Immune/NK issues - aka Pred Thread no. 23!

Thanks so much guys. Yes I spoke to the nurses @Chickjen @MrsMargot and, as you said, they said to stop aspirin and double cylogest. Good call @zoe16, I've been able to stay home from work today and I think trying to relax and get my emotions in order is helping. I have my scan on Monday but they are checking to see whether there might be a possibility I could be seen tomorrow. There are reasons that it might be better to wait until Monday as it would be very early to try to see a heartbeat tomorrow and my husband can't be there, which I'd find difficult. My instinct is to try to take it easy and wait until Monday. Thanks so much for your support. Means the world. xx

@zoe16 yep I'm only on aspirin and vitamin d now. 75mg of aspirin and one vitamin D tablet a day, not sure of how much that is.

@Chickjen what’s your vitamin d dosage?

@KittyKatSmile so you’re still on aspirin?

@Belarita I would be freaking out too, every time I use the toilet I check the tp, but I’m hoping all is well and you just need to double up on cycolgest as others have said. Can you sit and put your foot up until you speak to your doc?

@williteverhappen, sorry forgot to attach the photo I referred to.

@Belarita hang on in there. We all know how terrifying this is and we're here for you x

@Belarita I am sure it will be fine. I am saying this and I know how I would have freaked out too... try and do as less as possible and talk to the nurses. They told me that if I have any spotting or bleeding I should stop aspirin and double my progesterone. See what they say. When is your next scan?

Oh god, woke up this morning with spotting. I really freaked out. I've phoned the nurses and am waiting to hear back from them with their advice. Trying to keep calm. I had a terrible night with a horribly upset stomach, night sweats and very little sleep... having felt pretty great all day, which of course also worried me. Just reading back your posts @Chickjen and @MrsMargot about early bleeding and subchorionic haematoma. Praying that's what it is and not the start of MC.

@williteverhappen you need to wean off the pred, the photo is my chart but it depends on your starting dosage. Stopped clexane, progesterone and oestrogen at various times, all at or before 12 weeks. Aspirin throughout. I stopped taking the prenatals once I ran out after 12 weeks and started taking vitamin D.

Ladies, can I ask when Dr S has said to stop your meds? wean off pred from 12 weeks and by how much? Progesterone stop from 12 weeks? Aspirin throughout? Vit D, Folic acid and Omega 3? I assume the vitamins will be taken throughout the pregnancy? Thanks x

@Eeviee, so sorry you are feeling down, I totally understand. I think there's some good advice in that trying to distract yourself can make a difference. This also means you won't feel so much pressure. I know we hated having to time DTD every month which just took the romance out of it all. We did have a holiday away and had a month off trying then we got our bfp the month after. I also started acupuncture which I believe helped too. I've not tried temping or IUI so unable to comment on that. Hang on in there🍀🤞 xxx

@KittyKatSmile what is Ava and what is it used for? I don't track tenps as I found it all too confusing. Plus i work early hour on weekends so my temps were all over the place. I'm on Dr S super ov plan - should I start tracking temp?

I have just a normal thermometer I brought from boots. I go bk to see him on Friday for a scan following the meds he gave me while on days 2-6 of cycle.

I feel hopeful but that horrible thought that it may not ever happen lingers in my mind. Xx

@Eeviee actually, here's a thought: I've got Ava, a tracking thing you wear when you sleep. You can have it if you like? PM me your address and I'll send it to you as a Christmas present xx

@Eeviee I've done IUI a few times but they didn't work and as @zoe16 says, there is still some time pressure, albeit of a different sort...

I too would probably see if you can do Super O; I believe it's worked for quite a few people. Then maybe try medicated IUI for a set number of months and maybe consider IVF after that. For me I felt that just having a plan really helped. Take care of yourself and remember not to abandon Project You in your pursuit of Project Baby x

@KittyKatSmile I’m on clexane for similar reasons as you were hence no reason to stay on past twelve weeks. It would def be nice to stop at 12wks as you’re right about cost and sourcing! I haven’t found the injections too bad, been doing them without ice and no bruising. I think I’ll stop at twelve weeks too once everything looks ok.

Congrats @ginandtonicformeplease so happy all is well with you, all the best for the next scan💜

@MairMum18 @Belarita good luck on your upcoming scans, I know it will be positive 💜

@Belarita I too spoke prematurely about lack of symptoms, I’ve been nauseous and tired all day everyday but enjoying every bit of it! I’m on holiday and finding it very hard to do the things I had planned to do. Actually looking forward to going home on Saturday so I can just sleep.

@Eeviee so sorry this month didn’t work. We’ve done IUI in the past and while it does take the pressure off from having to DTD often we still had to DTD after the IUI. My IUI worked but mc (now I know my problem was NK and not conception so we had no chance without the meds). Since you would be doing IUI with the meds I would say give it a go to help speed things along. Are you seeing DrS? Ladies on here have mentioned his super ovulation plan, have you tried it?

Hello ladies, I hope that you are doing well? I've not been on here for the last couple f weeks so catching up, wow so many positives, congratulations to all, wonderful news 😊.
I got another BFN this morning, I was meant to test yesterday but it was my birthday and I didn't want to be upset so I left it until today. Another year older and no further along. I've been really struggling the last few weeks and I don't know what to do, since being on the meds I have no idea what my cycle is doing, taking the OKP stress me out so much and I feel like that's messing up my ovulation as well as putting huge pressure on my relationship. I'm considering looking into IUI as I feel it may take the pressure of ttc off and my partner is due to be away for weeks at a time next year. I'm not sure he'll be on board with it. Has anyone else tried IUI ? Along with the meds still? I wonder if it may help take the pressure off, I feel like I can't cope and that it will never happen for us. Sorry for the negativity, it's just I know you ladies understand. xx

Thank you for the encouragement guys its helping to lift my spirits. Think the hormones may be playing a part on my down mood as I couldn't stop blobbering at work today lol! Will try and shake out of it. Thanks @KittyKatSmile! An altercation on the northern line? Hope you are OK? Thanks @Belarita, all the best for your scan next week 🍀xx

That's great news @ginandtonicformeplease!! Sending positive vibes for your next scan xx

Good luck with the new treatment regime @NicLondon1, it is working for so many of us all at different stages and we are here to answer any questions you may have xx

I've had my seven week scan today and all is well. As my previous two died at 8 weeks, I'm booked in for a scan at 9 weeks - Xmas Eve.

@Belarita you're welcome my darling x

Welcome to the clan @NicLondon1! Great to have you here. These ladies are the bomb. So encouraging to hear about your scans @MrsMargot @zoe16. This is wonderful news. So I think it’s @MairMum18 and me up next week? @williteverhappen I’m sorry to hear about your fibroids and the pain. That must be rotten, but 11 weeks! This is brilliant, and it’s great that you’re being so carefully monitored. My “look guys no symptoms” post was somewhat premature and woke up sick as a dog this morning. I blame the psychic gifts of @KittyKatSmile . Anyhow hang in there everyone. We persevere... x

Thanks @williteverhappen

Well, I went to the clinic this morning, they confirmed I've just ovulated and I've been given the bag of injections etc.... they said to inject Inhixa at 90 degree angle under belly button.
So here we go.....! Aargh!

@williteverhappen bless you. It is so anxiety inducing. For me personally it got hugely easier after 12 weeks and I really started to enjoy it (apart from an altercation on the northern line last night!) Here's hoping it might be the same for you. Actually I've been really surprised at how chilled out I've become. I used to have high blood pressure before getting pregnant; it's now low....!

That's great news @zoe16 and @MrsMargot! First hurdle jumped, just take it one day at a time. Congratulations!! So pleased for you both!!xx

Yes, the lack of symptoms doesn't mean much at all as mine just kept fluctuating. I currently have no nausea or sore boobs but still a bit tired. I am now eating like a f**king trooper (thanks pred!!). My cheeks are starting to looking more like a hamspter but DH is saying I look the same (think he's trying to be nice bless him), can't wait to be off the pred!

I've had a roller coaster week. Had to go in for an emergency scan at the end of last week due to severe pain, thankfully baby was fine and measuring 11weeks but sonographer said my fibroids had grown, great! There's nothing much they can do except for wait and see how I get on.

@zoe16, I've been given the option of staying on the heparin till the end of the pregnancy and 6 weeks after birth and I think I'll remain on them just because of the fibroids and as its our last go at it after 6 losses I think I want to try everything I can though if I didnt have the fibroids I'd probably stop it given the option. I am due to see my consultant again at my 12 week scan on thurs so will ask her again and see what she says. I also have my official dating scan next Tuesday and so scared my measurements will be all off due to my fibroids!!

Welcome @NicLondon1, I am currently on the same treatment that you've been offered. This is through my NHS consultant and my experience has been positive but this hasn't been the same for everyone. The heparin injections are tolerable and don't really hurt (I think its just the thought of injecting myself that scared me but you soon get used to it). I do it in my thigh at a 45degree angle. You do get a bit of bruising and I have bleed from mine but the nurse reckons it was because I didn't do it at the correct angle and hit a blood vessel instead of going to the fatty tissue.

I haven't told anyone either except for you guys and a couple of "need to know" people at work as I've had a lot of time off and changed my working hours. I have very mixed emotions about telling people once I reach 12 weeks as I don't think my anxiety will lessen - will see how I get on next week.

@KittyKatSmile and @Chickjen hope you are both doing well, you are both still giving me alot of hope. Good luck everyone for your upcoming scans xxx