Immune/NK issues - aka Pred Thread no.20!

Thanks Harriet for the info!

Sorry to hear lots of your men are away ladies! Mine is out after work tonight so will be home, but snoring loudly 😂

Mine's gone too Harriet, for a week! So I just text him his 'homework'

I see.... I will inform husband he needs to ensure new sexy sperm is available on demand

And maybe I should look into charting... the less time on steroids the better

😂Harriet- that made me laugh! I am sure your friends are very glad you decided not to DTD whilst camping if sharing a tent! You can't change what's happened re ovulation- so keep thinking positively-easier said Han done! When does DH go away? That's interesting about the super ovulation- I am not sure if he will offer it, but I guess if I am having the scan anyway he might? How much extra was it?

Thanks for the tip about the BBC story poppy - will have a look at that. Sounds very positive though. what day are you in your cycle poppy?

Luna- I guess the only reason for being a bit more precise with when you ovulate now, is that you'll then know when to start taking the steroids? It does make you more obsessed about it all though. I have been temping on and off for a while as I was doing it for my acupuncture - this helped to lengthen my cycle a bit - and really could be a coincidence, but was 2 days longer in my luteal phase this month and went back to acupuncture. Either way, it helps me relax so I am going to keep going again at the moment.

Had my first glass of wine in a month tonight In commiseration of AF arriving - feeling tipsy just with one glass!

Old sperm! Dear god - I had no idea I'm supposed to worry about that too!

Still trying to work out visas and dates, Starshine! Will update you when there's progress and whether or not it falls around O day! Have to say I got side pains followed by creamy cm and generally more cm this week, plus terrible cramps for about half an hour today. Did make me wonder if last O window actually failed and my body is having a second attempt! Did a couple of OPKs which were negative, but didn't do it religiously.

So all of you worried about age and fertility should check out the latest BBC story on maternity trends. It leads on rising number of babies born to foreign women (yawn) then mentions rising fertility among the over 40s. Then a lovely quote from a fertility expert saying "its's a reminder that fertility does not stop at 40 and women who have completed their families should use contraception until menopause." So THERE.

Yes you're right Starshine, I'm very lucky I have the option of Mr S... I'm just in a wary negative place with all doctors as I've yet to meet one who was sympathetic and helpful - although I have only seen Dr S twice for 2 seconds, so he has time to make it up to me - I need the intreplid every month from 4-16 weeks preg...

At what point did you (all) start looking at egg reserves? Should I be tracking ovulation in a more scientific way also?

Dr S told me that the NHS doesn't [always] test for NK behaviour; mostly just the count. I have totally normal NK count, but they aggressive little buggers. This info made me feel the £££ was worth it with him, as if I'd been tested on NHS the results would have come back "normal"

I agree with poppy- reckon you've DTD at exactly the right times and you couldn't do anymore! Does the trigger shot increase chance of fertilisation or just stimulate ovulation? Fx for u Harriet!

Af arrived today! Felt quite controlled doing the temp as my temp dropped today. However I did keep imagining I felt sick for the last few days and constantly prodding my boobs 😂. Have booked my scan for next thurs and having blood tests this week, so at least then I will find out about ovulation and ovarian reserve! But being more zen like thanks to your comments ladies.

How regularly do you need the intralipids Luna? I work in an antenatal clinic once a week and was speaking to one of my obstetric friends about it all (he has been brilliant for advice and support and luckily meant all my frequent use of epu locally has been fantastic)- we both concluded that RMC and fertility problems are a mindfield - no conclusive evidence and at the end of the day we do what we feel we have to hoping for that rainbow. He knows mr s and does think he is a nice guy - if that helps at all!?! Also I know we have to pay lots for it! But at least it feels like he cares and we are doing something - I saw st Mary's RMC in may for tests- they expected me to wait until sept for the results (so in theory they expect me not to ttc in this time). I have complained and I asked for the results to be sent to me as there should only be a 6 week follow up wait- today I chased it up and got and email letter back with the results- basically say all is normal but they still want to see me in sept to discuss the treatment plans- which I am sure will simply be aspirin! So having seen that am so thankful to have the option of mr s.

Hope all is ok sunny?

And justla? Was thinking about what you said about mr s and your work- remember you need to do what's right for you and if that's working from home, that's what you need to do.

Have you booked a date for your trip to see DP poppy?

Really sorry for the essay ladies!

Harriet, according to most schools of thought, you have totally done enough!

OPKs and most TTC guides say having sex the day before ovulation and the day of ovulation are the best days to have sex. So you're spot on! I think the thing about having sex after O day thing is to cover you in case you ovulate late. Even if you ovulated a day late, you're still covered by your second session as "day before O day." :D

Dr S has me on on the intralipid things until 16 weeks... sneaky - I can't ditch him

Got my GP to prescribe all the meds, but I feel tied into Dr S as GP made it clear I'm not their problem

Lara 33
4 mcs (2 before 6 weeks, one blighted ovum at 9wks, one chromosomal loss at 8+6)
1 daughter, Tallulah- 9months
High nk cells, pro-thrombin gene mutation.
Currently 5ish weeks pg with (hopefully) #2

Sunny, so lovely to hear from you!! Did you see Tryings post? She's pregnant too!!
Hope everything was ok with the reduced movement, it's so worrying isn't it!

I'm currently sat having intralipids #1. And being fleeced of yet more money for liver function and thyroid checks.
BUT I have managed to get my gp to prescribe my steroids so think once I've had intralipids #2 I'll ditch Shehata.
Shame healthcare at home don't do it anymore

Harriet I think I probably did hold you up!! Was chin wagging for too long, my head was all over the place, lol.
It was a great idea to give our intro's again as I had never seen them before. Have been so moved by reading everyone's, with my raging hormones plus the extra progesterone pessaries and pred, my heart is actually physically aching thinking about the pain it's caused you/us all and not many people will ever really have to understand it (thankfully). Looking forward to a time when it's a distant memory for us all, while we enjoy our families ⭐️

Poppy, I'm so sorry it's affected you in that way, it's heartbreaking. It just adds to the trauma of it all, I hope you are able to manage it with the help you're getting. And thanks for your lovely words again, I keep trying to rein myself back when I'm feeling too hopeful- self preservation.

Luna, I'm so glad you found us too! I know exactly what you mean, I tried searching in date order and the posts are still all from 2009 etc! There's still time to turn this dodgy year around- Politically, it may be a lost cause, but we aren't!! Lol... hopefully it can un-f-off for everyone sooner than later

Xxx

Hi ladies!! What a load of beauties you all are!!

Good god I never even heard of egg reserves - I'm totally naive...

I'm still in total denial this is all happening and after 2 miscarriages in 4 months, now these diagnoses and the upcoming treatment I can safely say 2017 can F-off!

Sunny, what a slog you've had and what wonderful results! Hope the reduced movement is just lazy baby - my son barely moved the whole time and I spent daaaaays on the Ward getting him checked - the little menace!

I'm glad I found this group! I've spent months reading posts from like, 2004 🙄, and desperately wanting to ask questions or connect with these people who were long gone!

JustLa, I am fine thanks. And thanks for your lovely long message on the other thread which I didn't manage to reply to! I am so, so happy for you and you are absolutely entitled to allow yourself some relief and hope, if you can manage to at such a nerve-wracking time.

Yes, my fear of blood came as a result of my incomplete MC. It's only if I see drops of it during AF, I just start crying because it looks like what happened shortly before the MC. I'm sure it will get easier, it has only been happening since TTC again recently; I always manage to convince myself I'm pregnant every cycle

Great news on your pregnancies SunnyDay!
I understand exactly the paranoia you're talking about, especially with our histories. With everything that we have been through, you can't help but think you're destined for failure. But you've had one lovely child and are so close to your second, which is awesome.
Good luck on your appointment today ❤️

Ps- I meant my fingers crossed for a BFP for you Star (and anyone else testing of course) ... it read like I was hoping for another one myself which would be confusing

whoa! - I don't pop in for a few weeks and the thread has gone crazy - so many new people and posts!

To all the newbies on here, sorry you find yourself on here but i found this thread a massive help when I was going through it. I found it comforting that other people were going through the same emotions and feelings, esp when all my friends seemed to be getting pregnant and having babies so easily!!

Rosa - lovely to see you back on here. As an only child I had a great childhood and honestly thought Toby would be an only child too. But saying that, do you think its worth giving it a shot and seeing what happens?

seeking - so lovely to see you on here and to hear your news! its funny how some of us old timers who had such trouble last time have found ourselves getting pregnant relatively quickly this time!

snoopy - so close now, although life sounds a bit chaotic - hopefully baby no 2 gives you a couple of weeks for things to settle down!! lol.

My history is 2 m/c one 1st at 8 weeks, 2nd at 5/6 weeks. Saw Dr S, at which point hadn't had a bfp for nearly a year, took another 6 months and super ovulation to get a bfp, sadly mc at 5 weeks again. Added hydroxy in to the mix but stopped SO. Also stopped the pred for a couple of months to give myself a break from it, got a bfp which stuck and took pred from bfp. DS1 born in Jan 2016. In Jan 17 found out I was expecting again - wasn't on any drugs as it was a bit of a surprise. Took it all from a couple of days from bfp apart from hydroxy and here i am at 28+6 with DS2! I'm just waiting for my mum to get here to take me to the hospital as i've had reduced movements over the last 24 hours. With my first pregnancy i was paranoid about every symptom, lack of symptom, and very anxious - i think it is to be expected after what we have been through. I honestly felt i had been pregnant for abut 2 years by the time my son was born as the days just seemed to go so slowly. This time I haven't had so much time to concentrate on being worried about whats going on, and been much more what will happen will happen, but i still now get bouts of anxiety about it all going wrong.

Hi 😊
Thanks Poppy for helping me find the thread 🙌🏼🙌🏼

My intro- So I'm 38 years old.
Started trying 5 years ago, had a chemical MC at around 5 weeks. Took a break... fell pregnant again and had a MMC which completed at around 11-12 weeks, another break then Feb this year had another MMC and opted for D&C at around 10-11 weeks.
Both pregnancies stopped developing at around 6-7 weeks.

Went to Mr S and got positive for high NK and very High antiphospholipid (sticky blood)
Am now 7 weeks pregnant on Mr S complex plan taking prednisolone, cyclogest, heparin, aspirin and some other vitamins etc and I got my first ever positive scan yesterday 😊 Still a long way to go as my Blood condition is dangerous throughout whole pregnancy but, my first check point was hella positive!

Welcome Luna and Lisa :) sending good luck vibes out to you!

Star, you ARE still young. I would like 2 children ideally (all going well) and I'm 38 hopefully progressing with my first 🍀 My husbands parents had children later on as they struggled to conceive and they were the most amazing parents for it and managed to stay young at heart. A good ovarian reserve is comforting but not the be all and end all, and you're so right- the sooner you know, the more steps you can take to protect your future chances!
I am still working from home, although Dr S didn't seem to approve of not going in to work, or my questions on injection techniques to minimise bruising... I think he expected me to be tougher! Lol
I still have my fingers crossed for a bfp, it happened to me when I thought there was no chance :)

Harriett, I can't remember anyone with a pink t shirt but I was there between 3pm and 3.45!! Small world 🌍 I was the one with long blond hair, floral trousers and a crazy anxious look on face.

Poppy, how are you feeling today?

Hope everyone else is doing ok and manages to find us here

Xx

Starshine, if you get a BFP tomorrow I'm going to laugh my head off! After the little whoops of joy all round.