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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

Immune/NK issues - aka Pred Thread no. 22!

990 replies

HappyApple05 · 22/10/2018 21:01

Helllooooo deariesFlowers

Opening this new thread looking for a light in the tunnel during my journey towards conception. Would be nice to walk along with people in the same journey. To cut my story short, 3 miscarriages and referred to Mr.S, diagnosed with high NK cells and lupus positive, already on levothyroxine. After 2 weeks of staring at the med pack, I have now finally started on Aspirin, Vit D and Pregnacare plus. Awaiting Ovulation to start on Pred protocol.

Miscarriage Sad history:

  1. July 2017 - In my 12 week scan, found foetus with no hb (6 weeks foetus size), devastated! Shock Had severe morning sickness, didn't predict anything negative. Took my son (6 years then) to the scan planning to break the surprise where he could see his sibling in scan.. We all broke down, opted d&c
  1. March 2018 - started bleeding in 6 weeks and miscarried naturally.
  1. July 2018 - spotted in 6 weeks, scan at EPU no pole, returned when 9 weeks along, still nothing, opted d&c

Bought the ovu predictor kit for the first time, counting days to use it. Any of you in the same position? Would be great to hear your stories and cheer each other up towards the destination. Previous threads were beautiful, so supportive but sadly the latest post was in Sep 2017. So most of them would have crossed the bridge. Decided to start on a fresh thread.. So here we are....

Looking forward to catching up... Take care you guys.... Plenty of baby dust to everyone

OP posts:
Sunshineblonde1 · 07/02/2019 13:32

Hey @HappyApple05 thanks for the positivity, you are a ray of light! I have been doing the visualisation too during meditation and accupuncture as I was also taught about the self fulfilling prophecy element and generally holding onto the mindset that everything is well until I have physical evidence of otherwise - but of course the niggly worm nerves still can penetrate through.

I have noticed I am more hungry but wasn't sure if it was the Pred or Pregnancy or both! I don't think we can escape the inevitable weight gain either way tee hee! Thankfully I don't have scales so live in blissful ignorance. Hey walking is a great start and space hopping sounds brilliant, I think anything you can incorporate with your son would be a winner - what activities does he like?

I do 3 x 25 minute runs a week,along with body balance and yoga classes but I have more free time without children. The well being side of yoga and body balance really 'saved me' during my last MMC and listening to Tony Robbins on netflix and podcasts. That guy is incredible.

HappyApple05 · 07/02/2019 12:57

Woohoo @Nixwix .. Fantastic news. You will find it in growing in the right direction in your next scan.. keep your head up and enjoy the journey my dear. Try to get frequent scans at the EPU for the next few weeks faking cramps and citing what Dr.S had mentioned until you settle down peacefully Smile

@Sunshineblonde1, not at all hun. You'll return home happily from the scan to post us the good news Smile.. visualize the magical moment. My yoga teacher has told me once to visualize what I wanted, not followed it so far. Thinking of including it in my morning regime now..

Love
HappyApple

OP posts:
HappyApple05 · 07/02/2019 12:45

Hi Lovelies,

I noticed I have started to gain weight, gosh not even preggers yet. Would burst like a balloon one day, pop Wink. What light exercise would you suggest?

Since I stopped going to the gym after the delivery of my first LO, due to childcare issues / timings etc, I found jump roping quite helpful. But I wouldn't go with that while trying to conceive. Any ideas?

I have started to walk the past couple of days - 20 mins and that's it really. I also love bouncing on the space hopper with my son (adult size) - irresistible fun. I don't think any such vigorous bouncing activity is gonna help us in this scenario.

Love
HappyApple

OP posts:
Sunshineblonde1 · 07/02/2019 12:11

Hey @Nixwix that’s great news. And fingers crossed the little bean keeps growing in the right direction 🤞🤞 to see the little embryo must have been reassuring! How many weeks/days are you? My scan at EPU I will be 6 weeks 5 days along, hoping it’s not too early to see something 😬 x

Nixwix · 07/02/2019 12:07

Hi everyone,

Just had a scan as I was getting very anxious and scared of another ectopic. Dr spotted the sac and yolk so there's a growing embryo there. But it's a bit too much to the left, there's a good margin but could grow into the opening of my left tube (my left tube was removed, just a little bit of the opening is there). New thing to worry about! Ugh. Dr thinks it might all be fine but I still have to be careful and make sure I go in for regular scans and arrange my appointment with EPU in case it needs to be managed.

Well done @Sunshineblonde1 on getting that EPU appointment! Very helpful to have that.

Thanks @Chickjen and @HappyApple05 , trying my best to keep calm! How are you guys getting on, those pessary stories were funny Grin I hope it's easier now!

HappyApple05 · 06/02/2019 21:44

Hi @Sunshineblonde1 and @Chickjen, tried the rear gate ... Ha ha.. Worked pretty well.. Bending helped to be honest, no mess so far. Not as bad as I thought it 'd be..

And good news re scan @Sunshineblonde1. Glad it worked for you, be prepared for the step up from EPU following the scan Smile.

Dont worry @Chickjen, you are not alone whatever the results are, and they will have an easy fix. It won't be as bad hun.

Love from
HappyApple

OP posts:
Sunshineblonde1 · 06/02/2019 18:11

@chickjen, whatever it is, you won’t be alone with the diagnosis. And better to know so that you can take action and get on the right path to bringing your baby home 😃

P.s. the results appointment can be quite overwhelming, at least I found it to be as I hadn’t prepared myself for the news, silly me! I just wanted to run into the nearest bar and knock back a large glass of vino after as I was in a state of shock. Do note that the drugs he prescribes that are available on the NHS you can get through your Dr rather than buying from his clinic at a premium. Don’t feel pushed into getting anything there and then. Digest the info first x

Chickjen · 06/02/2019 17:59

Thanks @Sunshineblonde1 good news about the scan, and you get to find out earlier Grin

I have mixed feelings about the results, I am kinda hoping they find something to 'fix' but nothing too gruesome or expensive!

Sunshineblonde1 · 06/02/2019 17:34

Good news the EPU have agreed to scan me next week before seeing Dr S x

Sunshineblonde1 · 06/02/2019 17:27

@Chickjen @HappyApple05 you are really making me chuckle with the pessary horror stories! Cripes - it sounds pretty messy up the front!!

@Chickjen aww sounds like we might just miss each other by a whisker as I know Dr S likes to march people in and out his office like clockwork Wink. But will be thinking of you next week and do keep us posted on the results! Here to support you!

x

Chickjen · 06/02/2019 16:20

@Nixwix keep strong, the 12th is coming, just need to make it to the weekend and its practically here Flowers

Chickjen · 06/02/2019 16:00

@HappyApple05 I was squeamish too about the back but hated the mess at the front. It's not as bad as you expect, however I still found it a bit weird so alternated between the 2, like front before bed when you are lying down anyway, kind of spreading the horror!

@Sunshineblonde1 my appt is 9.30, I will be rushing home to pack afterwards, but you never know, we might pass in the corridor Smile

Sunshineblonde1 · 06/02/2019 13:59

Hehe good luck @HappyApple05 if anything it’s worth a try to see how you get on with it 😄

Re: the wind, mine comes and goes, but the bulkier my meals the worse it is. When I do smaller and often I don’t get any 🧐 x

HappyApple05 · 06/02/2019 13:40

@Sunshineblonde1, You made me take off my embarrassment blanky. I don't feel guilty for posting it anymore. Thanks hun.. Very sweet of you... I will try and let you know how I get on. Thanks for your tips :-)
Back door is the way forward then Grin

Re wind, pred itself is making me pass wind a lot.. Now adding Cyclogest to it, I don't know how my family is gonna survive the storm .. ha ha... Can't stop laughing.

Lots of love,hugs, baby dust and sticky vibes
HappyApple

OP posts:
Sunshineblonde1 · 06/02/2019 13:29

P.S. I tend to bend forward a little when inserting as it feels most comfortable that way x

Sunshineblonde1 · 06/02/2019 13:26

Hey @HappyApple05 you should totally post things like that, that’s what we are here for, warts and all tee hee! Well personally I don’t find sticking the little blighters up the back door uncomfortable, and there is zero mess so I feel like I am winning at something at least. They are fairly soft aren’t they so tend to get swallowed up, up there. I had a day or two of wind at first but that passed. Maybe give it a try tonight and see how you get on. Also at BFP putting them up the front door can cause irritation and in some cases a bit of spotting, hence I opted for back door from the start. Hope that helps! X

HappyApple05 · 06/02/2019 13:03

Hello @Sunshineblonde1, good going with the appt call to your EPU. Thank you for the idea re pessaries. Might sound very silly but 'Would it hurt?' Please excuse me. Got used to the ins and outs through front door over the years. But it's a bit scary/uncomfortable thinking the other way round. Is it just me feeling this way? Shock

I'm posting this after a long thought process. Didn't wanna make you gals feel uncomfortable Hmm

OP posts:
Sunshineblonde1 · 06/02/2019 10:49

Hey @HappyApple05 how about inserting them up the back door? No mess then Wink. Thank you I think that makes most sense about going to EPU, have just left a message with them so lets see whether they will see me! All the best for your next two weeks, I know it will happen for you soon, and I can't wait for that time for you and to hear that good news!! Massive positive vibes.

Hey @NixWix I am with you hunni, it's exactly how I feel too. But the twinges sound on track! Its everything expanding and making room down there - totally normal to feel those. We can do this!!! Sorry to hear of your DH unfavourable news, life has a funny way of throwing us some curve balls but it's always opportunities to grow and move to a better place. I hope the weekend brings better feelings for you both and some nice time together. With regards to Dr S and IVF scans - that does seem to be a bit excessive to have to do both doesn't it. Maybe you could do week 8 and 12 with Dr S to satisfy him. You are in very good hands either way.

Much love x

HappyApple05 · 06/02/2019 10:27

Hi @sunshineblonde1,
Hope the scan at EPU plan works well for you. You could use the combo of previous losses + (fake cramping + spotting) I'm sure it will work and they won't have any gap to say 'No'. With my hospital (St.Helier), the norm is to ring them, get an appointment, usually it's the following day morning as they dont work after 13:30 hrs.
You will be in peace of mind if you could get the appt sorted the previous day. Allow plenty of time though as they usually run late.

And thank you for the wishes, BDed only once this month, I think 3 days before O. Didn't manage to do anymore due to circumstances. Keeping positive for the next 2 weeks and let's see.

Hi @Nixwix, Everything will be fine dear, it's easier said I know especially after being through the rough patch. I hope you are following the protocol religiously. Don't get everything mixed up in your head my dear. Your DH will get things sorted shortly. Following your scan appointment, everything will become positive and work out as per your wish hun.

@DaniMERL - lovely pearls of wisdom :-)

@Chickjen - You are right! Got to admit, I hate those pessaries though. It's leaving a mess, gross. Need to shop liners.

Lots of love
HappyApple

OP posts:
Nixwix · 05/02/2019 23:29

Thank you @user1470147116 that was very useful!

As for me I am fine. But have been spending the last few days thinking what if this is not a viable pregnancy. I had twinges that shifted from right to left and then subsided. I wasn't that bothered but now hey are scaring me a little with the 'what ifs' and thinking of all the money spent and possible unfavourable outcome. I am trying my best to keep my mind occupied and be positive till 12th for my 6 week scan. My DH also got a bit of unfavourable news at work and he is a little down cause of that but showing a strong front and so am I.

Thinking of everyone here! Quite good that they are on top of matters with giving instructions @HappyApple05 Good luck to you and also @Chickjen ! Hope all's well for you too @Smrahc48

@Sunshineblonde1 I am on a similar boat actually and your question would have been mine too. It's all so costly and my ivf clinic offers the 8 week, 10 week and 12 week scan as part of the whole program so I am should take advantage of that, also since they know my history and details. Dr S wants me to go with him from week 8 onwards but it's double expenses for me... so trying to figure out what to do. Also Epsom is good 45 mins away for me.

Sunshineblonde1 · 05/02/2019 19:20

hey @Chickjen! Last time they said that they would see me early at the EPU because of the MMC so I think I will give them a ring tomorrow and see what they say if I ask for a walk in scan. When I was there last there were women walking in off the street asking for scans so I hope I can get one. If not I can get a private scan for £60 at a local centre if all else fails. I'd be happy then to pay the extra to see Dr S if they can reveal a HB at least :) You are right hunni my appointment is 10:45 at Epsom on V day - maybe we will cross paths!? Best of luck for your test results. Either way it will shed light on things and you can move forward!! x

Chickjen · 05/02/2019 13:26

Wow @HappyApple05 interesting news! Thanks for sharing. I guess it makes sense if I'm right in thinking progesterone thickens the lining for a good implantation, makes sense to thicken it well before the egg reaches.

@Sunshineblonde1 how accommodating are your local EPU? Would you have to lie about bleeding/pain to get seen? Mine is pretty good that after 3 mc's you can refer yourself at 6 weeks just for reassurance. If you can go to the EPU first and get good news maybe it will make the 420 easier to swallow if Dr S still insists on it. And if bad news (and God I hope it isn't) then cancel Dr S and save the money for next time.
Do I remember your scan is the 14th, that's the day of my appt, maybe we will bump into each other!

Sunshineblonde1 · 05/02/2019 13:26

@DaniMERL thank you, that is good to know. I think I may make myself known at the EPU next week and have a scan before the one due at his clinic as I see no point in shelling out £420 if this little one is not viable. x

DaniMERL · 05/02/2019 13:23

Sorry for the typos
That should read that the NHS scan was scheduled for “the day before”
And
That the clinic WEREN’T trying to fleece me!

DaniMERL · 05/02/2019 13:19

@sunshineblonde1 I can maybe help with this.
I didn’t intentionally skip my first scan with Mr S (6.5 weeks) but I did also have a scan scheduled for the at before at local hospital because I’m still under the care of the fertility clinic there.
I believe from others that’s if you ask not to have the scan with Mr S he tells you that they are not optional and his treatment is not “pick and mix”.

However, when I had the bad news at my scan i didn’t see any point in going the next day. When I called and spoke to the nurses I thought they may make me go so they could check but they agreed with me. I felt reassured by this - that they were trying to fleece me with an unnecessary scan.
When i next went to see Mr s I thought he may question why I had had the NHS scan but he didn’t.