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TTC after pregnancy loss - thread 27 - BFPs are coming!

987 replies

Yukka · 28/11/2018 19:31

New Thread as we're at 988 messages on thread 26. we'll do a quick roll call:
Age 39
TTC x1
MC x 3 = Sept + Dec 2017 + May 2018
Currently pregnant again 5w4ds
Diagnosed with APS/Hughes Syndrome. On Asprin since October and start Heparin tomorrow. First scan Monday.

xx

OP posts:
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36
fnej01 · 03/12/2018 18:12

@Yukka thanks for reply. That's good they told you what they saw on the day. I think I ovulated today so will be interested to see what they see.

@KnitKitty the list of tests sounds the same as what I have forms for. Some of mine need to be done between days 2-6 of cycle so am trying to predict that now. Tommy's is the research centre. Glad today went well. Not sure why it is so intimidating but feel like I have to explain to people why I want to be tested.

Fingers crossed they get us sorted soon x

Tiniestsky · 03/12/2018 18:01

Hey guys, bit of an update, i after 3 weeks of being in the dark have finally had a methotrexate injection to stop any cells duplicating, I only had a small something or other left but my hcg levels weren't dropping below 100.
I'll find out on Sunday whether it has worked, so fingers crossed.
I can't get pregnant again for 3 months, so gonna use the time to get my head in a better place.
Anyone here had any success after a similar experience?
I really don't know how I'm going to get to a good place where I'm not terrified it's going to happen again

Yukka · 03/12/2018 17:46

@knitkitty progesterone would only be on the cards if you think you have a short luteal phase ie the time between ovulation and period? This should usually be 14 days ish, if you were regularly 10 days or less they would probably test as the tiny egg might not have enough time to implant properly before AF starts. It can be treated with a well timed injection each month xx

Sorry. Queen of tests in the corner over here.

OP posts:
Yukka · 03/12/2018 17:42

@ Knitkitty glad it went well today. Those bloods are the same I had done they are faily standard checks. the first 3 are all about aut-immune conditions that could 'attack' an Embryo or, like in my case, give you tiny blood clots ( anti-cardiolipin antibodies (APS)) Lupus is very similar too. The others are all conditions that can also contribute to MC but they don't always know why, they just know there is a link for example between Thyroid issues and MC. I would recommend the book by Lesley Reagan (Miscarriage: what every woman needs to know) it has everything in there that you can think of, whats been trialled, proven, what is known but unproven etc)

@lilimum5 ok so he is going to do some blood tests - is he going to any of the ones Knitkitty mentioned ie refer to you hospital/consultant but won't refer you to private RMC is that what you mean? I don't understand his statement, as women who get pregnant but can't stay pregnant tends to lean towards a problem repeating itself rather than bad luck. Sorry I don't want to put you on a downer but he at least needs to send you to local hospital for proper bloods. Full tests need about 8-10 vials of blood xx

OP posts:
Lilimum5 · 03/12/2018 17:15

He wouldn't refer me as I don't have a problem getting pregnant just staying pregnant so wants to try these tests first.

But at least we are getting somewhere

KnitKitty · 03/12/2018 17:04

@Lilimum5 What was the reason for not referring you? I'm glad tests are being done at least.

@TinselBee You might MC naturally hun. If at all concerned or worried about anything ring your EPU. Hugs xxx

Thanks @fnej01. Is the research centre the Tommy's one?

So the appointment went well. No dismissiveness or anything, don't know why I got my knickers in a twist beforehand.

The doctor said it's possible my weird womb is causing the issues; although it's more normal for it to cause issues after 12 weeks.
He's sending me for an MRI of my womb so see how that is.
Also my partner and I both have to have checks for chromosomal abnormalities and I have blood test for the following too;
Lupus, Anti cardiolipin antibodies, thrombophilia investigation, prolactin, theyroid function tests and LH & FSH.
Need to Google what some of those are.

Only just realising that progesterone isn't being checked, which I would have thought was almost routine... Bit worried about that now.

One reassuring thing is that I was worried the surgical management of my first miscarriage could have had an affect on the lining of the womb and he said my periods wouldn't seem normal if that were the case, so that's good.

Yukka · 03/12/2018 17:03

@Lilimum5 why is GP saying no to testing, you've had 5 MC's in total? I don't think this is right surely? x

@fnej01 I had the same scan and bloods. The Scan does a good check of your ovaries etc check there is no PCOS or Endometriosis, check for any nodules or Fibroids in the uterus etc. He gave me the all clear from the scan on the day, but I didn't get anything from the hopsital until the bloods were in weeks later x

@tinselbee - its not nice, but even anything on sanity towels etc, stick it in a tupperware. I used to keep one by the loo as I tended to pass more when I went to the loo, or if I could feel something coming . . .its really not pleasant, but again will help them rule anything out xx

OP posts:
TinselBee · 03/12/2018 16:56

I really wish I thought to ask all this Lambaman81 I did just phone EPU, although not feeling too confident in what they said as she asked me if I was just having a period and not a miscarriage even though I opened with the scan on Friday confirming MMC! Anyway she told me to collect every thing I pass into a pot for the testing. How am I meant to store that!?

Sorry you didn't get referred Lilimum5 but glad at least more blood was taken from you. Hope you get some solutions soon x

Lilimum5 · 03/12/2018 16:30

Just got back from the doctors and it went OK. I asked to be referred but that's a no go but he did do some tests (took what remaining blood I have left) and is going to test for anything that might cause problems. I asked about aspirin and he says go for it. But has advised with all the trouble I've had to wait at least one month before trying again. He also proscribed iron due to my blood loss so that will be fun. Now I just have to wait and see xx

Lambaman81 · 03/12/2018 16:27

@TinselBee - this was one of my concerns also. I had a MMC and wasn't sure how to best manage the miscarriage. I queried with the EPAU staff member that if whilst I was waiting for the surgery (only two day wait for me) that I started the MC naturally, could I still go ahead with the surgery as I wanted to make sure nothing was retained. They said yes, but would depend on how much had passed. Every hospital is different though and have their own procedures.

fnej01 · 03/12/2018 16:10

@KnitKitty let me know how you get on.
I think the ultrasound is just to check the uterus and that it's not a weird shape and that's causing my miscarriages. I have obviously had lots of scans with the miscarriages but they said they like a good detailed look when you aren't pregnant.
Today I have a high vaginal swab at the gp (I know what fun 😬) which the hospital review just to eliminate infection. I then have LOTS of blood tests after my next period. They have told me the results take up to 10 weeks and they will only see me once they have all results. Hence my April timeline, managing my own expectation
I am having a similar range of tests at the research centre in Jan. I also want to look at the endometrial biopsy for research. Figuring in for a penny...
interested to hear how you get on. It seems lots of hospitals have different processes. X

TinselBee · 03/12/2018 16:08

Lambaman81 thank you, I am sorry you had to go through it too. I'll probbaly just be dropped off and picked up by my Dad, cant imagine he will wait there with me. DH will be looking after DS.

Btw, I've just started bleeding? 4 days until my surgery... Does this mean I am now going to have to wait it out naturally?

Lambaman81 · 03/12/2018 14:03

@TinselBee, so sorry you are going through this. I am just over three weeks post surgery. Like you, I was so very nervous as I was entering the realm of unknown. However, I came out out the other end thinking "that wasn't too bad". The worst of it was just waiting to go down to theatre as your slot may change due to other emergency cases. The medical staff are all very discreet. I even had some of the medical staff share their own experience of MMC. One piece of advice I would share is that if you have somebody with you (my husband was with me) they wait on the ward. The operation was only 20 minutes, and stupidly we thought I would be back up on the ward pretty quickly. I was actually gone for 2 hours. Thankfully the anaesthetist warned us of this, which put my husbands mind at rest. I hope it all goes well for you, make sure you don't do too much afterwards and take it easy x

KnitKitty · 03/12/2018 13:47

@Justincase87 I'm so sorry you're feeling this way hun. I'm keeping my fingers crossed for a little miracle for you. Huge hugs xxx

@TinselBee It's completely normal to feel nervous. I did too. But there's really nothing to be scared of and hopefully the staff will be as lovely with you as they were with me. It seems like they're making you wait quite a while. I had mine the same day I had my scan after second failed medical management... But then possibly they saw mine as 'urgent' since the medical management hadn't worked and I was probably a higher infection risk due to my cervix having been opened up a couple of times already that week. I hope the wait goes by quickly for you. Look after yourself and get lots of rest. xxx

@Beaglemum93 I hope everything sorts out quickly for you. Good idea to go to GP if things are still not back to normal yet next week. Stay strong. xx

@Lilimum5 Goodness it's exhausting, isn't it? I'm so sorry your body is taking so long to recover from this one. I really hope you're near the end of it all now and I'm really glad you're pushing for investigations. You need some answers now. Hugs! xxx

@fnej01 Good luck tomorrow. What's the ultrasound for exactly? I'm feeling like it might be a long road for me too, so just trying to enjoy the break and not think too far into the future at the moment; but I don't see trying again any time soon either. What other tests are they doing with you?

@Yukka I am so pleased that everything is looking how it should at the moment! What brilliant news! At least with the diagnosis you can somewhat feel like you're a step ahead of the game as the pregnancy progresses, so I really, really hope it runs as smoothly as possible for you! Strange no one has replied to your other thread, but you're welcome to stick around; we all know that pregnancy after loss is not an easy time.

Getting a lift to hospital for my appointment in about half an hour. Trying not to think about it too much as I'm feeling really nervous. I have a little folder of medical history, period dates, symptoms and questions etc (Could I be any more Monica off Friends? Grin) My OH calls it my Vagina Diary. Hahaha!

Yukka · 03/12/2018 13:05

@hayleyfx really sorry for you hun. The only blessing here is that its happening quickly and naturally and your body will hopefully recover quickly, probably quicker than your emotions but time does wonders xx

@Meghan07 and @Justincase87 sorry you are both going through this uncertainty too. I hope eitherway you know whats going on soon xx

@Knitkitty hope the acupuncture works for you too :)

I went for scan this morning, my dates are spot on, measuring 6w1d, which is a relief as last time I was a week behind and it didn't end well. Lots of new appointments now cos of APS - regular Blood Platelet counts etc. Next scan is 20 December. I've learnt about the 'Heparin Burn' - it seriously stings but, I can't moan about it just have to get on. Feeling ok. The Nurse said today that sadly I will probably feel only 'ok' for the rest of the pregnancy due to the risks of the condition, but so long as I can find ways to deal with it that's the main thing. Thanks for asking ater me.

Also I have ZERO replies to the Pregnant with APS thread I set up, and don't want to join the standard pregnancy board as it could be too overwhelming so will stick around here for a little longer xx

OP posts:
TinselBee · 03/12/2018 12:40

fnej01 good luck with the investigations, hope they actually go a lot quicker and provide answers with solutions.

Got my surgery appointment through, 7am this Friday. So nervous for it but glad to have a date for it, even if it seems ages away now. Just want this to be over now.

DayDreamer1707 · 03/12/2018 12:31

@Lilimum5 was that message meant for me?

fnej01 · 03/12/2018 11:38

@hayleyfx so sorry for you and all you have been through. I just wanted to echo @KnitKitty words. I was dreading taking a break, but have found it really healing. I hadn't realised but I had stopped looking forward to stuff, as was constantly worrying about being pregnant/miscarrying. I still have some very sad moments but do feel better for it.

@KnitKitty good luck with RMC today

I have the start of miscarriage investigations this week including an ultrasound tomorrow. Feels a long process and don't think we will be trying again until April but feels like milestones along the way.

Lilimum5 · 03/12/2018 10:07

@then I would say you were right last week. Go with that and count 12 to 14 days until your af. Maybe cover your bases anyway just in case Wink.

DayDreamer1707 · 03/12/2018 09:57

@Lilimum5 no they didn't fade within 10 mins just noticed them this morning to be a little lighter, where as the ones from last week haven't faded at all. I kinda want them to be negative so I don't have to start my TWW again ha. Last week when I got my positives I had what I thought was ovulation bleeding too and a slight pain to the right side. This time more just cramps. Hope you get some help today, it's so annoying when doctors don't listen x

@Beaglemum93 that's good then, unfortunately waiting around is hard but least it's happening for you now FX you get a negative soon and you can move forward x

Lilimum5 · 03/12/2018 09:51

As for me today ladies I'm off to the doctors to ask about referral, if I can't get that I'm asking for a full M. O. T and asking every question I can think of. He going to want to refer me by the end of the appointment just so he doesn't have to deal with me again. I've had enough of this "it's just bad luck" crap I need answers now.

I'll let you know later how it went xx

Lilimum5 · 03/12/2018 09:48

@KnitKitty thanks for your reply yes I'm still bleeding it driving me mad to be honest. But I'll get there.....
@MeghanV07 thinking of you hun x
@Justincase87 thinking of you too hun x
@DayDreamer1707 I just looked at your tests and I think the two positive ones are +ve they fade as they dry out. As to the new ones did they fade with in the 10 mins anything after 10mins is unreliable hun. It's worth timing to test. I love my ic because I'll a poas freak but I refer clearblue as its yes or no there's no need to think about if it's +ve or - ve.
@Beaglemum93 I hope the fainter test is a sign your healing and your body is getting back to normal x

Lilimum5 · 03/12/2018 09:29

@OctoberGirl91 yes hun you just type bbt thermometer into amazon or ebay and there not expensive
@Holly5633 welcome and I'm sorry for your losses hun. This is a lovely supportive group of ladies who have all gone through miscarriage and we get. Join the huddle x
@hayleyfx I'm sorry hun if only words could heal xx

Beaglemum93 · 03/12/2018 09:11

@DayDreamer1707 I don't think I'll bother ringing the epu because I did another test this morning and the line was slightly fainter and I doubt they'd do any tests anyway. I have another appointment with my GP next week so if it's still positive then hopefully he'll organise some tests.

DayDreamer1707 · 03/12/2018 08:47

@hayleyfx I am so sorry to hear this. How are you feeling today?

@Beaglemum93 Are you still going to call the EPU?

@Lilimum5 I was thinking of using the Clear Blue once I had more of an idea what length my cycle is.

Got a negative on my OPK yesterday. I'm not sure the others where actually positive as to me they seem to of faded and I read that a positive will never fade. What do you think? You can definitely see the positives from last week but I'm not so sure on the new ones now?

TTC after pregnancy loss - thread 27 - BFPs are coming!