Active discussions

Help protect children from gaming harms.

Take our survey

Please or to access all these features

Talk
Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

Original poster

Any positive stories with Hypothyroidism

37 replies

Iloveoreos · 28/10/2020 11:19

Hi Ladies
Are there any positive stories with hypothyroidisim? I had an early MC most probably due to my levels being out of range sadly . It was around 4.5
Need some positivity and motivation

OP posts:
New posts on this thread. Refresh page
MintGreenLife · 30/10/2020 20:28

@Iloveoreos will do ☺️ Xx

Original poster
Iloveoreos · 30/10/2020 20:20

Thanku @mintgreenlife let us kno what gp says to u xx
Hope all goes well

OP posts:
MintGreenLife · 30/10/2020 20:05

@Iloveoreos I'm so sorry this has happened to you, hopefully it won't take you long to catch when you do TTC again. Wishing you all the best xx

Original poster
Iloveoreos · 30/10/2020 19:26

[quote MintGreenLife]@Iloveoreos thanks so much! I really appreciate your advice. Sorry I know you were asking for positive experiences and you've just ended up helping me with my problems! Your help is much appreciated xx[/quote]
No worries hun xx. After how i was dismissed I wouldnt want it for anyone

And to all the lovely ladies sharing their stories; thanku all.. this gives me loads of motivation and strenght. Im still in the process of my mc so have to wait a month or so but thanku xx

Also can I ask did any of u ladies have irregular or long cycles due to ur hypothyroid?

OP posts:
Sarahplane · 30/10/2020 19:04

I didn't see the endocrinologist the first time round but my bloods were checked regularly by my gp/midwife and the GP sent the results to the endocrinologist for advice on dosage. The second time I was referred to a specialist clinic because I had a high BMI and there were endocrinologists at the clinic who treated my thyroid there so I wasn't referred to endocrinologist because of my thyroid but because of my bmi.

Anniemabel · 30/10/2020 18:07

Sorry, you were asking for positive stories - I have hypothyroidism in my third pregnancy and had a healthy child and now have just conceived the 4th.

Anniemabel · 30/10/2020 18:06

I was dismissed over the telephone with tsh of 6 in my third pregnancy but I insisted they see me and I took the nice guidelines to the appointment. In between speaking on the phone and my appointment the dr had researched it herself. I think for some reason lots of GPs don’t seem on top of tsh levels in pregnancy.

MintGreenLife · 30/10/2020 18:00

@Iloveoreos thanks so much! I really appreciate your advice. Sorry I know you were asking for positive experiences and you've just ended up helping me with my problems! Your help is much appreciated xx

Original poster
Iloveoreos · 30/10/2020 17:57

@mintgreenlife
Yes you definately should especially that it was wrriten in your comments.use that as proof. Say you have read nice guidelines and as u have been ttc for over a while u want to check just to be sure for reassuarance and take it from there. Trust me..I was in same boat as you few months ago and I would sstrongly advice to go and get them to sort it out. All the best hun xx

OP posts:
MintGreenLife · 30/10/2020 17:06
  • meant if this patient is pregnant, not pregnancy!
MintGreenLife · 30/10/2020 17:05

@Iloveoreos thanks so much, you're giving me more confidence about tackling this! My TSH at 3.5 is from a recent blood test done by the GP to investigate why I've been struggling with my cycles since coming off the pill 7 months ago - she said word for word 'everything has come back completely normal'. I only found out about my TSH as I asked for the results, spotted there was a note on the results under TSH saying 'if this patient is pregnancy or planning pregnancy please refer to endocrinology, so I started looking into my result as thought that seemed strange. This was about a month ago now, and I've been on the fence about whether to try and push for help given that my TSH is higher than 2.5, but have been unsure as GP already told me it's normal. I'm not on any medication for my thyroid and never have been, but I think obviously I should push to see if something can be done. I'll call Monday morning x

Original poster
Iloveoreos · 30/10/2020 17:01

Just dont give up and keep being persistent. I wish I knew this stuff before but now that I do I am well prepared. Just be aware they (gps) do feel u are trying to tell them what to do and can feel offended.some may disagree with me but whats more important is your health. I did not push for this before but wish I had.

OP posts:
Original poster
Iloveoreos · 30/10/2020 16:56

@mintgreenlife
I dont think this screenshot says it but I had a call with my surgery today (since i complained about not taking me seriously) and even this gp i spoke said to NICE guideline is 2.5 or less. 2 gps from my surgery, 1 gp in the family and 1 hosiptal doctor has told me this. So dont worry u wont be dismissed if u say this unless the gp has no idea. Book a routibe appt and say uve read nice guideline and as ur ttc u want to make sure thyroid is below 2.5 so wanted to get blood test done. They wont say no to this request. They might say no to upping dosage which they did in my case initially. They have upped it now tho

OP posts:
MintGreenLife · 30/10/2020 16:51

@Sarahplane no worries, it's a luteal phase - the second half of you cycle, so the days between ovulation and your period arriving. Mine is 8 days which doesn't give enough time for implantation at the mo

Sarahplane · 30/10/2020 15:20

Sorry I dont know what an LP is

MintGreenLife · 30/10/2020 15:16

@Iloveoreos thanks for trying to send the info - unfortunately the screen shots aren't quite clear enough/big enough to read. Does it actually say anywhere on the NICE guidelines that TSH needs to be below 2.5? Would like to be able to quote that as otherwise feel like I'll just be dismissed. Thanks so much for the advice, you're quite right, I should try and approach them about it, but am prepared for the fact that they will most likely turn me away x

@Sarahplane interestingly I had a blood test when I was 10 and it transpired I was just outside of the normal range, but I was never tested again until recently and TSH came back 3.5, so I guess my issue must be genetic over having thyroid disease. That's great that you conceived fairly easily. Do you mind me asking if you had a normal LP? I'm 6 months into TTC and ovulate late (CD25 earliest so far) and last cycle I had an 8 day LP, and have read a short LP can be linked to hypo x

Original poster
Iloveoreos · 30/10/2020 12:13

@Sarahplane

I was diagnosed with hypothyroidism when I was 11 and have had two kids. I conceived first time round by accident but them I was 19 at the time. Second time around took 6 months of trying but its definitely possible.
Were you reffered to endocronologist at any point?
OP posts:
Sarahplane · 30/10/2020 12:08

I was diagnosed with hypothyroidism when I was 11 and have had two kids. I conceived first time round by accident but them I was 19 at the time. Second time around took 6 months of trying but its definitely possible.

Original poster
Iloveoreos · 30/10/2020 12:03

Tried taking screenshots of the file

Any positive stories with Hypothyroidism
Any positive stories with Hypothyroidism
Any positive stories with Hypothyroidism
OP posts:
Original poster
Iloveoreos · 30/10/2020 12:00

Also the family member im reffering to did send me a nice guidline which im trying to atach here but cant seem to since its pdf

OP posts:
Original poster
Iloveoreos · 30/10/2020 11:59

@MintGreenLife

Thanks *@Iloveoreos* I can't find anywhere either in the NHS site of NICE that TSH should be under 2.5 for TTC, so you know where I could find this? Would be good to go armed with the right info and be able to back that up. I've found loads of other references to the under 2.5 thing on other sites, just nothing official x
My own gp said it should be lower than 2.5 when mine was 2.8 about 3 months ago but didnt do anything other than doing a repeat test in 3 months and by that time i was 4.5, preg and mc in a week . Also after this happened i spoke to 2 different nhs doctors from my family circle including a gp in the family and she also said it should have been lower than 2.5. Call them up and say you have spoken ti a GP in the family/friend and also read up online that it should be less than 2.5 so you want it checked asap and dosage adjusted if its not.
OP posts:
MintGreenLife · 30/10/2020 11:37

Thanks @Iloveoreos I can't find anywhere either in the NHS site of NICE that TSH should be under 2.5 for TTC, so you know where I could find this? Would be good to go armed with the right info and be able to back that up. I've found loads of other references to the under 2.5 thing on other sites, just nothing official x

Original poster
Iloveoreos · 30/10/2020 10:54

Was anyone reffered to endocronologist?

OP posts:
Original poster
Iloveoreos · 30/10/2020 10:48

@MintGreenLife

Will be watching this with interest, my TSH is 3.5, so classed as 'normal' for the NHS, but not great for TTC.
Hun dont let them do what they did to me. Call them and say to them.it is nhs guidlines that it should be less than 2.5 if ttc. I did not know this and ended with a mc
OP posts:
Original poster
Iloveoreos · 30/10/2020 10:47

Thanku all. Your msgs all sound very positive. I have never skipped my meds or anything but really angry with my GP as they constantly ignored me flagging up that my level was above 2.5 and as many have said abive ot should be less than 2.5 during preg aswell. I was never told that if ido fall preg i need to contact gp straight away to up my dose

OP posts: