Help protect children from gaming harms.

Take our survey

Please or to access all these features

Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

Immune/NK issues - aka Pred Thread no. 22!

990 replies

HappyApple05 · 22/10/2018 21:01

Helllooooo deariesFlowers

Opening this new thread looking for a light in the tunnel during my journey towards conception. Would be nice to walk along with people in the same journey. To cut my story short, 3 miscarriages and referred to Mr.S, diagnosed with high NK cells and lupus positive, already on levothyroxine. After 2 weeks of staring at the med pack, I have now finally started on Aspirin, Vit D and Pregnacare plus. Awaiting Ovulation to start on Pred protocol.

Miscarriage Sad history:

  1. July 2017 - In my 12 week scan, found foetus with no hb (6 weeks foetus size), devastated! Shock Had severe morning sickness, didn't predict anything negative. Took my son (6 years then) to the scan planning to break the surprise where he could see his sibling in scan.. We all broke down, opted d&c
  1. March 2018 - started bleeding in 6 weeks and miscarried naturally.
  1. July 2018 - spotted in 6 weeks, scan at EPU no pole, returned when 9 weeks along, still nothing, opted d&c

Bought the ovu predictor kit for the first time, counting days to use it. Any of you in the same position? Would be great to hear your stories and cheer each other up towards the destination. Previous threads were beautiful, so supportive but sadly the latest post was in Sep 2017. So most of them would have crossed the bridge. Decided to start on a fresh thread.. So here we are....

Looking forward to catching up... Take care you guys.... Plenty of baby dust to everyone

OP posts:
ginandtonicformeplease · 10/05/2019 10:15

@KittyKatSmile I'm feeling a bit better than the last couple of weeks thanks. I've got my first fertility reflexology appointment next week, which will be interesting. I've already lost a few pounds after starting a diet and getting back into yoga, so hopefully will manage to keep it up.

DH discovered that one of his colleagues has successfully been through the IVF process and he's started talking to him about it - I'm really happy he's got someone to talk to about it all, who's been through it. I think men just feel helpless in this whole process - they do their one job and then are pretty much bystanders.

KittyKatSmile · 09/05/2019 21:56

Yep, have got the protein powder, had beetroot for dinner with my chicken and eggs and about to have some pomegranate juice before bed Smile. All so boring. Hopefully all so worth it.

How are you feeling now @ginandtonicformeplease?

ginandtonicformeplease · 09/05/2019 21:40

@Chilliandlime Congratulations! That's fantastic news.

@KittyKatSmile A fertility nutritionist also recommended pomegranate juice to me before IVF - apparently it's been known for millennia that pomegranates have properties that help with fertility, and juice is the easiest way to get enough. She also said plenty of tomatoes, beetroots, peppers - bright food basically. I ended up buying protein powder and making shakes to get enough protein in me to help egg quality.

KittyKatSmile · 09/05/2019 18:54

@DaniMERL, this is great news. Try to enjoy it but of course we all know how hard that really is xx

@chickjen, bless you! I have no idea about the holiday. Not sure I'll know right until it happens as it's over the putting back the embryo window. My mum's going anyway so I'll just join her when I can

Off to eat sixteen eggs and some chicken for my dinner Grin

DaniMERL · 09/05/2019 16:58

@chickjen happy and quite optimistic but then have to remind myself of how far we have to go.
Feeling terribly nauseous and exhausted though which is tolerable if it’s all worth it in the end. I suffer pretty bad with it.

Chickjen · 09/05/2019 16:37

@KittyKatSmile how exciting 🍀 and great you can crack on, waiting is the worst! But the million dollar question we are all desperate to know... do you get to keep your holiday with your mum? ❤️

@DaniMERL that's fantastic news! 😄 How are you feeling now? ❤️

DaniMERL · 09/05/2019 15:43

Quick update! Scan at EPU went well today. All looking about right for approx 7 weeks. Complete miracle for me. Love to you all x

KittyKatSmile · 09/05/2019 14:51

Hello darlings!

We've got ourselves another BFP in here; congrats!

I've just got the protocol for my IVF. So much to do/remember. It seems to have taken bloody ages to get here but at the same time it's starting so soon (it's not. First drugs are next week). I'm sacking off the expensive pre conception vitamins now that I've finished the bottle. I blame them for giving me the worst stomach ever. Whereas Pregnacare sorted my existing stomach issues out nicely :-)

Love and hugs to you all x

fnej01 · 09/05/2019 08:26

Thanks for replies @DaniMERL @Chickjen @Chilliandlime. I know with my sensible head on side effects will likely be minimal. It's just I've always been someone who is fit and well so have avoided meds all my life and it's just another factor to worry about.
Not sure what I'd do without Mumsnet support. Hope you feel better soon @Nixwix

Nixwix · 09/05/2019 01:10

@Chickjen I think that could be it! I have not been eating enough simply cause I have decreased appetite unlike first trimester when I could anything. Thank you! How are you? I am going to respond to other threads soon, as soon as I feel a little better... xxxx

Chickjen · 08/05/2019 19:55

@NixWix my friend had morning sickness all the way through, especially if she didn't eat a big breakfast, do you need to eat more now the baby is getting bigger and taking more from you? 🤔

DaniMERL · 08/05/2019 16:58

@fnej01
I have been on the pred protocol since Aug/sept?
It took 5 months to initially conceive but the baby did not develop (nothing to see at 6 wk scan but no miscarriage as such). I changed to Pred and Hydroxy and had a break in Feb whilst Hydroxy was taking effect. A v v early chemical in March and am now, fingers crossed, nearly 7 wks. So I’ve been on the pred for a long time except for the break in Feb and I really don’t think I have any side effects.
I have put on a bit of weight and slightly puffy face but I also haven’t been eating very carefully. I sleep okay but sometimes find it hard to get back to sleep when I wake in the night. In Jan I did start to notice a slight moustache developing but not noticed it as much this time. I do have anxiety but that’s probably just a situational thing.

Nixwix · 08/05/2019 16:54

Guys, sorry I am going to but in and ask a quick question. I am 18.5 weeks but since last week I have been having morning sickness - much worse than my week 6,7 ones. Any idea if this is normal? Xxxxxx

Chickjen · 08/05/2019 16:02

@fnej01 the way I see it is pregnancy is going to wreak havoc on our bodies anyway, and the med doses are small and short term, so is it worth the risk of NOT taking them ⚖❤️

Chilliandlime · 07/05/2019 20:12

Thanks so much, the fear is starting to set in a bit now. Big worry is if this goes wrong again the scarring could come back and I'll be back to square one, with more costly surgery. Deep breaths!
@fnej01 only taken the pred for 11 days so far so not much experience compared to others but haven't noticed any major side effects so far. Had insomnia the last two nights but also had this in week 3 of 2nd pregnancy so not sure it's linked. I do feel like I've been burning up in the night and having faint cramps for the last few days though which I'd thought was from the cyclogest, but maybe very early pregnancy too. Interested to hear how others have found it especially further down the line xx

fnej01 · 07/05/2019 19:54

Congratulations @Chilliandlime and@DaniMERL.

I've been following from afar and glad to see lots of positive news.

I am excited to get back trying mid May, with my new treatment plan. I am however becoming increasingly nervous about taking the pred and the side effects/risks. I am sure you have all been through this? Little state of self date and do I really need it?

X

Chickjen · 07/05/2019 18:50

@chilliandlime awesome news! 😄 And must be such a good sign the ashermans is not holding you back. Now for the pred to do its job and ..bingo! 🍀

Sunshineblonde1 · 07/05/2019 17:43

Oh no I read it wrong! It's @chilliandlime with the BFP! I got totally confused! Huge congrats hun! xx

Sunshineblonde1 · 07/05/2019 17:39

Omg @kittykatsmile so this wasn’t IVF was it, this is with your OH? Amazing news I’m so happy for you 😽😽😽 xx

HappyApple05 · 07/05/2019 17:17

@Chilliandlime awesome news hun... Take care.. All is well... Stay positive😊

OP posts:
DaniMERL · 07/05/2019 15:00

@chilliandlime amazing news!

Chilliandlime · 07/05/2019 14:36

@KittyKatSmile that's good your friend has found her way to the Facebook group as well - yes we've probably seen posts from each other! Can understand what you mean about the anonymity. Keeping everything crossed for you for your treatment, hope it doesn't get too delayed and you don't have to cancel the holiday as that sounds like a great idea.
@Chickjen we are so lucky to have you lovely ladies.

Today was 10dpo so I tested using a frer. I was really trying to prepare myself for it to be negative and deliberately didn't pack the pred and Cyclogest in my overnight bag for a work trip in advance, but it was positive, was in absolute shock. Had to get OH to verify the two lines, still feel I must have imagined it. Really hoping this is our 3rd time lucky after 2mcs and Ashermans but trying not to get too ahead of myself.

Lots of love to everyone xxx

HappyApple05 · 07/05/2019 12:26

Thanks a lot you sweet ladies. I shall follow @Sunshineblonde1. RMC nurse (under Dr.S) suggested I wean off at 13 weeks. But the Obs consultant suggested 12 weeks. So I was quite confused. I was worried taking it beyond 12 weeks might harm the baby.. So this was playing up in my head for a while now..

Thanks again you sweeties...

Xxx
HappyApple05

OP posts:
Sunshineblonde1 · 02/05/2019 22:32

Hey @HappyApple05 I may be able to help you here as I had the same issue. The Pred speeds up babies growth and development. I was measuring 6 days ahead and I went off of LMP rather than scan measurements. So I actually weaned off when I measured 13 weeks but was 12 weeks LMP hope that helps. X

KittyKatSmile · 02/05/2019 18:08

@HappyApple05, I don't really know the answer but who prescribed it for you? Mr S? They should be able to tell you (sorry if that's a stupid point).

@Sunshineblonde1. You are just so wise. I got quite choked up reading that...

@ginandtonicformeplease I'm so sorry to hear you're feeling so glum today. Be kind to yourself. The weight gain is a big pile of wank. I did 5:2 when I stopped taking the bastard steroids and it worked really well for me in the month before TTC again (as I wouldn't really want to be doing it when pregnant). 9 frozen embryos sounds really positive. (I'm about to have IVF and my fear is that they don't get anything at all from my decrepit old ovaries Smile.) Keep your chin up. As @chickjen says, you have us now and we are always here for you.

Love and baby dust to all x