Immune/NK issues - aka Pred Thread no. 21!

But i REALLY want a baby so i guess i will just have to suck it up @zarala @fannydaggers

@FannyDaggers good luck! Hope you get some answers. It is the not knowing which is rubbish.
@zarala you do sound a tad cynical about the money at Dr S!!! I am. I wondered whether i am crazy for going. At my age isnt it more likely crap egg quality? Has anyone been there and not started on pred and immune suppression therapy? Did he do that really expensive £500 test for NK cells in pregnancy state? Part of me thinks whats the point im having the tests just give me my pred and i will take the aspirin and crack on. Sorry ladies just wondering if i am doing the right thing as it is a HECK of a lot of money....

@FannyDaggers yes you can start those vitamins and stuff from now!
Good luck for your test results!
My RMC appointment is on Tuesday and I'm wondering whether it's even worth me going anymore? All the stuff they test for came back clear and they don't believe in shehata's nk cell stuff...had I not gone to see dr s I think the RMC would have just told me all is fine and to try again... anyway We will see

You will def save a ton of money! But the most expensive blood tests dr s does are the nk cells more because it's quite sophisticated (so he says)

Keep us posted

@Maddox, I’m with you there, August for me but as I’m still getting positive pregnancy tests and still bleeding from the miscarriage it seems a bit pointless for me to stress about it at the moment (although I am). Sorry you’re feeling sad though
Currently sat waiting for my follow up appointment at the RMC with the NHS, hoping to get results of tests they did on the foetus to see if there were any problems. Managed to get here an hour early though and it’s never on time 🤦‍♀️ Also hoping to get a list of previous tests and results hat they’ve done so I can send to Mr S in advance of appointment (might save me a bit of money on tests already done).

@FannyDaggers my appointment is not until july 11th i so wish it was sooner. Have to resist the urge not TTC another cycle with my eggs wasting away....!!

Brilliant news @zarala fingers crossed for you that this all works out for you! Thanks also for the info on vitamins in response to @Megan234 (hello!) did he say to get on that straight away whilst waiting for test results - just wondering if it’s worth me starting that now although I won’t see him for a few weeks yet for my 1st appointment?
@Maddox when is your appointment? Sorry I can’t remember and on phone so can’t scroll back!

@zarala that is amazing that something treatable (potentially) was found. From what i have read that is a great AMH but theres differing views as to its value. But good on you!!! I am going to Epsom but will worry about how to find it at a later date. Eeeek so this month could be your lucky one. Fingers crossed for you!!! I am ok frustrated by the long wait. Seems never ending as my egg reserve diminishes every hour.....

@Maddox hey! Thanks for checking in
It went better than I expected.
I was so nervous all weekend wondering how my results would come out
He said that on a positive side all my hormones and egg reserves are fine (thank the lord!) but I have very aggressive nk cells thy are triggered in a pregnancy setting
He gave me predisonal (steroid) to take every day starting from ovulation until 10dpo- then I have to take a pregnancy test. If BFP then I continue the pred and start taking progesterone suppositories and that I need to see him every 2 weeks for a scan and intralipids....if bfn stop the steroids and then start again the following month at ovulation...
So we've decided to try this month! Fw is just about to start so I've got my opks ready and I'm going to try this out
I am quite nervous and excited but mostly anxious -a BFP now just means fear and heartbreak so I'm trying to stay positive...
Epsom is a bit of a mission to get to tho...but if he gets me my little rainbow baby it will be so worth it!

My AMH levels for egg reserve was about 13.5- he said that was fine but I've seen online that that is quite low so don't want to waste any time!

How are you doing?

@zarala hope your appointment went well. Sorry thought it was the 9th then realised thats the weekend. Hope you got some good news xx

Zarala thank you very much, good luck to you too

@Megan234 hi there
Yes he will tell you pregnacare max
Vitamin D 2000iu
And 75mg aspirin

Good luck!

I’m going to see Mr S on the 13th June, I have started taking Pregnacare max, plus omega 3 a month ago. Do I need to take anything else like aspiring 75mg? I know it’s the same for everyone

Thanks FannyDaggers, don’t worry the time will go quickly. I know how difficult it can be, I had every emotion under the sun with my last miscarriage but I have to stay strong to try again. Meditation like headspace helps to keep things calm. Take it easy 😊

Know exactly what you mean Lucy I’ve got to wait until at least August for my appointment and then another couple of weeks for the follow up and I just feel like time/chances are slipping away. Hope you’re feeling ok
Hope everyone else is doing ok.

Thanks for your help ladies, but I’m not pregnant the test it’s negative or maybe I’ve tested too early. It’s so hard because I want to be pregnant but in the same time I want to wait for my results.

@Lucykitt I found out I was pregnant before my first appointment with dr s and they told me it wouldn't really be helpful to see him- unfortunately that pregnancy didn't work out.
I'm assuming if you've seen him already he's already carried out all your tests
I think @Maddox is right just call and see what they say- he might want to put you on something ASAP

@Lucykitt I have not yet had my initial assessment with him yet. The wait is killing me...!! So i cannot offer any information. Did he start you on meds when you saw him? If you are pregnant perhaps contact his secretary as he may want to start something. Good luck

Great group lots of useful information. I have a question I might be pregnant going to Mr S for my results, has anyone else had similar experiences? Not sure what he will say?

@Maddox no he didn't say anything about diet! But I am seeing him next Monday so I will be asking him then!
If you think of any other questions let me know and I can report back! My mind went blank in my last appointment and I didnt ask him anything!

@zarala just wondered did Dr S say anything about diet? Anything banned? Caffeine eg? Sugar? I love sugar and caffeine.....! But gave them both up for each and every pregnancy which ended in miscarriage. When i had my son i drank caffeine throughout and ate my weight in chocolate and kicked off evety day with a bowl of coco pops and that was a perfect pregnancy!!!

@zarala yeah you could be right on rekindling some romance. He has been working out again and his abs are looking mighty fine he doesn't need any sympathy he just needs to get the job done.
The hidden tests are a bit controversial. Send some menstrual blood (yeah i know ) apparently they detect hidden infections in the endometrium. But as i saod very controversial some have reported positive results...i have been googling and found a company in greece (who process that hidden infections test) and they do a lot of blood tests for the IVF place i was thinking of using. But a whole lot cheaper than at mr S's clinic. They arrange special collection of the blood just need to find someone willing to drain me of my blood which shouldnt be too hard! Just thought if i could save some money all the better!!!
Yes keep me updated. I am dreading getting my ovarian reserves tested. Will do with next period - get the scan and blood tests. No doubt will plunge me into the depths of depression....!! Good luck!!!

@Maddox hahaha! Gosh your poor OH! That's a lot of pressure to perform isn't it?!
Can't be easy- I wonder what Dr S will advise regarding that! There must be some kind of solution? Maybe popping it in a cooler? Haha
But yeh I know exactly what you mean about ovulation and sexy time! I have never used Opks but I do tend to know when it's fw, and it is so sad and strange to not be taking advantage of it. But whatever shave your legs and enjoy your OH's body for what it is! And not just a sperm donor lollll- I have been using this downtime to rekindle with my OH as I know once we get on the TTC game he really is gonna have to perform his duties!
I'm sure it's not your last good egg- Although I totally know that feeling!
I have never heard of Greek hidden tests? What is it?

With regards to failures under dr s there are a few- I am sure there's some on this post- and maybe on other forums where women under his care have had MCs, however the only ones I have ever read about found out that it was due to chromosomal issues of the foetus so nothing anyone could have done to prevent that! It is crazy how many fans and positive stories he has, which really makes me so impatient to see him and get my results

My 3rd AF arrived today , cd 25 which is really early for me, so I'm off to the blood lab tomorrow so they can finish my blood tests (hormone checking AND most importantly said he'll check my ovarian reserve! I can't wait to find that out!

You will see July will come so quickly! It is literally just 1 cycle away! (Right?!) you'll get there!

I'll keep you posted on my results and stuff!

@zarala the problem (actually one of the problems) i have with the OH is his lack of desire to perform outside of the house. This coupled with the fact we live in an area where there are no real fertility places within an hour. Even our NHS hospital which does sperm anaylsis is an hour away on a good run so im not sure how i can get round this... but i am nothing if not persistent and if he needs to sit in the car in the car park avec tissues and a bottle (whilst trying to not get arrested for indecent exposure) thats what will happen!! How are you getting on? I have been monitoring with OPKS to see what my cycle post miscarriage will be ans i am starting to get a line. I am SO torn as i am used to seeing this dark coloured line getting the legs shaved and crackinh on but now i guess i need to hang fire and wait which feels really wrong. I worry this egg might be my last one.

@FannyDaggers that name is amazing!! 7 miscarriages? Oh my gosh that is awful. My 3 seems too much to cope with. And waiting till august is some sort of emtional torture. I see the Big Man july 11th or 13th or sometime round then and driving myself crazy during thr wait. But fingers crossed good things come to those who wait....

Have either of you heard about the greek hidden tests? The clinic i contacted about IVF offer them and seems to have positive reviews but i am not sure. Also i tried googling dr shehata failures. As there must be people who he has failed to get pregnant (indirectly...) but where are they? Where are the bad reviews??? Hope you are both doing ok....so no TTC until seeing The Man....i will try my hardest!!!!

@FannyDaggers your name always makes me chuckle!
7 MCs! Wow I am so sorry you have had to experience that! You are a very brave and strong woman!

Yes The appointments have come up much faster than I imagined! I am a bit anxious about the results but also can't wait to find out!

@Maddox - the sperm comet website describes everything really clearly- the reason I specifically recommend these guys as I believe that they are the only company who actually test the DNA of the semen and
Not just a regular sperm count
OH had to collect the stuff and make sure he delivered it to the lab within an hour- luckily we live half an hour away from the London lab. There is an option to make the deposit there too but OH preferred the comfort of home lol

Hello @Maddox sorry you find yourself here too but nice to meet you all the same. I’m also TTC no 2 and have 7 recurrent miscarriages on the last 3 years and 1 prior to my DC being born. I’ve just had my appointment confirmed but it’s not until August as my holidays and Dr S’s are clashing ☹️ I’ve asked his office to let me know if they have any cancellations but looks like we have a wait of 3 months now which im struggling with due to my already advanced (!) age and the increased wait before trying again ...
Hope all ok with you @zarala your appointments not far now!