Immune/NK issues - aka Pred Thread no. 22!

Hi Ladies I need to ask for some advice.
Under Dr S protocol when pregnant he wants to scan at 6-7 weeks and at 8weeks (with 2nd intralipids at 8 weeks).

Cost of 6-7 weeks scan £420
Cost of 8 week scan plus intras £625

I am wondering whether anyone has skipped the first scan with Dr S and just gone to the EPU to determine whether there is actually a HB? My thoughts are that its a very expensive scan if the fetus is not viable and has no HB? Not sure what others think or did. I have no idea why they put the first scans so close together.

Thanks in advance for any thoughts on this x

Gosh @HappyApple05, when was this updated? I never knew. I wasn’t at the hospital yesterday, but so often peek about the waiting room seeing if I can catch anyone’s eye! I wonder if we live close. Do you have to travel far to get to Epsom?
(Aware this sounds like a strange game of guess who!)

Wishing you all the luck xx

@HappyApple05 thanks for sharing! That’s good to hear. Dr S advises to take Cyclogest from ovulation too - belts and braces! Love and hugs x

@megan234 what news lovely? Xx

Awww @HappyApple05 you are the sweetest thang! [big grin] Hope all goes well at the RMC appointment. Best of luck for your baby dancing this month. I have everything crossed for you. I feel something in my bones .

@user1470147116 thank you so much for finding us and posting, it has come at a really good time for us all in one way or another. We are all in the midst of our journey's! Would you mind me asking what on earth is the clotting APS? I had some blood clotting profiles done but it only came back with MTHFR heterozygous (the mutation that 40% of the population have). Your diagnosis on paper looks similar to mine above (Levothyrozine, blood thinners, baby aspirin etc).
What dose of Pred were you on and from when until how long?
Also - any words of wisdom from a gal who has been there and got the t-shirt? Being pregnant after so many loses is so nerve-wracking, any pearls you have may help up gain strength .

@Nixwix how are you doing?
@Widdendream77 sending love and a big hug. You are so unbelievably brave. Massive high five to that!!
@chickjen lovely to hear from you chick. Best of luck with the house move and don't worry about the weird ovulation. Every miscarriage alters our hormonal make up and our cycles adjust. Mine actually increased in length and you know some months its totally normal not to ovulate. I had a flashy face once for 6 days which made no sense lol! I never got a static in Dec! But fell preggo in Jan.
@Smrahc sending you lots of sticky vibes for your little bubbin!! We can do it!!!
Sorry if I missed anyone out, I am just catching up but thinking of you ALL.

From my side, I am just hanging around for me first scan at 7 weeks. Bit of a rollercoaster taking the feelings one day at a time. I can swing from hugely positive 'this is it' kinda feeling to 'OMG I can't even tell if i am freaking pregnant right now' and 'what if it was a dud egg/sperm combo'. My losses have been from 6-8 weeks so no where near outta the woods right now. I'm doing ok on the Pred so far. Bit of bloating here and there, and waves of tiredness in the afternoon along with some crazy hunger. No insomnia anymore, that's naffed off now and good riddance to it. I can't complain as I certainly am feeling a bit more limber in the gym thanks to the 'roids hehe!

Love and hugs to all x

I had 3 early chemical miscarriages all at about 5 weeks

Tests at Guys Hospital London:

-Thyroid was 3.64 so borderline hypothyroid, thyroid should be 1-2 to conceive
So 50mg levothyroxine daily

-Clotting APS
Apparently 25% of early miscarriages are caused by APS!
Doctors won’t test for it until you push
IgM anticardiolipin antibodies 16
Ideal IgM anticardiolipin antibodies should be 1-10 MPL U/ml
So daily low dose aspirin 75mg while trying TTC
(Heparin as soon as positive pregnancy test)

For the fourth pregnancy I asked the hospital for low dose prednisolone and the pregnancy stuck and now have my 8 month old napping in next room.

I also took supplements:

Pregnacare Conception
Wild Salmon Fish oils Solgar
Ubiquinol Solgar

Good luck!

Hi everyone, just checking in before I'm internetless for the weekend! Lots of (now) positive stories this week, fingers crossed for all xxx

Sorry to hear your news @Widdendream77, you sound incredibly resilient, I too found the early ones easier to deal with mentally, but it is a sad situation that we all have been there to know that.

As for me, I am in limbo, not ttc at the moment as waiting for the test results, but it is now day 20 of my cycle and no sign of ovulation, my cycles are only 26 days normally so no idea what is going on. Hopefully some hormones resetting themselves after the mc at Xmas. So roll on mid Feb when I get the test results and then move house the next day, could be a life changing couple of days

Happy weekend to all!!

Thank you sunshine! How are you? We must be around the same stage. I do feel more confident feeling sick, but at the same time I know how cruel this can be, so constantly on tenterhooks. I cannot look to the future and feel like I’m constantly telling myself to prepare for another broken heart. It’s such a strange feeling. My nausea has only just started, so I was takenaback when it hit. I was like you, strolling around like superwoman. The pred even seemed to help my sore shoulder. I literally can move about like a 20 year old!

Hey @Nixwix lovely to hear from you chick and glad to hear your doing ok 😃 I’m ok too. No real pregnancy symptoms yet, I’m only 5 weeks, just needing to pee a hell of a lot and the Pred makes me feel like superwoman 🦹🏼‍♀️😂 I have my 7 weeks scan mid Feb too. Like you I would love a bit of nausea - for reassurance purposes but the nurses did say that many women won’t get the nausea due to the Pred and I’m used to having sore boobs too but haven’t got that yet. But maybe it’s too early. Keeping everything crossed 🤞 X

@Smrahc48 pleased to hear that the scare turned out to be a nice surprise. All the best!! You mentioned nausea - are you on pred? If so, I heard that masks symptoms sometimes.. I'd be happy to get some nausea tbh just for that reassurance!

@Megan234 wow so pleased to hear that things are looking up! Stay positive, all the best!!

Thank you for the positivity! It's much needed. @Sunshineblonde1. How are you getting on?

Hope everyone else is going strong and getting along well with their protocol/journey. Thinking of everyone @DaniMERL @HappyApple05 @Widdendream77 @Chickjen @JoeyWally @PositivePeach

@LKM1 how's everything going? I hope you are well!

As for me, it's a waiting period until mid feb for the 6 week scan. I had my intralipids yesterday. Just trying to keep calm, have faith and not assume the worst...also bloating and heartburns are slightly better as I changed to eating little but few times a day.

Have a great day everyone!

@Smrahc48 we must have been typing at the same time as I have only just seen your message!! Huge congrats Hunni, everything crossed for you 🤞 keep positive, it all sounds like it’s going in the right direction. These early tests and scans can cause such worry and anguish as often it’s to soon to see anything. It’s good to see that despite that your little bean was growing and now there’s a heart beat, that’s such good news ❣️ X

Hello lovelies @Widdendream77, @DaniMERL, @HappyApple05 @NixWix just checking in to send positive vibes, baby dust, strength and inner peace to all. So sorry to hear about the chemicals - for every loss it just brings us closer and closer to the successfull sticky healthy bean. Unfortunately as we well know the early chemicals just aren't viable and the best thing is to put that aside, now you can get back in the saddle ASAP. It is all about the sperm-egg combo, we have to remember that cold, hard scientific fact when it comes to the early losses. I KNOW it will happen one way or another for us all. I have tremendous faith.

@Megan234 I am currently eating cake too . All the best for your blood test tomozy.

Sending love to all you superwomen x

Hi everyone. I have missed a lot of updates. So sorry. I hope everyone is doing “okay”.

I had a bit of a scare last week and ended up at the epu. We were told they couldn’t see anything on the scan and to come back this week. We went back today and much to our absolute surprise, we saw a teeny tiny heartbeat. We have to go back in three weeks if no bleeding or pain.

Very early days (5+6ish) and we saw a heartbeat with my last loss, so still not able to feel anything but pure terror, but trying to remain hopeful and pray that things move in the right direction.

I was trying to follow a low salt, no processed carb diet with the pred which worked well until a couple of days ago, but nausea is really taking hold and the only thing that seems to fix it is carbs. I’m taking it as a positive for now x

@DaniMERL thank you lovely, I know exactly how you feel and sometimes you need to take a break from all of this. Another month and then you will be back ttc again and I really hope it will happen quickly for you. I still don’t know what’s around the corner for me I can only hope for the best and pray for a healthy pregnancy. Xx

Hi ladies,
Am still following your ups and downs (thinking of you @Megan234) and will join in again soon. Will be back to the plan in March as currently waiting for Hydroxy to get in the system and then also starting the SuperO too.
xxxx

Wow that’s super to hear @Megan234, so glad for you, hope the intralipids go smoothly. Also that’s a really positive thought that we’ll be trying again in just 2/3 weeks.
@HappyApple05 thank you too for your kind words. I don’t think I’m strong really just relieved I can still get a bfp at my age 😆, super glad it’s early and not late and I kind of think it’s a numbers game now itkwim. But I shall be joining you in dtd like mad as soon as the opks and Ava say go! No I didnt take it from ov, but did try the cyclogest from ov for a couple of cycles which is what the Coventry protocol suggested, Good luck with baby dancing when you get the smiley 😉 xx

@HappyApple05 thank you, lets hope it will be a good news on Friday. Good luck to you this month🤞
X

Hi Ladies,
Thank you for your support and kind words, my hCG has gone up by 80% it’s still low but at least is going up. I thought it was all over yesterday, I even had a little cry 😢 I’m going for intralipids tomorrow and having another blood test on Friday. I even had a cake 🍰 to celebrate. I’ve been feelings some nausea today but I don’t mind at least I know things are progressing.
@WEiddendream77 I’m so sorry it hasn’t worked out for you. The good news is you can try again in a couple of weeks, best of luck lovely
Xx