How did you get diagnosed with PCOS??

I was diagnosed at 19 with a scan but was told not to worry about it until I wanted to conceive. I came off the pill in Feb and I’m still waiting for a period (CD 97 today) and I feel frustrated as OH and I decided we wanted to be casual and breezy about TTC, but as times gone on I’m getting more worried, not knowing if it’s the pcos or something else causing it. I rang my GP who referred me for a scan although I’ve no idea how long that will take to come through. I had blood tests last week to check hormones, thyroid etc last week so I’m awaiting those results. So definitely call your GP and ask for these things.

@Grace2296 Nooo not private, I rang the gp but I was having a bit of pains down there as well so I mentioned that which was included in the referral and that was about 3 weeks ago and my appointment is tomorrow. They are still doing appointments for routine things but just prioritising. And the number of referrals has probably actually decreased because no one is going to the dr!! But there are other issues other than covid. I just wanted to get it sorted really before it's too late because I really want children.
Deffo call gp and ask for one if you feel like it's what you need, sometimes you have to ring knowing what you want. I found a better gp than my own though, a female gp and she seems so much more understanding than my actual gp.
I'm a nurse so at least I can go to work whilst the lockdown is occurring!!

Came off contraception and didn't have a period for a year so was referred to a clinic where I had an internal scan on my ovaries which showed PCOS.

I had my first period at 16 and as soon as it came I was rushed down to the GP and put on contraception (injection for three years then the inplanon for seven) So I never had a chance to see what my normal cycle was because the contraceptives causes some bleeding that I assumed was a period.

In hindsight if they hadn't of put me on contraception as soon as possible I would have found out about the PCOS sooner and likely would have started trying for a baby with DH sooner knowing I'd have difficulties but I don't blame DM I was a complete wildchild back then drink, drugs & random sex and I wouldn't have been able to cope with a baby so I think they done the right thing.

@Grace2296 Hi Grace! Sorry to hear no luck, I'm in the same situation and it will be a year in August. I had no period so had to get a tablet from the dr to induce one and make me have one!! Otherwise I think I still wouldn't have had one. I've actually got a scan tomorrow and they've referred me to endocrine/fertility. My last referral got cancelled cus of covid and they completely discharged me! So asked to go to a different hospital. I thought I'd get the ball rolling with this clinic because probably gonna be months before I get an appointment because of the backlog due to covid.
What kind of puppy have you got??
How's everyone coping with lockdown ?

I never had regular periods, and as soon as they started I began piling on the weight despite being very active. I also developed hair on my upper lip, though I was lucky to keep relatively good skin. I was brushed off my doctors in my late teens and early twenties de the period issue, and told to lose weight. Did SW and WW religiously and gained weight each time!

In my late twenties we began TTC to obviously no success. I was lucky to be able to go private, and the consultant diagnosed me then and there, which as confirmed by scans a few days later. Said I was a classic case. Was advised to try low carb high fat diet and metformin and clomid to conceive. I lost a stone in a month, and periods returned but no conception.

Had IVF, worked first time and now have a lively 18 month old! We were just about to have one of our frozen embryos transferred just before lockdown, so are eagerly waiting for things to get going again now.

I don’t know if that’s much help, but it was going private that did it for me.

Hi
How is everyone getting on with ttc?

@AlohaMolly I think that can happen after people have had children, it sort of resets your periods/hormones.

@swirls3468 I've had 'spotting' for the last couple of days. Not enough for a tampon or a pad and mainly just there when I wipe. I'm not sure if i can count it as a period because it's not like any period i've had. Its day 94 of my cycle otherwise.
I've got an appointment with the fertility clinic as it's coming up to a year which is in early April. I did have some bloods done by the Dr but because I've not had a period he said it's very hard for the results to show anything because we can't be certain which part of my cycle we are on.

@Firecracker2019 I've had a few tests but they don't know where about in my cycle I am so just waiting to see.

It's just the waiting now that annoying. Hopefully I'll be able to get my cycles on track so I can give this conceiving a proper go!!

My update... (diagnosed with PCOS at 16, currently 34)

14 months post pill and three scans and numerous blood tests later I have 'mild' PCOS now. But they've referred me to the fertility team. I've been taking myo-inositol for about ten months, and my last two periods have been 37 and 40 days. This appears to be my average now. I had a 87 days cycle September to December but had a few 37/40 day cycles before. 😒😒😒 mild... 😳🥊

Should add that after stopping the Pill and TTC my cycles varied wildly for that first year from 25 days to 43!

The pill can mask the development of PCOS and in my case I believe it did.
I was TTC with no success for a year and went to GP who did bloods first which seemed normal but I pushed for more and was sent for an internal scan where the ovaries were found to be polycystic and a couple of polyps were found too.
I apparently have ovulatory polycystic ovaries as opposed to the full syndrome as hormone levels were normal.

@other89 Hi your situation sounds similar to mine, not had a period since the start of December ! Driving me mad now. Keep thinking I'm coming on but it doesn't come..
What process did you go through to be referred to fertility clinic? Is it ttc for a year?
I have been referred to gynae xxx

Sorry, I forgot I posted here!!

I actually never struggled to get pregnant, but I did struggle to stay pregnant. I had 3mcs before I had DS, but like someone upthread, those three mcs were with a different partner. DS was also conceived while I was on the pill

Interestingly, my periods have been pretty much fine since having him and he’s nearly four. The last six months have been a slow fall back in to what I remember from my early 20s - the hair!! My beard hair grows overnight and my moustache is just so quick to grow back and this cycle has been 45 days.

The doctor did some blood tests (not sure for what though?) and said they came back fine but has referred me for a scan.

Just catching up with everyone. I'm cycle day 90 so have missed 3 full periods, which is just so frustrating when trying to conceive. I'm booked into the fertility clinic for the beginning of April so hopefully will get some answers!! Anyone got any more positive news?
@Grace2296 @AlohaMolly @SisterAgatha @EastMidsMumOf1 @namechangepls5 @minipie @tiddlerthefish @Hatepickinganame

HarrietM87 that’s interesting. My hormone tests went missing 🙄 so I’m not sure what they said. My cycles were a little bit irregular and long (31-34 days ish) but nothing major. Definitely had/still have acne though.

@minipie have you actually had the hormone tests for pcos? You might not actually have it. Hypothyroidism can cause your ovaries to be multicystic (ie have lots of cysts) but that is not the same thing as having the syndrome. To have PCOS you need 2/3 of cysts/hormones/physical symptoms. Most people with hypothyroidism just have the cysts. If your cycles were regular then unlikely you’ve got it. Just FYI!

@OrangeJ yes I've read it can take months too so will stick with it. Deffo let me know how you get on??
I'm very impatient too! I've been off the pill since August and got really obsessive to begin with and now I've just thought f*ck it, it will happen when it's right. I'd like to be pregnant by the end of the year but we will see what happens eh.
Have you tried a pre natal vitamin? I've heard they can really help too as improve egg quality. I'm also taking some vitamin D as most people who live in England are deficient anyway so useful to throw it in.
I've got a bit of a pharmacy going on from my bedside drawer lol 😃

@swirls3468 that’s really helpful info thank you. I won’t bother my gp then
I’ve read it can take a few months for it to work🤞but I do get impatient and have a tendency to stop doing things when I don’t see results quickly. Must remember to stick with it!

Hi guys!
Noticed a lot of talk about myo inositol. I did a bit of research on it and ordered myself some about 3 weeks ago and have been on it ever since. I don't see any difference and still haven't had a period, however, it's early days and I've had no bad symptoms from it! So I'll continue to take it. I'm also taking some also supps to. In regard to the gp they prob can't recommend to take something that's not prescribed so wasting your time going. It's only a food supplement so unless you are on any other meds that could possibly interact I'd say it's safe to take. I took my first lot in the morning so if I did have any side effects it would be in the day time and not through the night.
So glad I've finally found a post I can relate to though girls!!!
Xxx