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Conception

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Low amh 1.3

38 replies

Scrumpy10 · 27/10/2021 22:02

This is my first time on this forum and I would love to know if anyone has experience of this.

I am just 41 been trying to conceive for 2 years. Finally this year we had some tests and husband has low motility. We went to see fertility clinic and I had scan and blood test last week. Amh was 1.3 and they said could only see 2 follicles on my scan. They were very candid about chance of success with my own eggs. Has anyone had experience of IVF success with low Amh and are there any better alternatives?

OP posts:
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Msmith100 · 02/10/2023 07:23

Hello, Me and my sister are in the same boat and I just wondered if this moved on? And if you had any advice on IVF journey or IVF clinics?

Scrumpy10 · 27/01/2022 15:19

@Ivfhoper thank you for sharing your positive story and congratulations.

@Pippin34 hope everything is going well. My husband is still waiting for his NHS follow up appointment on the NHS as he has very low motility. It has been rescheduled until February and I am really hoping it doesn't get cancelled again. I find the accupuncture very relaxing and so at least it having a calming impact on me. Plus my scan results have improved and so maybe the combination of that and the vitamins helped. I have a couple of friends who were trying to conceive for years and after accupuncture they got pregnant naturally so thought I would try it out. On the donor eggs when I spoke with the UK clinics it was very general build, eye and hair colour. With the Greek clinic they said I can be more selective and ask about interests and education. They also wanted photos to help find a match. In Greece it is completely anonymous and so the child will not be able to trace the donor when they are 18 which in the UK they can. In the US it is even more selective but very expensive.

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FlyOnTheWall89 · 24/01/2022 20:45

Hi @Pippin34 and @Abracadabra12 - please look into Ubiquinol over CoQ10! Might be better for you. X

Pippin34 · 24/01/2022 20:16

@Scrumpy10 I had initially only gone to Create for the baseline scan as things have been so slow from the nhs (been waiting for an initial phone call consultation since July and it is scheduled in for March) My consultation was to inform me on the scan which showed 2 follicles and blood test showed amh level of 0.7. They said chance of conception is 15-20%. She didn't talk about donor eggs and just said I needed to go straight for ivf. I have another consultation booked in for next week and I imagine she will talk about donor eggs then but initially ivf with my own eggs is the first step. I hear that other clinics might not consider me with my results but create specialise in low amh so they will at least give it a try (£360 for baseline scan Inc consultation and I opted for blood test on top £135)
I have ordered some COQ10 and will start acupuncture in a week or so, how are finding it?
How more selective can you be with abroad donor eggs? I have heard this but haven't seen what further information you can have.
Great news that you now have 4 follicles that's really positive.

@Ivfhoper sounds like you got a good amount if eggs. Were these from 3 follicles?
Thanks for your recommendation for the Instagram infertility struggles. It's nice to hear of a positive outcome.

Does anyone know if you have an egg collection for example and there are no eggs to collect that month, does this class as one of your rounds? We are doing a package of three rounds but I new to all this so I don't know what it all means really.

Abracadabra12 · 24/01/2022 15:46

I'm in a similar situation - I'm 36 and my AMH is 1.8. I told the clinic I was interested in IUI as I'm single and donor sperm so haven't been trying naturally so far. They said that given how few follicles they saw there wouldn't be much point in IVF but I could give IUI a go. I've been taking CoQ10 but realised reading these threads I need to take a much higher dosage - have just ordered the pharmanord capsules online!

Ivfhoper · 24/01/2022 14:43

@Scrumpy10

Please do not lose hope. Last year, at the age of 32, I discovered that I have a low amh of 3.25pmol/l. I had 3 follicles. I had a cyst on my ovary too.

I discovered later I had a subclinical thyroid. I also had a vitamin D deficiency. I remedied these two things.

I had one cycle of ARGC which was not successful due to a late trigger but I got 6 eggs.

Since then I have started "oocyte accumulation", which is essentially freezing as many eggs as possible and then fertilising.
ER 2 - I got 5 eggs, 4 were mature.
ER 3 - I got 4 eggs, 3 were mature.
ER 4 - 1 mature egg.
ER 5 - Feb 2022 due

The aim is to get a "good egg", the fact is, your ovary has a good egg inside, it is just a matter of finding it, and fertilising it. It is a longer process when we have a low AMH.

I have looked at clinics here and abroad, please check the LIFE Clinic - Dr Yelian in California. He has helped women with very low AMH and very high FSH become pregnant.

Create Fertility in the UK also help women with low AMH.

If I give you one piece of advice, you need to be prepared to many many more cycles if you want a biological child.

If you are on instagram follow a handle called "infertility struggles", she did 19 cycles with severely low AMH but she got her biological baby in the end.

Scrumpy10 · 21/01/2022 16:01

@Pippin34 thank you for the message. I did join one of the Create information webiners and it sounds good. I have a consultation booked to NewLife in Greece for early March as I wanted to investigate treatment abroad and their consultation is free. I haven't had a consult with Create yet. I did have one with both Care and then sent the test results to Nurture and had a second consultation. They both had the same response that I would be best to go for donor eggs. I don't really want to use donor eggs and if I did I would use a donor from abroad where you can be more selective.

Since my test results I made some changes by taking more supplements DHEA and COQ10 gold from Pharmanord, having accupuncture and just trying to be a bit healthier. I had a private AFC scan this week to send to Greece as they asked for one day 1 to 4 of my period and the follicle count was much better. I had 4 on the right and 1 on the left. The previous scan I had AFC =0 zero and they said there were 2 sacs on the left ovary which maybe follicles or a cyst and the right ovary was small with no follicles. I suppose these things can improve throughput cycles but I was surprised it was better.

Good luck with your treatment with Create. I definitely will book a consultation with them. I put it off for a bit as after paying for consultations at Care and Nurture I kind of didn't want to hear the same thing again at more cost but it sounds like they are more positive with very low amh.

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Pippin34 · 20/01/2022 16:16

Hi,
I've just read this thread and I'm sorry to hear of your struggles.
I'm wondering how you've got on since?
I just found out today that I have very low AMH and have taken a lot from the comments in this post. I only have 2 follicles so have been advised to go straight for IVF. This is through create who have been great so far.

X

Lulu106 · 07/11/2021 08:10

@Scrumpy10 thanks. I'm thinking of you too. Please don't let it upset you before you even try. This can happen for you x

Scrumpy10 · 06/11/2021 19:23

@Lulu106 I can't imagine how you feel as it sounds horrendous to have so much promise at the start. I think as you got so many eggs it is worth you trying again. It sounds like you can't do more than you are doing. I hope and pray it all works out for you next time.

I am at the beginning of this and it feels like a mine field. I have had two weeks of crying myself to sleep. I had a good chat with my husband and we have both agreed that if we try and it doesn't work at least when we are old we can say we tried.

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Lulu106 · 06/11/2021 14:44

@Scrumpy10 I think I'm destroyed because I have tired every alternative treatment possible. Accupuncture, homeopathy, fertility coaching, hypnosis. It's what makes it harder. I feel I have done everything I can and to be fair my ovarian reserve seems good but I couldn't make blastocysts and my one little bean didn't implant. Beyond devastated.

Scrumpy10 · 06/11/2021 13:03

@Lulu106 we are in the East Midlands Nottinghamshire. I know exactly where you are coming from as I work full time and taking time off for appointments and financial costs is a huge undertaking isn't it? Maybe have a look if Care have any webiners? We are all individuals so what isn't right for me might be good for you.

I know people sometimes go abroad for ivf and that must take a lot of planning and costs to get there when if the treatment itself is cheaper.

I feel like I have so much to learn about IVF and indeed if I can even start treatment. So this week I decided to start with a few lifestyle changes and had first fertility accupuncture appointment last week and going to keep it up, making diet changes, taking COQ10. I actually feel a bit calmer for taking control of the things I can change.

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Lulu106 · 06/11/2021 10:24

@Scrumpy10 wow doesn't sound like the nurses response to you was very sensitive! Can I ask where in the country you are? We are in Bedfordshire not far from London but far enough to make regular trips difficult. I have done a full circle in my mind with regards to clinics. It's led me back to ARGC but they are so costly and I would have to take weeks off work. Just travel expenses could wipe us out financially!

Please keep me posted. I am at the end of my tether.

Scrumpy10 · 06/11/2021 10:07

@Lulu106 sorry to hear about your failed round. I am actually joining the Create Webinar next week so hoping they don't start bombarding us as I think that will really put my husband off them.

I had Amh tests, scan and consultation with Care. This was my first experience of looking into ivf and I just turned 41. My Amh was very low and so they went straight to pushing donor eggs as our option. It might be worth it for you if your amh is good and you have enough follicles. Also the nurse doing my blood test asked me why I left it so late. Only a small thing but I was already beating myself up at this point.

I have a consultation with Nurture next week as they are not too far from where I live and also do natural ivf. I am praying I can at least try that and focus on egg quality now instead of what feels like my small basket of eggs left.

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Smiler79 · 05/11/2021 20:35

Well I say messed up - basically I was really stressed and my body was trying to constantly ovulate , I was taking so much cetrotide to stop it. By the time I got to EC I already ovulated! So they converted to iui. It was a bizarre and very rare situation

Lulu106 · 05/11/2021 20:33

Thanks @Smiler79 You say they messed up and you got fresh. What does this mean? Sorry still getting used to the terminology. I think that our situation needs a focused approach. I'm mindful that my diet needs to be looked at. I like to think it's good but it could be improved.

Smiler79 · 05/11/2021 20:18

In terms of diet etc dh and I took all supplements in it starts with the egg. Wheatgrass , melatonin and ubiquinol I felt were key ones. Avoided dhea as it messed up my cycle. I did a high protein low carb diet , no alcohol and no caffeine. Dh did no alcohol. Did that for a few months.

Smiler79 · 05/11/2021 20:15

Off and theirs!

Smiler79 · 05/11/2021 20:15

Hi @Lulu106 I did quite a lot different. Had 4 mcs and then did ivf to try to find pgs normal.
Was with argc. I did look at create but I was put of by their marketing too, they were putting things like normal ivf takes one month or something and there’s took 2 weeks ( well most people I know don’t do long protocol) I just felt it was Hmm on some areas. Also I spoke to argc and they said as I had so few follicles that I needed max everything and it was a numbers game. I’m not sure really . I got 7 eggs and all fertilised and 2 blasts - one was normal. I wonder would I have just got the one normal from mild any way but who knows , may be not. My second ivf messed up and ended up fresh and I’m in third trimester. Some miracle.
I would say Argc are very focused and do lots of tests to maximise your output and get blasts , that can end up expensive as you have daily, twice daily bloods on week 2. Week 1 can be every day or every other day. I did feel they knew what they were doing though and I do feel I got the best results I could with my low amh and follies

Lulu106 · 05/11/2021 19:33

@OrangeLeavesFall thank you! So helpful. I've got supplements on order.

Lulu106 · 05/11/2021 19:32

@VenusStarr thank you. We were just suspicious of a fertility clinic hustling for business. It felt odd. But clearly they've worked for you.

I suppose I was complacent about egg quality, as I felt I would produce eggs and just assumed some would be good quality.

Bourn Hall have been very disappointing. I don't expect us to have a second round with them. I just want to find a clinic that is right for us. Such a minefield.

VenusStarr · 05/11/2021 18:25

@Lulu106 I'm sorry about your round. I've only been to Create and we started as nhs patients, but now private, sorry you feel pestered by them.

I liked doing the mild ivf approach and I felt quite well on stims, I think the milder meds made it feel manageable. I ate 100g of protein every day during stims and I was taking 400g of ubiquinol (stopped at collection). The embryologist commented on my egg quality too.

I've got a friend at Bourn Hall and she's not found them to be flexible or helpful. A milder approach might be worth a try to get better quality eggs.

There is an infertility board, it might be worth posting over there too as lots of us are going ivf at various clinics xx

OrangeLeavesFall · 05/11/2021 17:56

@Lulu106

If you suspect egg quality being an issue..
I have had 2 cycles of IVF. My first one, the eggs all fertilised but were very low quality. I was taking CoQ10 but not a high enough quantity I don't think.

For my second round I took Pharmanord CoQ10 Gold (4 x 100mg tablets per day).
I recently had an egg retrieval and they said the 4 eggs I had were all top quality. The only other thing I did differently was have no alcohol or caffeine at all in the weeks leading up to my injections.

For my first IVF round, I still had the occasional coffee or glass of wine a few weeks before starting my injections but I didn't at all this time. So I'm not sure if all of it combined made a difference.

Lulu106 · 05/11/2021 17:48

@VenusStarr sorry wanted to tag you also as you might have a perspective.

Lulu106 · 05/11/2021 17:46

@Scrumpy10
@OrangeLeavesFall
@Juno231
@PossumGeorge
@Loveintherain
Sorry to tag all but some recommendations would be great. We've just had a failed round of ICSI IVF with Bourn Hall Cambridge. I'm 42 with ok AMH. They collected 18 eggs, 6 fertilised but none made it to blastocyst. They transferred one compacted embryo. Waiting to hear why they think it didn't work. We have male factor issues but I suspect my egg quality wasn't great.
We are now Looking at other clinics. We sat through a Create webinar but then they bombarded us with emails, texts and calls, giving us a discount off initial consultation which is very off putting. ARGC looks best for the over 40s but the time and money seem prohibitive. We also have Care in Northampton nearby. Any thoughts?

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