic before I travel in the New Year.

beckyCarlos · 25/12/2022 22:34

Merry Christmas loves. Hope you've all had good points in the day 😊 x

Kay00 · 25/12/2022 21:29

Happy Christmas ladies xx

thislittlebird · 25/12/2022 09:48

Sorry @Kay00 i just read it’s more than spotting. Either way, stranger things have happened I guess.

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thislittlebird · 25/12/2022 09:47

@Kay00 i wouldn’t rule yourself out with spotting alone but I know it’s very stressful to not know what’s going on either way.

Can’t believe they tested your estrogen but not your progesterone. How weird. It is a little early for low progesterone, your follicles should all be producing it right right transfer.

Freeze all plan for the next attempt (if you need one) sounds like a good plan.

Merry Christmas to you all, hope you’re having good days.

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