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Conception

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TTC after stillbirth

480 replies

toots123 · 09/05/2018 16:00

Just wondering if anyone else is ttc after a stillbirth and wanted to join me on this very daunting journey? Smile

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6
Testar0ssa · 18/07/2018 12:37

Fingers crossed for you @Miami81 x

39Suzy · 18/07/2018 10:31

Hope you get the answers you need @miami81 😚I

Miami81 · 18/07/2018 10:28

Thanks @39Suzy so all our consultants in Scotland are saying not to operate. But the guy in London specialises in this, so I really want his opinion. The Scottish docs are worried about future ruptures (properly life threatening for me and a baby) due to the particular shape of my outside contour of my uterus. And also I think that they are a bit convinced that it has nothing to do with the two earlier miscarriages. Anyway we shall see what he has to say for himself.

39Suzy · 18/07/2018 10:20

🤞 for you @miami81 that the scan will find that everything is as it should be. Did you say that they had planned not to operate in the end?
I think plateau is a good word.... i haven't woken up one morning with a new outlook but a few giant leaps over the last few weeks and i have found myself here. Long may it continue x

Sending you lots of love @mrslcw and hope Penny is looking out for you x

Miami81 · 18/07/2018 10:13

Hi @39Suzy just trying to take it day by day at the moment. I have my 6 wk scan on Friday week. Hoping that we make it that far. I don't feel very pregnant at the moment, but realistically I am 4+5 so I don't know what symptoms I think I should have!!
We are on our way to London to see the consultant about my uterine septum. Nothing that can be done for this pregnancy, it will either be in a good place or it won't, but I need to have a plan in place if it does fail.
I persuaded my GP to do hcg bloods for me to try and get me through this week. Had the first lot yesterday and then second lot will be done tomorrow. Fingers crossed for a nice doubling of numbers.
How are you? You sound like you are maybe getting to what I kind of call the plateau. Like you can exist most days without all the pain constantly weighing you down, but the slightest thing can rock you out of the plateau. (Like super pregnant people in Tesco's). What is it with Tesco's btw? Is it where all pregnant people go to spend their time or what?? I feel like I am hounded by them.

MrsLCW · 18/07/2018 09:07

@39Suzy you have my complete sympathy!! I think this is one of the hardest situations and emotions I've found to deal with!
I'm feeling good today, the anxiety is still at bay today, so I'll embrace that for as long as I can! Xx

39Suzy · 18/07/2018 08:54

Hi @lilaciris that is good that DH has come around. I think it is normal to sway back and too as they feel so helpless.

My AF has finished now and despite being a little heavier than 'usual' for one day was pretty normal otherwise. And was a 28/9 day cycle too which is usual for me (Yay!) Going back through my app and daily symptom notes, i think the bloating/ queasiness /spotting was ovulation which apparently can feel like early pregnancy symptoms if you havdn't ovulated for a while. Anyways.... looks like i am settling back into my normal cycle which is a big positive.

I also feel like i have turned a corner in myself too.... not overnight, but over the last few weeks i feel brighter and lighter almost. Popped into work for a coffee last week snd stayed about half an hour chatting to a few of my collegues and the usual office banter. A few people did a big swerve when they saw me but most people gave me a lovely reception. I think i am going to look at going back in August on a phased return. And have a holiday booked for the end of the year..... the first thing we have planned really. Done completely on a whim but feel like it's a biigggg step in looking forwards.

I also bumped into an old collegue/friend this week who was 9 months pregnant (i didnt know she was expecting but not suprised either).... i couldn't avoid her but stood in the supermarket queue with a stupid smile wishing her well whilst trying not to well up, DH was stood next to me and it was equally hard for him too. I made a (rude) early escape before she could ask anything about me.... she is the sort of person that wouldn't have noticed (or the fact that i was stood in a supermarket in shorts and t shirt at 11am on a Tuesday with no make up and unbrushed hair rather than being in work). I didn't feel jealous but just brings it home how utterly shit this situation is and just wasn't quite prepared for coming face to face with it. My due date is coming up and i think i am fine about it but looking forward to getting it out the way. I have unfollowed my pregnant /newborn friends for the same reason. I would rather see that news when i want it and not unsolicited if that makes sense. It won't always be like this but feel like it is a bit of self-preservation for now at least.

@nutellaoffthespoon hope AF makes an appearance soon for you so you can crack on.

Any news from you @toots123 - are you going to test early or wait for AF?

Hope @MrsLCW and @miami81 are both feeling ok ladies?

LilacIris · 17/07/2018 21:25

Oh LuMarie reading that made me cry. Thank you for coming back to share that. I can’t get over your mother’s behaviour towards you. Even without having lost a child, it is something I can’t get my head around but to be like that when one of your children has died is even worse. I’m glad you have such a wonderful dad and brother.

I don’t know if you have heard of something called fetomaternal microchimerism but it means that your sister and mother will have shared cells that will have continued to live in your mother but they could also have been shared with her future children, so you and your brother, as well. I find it incredibly comforting to think that my daughter is still alive in some way in me and that she will be in another child as well.

I’m about 9/10dpo now. After a shaky few days at the weekend when DH decided he didn’t want to try for another baby, he has amazed me by changing his mind and agreeing. I’m so relieved!

How is everybody else getting on?

LuMarie · 17/07/2018 05:19

Hi @LilacIris and all amazing woman here,

I've been thinking about all of this a lot since we first chatted. One thing that you asked really made me ache for you, when you asked if when my parents go, would my sister's memory go with them. I said Oh goodness me, absolutely not and that's still very true.

Thinking more about all of this, what I know of what my parents went through and just my gentle knowledge of a baby before me, I wondered this.

If I could change things and not have the experiences of my parents before my own birth and the existence of this child who I never met, come before me, no photos and only know a name, a heartbreaking story for my parents, would I change things so that none of this happened and instead we were just born as we were.

Not, can I give my parents all three of us, of course that's what I would want for them, but what if I could erase that part of their story so that the first child experience didn't happen.

So in that reality, my parents would not have had to go through what they did and the child who could not live would never have existed.

My answer to that, without hesitation, is no, god no. I'd lose my sister. This is a child I never met, who was born before me, who I have no photos of, only a name, an awareness that my mother carried a child to term who could not survive outside the womb and now after asking my Dad a little bit more as a woman feeling losses myself, a story of a birth. But god no, if she suddenly didn't exist, I'd feel an immense loss. Of my story, the story of my family and my parents, this child who could not live but is real, my sister. I'm upset at the thought of that being taken away. She's part of me.

So, for your children having connections to their sibling and the child's memory and tangible realness now and always, there is a very instinctive closeness. She's my parent's daughter, my sister. If suddenly that was taken away now, I'd feel grief. Not just sadness, actually grief. I don't want to lose her in my, their and our story, that of all the wider family, who all remember.

Of course, if I soothe my young parents going through hell with the pain of such a terrible loss, I would want to take that pain from them. I wouldn't want to do that at the expense of taking the child's existence from them, as she is part of them too.

I know that seems strange, I found it so interesting as I thought more about all of this myself. If I can't give them all three, or even just the first one healthy and give my own little place in the story up which I would do for them, if I literally have to choose between erasing what happened and the little one never existing, or to keep her as best we have her, I choose keep her. She is part of me and she is part of us all.

For anyone suffering from miscarriages, my mother had several between me and my brother. They had me and were thrilled with having a child and family (this was before I started p-ing them off!), but of course, it's another sad thing and was happening a lot. My Dad told me that one day, after a ridiculous number of them, my mother who was pregnant again but they had been through so many miscarriages thatches had become the norm, said to him "I'm bleeding". He said that he was so used to it by then, they both were, that he didn't even move. He just thought sadly, "That's another one gone".

That other one, for reasons no one knows why other than some kind of light just occasionally for once getting through, is now a father himself, after being a joyous, healthy, beautiful little boy.

All this pain, and as I said good god do I know my own, I think it just has to go somewhere. It has to turn into that little bright light, that silver lining, that peace. It just has to.

No idea how on earth mine will because wow, if I thought my parents were drama, I really have managed to get to unimaginable new levels of seriously, what is this pain. But you know what, hope kept me alive for a long time. When I find myself sinking, it's because I'm struggling to hold on to my blessing wherever I can find them and because hope is getting out of my grasp. I don't think there is anything the can be called false hope. Hope is the last thing we have to hold onto, and we must (note to self note to self note to self). Just pure hope for peace and happiness again, in whatever form that takes.

However, in my parents story, there it is. Sister that is part of a fabric of all of us who I take as she is and value deeply, who binds my parents, parents who went on to have their children and become so immersed in this normality that they really became normal, with normal lives.

My mother doesn't speak to me because my losses were too much for her (no sympathy mother!) and she doesn't handle various things well, nothing to do with her own losses, I just get the feeling she is more comfortably pretending I don't exist. My Dad is my hero, but he forgets now and again that maybe I don't need to hear about how freaking amazing my brother's life is compared to my wonderfully crazy catastrophe. It's not deliberate and I don't think he realises I feel that way, it's just that his world has become so happy (which I adore) that the concepts of these pains are very faded. Who knows, I can't figure them all out. As bizarre as it seems, I'm almost happy for them in this. It's not all that lovely or easy for me, but it shows how they have lived on to be so very normal. My mother is as crazy as always, my Dad as generous and pure as always. Isn't that a normal description of family? The am I really related to this chaos and good god can you all hear yourselves/good god Lu is fine just leave her to it. Normal family, not perfect family, I'm the one who sees the light because I have to so I may sound like I'm describing a really beautiful family, but I expect many psychologists would note my own views on hope and gratitude and not quite agree that is all so sunshine:)

It's all how we see things and how we make ourselves see things, because we have to. So regardless of what may have happened, my parents managed to create their own normal family. I'd go for less drama and a few adjustments in my own, but they survived, they have joy in their lives above all else, they did things their way and above all, they are happy.

And so will you all be, I'm the one looking in at things that happened before I was born, to my two young devastated parents. I know the way the story ends. Love and happiness.

LuMarie · 17/07/2018 04:19

Thank you @Goostacean , that's so kind and really means a lot.

We all have our secret battles and pins, as everyone here really knows. Kind words can make such a difference. So thank you, I'm really moved by yours.

nutellaoffthespoon · 15/07/2018 16:35

Good luck @toots123 🤞🏼

Nothing happening here. Still waiting for first AF at just over six weeks. Quite keen to just get it over with - unless we've been incredibly lucky to catch first time. Not feeling very optimistic though.

My periods have been pretty irregular at the best of times so will be interesting to see how they are affected.

Hope everyone is okay and good luck to any currently in the "window" ☺️

39Suzy · 14/07/2018 23:03

Hey @toots123 i am ok thanks. AF finally turned up yesterday , smack on CD29 which is 'normal'. So i am either back in my normal cycle or just my body messing with me!!! Bit heavy today but i think it will tail off quite quick. Hopefully it will give me a better chance of working out next months ovulation.
🤞 for you x

Hope everyone is having a lovely weekend

toots123 · 14/07/2018 12:51

Still catching up but wondering how you are @39suzy
I'm in the tww now. Everything crossed

OP posts:
39Suzy · 12/07/2018 13:40

That is good they are looking out for you

LilacIris · 12/07/2018 12:52

It doesn’t sound crass at all @Testar0ssa. Sometimes I find it hard to convey what I mean to say by text. I’ve had four pregnancies get to at least the second trimester but my periods have always been all over the place afterwards, in the same way they have after an earlier loss. It just seems extra cruel of my body!

It has been more than five months and I had an EMCS but no follow up or check at all. The appointment was the second one I had for post mortem results and I spent most of it crying, so I think the consultant was concerned about me. She did say I wasn’t emotionally ready to try for another baby. I am really surprised more isn’t done for couples in our situation. I was even under the perinatal mental health team but everyone just seemed to forget about me once I left the hospital.

Testar0ssa · 12/07/2018 12:34

Reading that back, it sounds crass. It wasn't meant to be. It's just what I think re my experience.

If it is @LilacIris then I'd be interested to hear what they say to you (if you feel like sharing). I think our hospital could be a bit more aware of MH issues involved for what we've been/are going through

Testar0ssa · 12/07/2018 12:27

Hello everyone.

I can't help wondering if some of the wonkiness of cycle is down to the emotional stress of expectation/hopes/fears... hot cups of tea, distraction, and general empathy to all x

LilacIris · 12/07/2018 12:01

@39Suzy I’ve got a copy of the letter now and am certain the appointment will be regarding my MH.

39Suzy · 12/07/2018 11:30

@lilaciris could it be to discuss plans for any future pregnancies?

LilacIris · 11/07/2018 13:47

I’ve had acupuncture in the past as well @Miami81 and only have good things to say about. How are you today?

My GP surgery has called to arrange an appointment with me based on contact from the consultant at the hospital. Has anyone had this? Any idea why it could be?

How is everyone today?

39Suzy · 11/07/2018 09:52

Thanks @miami81 i think i will have to ride it out and see what happens in thè next few weeks..... this is only cycle #2 so i guess i am being unreasonable but i am open to trying alternative therapies (said sat here twiddling my rose quartz crystal bracelet). Hope you are feeling ok?

Miami81 · 11/07/2018 08:30

I am sorry @39Suzy. After my first mc I felt like my cycles were genuinely gone mad, I think my body had gone into shock of some description. I went to fertility acupuncture for it and it really helped (fell the following month). Anyway just if you hadn't considered something a bit woo, it might be worth it. Also I find it to be a safe little space for me to just be for 30 mins.

39Suzy · 11/07/2018 07:53

Morning all, BFN from me but still no AF (although now three days late on anticipated 'shorter than before' cycle). Still feel nauseas, bloated and boobs are sensitive but must be something else/PMT.
I feel so let down and frustrated by my body.... i was pretty sure when i ovulated so no idea why AF hasnt appeared. I guess i must still be settling back to normal. I am not disappointed i am not pregnant but feel so out of control about getting to that point if my cycles are all over the place. Hope everyone else is ok?

@lumarie i haven't read through all your words as my tears just wouldn't hold back but it sounds like you have a lovely family.

Goostacean · 11/07/2018 02:02

@LuMarie, I have no business being on this thread but clicked on it anyway. I just wanted to say that I think your posts on this page are the most eloquent, moving words I’ve read on this site.

Best wishes to everyone on this thread, on their journeys.

LilacIris · 10/07/2018 19:59

Thank you so much for taking the time to respond @LuMarie. It’s really kind and I find it really helpful to hear so I can try to understand from my older two’s perspective.