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Pcos and secondary infertility

65 replies

Sparkledust1990 · 07/08/2022 19:57

Hello all,

I am 33 and have a 5yo who we conceived naturally after 9m of trying. Have been trying for baby #2 for almost 3years now. After trying a year I was diagnosed with pcos. Since then I have been given clomid (6 unsuccessful rounds) and now on my first cycle of letrazole.

I am feeling really alone in all of this and losing hope. I have a supportive family and husband and friends but would love to chat to others in a similar position for support and understanding. So please comment if you would like this support too 💕

OP posts:
Mousey6 · 18/08/2022 10:32

@Roro1423 I’m still crampy and feeling a little sick. I’ve had an upset tummy but I don’t know if that’s more down to a bug! How are you feeling today?

MrsMamaD · 17/08/2022 19:16

I actually went out and got the digi because all I had in the house was cheapie. All my local tesco had was digis and clear blues and I wasn't going to chance a clear blue when my red dye was so faint!

To add to the test convo - there is a brand called Answer and they're literally First Response in different packaging. They're only £4.99 for 2 at my local pharmacy because unless I order them online, I cannot seem to get first response in any shop any more. When did that happen?!

Roro1423 · 17/08/2022 17:15

🤣🤣 Imagine if you didnt have the digi, you were gonna be driving yourself crazy thinking you imagined the first positive. Definitely cant get clearer than that. So excited on your behalf ✨

MrsMamaD · 17/08/2022 16:58

I had internet cheapies that were sitting in my drawer for ages, took one yesterday and it came up bfn but I just knew that wasn't right...turns out they expired in January 🤣

Today's test was a digi, so line progression yet! Can't get much clearer than that though 😁

Oh you definitely don't want to symptom spot with your husband, 99% of the time they think you're crazy and clutching at straws 🙄 that's what we are here for! Make you feel not crazy and eager to hear whatever you're going through! xx

Pcos and secondary infertility
Roro1423 · 17/08/2022 11:04

@Mousey6 how you feeling today? Been cramping on and off today but m only 6dpo so not reading too much into it.

@MrsMamaD i cant wait to see the line progression on that test, POS already!! 😁

Roro1423 · 17/08/2022 11:00

@Sparkledust1990 definitely 🤣. i have a lot of Internet cheapies that are calling my name already🤭 m planing to get a CB digital once i get a positive, i dont wanna waste anymore money on test just to see BFN. M assuming you took your last 💊today? 🤔. Cant wait for you to join us in the tww already🙌

Mousey6 · 17/08/2022 09:46

@Sparkledust1990 yes I have always been “regular” so I’m really hoping it won’t be much longer. I think it’s just so frustrating as it was so easy last time. I have the weight gain and slightly high blood sugars, but apart from that no other symptoms!

Regarding tests, internet cheapies and frer (pink dye tests) are the best ones that most people use and recommend. Xx

Sparkledust1990 · 17/08/2022 09:26

Welcome @Mousey6 and @MrsMamaD 👋 thanks for sharing your stories 💕 I definitely don't feel alone now and it is so nice to hear from others who understand how it feels.

@Mousey6 if you are regularly ovulating then I'm sure it'll happen soon 🙌. Do you have many pcos symptoms? Just wondering if you still get them if you ovulate regularly or if it is managed then less symptoms?

@MrsMamaD wow! I definitely see a pink line 🎉! Show us an update! Congratulations! How amazing and very well deserved after what you've been through 💕. I was diagnosed around 8months ago when I went to the doctor after trying for a year and a half and noticing missing periods for up to 3 months. Letrazole/clomid has made me regular the last 3 months so I've asked for a blood check to see if I am ovulating. Yes-I love the aussie guy in tiktok! He's so passionate and advocates for us 🤗

@Roro1423 yep, my husband is pretty similar 😂 enjoys the extra... dancing! We are here for the symptom sharing- I feel crazy telling my hubby so you guys will get it all 😂. Friday isn't too far off now- nearly there. Which type of test will you be using? I only have the cheapies but I know others insist on certain brands.

OP posts:
MrsMamaD · 16/08/2022 21:51

@Mousey6 oh no that sounds scary! My husband is T1 diabetic and I've become really aware of how he gets when he's low and over the years we've been married I've been able to catch him before he has a real low hypo, but I don't think I'd be able to catch it in myself so easily!

Inositol is naturally in our bodies and it aids the body's insulin sensitivity, so it helps to make insulin effective instead of letting the body become resistant. It also effects things like dopamine in the same way, which allows for better hormone regulation. It's basically the same as Metformin just not man made and with a heck of a lot less side effects! I'd definitely recommend looking into it or trying it x

Mousey6 · 16/08/2022 20:22

I was on metformin for my last pregnancy and fell pregnant first cycle. I do get terrible side effects from it, even taking a prolonged release version! I’ve never heard of inositol before. I ended up on insulin last time later on in my pregnancy, although I had a hypo when on it and often used to get low blood sugar levels!

MrsMamaD · 16/08/2022 20:13

Thank you ladies 😊im still in a bit of shock tbh

So you've both got about a week left before you can think about testing - I've got my fingers crossed for both of you! I had cramps a few days ago and the past 3 days it felt like a UTI was coming but feeling nauseous last night and this afternoon were what prompted me to test. I definitely get where you are coming from with the symptom spotting, and you feel like you're imagining them or unnecessarily relating them to the slightest possibility. It's tough, especially when you don't want to get your hopes up.

@Mousey6 do you feel like metformin has helped you? The biggest thing from my pcos is the insulin resistance but I just could not get on with metformin, that's when I started the inositol. Inositol is so subtle it almost feels like a placebo.

Roro1423 · 16/08/2022 19:51

@Mousey6 its definitely hard, m trying not to read too much into mine as well because my body has disappointed me so many times. Only time will tell. 🤞

Roro1423 · 16/08/2022 19:41

OMG! 😱thats definitely a positive, congratulations 🎉 m so haappy for you. Its long overdue💕m praying for everything to be perfect 🙏. Now you have to keep me updated, its so exciting 🤗

M 5dpo have a dull ache under my bellybutton and a lower back pain, probably doesn't mean anything but its annoying 🙄. M planing to start testing Friday.

Mousey6 · 16/08/2022 18:39

@Roro1423 thank you! I’ve been having symptoms but don’t know if it’s all psychological, only time will tell!

@MrsMamaD I’ve known I have PCOS for well over 10 years, went for an ultrasound for suspected endo and picked it up. I don’t have all the typical symptoms except weight issues. And congratulations, I see it!xx

MrsMamaD · 16/08/2022 18:32

LOL just realized you cannot see a thing in that picture but it's 100% positive

MrsMamaD · 16/08/2022 18:31

Not the best picture but uhhhhh... this just happened 😱

Pcos and secondary infertility
MrsMamaD · 16/08/2022 18:09

Well hey, you know your diagnosis now and you can do something about it! I didn't know about mine until I had a private ultrasound for what I thought was a pregnancy (turned out to be an evap line and my period just didn't turn up for another 6 months) but the ultrasound tech was like "umm there's not baby but your ovaries look like gooseberries, darling I think you've got PCOS". Then a blood test with the doctor confirmed it. The symptoms for my PCOS overlap with my other condition so I'm just kinda used to them now 🙄.

How far into the tww are you? I'm on cd31 and feeling Hella nauseous and having a metallicy taste in my mouth...I might do a test in a bit because this isn't normal for me 🤔

Roro1423 · 16/08/2022 16:51

Thank you 🤗. That is so true no one is fully ready for it. Its exciting and scary at the same time. I really envy women that deal with all these emotional roller-coaster of TTC (all these conditions and medications) 😭, taking care of toddlers /other kids and still make sure the house don't fall apart everyday, you don't even have time for yourself anymore is too much🤧. To be honest we are really stronger than men. Wow 6 years is a long time, my diagnosis is very recent. 3 months ago when we decided to go see a specialist because my previous doctor was just dragging her feet even after i told her that we've been struggling for a year and half . She would just say "oh everything is fine keep trying and come back after six months, Only to find out i dont really ovulate 🤦‍♀️

MrsMamaD · 16/08/2022 15:52

Ah thanks @Roro1423! Sometimes when you've got as much going on as we do, you've got to be strong or you'll just fall apart.

And don't stop trying anything, no matter how silly it feels!! You never know which one is going to work so you may as well try them all eh?

Men are never upset about having to TTC haha "oh what, you mean we have to DTD again next month?? Oh no, that's terrible news" 😈
Plus I'm pretty sure there is some secret relief because they're not really all that ready for it. I mean, who is? I wanted my baby more than anything but I was still petrified once we actually conceived lol!

So is everyone relatively newly diagnosed PCOS then?
I've known about mine for about 6 years and whilst it's mild, it's still a bugger on your hormones

Roro1423 · 16/08/2022 15:17

@MrsMamaD Welcome. I just died by "lumps and bumps" 😂🤣 m really sorry about your mmc and that you have to go through all of this, you are definitely strong 💪. I've heard good things about inositol for pcos 🤞Sending you lots of baby dust ✨

Roro1423 · 16/08/2022 14:56

@Mousey6 welcome!! I am 5dpo and cant stop driving my self crazy with symptom spotting 🤪. I really hope we all get our BFP this cycle 🤞🤞. Keep us updated.

Roro1423 · 16/08/2022 14:44

@Sparkledust1990 Thank you🤗🤗i know right! we will do anything just to see that +, m even trying the pineapple core this cycle🙃it cant hurt to try. My partner is stronger than i am through this whole TTC, well at least he tries to be. Every time when AF shows i get so depressed and he will be like " dont stress this is an opportunity for us to try again" 🙄how is your husband? .as much as they are supportive, they can never understand what we really go through emotionally, we both thought it was gonna happen quickly for us but then here we are 2 years later still trying. The only thing we can do is to keep trying 🙏

MrsMamaD · 16/08/2022 10:55

Hey 👋you could literally be writing my story hun. I am also 33, DS is 4, we were informally ttc for 3 years before having a mmc and then 7 months later conceived DS. I have pcos and a prolactinoma (pituitary tumour that makes your body think its already pregnant so stops the normal fertility functions) I take meds for the tumour and berberine & inositol for the pcos (me and metformin just didn't get on) I get periods every month and very regularly, which is pretty much unheard of for both of these conditions however I have a sneaky suspicion they're anovulatory.
We've been ttc #2 for a year now but haven't tried intervention yet, I am going to bite the bullet soon however I'm scared that it's not going to work.
You definitely aren't alone 😊and I know how you feel about no one around you knowing how you feel, my family have never had fertility issues and then along comes me lol with my lumps and bumps all over 😂
Have you every had a full panel blood test of hormones done? I know you've tested progesterone but what about the others?
I don't know if you have tiktok but there is a great Aussie guy on there that just does videos on pcos and he's been so informative to me! Xx

Mousey6 · 16/08/2022 10:24

Hi, hope you don’t mind me joining! We have a nearly 3yo and ttc no2. I have PCOS and am on metformin, but have regular periods so I know ovulation doesn’t seem to be an issue. My first I fell pregnant first month trying, this time we’ve been trying since the beginning of the year. Currently 4dpo x

Sparkledust1990 · 16/08/2022 09:38

That's not as nice- but we would do anything to see that positive +. I drive myself crazy in the tww! Keeping my fingers crossed for you🤞. You're a third of the way through 🤗. Off the soft drinks now 🙌 water all the way. How is your partner coping with it all? Xx

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