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Conception

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TTC over 12 months, what is going on? Possible PCOS? Pls help

58 replies

liveinhope100 · 26/03/2019 12:32

Hi all,

So I have been ttc for over a year now and it’s been such an emotional and stressful journey. I decided to pay privately for an internal scan and was told everything looks perfect except I may have PCOS. He said I have 18 follicles in my right ovary and about 14 in my left BUT my blood tests have come back normal so does this mean I don’t have PCOS? I’m so confused. I do opks every month and get a peak but does this mean even if I get a peak ahd LH surge that I still may not ovulate? I got pregnant once about 10 years ago but that did not last. So I wonder if it's possible to develop PCOS? Would love to hear if anyone else has been in the same situation and can offer some advice.

This month I have self-medicated on soy isoflavones (day 3-7) until the doctors finally do something about it but now my blood tests have come back normal I doubt they will even prescribe me clomid. (FYI – I also paid for an HSG and was told my tubes are clear). Any help and/or advice would be really appreciated.

OP posts:
Dinosauraddict · 28/03/2019 14:13

@liveinhope - cough syrup?? Is this some weird trick I don’t know about?!

LFH1990 · 28/03/2019 13:55

I also was wrongly diagnosed with PCOS a few years ago - diagnosis now revoked, and had a polyp removed last October, which completely messed with being able to see any kind of pattern with my cycle

LFH1990 · 28/03/2019 13:49

I have really irregular cycles, anything from 27-42 days is “normal” for me, so we found it really difficult to plan when to dtd and I found that the lack of control I had over the situation was making me quite stressed and I felt like a failure because I had no idea what was going on. I researched a couple of different options and eventually decided that it wasn’t admitting defeat to get help so I ordered the OvuSense sensor and it has made things SO much better, it’s so easy to use and tells you clearly when you are ovulating, so now I don’t have to worry about trying to analyse every little thing or remember to do OPKs at specific times because it’s all taken care of. It’s quite expensive but there always seem to be offer codes available, and it has made me so much more relaxed about the whole thing.

MapleAndCats · 28/03/2019 13:41

Sorry that should say sperm count.

MapleAndCats · 28/03/2019 13:41

@liveinhope100 has your partner been checked as well? Both sleep count and DNA damage?
Most couples fall pregnant by the 24 months. Not what you want to hear I know. I am in the identical boat as you. I have PCO but apparently it’s quite common (25% of fecund age women) and most women don’t even know it and it’s a year and a half for us now. 😔 our BFP is coming.

MapleAndCats · 28/03/2019 13:38

@chezels usually metformin is prescribed to manage weight and to induce ovulation. Typically those who have PCOS remain on metformin for the rest of their lives regardless of conception. It’s an important step in the prevention of diabetes as of weight loss, healthy diet, and exercise. PCOS is a metabolic disease that impacts fertility but first and foremost, a metabolic disease.

liveinhope100 · 28/03/2019 13:31

Hey @SunStruck

Sorry to hear about your diagnosis but great news that your OBGYN said you shouldn't have any problems conceiving. Good luck for this cycle hopefully you will have some good news soon!

Update on my side...so my blood tests came back normal and I went for another scan today. The lady said that even though I have lots of follicles (18 in right and 14 in the left) she said it doesn't look like PCOS. She said the follicles aren't all small and i most likely have multi-follicular ovaries which i think is another way of saying i have PCO (from the research I have just done). So it seems like nothing is really wrong??

Just so frustrating that I have been trying for over a year and AF turns up everytime without fail...I have literally tried everything....all the tests (scans, blood tests, HSG), opks, conceive plus, pressed, EPO, soy isoflavones and even cough syrup.

OP posts:
Dinosauraddict · 28/03/2019 13:07

@cheezels - you can get pregnant just on clomid, but clomid has shown to be slightly more effective in trials if metformin has been taken for 3-6 months before starting clomid in women with PCOS.

pinacollama · 28/03/2019 13:00

My recent transvaginal ultrasound showed polycystic ovaries but my bloods were normal and I have no other features of PCOS. I’ve been referred to gynae, and my husband and I to the fertility clinic (we’ve been ttc our first for 15 months, we’re both in our 30s.

SunStruck · 28/03/2019 12:40

@liveinhope100

Hey, I have also been diagnosed with PCO but not PCOS (confirmed via blood test and sugar test). Prior to going on the pill many many years ago I've always had a regular period.

I've been told by my OBGYN that it shouldn't be any problems for me to conceive (I'm 35 though so worried anyway).

My follicular phase is very long though and luteal phase short, but hopefully can conceive without any help. I'm TTC cycle 2 at the moment.

cheezels · 28/03/2019 11:49

@Dinosauraddict do you know by chance, say I have pcos and I go on clomid, can I still get pregnant or do you need to be on metformin too?

liveinhope100 · 27/03/2019 17:16

Ok, good to know. Thank you! @MapleAndCats

OP posts:
MapleAndCats · 27/03/2019 16:57

Clomid is often prescribed for unexplained infertility as well as it’s just that extra boost, not only PCOS.

liveinhope100 · 27/03/2019 15:59

@MapleAndCats I did get my tubes checked with an HSG and everything was fine - the dye went straight through which is good. I know the doctor ordered loads of blood tests which came back fine but I don't think TSH was on there - I will look into this more so thanks for that.

I'm going to a scan tomorrow as I have paid to track my ovulation this cycle so I can confirm if I am actually ovulating or not. I may pay for a progesterone test on CD21 and then I think i've done almost all of the tests available. I don't know why I'm so keen to go on clomid when i don't seem to have PCOS...I just want to feel like i'm doing something!

OP posts:
Dinosauraddict · 27/03/2019 15:37

@Explorers - The scan will probably be a transvaginal scan. If you’re interested and they’re not rushed off their feet then it’s fascinating as they show you your ovaries from all angles. My PCOS has been diagnosed 3 ways (blood tests, transvaginal scan and laparoscopy - the latter wasn’t needed for actual diagnosis though) and I am on metformin.

Explorers10 · 27/03/2019 15:12

Thank you for your comments. Sorry still in such shock to process this news. I had blood results back about testerone and androgens being high and therefore go has referred me to have a scan to check for pcos.

OhDiddums · 27/03/2019 15:06

Speak with your Gp. Maybe they could explain your scan results better.

OhDiddums · 27/03/2019 15:05

If you have had a blood test for pcos and it's came back that you don't have it then you don't have polycystic ovary syndrome. There's a difference between having polycystic ovaries and having polycystic ovary syndrome. I have one polycystic ovary but do not have pcos. Very confusing. But as far as I have been told that alone would not affect my ability to conceive.

MapleAndCats · 27/03/2019 14:58

Sorry @liveinhope100 should be tagged not Dinosauraddict

MapleAndCats · 27/03/2019 14:57

@Dinosauraddict did you have your tubes checked with an HSG? Usually they only prescribe an ovulatory medication if they know the tubes are clear. Have you had your TSH tested? Many times hypothyroid can cause your ovaries to present as polycystic.

@explorers10 there is such a thing as „thin PCOS“ but it’s less common as it is a metabolic disorder. The only way to know for sure is with a day 3 hormone panel and an ultrasound. Diagnosis usually is only after both are confirmed and your FSH is at least 3 times of your LH. The normal treatment is metformin and weight loss if your BMI is over 23.

Explorers10 · 27/03/2019 14:37

@dinosauraddict

Can you explain a bit more about pcos. Have you been prescribed something to help conceive? My gp said I have high testerone and androgens so has referred me to a scan to check if I have pcos. She was really confused as she said I’m not overweight and have no facial hair. Im really devastated as I conceived my 1st on 1st cycle with no issues and to be told this I’m still in shock

Dinosauraddict · 27/03/2019 14:30

I would guess the next step would be blood tests to see if you’re ovulating. Personally, the PCOS means that I don’t, but many people with polycystic ovaries do, or at least most cycles.

liveinhope100 · 27/03/2019 11:13

Thanks for all the advice. I got my blood tests back and apparently everything was 'normal' which I was really surprised about. So it seems i have ovaries that are poly cystic but don't have PCOS?! If this is the case I wonder if my doctor will still prescribe me clomid.

OP posts:
Dinosauraddict · 27/03/2019 07:07

I have actual PCOS (not just polycystic ovaries) and in the last few cycles the length has varied between 20 days and 53 days. I also get a lot of excess hair (neck/chest/face etc) among other things. It’s uncommon to have PCOS without other (quite telling) symptoms - and the blood tests should tell you one way or the other.

MapleAndCats · 26/03/2019 17:51

My fertility specialist said 25% of women have ovaries that present as polcycystic and it’s not an issue. You now must have both hormonal panels where the FSH is at least 3 times that of the LH AND ovaries that present on ultrasound as polycystic. If you are not struggling with annovulation and/or amenorrhea/extremely irregular cycles over 45 days, they are hesitant to diagnose.