TTC first baby thread 26

I hope they listen to you @thislittlebird. This must be completely infuriating!

You can still get IVF on unexplained anyway AND it's a better way of weeding out the eggs and sperm that are going to make it to blast stage AND they give you suppositories etc that can help with keeping the lining ready etc. So many reasons why IVF could help.

ANGRY ANGRY ANGRY!

My friend had this but with thyroid treatment. NHS wouldn't treat because acceptable levels, IVF wouldn't go ahead without getting levels down. NHS conceded with IVF letter.

Good luck and keep us up to date!

Hearing all the horror stories, we've been looking into IVF with ABC.

@CycloGoose I’ve no idea, it’s been a stressful few months. Fortunately we saw the aforementioned ivf doc at the Lister this week and she’s going to write us a letter so we can challenge their decision of unexplained. It’s ridiculous, we both have issues and no help offered, barely any tests.

How are you getting on?

Just reading some of these posts and I feel so angry and let down on your behalf. Why are the doctors not supporting you as they should!?
I hate that this all gets brushed under the carpet and I wish you all the luck in the world xxxxx

Hey everyone, I haven’t put my head in here for a while, hope you’re all ok. We’re just cranking up the bbq for this nice bank holiday Monday.

Sorry to hear what they said about ivf @Lozzlepop, are they going to make alternative suggestions?

@Annny27 sorry about your recent chemical too. Frustrating that they won’t help you under 35.

I’m stepping into the ivf world now. NHS have not been very good to us, told us we’re unexplained (after previous drama with wrong results etc). We aren’t unexplained as far as I’m concerned, we both have issues with our test results (and a private doctor agrees we aren’t unexplained). I’ve complained to PALS but not heard back yet.

In the meantime we’ve been to see the urologist Mr Ramsay last week, and we are seeing a Lister ivf consultant this week. We can’t keep waiting, I turned 38 last weekend and time is not on my side so looks like we’ll have to go private. Probably can’t start for a few months yet, husband needs to have some tests and I suppose the doc will try to improve his quality before we begin.

Happy bank holiday Monday- how is everyone doing?

@Annny27 no we asked and they dont do genetic testing unless we paid for it privately but the doctor says its not always a viable option as the cells within the embryo can be different so you may keep an embryo comprised of mainly bad cess as the one you have tested is good or vice versa if that makes sense. I have booked back in to get my Thyroid checked again and they may start me on medication for that so we shall see! How are you feeling after the past few weeks?

I dunno- a bit flat really..... they said they only look at the embryos to assess their suitability for pregnancy but not if there’s any issues genetically etc.

I don’t think you can pick up here- there’s not as much provision in Scotland as down south unfortunately. I think we will maybe try again naturally and see how things go 🤷🏽‍♀️

@Lozzlepop how are you feeling? I’m not a doctor but surely you have a better chance with ivf. I was told by a specialist that lots of miscarriages are due to the sperm and egg not being good enough quality. With ivf they will pick out the best egg and sperm (with ICSI) so surely that will give you a better chance. Sorry for ranting I’m actually really annoyed in your behalf. I would understand if you had had lots of rounds and it wasn’t working but they should at least try.

Can you say that you would like to go ahead with the ivf regardless? Or maybe try a different clinic?

@XjustagirlX they just said we have the same chance of having another miscarriage if we conceived naturally or through IVF and they don’t know why we were referred

@Lozzlepop oh wow did they give an alternative suggestion? Why do they think it won’t work?

Well it’s been a rough ride of a day- basically been told that IVF is not the correct route for us as there’s really no guarantee that it would lead to a successful pregnancy for us.

@Annny27 How are you feeling lovely?

@Lozzlepop @Kiza thank you for telling me about your experiences. I actually decided to stay with my consultant as he is the one who has seen me through the nhs tests. The scan and SA Is booked in for 2 weeks and my consultation is 17th June. My next AF would be 23rd June so I’m hoping I could start on that cycle. I’m going to see if I can book my bloods in as quick as possible so I can start the following week.

I did have one issue. So even though I’ve had the MMR vaccinations as a child. I’m not immune to rubella. So they said I needed to have it again which means stopping trying for 2 months before I could do ivf. I managed to get the doctor to agree he would sign off that I don’t need it as I’ve been done as a child and even the vaccination didn’t work they would still go ahead with ivf anyway. Also there was only 3 cases of rubella in the U.K. last year! Hopefully that gets signed off!

@Annny27 oh I'm so sorry to read your sad news, sending love ❤️ x

Oh @Annny27 I'm so so sorry to hear this. Sending you a massive virtual hug 💗

@XjustagirlX I was on the nhs so our process purely for the IVF clinic (as we had already been under a fertility consultant at a different hospital who referred to the IVF clinic).
We saw a nurse practitioner all the way, it was on the day of egg collection and embryo transfer that we saw the consultant/ doctors. The rest was all nurses. If you've already been under a consultant who has referred IVF then I'd say proceed with the nurse.
Our initial appointment with the ivf clinic was lengthy (about 60-90 minutes) where she went through the mammoth amount of paperwork and explained the process as it had already been decided we were having ICSI. Then we had to sign the papers with our passports for evidence and started the following cycle.

It's a whole team approach for IVF, the nurses do some bits (such as teaching you how to inject and go through your drugs), nurses and doctors do your monitoring scans once you've started the drugs, doctors do the egg retrieval, the embryologists monitor the embryos and call you with updates, then the nurses (or doctor for us as I opted for sedation for transfer) do the transfer.

@XjustagirlX when we went for our initial appointment I spoke with the sedation nurse who would be doing the procedure.

@Annny27 how are you doing lovely?

We have a call about our IVF tomorrow- no idea what it’s about though 🤷🏽‍♀️

@CycloGoose we have been trying for 2 years now.

I have a dilemma. I have my ivf consultation booked in for 10th June with a nurse practitioner. However I could delay a week and see a consultant (the same one who I saw through my nhs tests).

My questions are
is it better to have a consultant than a nurse Practitioner?
If I delay by a week to have the consultant it might mean I have to wait another month due to when af would start.
Also for those of you who have done ivf, does the consultant actually do the egg retrieval or is it a different team entirely?

So sorry to hear this @Annny27 let's hope the Lap males a difference for you! I have my booked for 26th May! I know I am so fortunate with the waiting times here

@CycloGoose sorry to hear about your low AMH and ridiculous waiting time!

@XjustagirlX fingers crossed for you woth IVF

@orangeloo sorry to hear you're finding IVF tough

@Annny27 I am so so sorry my lovely, such a cruel world. Be kind to yourself just now ❤️sending you lots of love

Fingers crossed @XjustagirlX do you think you will take any extra supplements or anything in the lead up to boost chances? Hope time flies. How long has your wait been?

@Annny27 been thinking of you all day. Hoping it's steps in the right direction. ❤️

So my consultant has submitted the ivf forms. Based on dates he mentioned I expect I will start injections on my period around 23rd June. Im happy things are stating but I can’t stop thinking about the low success rates of 30%.

Oh @Annny27 I’m really sorry to read your news. Such a cruel thing to happen. How are you doing? I had a chemical way back in September (nothing since) and I think if I do manage to get pregnant again I’ll be a bag of nerves the entire time. Sending lots of love ♥️

@Annny27 Im so sorry to hear that. How old are you? Just because I know in my area if you are over 35 you can be seen by recurrent miscarriage after 2 miscarriages. I’m so gutted for you. Take care of yourself today.

I’ve got my consultation appointment today where he will start the ivf referral. I’ll let you all know how that goes.