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TTC after recurrent miscarriage

984 replies

LisaSimpsonsbff · 10/09/2017 11:48

Hi, just wondering if anyone else was in a similar place to me and wanted to chat about it? I'm 30, TTC my first and have had three miscarriages, all early (two natural MCs at five weeks, then a MMC where a scan at 6+5 revealed development had again stopped at 5 weeks). I've had RMC tests and am just waiting on the results of that but hoping to be able to TTC again from my next period, which should come any day now. I've found throughout the whole thing (have been TTC just over a year now) that it's really helped me to chat with people in similar positions, so if anyone wants to be TTC buddies please let me know!

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MogScratch · 13/11/2017 07:31

Oh wow Lisa what a confusing few days. I'm really hoping that it all turns out OK. The waiting in the early days feels so long and worrying. I tried to tell myself there was nothing I could do to change outcome by worrying, so kept busy and ignored thinking about it too much - hard to do though. Hope you get bloods done soon to remove some of the limbo.

BertieBotts · 12/11/2017 23:09

So weird! I have heard that FMU is sometimes a bit too much urine-to-hormone so maybe that was it?? But who knows. I do hope you get answers Lisa, and I feel positive for you, so try not to dwell on what might go wrong. Of course we don't mind BFPs here anyway - I do think this is quite a different kind of infertility thread, and we are probably less sensitive to BFPs, as a group, than people struggling in other ways.

keeponrunning85 · 12/11/2017 17:59

Lisa I'm not surprised that your head is all over the place right now. I'm still keeping my fingers crossed for you and I hope you can get some clarity over what is going on the next few days.

Anne and Miami I'm with you on the baby thank you cards. Straight in the bin in our house!

FoxtrotSkarloey · 12/11/2017 17:01

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LisaSimpsonsbff · 12/11/2017 15:06

Unfortunately Monday is the day I do some part-time teaching at another university, and - of course! - I have a meeting with the head of department to talk about me applying for a permanent job there. So unless I really can't cope I think I have to try and make it in. The good thing is teaching is always so full-on that there's no time to dwell.

Thanks so much schnitzel. I think having it done at the GP will end up taking longer because I'd need the nurse appointment and then they take 24 hours to get results, whereas I know (because they did blood tests when I was having the last miscarriage) that the hospital is a first-come-first-served at the phlebotomy department and then results within a couple of hours. When I rang EPU they definitely seemed to think it was better that my GP referred me there. But will have to see what GP actually says tomorrow.

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SchnitzelVonCrummsTum · 12/11/2017 14:45

I'm just a lurker, but thinking of you Lisa. Would your GP not run hcg tests for you him / herself? They are allowed to. Xxx

AnneLovesGilbert · 12/11/2017 14:36

Take tomorrow off. You don't need to be worrying about putting a front on when all this is going on.

Do whatever feels best to get through today and spend tomorrow getting hold of the doctor and either going to have your bloods done or resting up and looking after yourself at home. There are times when distraction and keeping busy is good and others when hiding out drinking tea in your pjs is better.

Crying when you're on this rollercoaster of emotions and possibilities is inevitable. You've been so strong and it's got to come out Flowers

I always suggest mindless action films. I got into Jason Statham shouting shooting stuff during my mmc when I couldn't focus on anything more subtle with feelings and dialogue. And lots of hugs with DH.

LisaSimpsonsbff · 12/11/2017 14:12

Thanks. To be honest I'm a mess today - I've got this feeling it's gone, just like I always get (and, thinking about it, which I didn't have on Friday, which I guess is why I tested again). I know there's no way to know until the tests but I just feel so despairing. I've spent the day crying on and off, and I don't know how I'm going to make it through work tomorrow.

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AnneLovesGilbert · 12/11/2017 12:22

I hope they get you in soon. And that it's good news x

I'm alright thanks! Got a day of hopefully doing nothing ahead Smile

LisaSimpsonsbff · 12/11/2017 12:15

No - I have an appointment for my GP to ring me at 8.15 on Monday, and then they have to ring the EPU and refer me. I'm hoping they'll say that I can come in Tuesday - for them it's just writing a form and sending me off to phlebotomy - but we'll see. It might take a couple of days.

How are you doing?

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AnneLovesGilbert · 12/11/2017 12:13

Ah, that makes sense, sorry. Not long now, we're half way through Sunday. Do you have a time to go in?

LisaSimpsonsbff · 12/11/2017 10:43

There's no point temping while taking progesterone (because it's progesterone that makes your temp go up post ovulation, so it's always sky high no matter what if you take artificial progesterone). Too scared to do any more tests so will just wait for the blood tests, I think - would rather bury my head in the sand that see the bad news coming, I think.

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AnneLovesGilbert · 12/11/2017 09:31

Have you carried on temping lisa? Any insight there?

How's everyone today?

AnneLovesGilbert · 11/11/2017 17:24

Holy fuck lisa! What a gorgeous line! I agree, stop boozing for now, try to keep distracted till Monday aha get thee to the hospital for bloods. If you get there early you should get the result the same day. Then get back two days later.

Miami81 · 11/11/2017 16:12

Lisa
Ok just take it easy for the rest of the weekend and get straight onto gp for bloods referral on Monday. I have everything crossed for you.
Don’t apologise it’s great.
Anne
One of DH friends did this, sent us a thank you from their daughter Anna with two pictures of a chubby baby on! Ffs - like we just had the funeral for our daughter 4 wks ago. Just a generic card would have been fine (or no card at all). People are stupid.

FoxtrotSkarloey · 11/11/2017 15:22

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LisaSimpsonsbff · 11/11/2017 14:58

(Sorry, I now feel like I shouldn't have posted the tests - I know it might not be a nice thing to see while TTC-ing)

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LisaSimpsonsbff · 11/11/2017 14:42

I think that's totally ok, Anne - didn't do anyone any harm and it sounds like she was a nightmare!

So, at this point I know I basically seem like a lunatic/a mad attention seeker... but I did another test at lunchtime today - I don't really know why, but told myself that I'd see if it was completely negative so that I could expect AF at normal time if it was - and this happened. I am so, so confused - both the FRER and the internet cheapie were all but negative yesterday, so it wasn't a dud test, and it was pretty concentrated FMU. I have no idea what it means but I took the progesterone and aspirin again and I rang the EPU to ask about blood tests - they said they'd happily do it but my GP has to refer me so I'll call them on Monday, I guess. Unless phantom positive goes again by then! Still completely confused and unsure of what this means - and as I said, I now really do feel like I've gone mad. This has been the strangest few days! Am glad I only had one beer in the end last night - original plan was to go to pub and get pissed but we decided it was too cold so stayed home and ate pizza!

TTC after recurrent miscarriage
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AnneLovesGilbert · 11/11/2017 14:01

Well done on your list lisa and glad you're both doing okay today. Talk it out, you know we're here for you! Sorry your GP is a muppet. How some medical professionals stay so clueless is surely a mystery.

Same old this weekend here. The laundry seems to be breeding and cleaning the house is like painting the Forth bridge. I'm hiding out with a new book leaving DH and DSC to wreak havok downstairs.

I had a tiny strop earlier. My friend who's always been lovely but turned into smug mcsmuggerson when she was unexpectedly pregnant and said some breathtaking stupid and insensitive things about how unconvenient it all was for her even though she knew Id had my mmc a couple of months before sent a round robin thank you card for gifts. Double sided with photos of the baby and a generic thanks for your warm wishes for our precious boy blah blah message.

I opened it, said oh fuck off, and threw in the bin Blush No one saw thankfully.

Af has gone which is good and I think I've lost a bit of weight. Which is something.

LisaSimpsonsbff · 11/11/2017 09:13

Thanks mog. Feeling ok today - DH and I drew up a list of questions we wanted to ask Coventry on Tuesday. It's probably a completely cheeky use of their time - I only paid them to do one specific test! - but they're the only helpful and sympathetic medical care we have. My GP is a nice person, but knows nothing about miscarriage (she told me that it was impossible to have miscarried and to still have a positive pregnancy test...). I really do wonder whether I have an over-friendly uterus that lets all the no-hopers implant briefly - if so, I think the only solution, shit as it is, is to keep going and hope we get a good one one day.

Anyway, how is everyone else doing?! Feel like I've really dominated things in last couple of days, sorry. Any nice weekend plans?

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MogScratch · 11/11/2017 08:24

Lisa - sorry to hear what has happened. It's so hard getting that glimpse of hope, even if only for a couple of days, then it disappearing.

BertieBotts · 10/11/2017 18:38

Re relax and it will happen - actually it has relaxed me somewhat not temping any more. I still know when I need to DTD but I don't seem to fixate so much on the 2WW. I thought that it was helping me feel in control too but I just don't really need it. Maybe try for one cycle and see if it helps or makes you feel worse?

BertieBotts · 10/11/2017 18:35

Well if it shows unusual results you can then be referred for genetic counselling, I think on the NHS? They can then advise from there. Sometimes nothing can be done. Sometimes using donor sperm or donor eggs is the best option. Sometimes they can do some IVF magic and fix things. Mostly as I understand it they do PGD or PGS which is pre genetic screening/diagnosis (not sure what the difference is) - they do IVF but then take a certain number of embryos and test/screen them all to see which are healthy, and only put the healthy ones back in.

The most valuable thing to come from it is you should be able to get some odds on what your chances are of conceiving to term naturally. You can then use this information to make the decision whether you want to keep trying or stop.

AnneLovesGilbert · 10/11/2017 15:32

Oh love Sad Big hugs to you and brave DH, what a shitter of a day. Is there anything you like to drink to take the edge off tonight? It might not feel quite right but if it does then drown your sorrows. That's friendly, not medical, advice!

Yep, don't take it for now but starting again with the progesterone is a good idea. Usual advice about having it with food etc but loads of people are on it all the time with no ill affects so if you use it responsibly (which I think really only means make sure your stomach is lined) you're all good. Stopping it now will probably mean no change in your period, and it doesn't seem to change mine now, but for a couple of cycles when it was torrential I put two and two together and made four, and it could have been just post mc weirdness so I was actually making five, but I'll never know. I stop taking it as soon as I come on as it's not doing anything at that point in my cycle.

This period has been heavier than the last one, but it's still the same i.e. completely different to normal and I can only put that down to the acupuncture. Blood is a different texture and colour and it's heavier than before at night but not as much during the day. Just interesting to note the change. It sounds a bit daft, but the blood almost looks healthier. almost no clots and the very few I'd had have been tiny, and the bright red or cranberry colour miami described.

Lessened off today and no pain thankfully now. So back on it again soon....

Can't remember if I said the GP suggested taking a couple of months off and using contraception. Seems utterly insane tbh and I asked DH if he needed a break for his head to decompress but he looked at me like I was mad and said how could we know my cycle well now and not crack on when we roughly know when I'd be ovulating. I don't want to call again in January for tests only to be told it hasn't been a full 12 months as we've not even actively trying for two months and to come back later either!

Apart from wanting to punch in the face anyone who peddles that relax and it'll happen bullshit, when you know your cycle how the hell do you pretend you don't? I could stop temping but I'd still know from my normal symptoms, and I don't want to stop as it's the one thing that gives me any sense of control/insight.

I get she wants my mental health to be good as well as my physical, but I wonder if I sounded a bit nutty on the call for her to suggest i "step back".

LisaSimpsonsbff · 10/11/2017 15:02

Oh and thanks for the aspirin tip Anne - I didn't take the aspirin this morning anyway, but will make sure I stop so it doesn't make AF worse. I was thinking that next cycle I might start taking aspirin at the same time as the progesterone (7dpo) just anyway (and then I won't have any excuse at all for early testing!) - do you think that's a bad idea for that reason?

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