How did you get diagnosed with PCOS??

My period took almost a year to go back to normal after coming off the pill... went to the doctors and everything I also thought I had PCOS had the 21 day test and everything was fine... my cycles were awful they ranged from 30-50 days the first year after coming off it... the doctor said it can take a while for everything to settle and for your normal cycles to return... I then had my norm which is 28-30 days...I know how stressful it can be they never tell you the part about your periods taking ages to return after the pill that's why after my first child I never went back on the pill for longer then 2 months... I'm sure you'll have your baby very soon!! Xx

@Diamond94 cycle day 76 and still no sign. I have been feeling a bit sick but I that's more to do with my period trying to start and never quite managing to.

@primarywoodle I don't think that my diet / exercise is anything to do with it because I've always been active 3/4 days a week and my diet is enough to keep my weight stable, but we'll see from when I get my bloods back.

@OrangeJ you'll have to let us know if you think that the myo-insitol does anything to help.

Hopefully we will have some success stories here and that it won't take us too long :)

Hi everyone. This is the first thread I’ve read that I feel I can actually relate to.

I’m 30 and have PCOS. Hubby and I have finally decided it’s time to TTC. We wanted it to be relaxed so have just been “not not trying” since December. I’ve had one period since then at the beginning of Feb and am on CD18. My cycles range hugely from 32 - 104!

I’ve read great things about myo-inositol as well and ordered some the other day. Would anyone go to the GP to ask about taking it? I know these things say consult with you GP, but when I first went to mine asking for tests for PCOS she made me feel as though I was wasting her time and just told me “it’s very common and if you do have it there’s nothing you can do about it”. Really upset me as I never go the flipping doctor for anything!

What is your weight/exercise regime like? If your not getting many symptoms of PCOS then look up hypothalamic amenorreah just incase that sounds more likely to you

@other89 Hi! Yes our situation sounds very similar! It's so annoying isn't it, I actually want to see my period to know I'm normal. Keep getting cramps and thinking it's coming and then nothing .. you are only young yourself so don't worry too much but at least we are aware of our bodies! Have you been diagnosed with pcos?

@Grace2296 yes I'd go doctors if I were you just to just get some bloods etc and they'll prob send you for an ultrasound. How long was your last cycle? In terms of symptoms I had bad skin last year but that's when I was actually on the pill, I saw a dermatologist and went on quite aggressive medication and my skins fine now and has remained fine , it's a bit oily but nothing terrible. I don't really get lots of hair growth or anything like that but I've noticed my leg hair is thicker when off the pill. I do crave carbs a lot too so have to be careful what I eat. Can put on weight quite easily although I'd say I'm healthy size 12. What are your symptoms? Xxx

Sure @Diamond94 this is the example of my 'good month' I started temping later. This was my one and only 37 day cycle..
I'm glad you're temping. I'm getting used to it but think it'll be worth doing in the long run

@Mycrazylife85 do you have other examples of your BBT chart? I started charting this month too

Hi 👋🏼
Could i join please
I am im the same boat! CD74! Stopped the pill end of october, had withdrawal bleed 4 weeks later and nothing since... i had my bloods done 2 weeks ago but iv to get them retested on thursday to see if there is any changes!.. think i will give inositol a go after my bloods are done! I just want AF to appear 🙄

I have been using 4g of myo-inositol since last summer too

I was16 with awful acne and hairy arms and legs and hair loss on my scalp. Blood tests then scans, abdominal and transvaginal confirmed it and went on the pill. I vaguely remember my pre-pill periods being about 35-38 days cycles. Came off the pill at 33 in January 2019. Completely screwed cycles ranging from 37-89. Had to go back through scans and blood tests again. Like it's vanished 🤷🏻‍♀️ my bloods look okay but the LH hormone and the other they measure are more than double, indicating PCOS and my last but one more recent showed cysts, although after a period 6 weeks later the last scan was 'normal', but I'm back on a long cycles again. I temp so have a great comparison of month with a short cycle and this month (which is up and down with peaks like a massive Toblerone). Doctors tomorrow armed with my SH sperm analysis which is thankfully good all being well for referral

@swirls3468 Your situation is very similar to mine, I'm worried this last cycle is just that my periods have stopped too. I'm on cycle 74. I feel like the hormones from the pill have ran out and my body is not ovulating. If that makes sense. I'm 30, nearly 31 so it's a bit more time precious for me. I'm going the doctors on thursday to get my bloods done so hopefully that will help.

Hi Grace!
Seems like you are in a similar situation to me. I am convinced I have pcos but pushing for a real diagnosis as GP's are not very clued up it seems. I have been off the pill since August and have had varying cycles anything from 22-37 days and then my periods just stopped! I'm now on cycle day 70... so need to know what's going on. I've requested all the bloods that I needed and they said they've come back as normal including thyroid and also asked for a scan which they did and said one ovary is polycystic but the other is fine. They don't diagnose pcos from a scan alone. Anyway.. this was a while ago. But I went back to my gp a few weeks ago and they've now referred me to a gynaecologist to see what's going on and if there's further issues I can be referred to a fertility clinic. Honestly it's really hard to get diagnosed with this sort of thing but very frustrating with ttc because it's difficult to know if ovulation is even occurring. Sorry to go on and on! Any questions just ask. I'm 23 and ttc baby 1 but a relaxed approach. Xxx

Thanks @Grace2296 @AlohaMolly @SisterAgatha @tiddlerthefish @minipie @namechangepls5 @EastMidsMumOf1 @Letthemysterybe That has been a great help. I know that it probably can just take people a bit longer because of the PCOS but doesn't mean that everyone will have issues. I just feel because I'm waiting nearly ages for a period (nearly 3 months this time) that I have less chances than if i were ovulating every month!!
@namechangepls5 can you just get that supplement inositol by its self? Does it have another name? Did it take long for them to regulate?

I was diagnosed 9 years ago when pregnant with my 2nd child, they suspected ectopic and had a laparoscopy to check the location if the pregnancy, due to a large cyst on my ovary and they couldnt tell if it was the baby or a cyst. Since then ive had another laparoscopy and another baby. It doesnt cause too many symptoms for me, slightly heavy, very painful periods that only last 4 days, since coming off the coil to ttc my cycles seem to be irregular. I also have the line of hair on my lower tummy and every once in a while i get excruciating pain in one side (usually left) where a large cyst grows and bursts. I had an ultrasound maybe 2 years ago and had a 4cm cyst on my right ovary and it wasnt deemed large enough to warrant surgery. So far for me there have been no fertility issues, this is cycle 3 of ttc no 4. Hope that helps!

I think it’s worth asking for tests, there may be some the GP is willing to do now.

Also there are supplements that can help - myo inositol is often taken by women with PCOS trying to get pg. DIM is another one, more recommended for acne but also worth a look.

SO many typos. Sorry!

Yes, as others have said PCOS doesn't automatically mean you'll suffer with fertility issues. I didn't, though I fully expected to. I was told to expect it to take me two years and that I'd probably need clomid and/or IVF. I didn't, either time I fell quickly by normal standard especially second time around (first cycle). I was taking metformin both times, I should have mentioned that, bjt not specifically for TTC, to try to help me lose weight. I wasn't obese but I was overweight and the doctor said it'd help, and in turn help me to ovulate regularly if I wasn't (as wound the losing weight). Even the first time it took me 3 months but that's perfectly normal especially after coming off the pill.

At your age even worth no PCOS they'd expect you to be TTC for 12m before they'd offer any help in this area as anything up to that is considered normal. With PCOS they may offer help earlier, it really depends on your area and your GP tbh.

Yes for me it wasn’t the PCOS that caused ttc issues, it was the thyroid. Once I got put on thyroxine I got pg very quickly.

One thing to consider is that just because you have PCOS doesn’t automatically mean you have allow fertility. I tried with my previous partner for 6 years. Thought it must be my PCOS. Met my DH and was pregnant in 9 months. I would start temping if I were you, I managed to find out that On average I would ovulate on day 36 rather than the standard 14.