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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

Original poster

POF (Premature Ovarian Failure / Premature Menopause) - looking for info/people to talk to............

40 replies

looneytune · 31/08/2007 11:12

Hi

For those who haven't seen me on other threads, I'm 31 and on 2nd cycle of ttc dc2.

I had blood test done yesterday to see if I've started the menopause as I have a family history of this (mum was 29, her mum was in 30's and so was her sister). Ds is now 4.5 and with dh being 46, we really want to conceive asap (like everyone does once they decide! ) so I'm looking ahead at options IF I'm not able to conceive myself.

I must say I've been very emotional about all this. We're all desperate for another baby in the family (incl. ds) and it's not helped by the fact I'm a childminder who has babies every day and the 2 I have at the moment started so young (7 weeks and 8 weeks, now 8 months and 6 months) and you really bond but at weekends it's back to just the 3 of us - ds is desperate for a little brother or sister.

I thought that if the result came back that I'm ok, then I'd be fine as thought it sort of could predict if you're likely to go through it in the near future. Well, Dr let me know yesterday that if I'm clear, I need to try and get pg ASAP as it could happen at any time and there is no warning from the blood tests.

At this stage, I can only think the route I'd want to take (if I had to) is IVF with donor eggs. Then I get all tearful about the thought that the baby wouldn't have my genetics etc. I know there must be lots of people who've had donor eggs and love their child to bits regardless and that's great, it's just so hard to think about it right now as this is all new and a bit of a shock.

I don't really know why I started this thread? Suppose I just want as much info as I can get, talk to people who know about this stuff, that sort of thing.

Anyone out there?

OP posts:
Original poster
looneytune · 01/09/2007 12:56

pupuce - thanks for that info. I definitely like the idea of trying the massage if needed

Popi70 - thanks, it's great to hear another sucess story Did you do anything special or was it natural? I don't understand all the abbreviations and don't know what the tests are (Dr told me straight away as she's an expert but she said all the tests so quick, I didn't catch them). I'm a bit confused as the Dr told me if I've started the menopause then that's it, the chances of getting pregnant shoot down (probably where the 10% comes from) but I was hoping that levels could sometimes change gradually and could be monitored? I'll come back to this thread once I have the results as it may help me understand them more. As for symptoms, tbh, I'm not being checked because of any symptoms as I don't know what they are, I'm being tested because of my family history. I've had hot flushes then get cold for the past couple of years but I put that down to being a childminder and always busy with the kids? I used to be sex mad and must say that changed a few years ago and I have times when I really want it but the rest of the time I could take it or leave it. Dryness...........dh has commented within the last year that I've changed down there but I'm not sure if this is anything to do with POF?

dizzy36 - of course it is, the more the merrier as far as I'm concerned - want as much info/hope as possible. I'm a bit confused about the fact you tried things to help you ovulate? I thought that POF meant eggs were no good or had almost run out? See how much I know eh!!! . I'm really confused about whether or not I ovulate because the other day I felt twinges in my side like stitch and then a day or 2 later I got a little EWCM (this was yesterday) but then again, I got that when I was on the pill and I thought the pill stopped you ovulating??? Confused As for periods, I can't really comment as been on the pill since I was 16 (with about a year break for ds). This is my 2nd cycle after coming off the pill and the period I had was after a 32 day cycle and was very light and only lasted about 2 days. BUT.....I believe this can happen after coming off the pill so can't take that as a sign of my periods changing. Do you mind me asking how long you have been ttc for?

OP posts:
dizzy36 · 01/09/2007 12:36

hi, hope its ok for me to jump into conversation.

I have had elevated fsh since as early as april 2005 when I was 37 (maybe earlier as that was 1st time tested) it was showing as 14 and has stayed elevated. I had private fertility treatment (iui and chlomid) which didn't work and the consultant told me last year that I had an almost zero chance of conceiving because of my consistently high fsh levels. I think he was being very negative. I am almost certain I ovulate every month....opks show LH surge, ewcm, and have post ov symptoms due to prog increase. which apparently only occur if you ovulate.

I have not given up hope and is lovely to hear positive stories. I already have a 7 yr old DS who would be a brilliant big brother.

I beleive that our path/destiny is set out for us and all we can do is try an help things along by making the right choices. If I am meant to have another child then I will have one and I will do my best to help make it happen.

Can I ask if anyone in perimenopause/early menopause who still had periods noticed any significant changes in their cycle and/or in themselves i.e irregular periods, heavy or light, changes in mood?

Popi70 · 01/09/2007 09:18

Hi,
I was also diagnosed with POF at age 36 and without a family or personal history but some months after I managed to get pregnant. I think that to be pronounced as POF you must have two high FSH and LH readings at 2 weeks or more apart from each other and lack of menses for at least six months. Are you suffering from other symptoms such as hot flashes,dryiness - no cervical fluid or loss of libido? There is also an intermediate state called DOR (diminished ovarian failure) and the chances of naturally conceiving then are 25% rather than 10%. As for IV with DE, a POF friend at her late thirties just had a successful one at a clinic in Barcelona. She's now pregnant as well and very happy about her choice as the service was tailored for international clients, the staff were suburb and it was very affordable considering the situation here.

pupuce · 31/08/2007 18:48

I'm crossing my fingers for you... but don't despair if they are bad... it might not be the end.... it is just a longer road

BTW - Women with POF have a 10% of concieving I think that's un-aided... I am one of those (well I did get massaged).

I liked that website
www.pofsupport.org/information/doctors_faq/drfaqsantoro3.htm

Original poster
looneytune · 31/08/2007 18:38

That's great. Dr is great and she said she's the fertility queen so she knows her stuff on this! Just that I was told to phone reception for results first - I'll ask them what you said and take it from there.

Thanks so much for all your advice

OP posts:
pupuce · 31/08/2007 18:33

Well ask if he can give you the hormone level results... and that should be enough to get you going... if they are "bad" he SHOULD refer you to a gynaecologist.

Original poster
looneytune · 31/08/2007 18:13

So I presume if I just say I want all the details of test results, they'll give be loads of gobble-de-gook and I can research, rather than having to know what to ask iyswim?

OP posts:
pupuce · 31/08/2007 18:08

Well I would ask for the results... and then you can do some research on the web!

Original poster
looneytune · 31/08/2007 17:48

Thanks for the info, will check out that website.

So, I presume that I should be able to ask for lots of details from my results rather than just be told whether or not it's showing I have a problem?

OP posts:
pupuce · 31/08/2007 17:01

I am in West Kent and my massage therapist is in Dorking adn London. The lady I sued but there are others is
www.hilarylewin.com

FSH is follicle-stimulating hormone as far as I understand if it is high it means you are having a hard time with your eggs !
I believe from memory so please check and the inyternt is a good place to look! that 10 to 15 is a good number I had 89 and over that too.

I think with donor eggs (or frozen eggs) you have a much higher chance but personally I didn't want all the hassle of getting loads of hormones injected into me.... also getting donor eggs is hard!

Original poster
looneytune · 31/08/2007 12:30

Any idea how I find someone in my area? So far having no luck on the internet

OP posts:
Original poster
looneytune · 31/08/2007 11:57

p.s. don't suppose you happen to be in the South East do you?

OP posts:
Original poster
looneytune · 31/08/2007 11:56

This is great, I'm so glad I started this thread. I'm into alternative therapies for things anyway so will look into any options!!

I had seen POF get mentioned on here before but didn't realise that it was another name for premature menopause until I went on a website (www.daisynetwork.org.uk/index.html).

I'm so pleased you managed to conceive, I really am

Can you please tell me what FSH stands for? And any other things I may have seen mentioned and need to know about?

Because I've been on the pill for so many years (from age 16-31 with a break when had ds), I'm not sure what my cycles are like. I've had one since ocming off, it was late and only lasted 2 days and very light. BUT, I believe this can happen when you come off the pill so not reading anything into that now.

So, from what you know, even if you have frozen eggs or donor eggs, it's still very hard to get pg?

OP posts:
pupuce · 31/08/2007 11:25

Hi Looneytune

I had premature menopause , well actually I was diagnosed with Peramture Ovarian Failure (POF)... I was 36 and have no history of it in the family so complete shock.

I had a very high FSH result and was told that I would need donor egg or be VERY lucky one night! (The gynae said it's like russian roulette for you!)

Anyway I chose not to go for egg donation or HRT for that matter... I went to see a friend of mine who does Maya Womb Massages... I had heard lots about it... she did NOT promise to get me pregnant... but I went anyway as I was hoping to get my body back on track if possible... I had 3 massages... and another 3 massages a year later... I am sitting now next to my 9 months old

I have met the woman (recently) who developed this technique and she tells me that in the US a lot of her practitioners work in fertility clinics are there is clear evidence that the massages significantly increase the rate of success!

So I am great believer and I will see my friend again once I stop BF... as my cycle isn't back... maybe it will never come back (it had disappeared completely at 36).

So there is HOPE... but act sooner rather than later.... and personally I would suggest that if you go down a more invasive route you also look at this massage because it will increase your success rate.

Original poster
looneytune · 31/08/2007 11:19

Oh, just read something about freezing eggs, anyone ever done this and mind sharing the cost?

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