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Original poster

TTC after recurrent miscarriage

984 replies

LisaSimpsonsbff · 10/09/2017 11:48

Hi, just wondering if anyone else was in a similar place to me and wanted to chat about it? I'm 30, TTC my first and have had three miscarriages, all early (two natural MCs at five weeks, then a MMC where a scan at 6+5 revealed development had again stopped at 5 weeks). I've had RMC tests and am just waiting on the results of that but hoping to be able to TTC again from my next period, which should come any day now. I've found throughout the whole thing (have been TTC just over a year now) that it's really helped me to chat with people in similar positions, so if anyone wants to be TTC buddies please let me know!

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TheCatsPaws · 06/12/2017 15:45

Spotting but i have very light periods so rarely get more than spotting anyway. I suspect lining issues.

With my losses I’ve never bled very much

Original poster
LisaSimpsonsbff · 06/12/2017 15:41

I'm so sorry paws, but are you sure? Bleeding is v. common in early pregnancy - are we talking spotting or filling a pad? Flowers for you either way.

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TheCatsPaws · 06/12/2017 14:22

I’m bleeding. It’s over yet again.

Original poster
LisaSimpsonsbff · 06/12/2017 13:35

They do also talk about sperm DNA fragmentation as a cause of recurrent miscarriage (which they actually advise is referred to as RPL, recurrent pregnancy loss) - it's one of their 'needs more research' areas.

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BertieBotts · 06/12/2017 13:19

It makes sense that they don't sperm test men. From what I understand the only male factor issues which can cause miscarriage are genetic related, and genetic issues don't show up in a sperm analysis.

Karyotyping should be done on both partners but I didn't read the thing to see if this was recommended or not.

SchnitzelVonCrummsTum · 06/12/2017 12:25

I work for a university too Lisa and it's really hard not to get sucked in. I lecture in psychology but my research is very clinical so I have a lot of experience with the medical journals - I am still completely confused by stuff like the decidualisation hypothesis though. However I could share a couple of the better papers I've found if anyone is interested?

MogScratch · 06/12/2017 12:17

Hello I thought I would update you after my scan. All looked good so far, so feeling incredibly relieved about that. Hoping rest of pregnancy continues OK.

Lisa - try not to worry about lack of sickness. I have not had any sickness or aversions or funny tastes or any of that type of thing. I have felt incredibly tired and that was the main thing that felt different with miscarriages, but think tiredness started a bit after 7 weeks anyway this time. Also everyone's experience is different.

Anne - sorry to hear period started. Fingers crossed for a new year's eve positive for you.

Miami - I hope appointment helps and you get some answers or some form of comfort from it. Christmas will be such a hard time for you, but your plans sound lovely.

Keepon - thanks for the link, it is interesting.

Fox - how are you feeling? Did yuu decide to get a scan?

Hello to everyone else too. Hope you get some positives tests soon.

Original poster
LisaSimpsonsbff · 06/12/2017 12:07

Thanks miami - that is helpful and your message is so, so kind. I really appreciate all support, especially given what you're going through at the moment. I have good days and gloomy days - today and yesterday have been v gloomy, but maybe I can try and feel hopeful and positive tomorrow.

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Miami81 · 06/12/2017 11:36

Lisa
Please ignore if you don't find this helpful as obviously my pregnancy didn't result in a live birth, but I had actually zero morning sickness. NONE at all. I had my hcg levels checked due to bleeding and my levels were super high. My GP assured me that some people are just more tolerant to the hcg spikes then others. I am sure you have loads of other symptoms, try not to get too hung up on the sickness. Remember it's a new egg, it's a new pregnancy, it has all the chances in its favour. Bean in place and heartbeat when you saw it at your scan. Keep the faith. We are all routing for you.

Original poster
LisaSimpsonsbff · 06/12/2017 10:45

Sorry for the mega-long post/ranting on about my obsessions and probably entirely incorrect readings of things I know nothing about Blush

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Original poster
LisaSimpsonsbff · 06/12/2017 10:44

I actually went on a mega reading scientific papers on miscarriage binge yesterday, which is one of my worst habits - I have full access to everything because I work for a university and your password isn't discipline specific, but I'm a historian so I'm really, really not qualified to interpret them! It is really interesting though - and what surprised me, as a humanities person with the sort of huge cultural reverence we all kind of have for scientists is a) that there is so, so much we don't know and b) some of the papers have really obvious methodological holes. I guess I know that some absolute crap gets through peer review (eg some of my work!) in my discipline, but I had this idea it would all be better in science! I read a paper on miscarriage and nausea yesterday (my current obsession as I feel only the mildest and most occasional queasiness) that found a super strong association, but nowhere pointed out the obvious cause/effect problem that since their average gestation at MC was 7 weeks, a lot of those women didn't reach the point where you'd expect nausea, where obviously all the ongoing pregnancies did. Also, it found that 20% of women felt nauseous at gestational week 2, which it identified as conception, but then never commented further on it, as if it was unremarkable that a fifth of their sample felt sick before they were actually pregnant!

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AnneLovesGilbert · 06/12/2017 10:04

Ah, I'll finish it Lisa. I'm feeling a bit emotional today so just the nice suggested wording is enough to get me going this morning Blush

And I'm disproportionately happy to already be taking vitamin D, even if won't do anything. Not my most rational self today. Bloody hormones.

AnneLovesGilbert · 06/12/2017 09:19

Thank you so much for sharing this keepon. Makes me very grateful for the care we've received, which seems to be adhere to the recommendations here. I haven't read it all yet but the stuff about language is so so important, as we were discussing here the other day, and it really does make a difference to how you feel as the patient.

Care-wise, I've been especially grateful for how DH has been spoken to and included throughout. His loss too, his questions and concerns - about the losses and me. It must be even harder if the partner feels they're being completely sidelined and it's all about the woman.

Some interesting bits about supplements and various treatment options. I take vitamin D, not for any particular reason and I feel no different on it, but it seems to be a good idea.

Too much exercise in men is an interesting risk factor, but they also don't suggest sperm analysis as part of recurrent pregnancy loss investigation.

I shall read on, let's hope more clinics and health care professionals start to adopt better language and approaches and fewer people have to go through what's brought us here.

Original poster
LisaSimpsonsbff · 06/12/2017 09:05

Thanks keepon - I just had a skim read of that and it's really interesting, but pretty depressing as it essentially concludes that there are no effective treatments for women with unexplained recurrent loss.

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keeponrunning85 · 05/12/2017 23:33

My friend who is an embryologist let me know about these guidelines that have just come out. I haven't looked through them properly myself yet but thought they may be of interest to some of you ladies.

www.eshre.eu/Guidelines-and-Legal/Guidelines/Recurrent-pregnancy-loss.aspx

keeponrunning85 · 05/12/2017 22:27

Sorry AF has arrived Anne. Bring on the booze, stinky cheese, pate and general Christmas frolics.

Miami I'm glad there has been some progress towards getting your appointment. I can only imagine how hard it will be but I do hope it will give you some answers.

AnneLovesGilbert · 05/12/2017 18:53

He’s right miami, three quarters of a bloody year.

Good you’ve got an appointment in a week. I hope it’s useful.

Af here with a vengeance and Pilates has ruined me. I feel old! So curled up in my pjs, thinking lustfully about takeaway curry, a rare treat, and cosy day wfh tomorrow.

Thank you lisa, you’re lovely. Hunkering down. Not too many emotions of any sort today. Work is really busy and so many plans between now and Christmas so going to keep my mind full of distractions! You doing okay?

Miami81 · 05/12/2017 10:31

I am sorry Anne. This sucks.
We may have a consultant appt next Tuesday about what happened to Eilidh, I am suddenly losing my mind about this.
Am having a definite fml day today.
Poor DH just keeps saying how long 9 months actually is.........

Original poster
LisaSimpsonsbff · 05/12/2017 09:56

I'm so sorry both about the temp drop and about you generally feeling low, anne. You do so well at keeping positive so much of the time, but it's ok to have really sad patches, both about your losses and about your fears for the future. Big, big hugs.

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AnneLovesGilbert · 05/12/2017 09:02

Massive temp drop today and more cramping so af on the way. Boozy Christmas for me! And for the first time all year DH hasn’t done his sad face and said “I was really hopeful this month”, so that’s something.

Hope you’re all okay.

FoxtrotSkarloey · 05/12/2017 08:11

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AnneLovesGilbert · 04/12/2017 23:26

It’s a mind boggling design flaw keepon!

Double Pilates was good but I’m shattered and fear I’m going to wake up hobbled.

Hope the rest of your 2ww goes quickly! I’m so bloody bored of ttc. What I’d give to open the door tomorrow morning and find a stork leaving us a squidgy baby for Christmas.

keeponrunning85 · 04/12/2017 22:48

Miami those are such lovely ways to remember Eilidh.

Welcome to all the new people. I'm so sorry for all of your losses. And rum sorry you had that experience with the midwife. I imagine that was the last thing you needed.

Anne pilates sounds like a good plan for this week. It seems to me that pre-menstrual symptoms being pretty much the same as early pregnancy symptoms is a major design fault.

Not much to report here other than I'm presuming I'm about days into the TWW and it already feels like it has been going on forever.

AnneLovesGilbert · 04/12/2017 22:31

I really hate testing these days. The thought of another fucking shiny white bfn is just too much to bear. I’m meant to, under orders from the doc to test as early as possible so if it ever happens again I can get on the drugs I have stashed at the back of my wardrobe! But it’s so depressing knowing there probably won’t be anything there.

I have my usual mahoosive painful boobs and some pretty constant very low down cramping but I’ve had the same symptoms in 3 pregnancies and countless nothing cycles.

My sadness and disappointment at it all feel quite close to the surface this week. It’s probably stopping any hopeful twattishness this time.

Wish you hadn’t asked? Grin

FoxtrotSkarloey · 04/12/2017 22:25

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