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Immune/NK issues - aka Pred Thread no.20!

960 replies

harrietm87 · 18/07/2017 11:42

Hi all, thought I'd get the ball rolling on the new thread.

Welcome all with immune/natural killer cell issues.

It's been a while since a new thread so thought it might be helpful if we all added our stats:

I'm harriet, age 30, TTC#1.
3 mcs (2 at 5 weeks, 1 mmc at 9 weeks).
Hypothyroid and high NK cells.
Cycle 2 on pred!

OP posts:
Thread gallery
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harrietm87 · 29/08/2017 21:31

Aw seeking I want to see your beautiful baby too!!! Good luck to all of you with your appointments tomorrow. Let us know how you get on!

I'm meant to have my follow up NHS scan but have a big deadline at work so don't think I'm going to make it - really pissed off! I rang them earlier and they said I could move it to Monday, so I will do that I think, even though my next Mr S is next Friday.

OP posts:
Seekingmiracles · 29/08/2017 21:26

Mine going in the back door too!! Lol!! Far less messy!! Hate that drippy feeling! Sorry TMI!!

Amy I'll have Tallulah with me so if you see a blonde, blue eyed baby accompanied by a very bloated (fat) mum and a silver haired dad.. say hi!
I'm glad you feel more confident in taking the drugs too. It's a lot to take on board.

I'm honestly worried about how big I'm gonna
My name is Lara btw, you don't have to call me Seeking! Haha! Im seriously gonna have to reign it in!!
Had my appointment with my NHS consultant today... they're already pushing for a VBAC... I want another C section.... I may be crazy but I had such a positive experience with Tallulah, it was great!

Sheepy1980 · 29/08/2017 21:23

Thank you Luna, DH and I did some major talking about things and this is our fresh start.

LunaB · 29/08/2017 21:18

Welcome back sheepy babes

Sheepy1980 · 29/08/2017 21:05

Well I am back from the Great Dorset Steam Fair, what a week AF finally shown her face and it feels a relief. I am now gearing up to start bbt this month. I am also putting DH on supplements.
Welcome to all newbies, I am Sheepy I am waiting for my appointment with Prof Quenby and I also have an appointment with my local hospital in the women's health unit, to discuss the plans for when I get pregnant. Like others my M/C history is not good nor has the aftercare but it is past and our future is what is key

LunaB · 29/08/2017 19:20

So, backdoor moonfaced bandits we are then... I'd rather be that, than stumble around alone like I did after the first 2 MCs #girlpower 💓

JustLa · 29/08/2017 19:11

Yes you need them! I've been throwing 2 big peeled oranges with a passion fruit and load of ice into my nutri ninja, hits the spot! Also had a greggs tomato soup, best thing I could find at service station and it was unreal!!!! I'm currently attempting my own version in an oversized chequered shirt, leggings and a big bloaty belly.

In 'hind'sight ... back door is probably best. I have a crappy MC memory attached to them so I just avoided but yes, it can come out a little if you get up in the night for a tinkle etc. It's mostly wax, apparently it takes around 30 mins to absorb the meds but still always worry it's not fully absorbed by my 2am wee.

Luna you're hilarious, we need tonnes of giggles amongst the pain in here. We've all been through total shitsville, smiles with you lot are priceless ❤️

harrietm87 · 29/08/2017 18:56

Haha I love you girls - so much hilarity on this thread amidst the sadness and paranoia!!!

Yes luna I had the super squinter at 10dpo, weirdly was a bit more obvious on the IC than the FRER. I've reattached the pic of my loads of frers - the second from the top was 11dpo and a definite line, so think you'll be in a good position to test then. Though still not a definite negative if you get a bfn. I'm so rooting for you!!!

Omg just I need to get those lollies - I am also craving really cold things - have been having OJ with lots of ice - don't know why an orange ice lolly hasn't dawned on me as the ideal thing lol!

Yep luna and amy I heard that the back door was less messy too, and I haven't had any issues with it (although it's obv not pleasant!) so would prob recommend. I've heard it can leak out the front which I wouldn't want, but maybe just has had a fine experience?

Aw take your cat sounds just like mine! Except mine would be pawing at my face not looking at me! We have to barricade our door shut for this reason - he can open the handle and likes to wake us up early, so we have to push a laundry basket in front!! He is totally spoiled and prob would be jealous of a baby poppy, though he's so demanding he will make sure he gets attention!

Re Mr S, I've always found him to be very short and to the point, but he was SO nice at my last scan and seemed genuinely happy for me, which was really nice. I guess he is super busy and often has to give bad news so is used to being very matter of fact. I'm so glad I found him though!

Immune/NK issues - aka Pred Thread no.20!
OP posts:
LunaB · 29/08/2017 18:30

Or like movie spies, where one asks the other to confirm their identity with a secret phrase/response:

"How do you wobble"
"By moonlight of course"

JustLa · 29/08/2017 17:59

Lmao Luna!!

My intralipids just changed to 11.45 as my consult and intra were too far apart, may not see any moonface wobblers after all :(

LunaB · 29/08/2017 17:47

Girls,you've got to coordinate this better! Like a loaf of bread or a cluster of oranges sticking out your handbags as way of Prednet Princess identification 🤣 Or you'll end up freaking some poor brunette right out as you randomly ask her about her back passage, Zika, stalking cats etc.

LunaB · 29/08/2017 17:45

Aha, so Harriet's fainty was day 10! Ok... good to know....

JustLa · 29/08/2017 17:36

Amy I'm so glad you're feeling better and the emotional side way surpasses any physical effect I've had from this pregnancy, thanks for your support with my wobble! Lol
I may get in earlier for intralipids as my consult is at 1, but I have same description as you! Just add -big belly and spots- to that haha.
Would be lovely to see you and seeking and say hi

Xx

Amy2017 · 29/08/2017 17:34
  • Used to BEING precise at work

Grammatical karma.

JustLa · 29/08/2017 17:33

Wow yes DrTtc, I have a sheet of rather impressive acne on my chest that's recently progressed to a catagory 3 break out, raising up on to my face! I look like Woogie from 'there's something about Mary'!!! 😂
It was the only thing I wasn't blaming on pred tbh lol. I'm comforted by the fact that yours went as although I can cover it now, it's pretty bad and looks like it will scar!
Hope you're feeling better soon, and hope you can enjoy resting even with your little one needing mummy 😊

Harriet- My orange craving is back with a vengeance! And I need to tell you about Tesco Finest Velencian Orange ice lollies.... closest I've come to a sexual experience since my bfp!!!! 😂

Poppy, I'm so glad you've got aspointments sorted. You're so Savvy, you've totally got this, you'll be on the pregnancy express before you know it and our babies will all be 2018 bubs I'm sure 😊
The doc at the hospital said my womb most likely moved and tilted and took my cervix with it, makes the perssaries easier anyway (tmi lol)

Take4, yes I loved using that! And you made me actually Lol with the static cat face comment 😂

Luna, so exciting! I tested 9dpo and didn't show. Tested again at 14 dpo and showed strong on several tests. Was a mistake to leave it that long as spent 5 days without pred which panicked me so much! They te you to start testing with First response tests on day 10... Harriet got her fainty line we were all squinting at on that day ❤️
With Cyclogest, I worry the back will make me wanna 'go' lol

Xxx

Amy2017 · 29/08/2017 17:32

Just - loved your little late night wobble :). To be honest, they've all been really lovely at the clinic and on the phone. I even appreciate the directness from Mr S. I guess I've just been surprised at the mistakes, as I'm used to be quite precise at work.

We are all highly emotional creatures while we go through these distressing experiences. The smallest oversight can seem so huge to us. Hmm, but I wouldn't say freaking you out Just by writing-up accidental smaller bub measurements is a 'small' thing though! Gah! My follow up letter had an error in it too, tut tut.

Seeking - I'm at the clinic at 2 then I've booked in to get intralipids at 4, so I might see you and Just there! I have long brownish blondish hair. I'll be the one looking a bit terrified.

Golly gosh, Harriet and Just, I have to CHOOSE which passage for pessaries!? Crumbs! Is there no end to the confusion!?

Sunny - thanks, I just want it in my system now too! I'm so much more convinced than I was yesterday. And thanks everyone for helping me out on that decision. No-one else I know knows what's it's like to go through this. I very much appreciate it Flowers

LunaB · 29/08/2017 16:20

And Harriet, my friend with Lupus and therefore on the same protocol practically, said that she found it much easier to shove the old pessary up the back passage, "less messy" as well, whatever the hell that means!! So, I'll prob be going straight for the rear 🤣

LunaB · 29/08/2017 16:16

8 DOP, 4 PTD (Potty Training Demon)... testing Friday I guess; which is day 11... but I'm so sceptical about showing that early, I've never seen a positive tha early in all my 4 pregnancies - so I guess I'll stop Pred if negative on Fri, keep testing until AF arrives or BFP - then get back on the Pred.

I can't remember, how many days were you guys DOP when you got a positive?

Flashy face all the way Take! Although this was only 2nd time I've used the little beauties, before just counted and aimlessly boinked 🤣

Good news re doc Poppy, throw money at the problem and let the specialist guide you through it all

Take4 · 29/08/2017 15:44

@JustLa I'm doing the flashy / static smiley face malarkey (it haunts my dreams!) as it give me the illusion of having some control over this baby making business!!

@harrietm87 the other static face I woke up to this morning was my cat sitting there quietly, staring, willing me to wake up. It was 5am. I lay very still pretending to be asleep but eventually had to get up and give him some food - I am a total pushover!!

PoppyJ1 · 29/08/2017 15:30

@JustLa, thanks for your soothing comments! I've booked a consultation with a private doc who specialises in travel issues to discuss the testing. It might be too early to pick anything up from DP's most recent trip. The main issue is that even if he doesn't have it now he could in theory get it any time whilst TTC and even give it to me through sexual contact. The advice is to use condoms for the duration of pregnancy if male partner travels to a Zika zone. I think this is too cautious for "moderate" risk areas. Hopefully tomorrow will shed some light.

Your cervical adventures made me laugh! I've googled this recently too and so many women just don't know what the hell to look for! It's not like we can compare it to what it was like before TTC and pregnancy because we wouldn't have bothered checking. Fertility Friend (now deleted) ranks cervical position and texture as a secondary sign. They do seem to move around a lot. Hope you're managing to enjoy it a bit now you're officially out of the dreaded first trimester.

@harrietm87, loving the cat interventions. How sweet! Do you think it will get jealous when the baby arrives?

Drttc · 29/08/2017 15:08

Sunny I feel your pain! I consider 5-6 hours of consecutive sleep a huge win. DS has only just started kind of sleeping through this last week, and that includes usually waking up at 5:30, but one day started at 4:45 and another at 4am. Like you I'm absolutely DEAD come early evening but it's hard to shut off when you know it's the only bit of down time you'll get before it all starts again.

Justla I'm not sure how the pred affected my energy last time as I have DS now. But I remember I had no trouble sleeping and was certainly very fatigued! Difference was I could sleep whenever I wanted haha. My morning sickness felt the same as well so I suspect I'm the rare few that didn't have my symptoms masked by pred. Though I certainly had the horrendous skin! My skin's always been kind of in the middle (not perfect but not really bad) but oh my goodness, for the first time I was actually embarrassed of it! It took a few weeks off pred for it to get better and then it was amazingly perfect right up until my cycles came back at 8 months pp. Haha!

JustLa · 29/08/2017 15:02

Pretty tired but relaxing a lot Harriet :)
How are you coping with work?

Luna, where are you at with testing?? It's gotta be soon right?

Take4, good luck for this round! What technique are you going for? Random boinking and hoping for the best? Flashy face kits? Whatever it is I hope it works!

Xx

Take4 · 29/08/2017 14:31

Hi All

Just checking in as I am really enjoying the threads and keeping up to date with you all, even if I am more of a silent member. Welcome to the newies!

In the next week I will be embarking on my second dose of pred and fingers crossed something will stick this time - you ladies give me hope!

Interesting reading about the different experiences of the clinic and Dr S. I keep emailing with questions and am sure they must think I am a total pain in the ar** but I have just needed clarification on some things.......maybe I should ask more questions on here!

Anyway hope everyone had good bank holiday weekends, I could have done with another week Smile

harrietm87 · 29/08/2017 11:20

Omg 5-6 hours?!?! How have you been coping! I've been getting loads
of sleep but my problem is my body clock seems to be shifting forward - so I start getting unbearably tired at about 5/6pm, usually manage to stay awake until 9.30/10pm, but then am up at 6 - it's so weird! I've been trying to force myself to stay in bed once I've woken up but I keep needing to wee and once I've left the bedroom it alerts the cat to the prospect of breakfast and he then won't stop miaowing until I've fed him! Don't know how I'd cope pregnant with a child!

OP posts:
JustLa · 29/08/2017 11:10

And Harriet, My sleep has averaged at 5-6h per night on pred, but last night I got 7h50!!!!!!!! Could be the tapering off 😊😊😊🙌🏼

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