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Conception

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TTC after recurrent miscarriage

984 replies

LisaSimpsonsbff · 10/09/2017 11:48

Hi, just wondering if anyone else was in a similar place to me and wanted to chat about it? I'm 30, TTC my first and have had three miscarriages, all early (two natural MCs at five weeks, then a MMC where a scan at 6+5 revealed development had again stopped at 5 weeks). I've had RMC tests and am just waiting on the results of that but hoping to be able to TTC again from my next period, which should come any day now. I've found throughout the whole thing (have been TTC just over a year now) that it's really helped me to chat with people in similar positions, so if anyone wants to be TTC buddies please let me know!

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LisaSimpsonsbff · 08/10/2017 14:33

Yes, my instructions were to take an OPK every month (because I'm a bit irregular - if you have the same ov day every cycle you don't have to bother) and then to start taking the progesterone seven days later, and then seven days after that to take a test and carry on if positive (until 12 weeks) and stop if negative. I know I should hold out until Thursday (14dpo) but I predict I'll crack on Tuesday! As I said, though, don't have a great feeling about this cycle, but I guess we'll see!

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BertieBotts · 08/10/2017 13:57

I have ovulated but no idea when. Oops. Bank holiday plus DS' birthday all in the same week really screwed my temping. But we have stuck to every 1-3 days in the interim so I reckon we've caught it on time. It was some time in the last week but I don't know which day. Luckily last day it could possibly have been still leads to my period being due around the time FF suggests so I should not be in limbo for long.

AnneLovesGilbert · 08/10/2017 10:59

Glad you're feeling okay on the progesterone lisa. Is the plan to rest in a couple of days? I hadn't thought about what happens with af if you're not pregnant, do you test at the latest time you'd know then come off it till next cycle? So hope you get a bfp but good to know what to expect and do either way. With a bfp, would you stay on it till 12 weeks?

Cramping went for most of the evening then came back really badly at bedtime but seems gone again today.

Funny coincidence yesterday. I bought a book last week off the back of an article in the guardian about acupuncture for fertility. Mentioned it to my therapist and she trained under the author!

Started it last night and it's fascinating. I got it mainly to understand her approach without having to grill her on it. Didn't realise it's her exact approach as she knows the guy so that's a bonus! It's the five elements type of acu and the book is pretty out there but as I've said, I'll get on board with nearly anything these days Grin

LisaSimpsonsbff · 08/10/2017 08:13

Glad the acupuncture went well again, Anne. 10dpo here and feeling very unhopeful about this cycle, but I guess we'll see. The progesterone hasn't been too bad at all, so that's a relief. I'm not really sure whether or not AF will still come even though I'm taking it - Coventry implied not, but lots of women online seem to have still bled while on it. Big love to you too, hope the cramping either stops soon or is a sign of good news to come!

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AnneLovesGilbert · 07/10/2017 21:41

Hey lovelies, sorry been awol. Just had a mega quick scan and will have a proper read back. Glad you're okay if sore keepon, rest up and look forward to your break.

Thank you flynn and lisa. Good session this morning. Awful cramping like bad af pain today. 7dpo. Nothing else going on though. All well. lisa, I'm so sorry about your appointment, I'd definitely put pen to paper and hope it helps others who follow us to have more compassionate care. Good Coventry were good though. I hear good things.

miami, I've been keeping you and DH close to my heart and don't have the words about the loss of your beautiful daughter Flowers

You know you're welcome here and among friends.

I saw a couple of new names. Will catch up properly with where everyone's at.

Big love. I feel so lucky to have you lot.

MogScratch · 07/10/2017 21:13

So much heartache you have been through, really hope there are some better times ahead for you.

I also had a retained placenta with my DS, so I know what an added unpleasantness that must have been for you, but useful if it has identified something.

Miami81 · 07/10/2017 18:08

Hi Mog
No indication from my consultants of what they think so far. Sorry for tmi but I had a postpartum haemorrhage with Eilidh as my placenta didn't come away properly. So the consultants ended up having a good look at my uterus as such whilst they were patching me up. They mentioned definite left horn, right horn situation so I hope to speak to them about that when we see them for results. My worry is that my wee girl ran out of room and managed to mash her cord right up against a funny bit of uterus and then couldn't right herself. We will have to wait and see what they say. But fundamentally given it took three pregnancies to get to Eilidh I want to try and understand more of what is happening before we even consider chancing it again. I just keep thinking that it's been 18 months of just never ending drudge with no take home/ living baby at the end of it. And just so much sadness now. It's just so hard to accept. I still can't believe that this has happened.

MogScratch · 07/10/2017 17:48

Hello Miami - I am sorry to hear what happened to Eilidh. I hope the tests give you some comfort that there will be hope for future pregnancies. Is your hospital arranging tests into your uterus shape or will you need to go private?

Keepon - glad the op went well and hope you are less sore today. Great news about 6 ish weeks wait hopefully, that's shorter than you expected isn't it?

I hope everyone is having a good weekend.

LisaSimpsonsbff · 07/10/2017 14:27

That is so lovely, bertie - it's funny what a difference it makes coming from someone who's struggled too, isn't it? I think if someone who had conceived very easily gave me a good luck token I'd struggle to know how to react, but as a gesture of solidarity it's really thoughtful.

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BertieBotts · 07/10/2017 11:35

SIL who has also had issues conceiving sent us a lovely card the other day with a pressed 4 leaf clover inside which a friend had given her probably 20 years ago for good luck with having children. They adopted 5 in the end so she said she hoped it would work for us too. I thought that was the sweetest most thoughtful thing.

Miami - what can I say, I am devestated for you, what an awful thing to happen. Eilidh is a beautiful name and I am sure she is beautiful too. Take your time as I'm sure it's such a difficult thing to process. Peace to your sweet daughter.

LisaSimpsonsbff · 07/10/2017 11:10

Thanks so much flynn and keepon - I agree with your change, flynn, and will put it in. Reassuring to know that a doctor doesn't think it's too much, keepon! I hated the 'it's very common' thing because to me it always seemed to come with a side of 'so shut up about it'; people do at least seem to have stopped saying that after the third one.

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LisaSimpsonsbff · 07/10/2017 11:05

Miami I am so very sorry for your completely devastating loss. If you do think that posting here will be of any help at all to you then please do stick around - I wasn't actively TTC-ing when I started it, and there are other people here who aren't either.

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keeponrunning85 · 07/10/2017 10:29

Lisa, thought I better wait until this morning to read your msg again and reply as I was in something of a fog last night! I think it sounds perfectly reasonable and if I received something similar I wouldn't interpret it as being told how to do my job. I think it is an important issue to raise. I guess one thing to bear in mind is that not all patients like to hear information in the same way and it can be very difficult to know how to go about it with each patient, particularly if you haven't met them before. But I don't think the 'just bad luck' phrase is ever appropriate even with your first miscarriage. To me being told it is very common also wasn't helpful, because all I thought was well it is much more common to not have a miscarriage and get to have a baby!

The term 'products of conception' should never be used with patients in my opinion. Fortunately for me my hospital have always been very good as referring to it as 'the pregnancy' which I much prefer.

keeponrunning85 · 07/10/2017 10:16

Oh Miami I was so sorry to hear that you lost little Eilidh. I cannot begin to imagine what you are going through. Yes of course, feel free to PM me about it. I'm more than happy to answer your questions. And ease do stay around even though you're not currently TTC. I'm not at the moment either but still finding the group lovely and supportive.

SaltK · 07/10/2017 07:13

Miami I'm so sorry about what happened to you, it's absolutely devastating. I was following the other thread you were on, such a terrible, unfair thing to happen. You're very brave to be back on here so soon, and thinking about the future (very tentatively), and very kind to offer support to others.

I'm genuinely blown away by the strength of the women on these forums. Flowers

Miami81 · 06/10/2017 20:30

Hi ladies
Really tentative wave to some lovely ladies that I unfortunately know from some other threads.
Just popping on to ask @keeponrunning85 if I can pm you about your op? I'm not sure if you are aware and I know I got loads of messages last week from some of you ladies but wasn't really taking much in, but our most recent precious pregnancy ended at 27 weeks when our beautiful baby girls heart stopped beating. We are waiting for pm etc but I would like to speak to someone about uterus shape issues so if you are ok with having a bit of a chat about who you have been seeing that would be fab.
We are a very long way off ttc again but just feel that if there are ops or treatments that need to be considered now then it would be best to try and get those sorted whilst we give ourselves the time to grieve for our beautiful Eilidh. It is very hard to think about trying again without something drastic changing.
Hope it's ok to hang out with you a little bit even if we aren't ttc. I can always offer help on various things that we have tried on our journey so far.

flynn80 · 06/10/2017 19:12

If it were me, I would leave it in, you have worded what I would like to tell my doctor so much better than I ever could.

I would perhaps add to the last sentence:
The fact that I had such varying experiences suggests to me that the terminology in dealing with these particular types of cases should perhaps be something that is discussed across the department."

LisaSimpsonsbff · 06/10/2017 17:53

Really glad to hear it went well, keepon, and I hope you don't feel sore for too long. Study sounds interesting, too. Coventry said they'd let me know next time they were starting a study relevant to me - obviously I'd like to be happily and healthily pregnant ASAP, but if that doesn't happen then participating in a study seems like a way of getting some more focused care in many cases, and, as you say, it means you can help other women.

I've also missed anne - hoping all is ok.

Ok, one more thing about this bloody appointment on Tuesday and then I promise I'll shut up about it for evermore! I wrote a feedback email and sent it to a friend for her opinion on whether I was being over-sensitive/ranty before sending it. She said all the other parts - which focused on information I wasn't given or which was unclear - were good, but that this one is too subjective and that they might feel I'm trying to tell them how to do their jobs. Thoughts? I'm a bit reluctant to take it out entirely, but maybe friend is right? This is what I wrote:

"Dr [X] informed me that the tests had all come back clear, and so that the miscarriages were 'just bad luck'. I found this phrase distressingly trivialising and also inappropriately unmedical. I would have much preferred to be told this in the appropriate medical terms, e.g. 'we believe that these were random, unconnected events' or 'we believe that there is no underlying cause'. I would like to acknowledge that when I became upset Dr [X] did apologise for the phrase, but then said that I had been 'quite unfortunate', which I also found inappropriate and distressing. Throughout the appointment I felt that the impact that my pregnancy losses had had upon me was dismissed. In my previous appointment on 11/7 the doctor had begun the appointment by saying 'I am really sorry that you've had such a difficult time'. Just that brief acknowledgement that this was an emotional as well as a medical issue made a huge difference to me as a patient. The fact that I had such varying experiences suggests to me that this should perhaps be something that is discussed across the department."

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flynn80 · 06/10/2017 17:17

So happy it's over for you keepon and now you get to recover and rest up for a bit with a lovely trip away to keep up your spirits. Im also so happy when I hear of new research surrounding this topic, its a step in the right direction as far as i'm concerned.

Hope everyone else is good aswell, Lisa Hope you have something nice planned for the weekend after a miserable week, and Anne I think you have an acupuncture appt for tomorrow, hope it goes well for you too

keeponrunning85 · 06/10/2017 15:03

Hello ladies.

How is everyone? Anne has been quiet this week. I hope she is ok and has just been busy with lots of nice things.

Well my op is done which is a relief. I am surprisingly sore! The consultant seems happy enough with how.
it went. I've got to take oestrogen for 6 weeks and have a scan in 5 to check my endometrium. Then should be able to start trying again eek! Just in time for a little mini-break to Seville DH and I have planned.

The registrar that I spoke to before is writing a PhD on uterine septums and recurrent miscarriage so it is nice to know there's research going on outside of the big main centres. Also, I've my third loss was due to a chromosomal problem and there is a study about to begin on that for women under 35 so I'm going to partake on that and hopefully it'll help other ladies one day.

Am I right in thinking a fair few of you are in the dreaded TWW? I hope you've got some nice distracting things planned for the weekend. And those with recent BFPs I hope you're doing ok.

ScaryDuck · 05/10/2017 21:37

Nice point about your sonographer Flyn. I've also had my fair share of amazing medical staff, especially the nurses at the EPU, they are so kind. Although I'm at the stage now where I can't take any more pity so I prefer it when they are not quite so nice!!

I feel the same about thinking maybe I'll just give up on all this, but I know I can't do that. At least not yet, I think one day I will have no choice left. Also going for the chocolate and crap tv - catching up on Dr Foster just now, excellent distraction!

flynn80 · 05/10/2017 20:40

scaryduck I know the feeling of just not being bothered anymore, Ive been trying on and off for 3 years now and Im so very close to thinking fuck it all, Im just happy with what Ive got - But I know if I do Ill always wonder what could have been, so that forced me to keep on going and in between I eat lots of chocolate and watch crap tv to block it out!

And as for the nhs and there lack of phrasing correctly - if it makes you feel better, we once had a dr come out to my house when I was looking after my nan who was terminally ill. It was written in big bold letters across the top of her file that she was on palliative care at home, This dr was called to look at a bed sore that had burst - after a while he packed his bags and started to leave, and I asked what he was going to do, he said he was referring her to a different department and we would receive a letter with a new appointment to attend a new clinic Hmm.

His face was a picture when I got the file and read it to him! So no, its not just the rmc clinic who are crap at such things - seems its across the board! My sonographer though, has been the most amazing lady ever, and I cant say anything bad about her, shes often seen me breakdown crying and always gives me hugs, she must see this daily but she always treats you as an individual, rather than just another one its happened to.

ScaryDuck · 05/10/2017 19:49

Can't believe some of the terrible medical chat here. Not bothering to write with results is shocking flyn. It also really bugs me how each department in the NHS is so separate - the EPU didn't know any of my foetal medicine records and vice versa so I have to explain myself every time I speak to someone. It really bugs me going over and over my medical history when it should all be in my notes. Most recently having to explain to a new GP why I am on high dose folic acid. After I'd told her about the 3 lost babies, the chromosome issues and potential NTD she apologised for making me talk about it! Just read the file then!! Grr...

Rant over, hope everyone's ok. I'm waiting to ovulate, seems late this month - been DTD since Sunday and can't be bothered any more. I kind of think it doesn't matter anyway, even if I get pg it'll be another MC so whats the point?

flynn80 · 05/10/2017 17:04

Hi to all the new people, I will catch up at some point, just really busy at the moment, Lisa Please do write that letter, You could be the difference between someone else feeling like shit after an appt with the same dr. Im also so sorry that you too had a crap appt.

All it would take is a little retraining in rephrasing certain ways of telling people - and would mean people would be leaving the place in a better frame of mind. I sat in my car for 40 minutes crying because she used the phrase Bad luck. 7 miscarriages is not bad luck.

I also had "end of the road as far as the nhs is concerned". She may as well have stabbed me there and then using that. My first appt she was very lovely, but when there were no answers she became very insensitive - I also did not like the fact she giggled nervously when I sat down and said Oh ive actually had the results since the beginning of august but didnt get around to writing a letter to you. She had had 7 weeks at this point to write me a letter.

keepon offered some great advice though, stay off the internet for a while, I was a mess the 1st few days after my appt, I purposely didnt come on here as I couldnt get out of my own pit id felt I was in. I had a break, went to the gym a few times, relaxed with crap tv and now feel ready to come back fighting for the next round of tests or whatever else I can find.

Im still having accupuncture too, after my last message I posted Af arrived the same day, Ive been so used to heavy awful periods and I could set my watch by my pms symptoms - This month. absolutely nothing at all. Its not been heavy either. even if its still only a placebo, to not have period pain is worth every penny i've been paying!

LisaSimpsonsbff · 05/10/2017 14:55

Thanks for your support, salt - I'm so sorry you had such a horrendous experience with your doctor. Wishing you all the very best, and hoping that this pregnancy goes as well and smoothly as possible.

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