TTC after recurrent miscarriage - thread 3

Oh FuckMyUterus I can’t believe it. We’ve been following each other around these boards for years and I can’t believe this is happening to you.

When did you find out?

We’re all here for you, please rant and rave and share anything you want my love. I don’t know what to say but I’m listening anytime x

FMU I’m so sorry you are going through all this, and hope you are surrounded by supportive people right now. Have you been in touch with ARC?

That's really shit they're making you wait so long. Such a horrible and worrying time for you all 💔

Yes, I have a 7yr old son already, they'd picked up small issues at a previous scan but nothing major.

No, they need to wait 2 weeks apparently which is really really shit.

Oh god how awful. So sorry to hear you're going through this. Can they not scan you sooner than 2 weeks?

Oh hun I am so so sorry you are going through this and can't even imagine how you are feeling. Did they pick any of this up at previous scans?
I hope you have a supportive network around you. Is this your first or do you have any other little ones?xx

Thank you.
Baby (don't know if it's a boy or a girl yet) has barely a trickle of fluid around them, which is causing severe growth restriction, and compression of the head/brain.
Baby also has possibly no bladder, possibly an incomplete stomach, and definitely no left kidney. Right kidney consists of just cysts and therefore has no function. On top of this, they suspect downs syndrome too. I have a rescan in 2 weeks to confirm all this (to cover the hospitals arse) and then I have to have a termination. I'm just so angry, upset and confused all in one, and it's leaving me emotionally exhausted.

Hello @fuckmyuterus and welcome. Please chat away. I hope we can help support you xx

Oh @fuckmyuterus I'm so sorry!!
I hope we can give you as much support as possible.
What is wrong with baby? Tell us as much or as little as you want xx

Ladies can I join in please? I am currently 17 weeks pregnant, however baby has lots and lots of issues, so I won't be pregnant for very much longer unfortunately and need a place to chat where my words won't upset anyone else :(

Thank you ladies for all of your kind words and reassurance. I had a lot of cramps yesterday following the 2 internal scans so kept expecting a bleed to start but so far nothing and cramps have gone. Will be on knicker check until the scan but I think that's normal anyway.
@bean hope you're okay and trying to keep your mind busy.
Oh no @MissPMA when have you arranged an appointment to see your GP? What do you think hubby will say in regards to a break if you come on next week?
That's really interesting @miami81. I tried to look at other scans and information only too. A lot of information said that you wouldn't see the yolk until 5 weeks so but unsure why she said 4-5 weeks...maybe to do with size of sac etc....we will see in 9 days.
Hi @lauraliverpool so sorry I didn't mean to ignore your posts yesterday. Welcome and I hope you find this group as useful as I do. Everyone is so supportive and totally gets the highs and lows we experience. Xx

Oh @bean and @munchies I’m sorry you’ve had a rough day, the state of limbo is so tough and I’m sure it will be a long wait but as everyone has said there are so many variables at such an early stage with who is doing the scan etc that it may be a case of it’s too early to tell, I will keep my fingers crossed for you.
I’ve had a tough couple of days, I had been really sure I wanted to try again straight away but now I’m starting to doubt that, period is due next week so will see if that comes And then I may suggest a bit of a break to hubby.
Plus I had bloods taken this week as I’ve been feeling exhausted, had assumed it was low iron as I had that after another miscarriage but i had a phone call today and apparently iron is fine but the dr wants to see me about the results for my neutrophils levels, so obviously off I went straight to google which came up with all sorts of scary stuff and have got myself into a right old tizz!

This is number 4 for us munchie. I’ve had 4 spontaneous pregnancies but this is the first ivf that has seemingly got a chance.

Oh fingers crossed @bean! Was it first try at ivf? We received information this week that we can have IVF in 5 months if this one doesn't stick.

Thanks lovelies. Yes dildo cam both times- different medicines but the second person definitely knew how to use the machine etc better than the first.
I probably should of asked for 7 days rather than their advice of 10 as that's the first day of my husband's new job so will feel extra bad on him if he has to go in after a bad scan.

I'm so sorry I've not replied to any other comments- my concentration has fully gone and I'm about to meet my boss to tell her I haven't been at work today and why. She wouldn't of noticed but want to give the heads up in case of a near future miscarriage.

Hope everyone has nearly finished work for bank holiday weekend xx

@Hopefulforourrainbow I'm going to sit on my hands and do another test like you suggested in a week or so, now I've got round to the idea of trying again it's on my mind alot. Xx

Thanks both. I’ve got a repeat next Thursday. Will try to remain positive. At least I haven’t bled again. Husband and I both thought we saw something flicker so perhaps they are being extra cautious.

Bean and Munchies I’m sorry you had a rough morning.

FWIW it is very scanner dependent. I had a scan at 6+2 this pregnancy, after bleeding. First radiographer could only see a sac and dated me at maybe 5 weeks, then second had a go and found a flickering heartbeat and put me at 5+6. That was using the same machine in the same clinic. It’s very inaccurate so early. Which is obviously no comfort to either of you when you are in limbo but it’s not always bad news if very early scans are inconclusive.

x post. Yeah, really bloody helpful... We've talked about the importance of words on here in the past and "normal" doesn't sound helpful or particularly support if you don't tick that box. Did they mean because of the potential difference in dates?

Oh loves, both of you xxxx

Was it an abdominal scan at RMC munch? How about the EPU? I know it's a faff but I always wish they'd go straight for dildo cam rather than insisting on abdominal first, seeing nothing, panicking, having to dash for a wee, whole rigmarole again and then there bloody IS something there after all. 10 days is going to feel like a decade, can you push to go back in a week? It'll still drag but you just need to know don't you. It is good it's not ectopic but not knowing what's going on when you thought you were 6 or 7 weeks must feel like crap. I'm so sorry.

bean what a fucking mare. Have you got a date for repeat scan? I'm so sorry. The added stress of IVF and everything you've been through must be just exhausting. Biggest hugs to you xxx

Oh munchies. It’s all a bag of shit right? I do think it’s scanner dependant. They said to me for “normal” pregnancies they don’t worry unless no hb at 7 weeks. However that doesn’t feel reassuring xx

@bean and @munchies sending lots of love and hugs. It's horrible being limbo. Hoping for a positive outcome for you both xxx

Oh @bean and @munchies, big hugs to you both! Limbo sucks!

Oh bean sorry cross post. What a day we've both had!! Huge hugs to you too xx

Such a horribly up and down morning and now I feel really down.
So we were late into our RMC appointment by an hour, the reg who I hadn't seen before did the scan and couldn't find anything at all.
Made me do a pregnancy test which was positive.
So they sent me to the early pregnancy unit who got me in an hour later. By this point I was worrying that it was ectopic etc and the options we will have.
Got scanned and they saw a clear sac and yolk. So they believe I should be 4 maybe 5 weeks.
From my last period I am 7 weeks but due to ovulating late etc I was thinking more 6 weeks. They've booked me in for another scan in 10 days.....I think I'll miscarry before then or I'll get to the scan and they'll be no change.
Hate being in limbo. I'm happy that it's not ectopic but so fed up that this is my 5th pregnancy and nothing is ever straight forward. Frustrated that RMC couldn't find anything yet the EPU easily did.
Just want to hibernate/sleep/cry for the next 10 days xx