Immune/NK issues - aka Pred Thread no.20!

The pred AND cyclogest AND your normal hormones will make you very jittery! Mine peaked at around 8-9 weeks and I felt like I had no idea how I could cope with 9 months of this. Thankfully, your natural hormones stabilise soon (mine started to somewhere between 9-10) and you need to get used to the pred too so you should level off and feel stronger soon 😊
You mean you've booked in for scan? Yay! Is it soon?
Home birth sounds great!
Xx

Just nausea still awol, but i booked in today which was a HUGE milestone as normally i have not seen a viable heartbeat so cancelled all bookings. Am mega jittery and the midwives say it could be pred and they want it reviewed next week as i am sooo jumpy, nervous and not like my normal mellow self. But in big news, that dh is not even aware of yet i booked to have home birth! Now to give myself reasons why and convince Dh. Other than Ds was 2 hours end to end with 20 mins ina pool after a full delivery ward meant i laboured in the corridors!

Thanks Seeking! I think he told me that about a 9 week scan haha, and the NHS sonographer said at 12 weeks all organs etc have formed and just need to grow, so I've decided I'm never allowed to relax!
I'm so scared of feeling optimistic but a little bit of excitement keeps creeping through. Next goal- screening for issues. Your scan is almost just a week away now right? Will put my lucky scan knickers on for you 😂 (I really do have some)

Harriet you are so right about the goal posts, there's always a new goal ahead but think we have to break pregnancy down into bite sized chunks as it's such a long haul! I had never seen a HB before either, I can't wait for that to happen to you although you soon realised you have 100 more hurdles to get over shortly after, lol. I think your 1st scan is perfectly timed, any earlier may be too soon for HB... will make sure the lucky scan knickers are washed again for that!

Luna it feels like such a lot of time lost doesn't it, so frustrating but I'm so sure you'll have success soon with Mr S!

Hope you are feeling less wobbly today Drttc? Scan is getting so much closer.

Stuckin, how are the symptoms going today? Hope you're feeling better about your nausea etc lessening

Sheepy, the end goal will be worth it. Hope you manage to get the scan soon to ease your mind.

Any news on the symptom spotting front Poppy? Are you home safely now?

Xx

I'm certain you are stronger than you think Sheepy 💪💪✊️

Luna it would be good, I am not brave or in the least bit strong that accolade has to go to DH and DD. I am now waiting for my dr to get back to me as 2 weeks for pain and feeling crap is too long. I have managed some housework today but not a great deal

I know, me too. Since 1 January 2017 I've been pregnant or miscarrying or waiting to try again or to see a doctor or to start meds...

I really hope all of us are safely pregnant on 1 January 2018 and can put this year behind us!

God it all goes so painfully slowly!

It's because by that point the placenta has developed and has taken over.

Interesting Seeking, that it's 10 weeks, which are so vital!

Welcome on board Stuck, what a roller coaster!! But congratulations on your pregnancy, I can imagine it's been a pretty tough few weeks with all the ups and downs! Hope the next few weeks are smooth sailing for you.

Sheepy... how have you got to where you are without falling apart. Massive respect to you for keeping strong and continuing. I always said 5 would be my limit. You're a stronger woman than me.
I really hope you get some answer re your incomplete mc. And I hope you find this group a place where you can off load and get support.

Just congrats on your 10 week scan! MrS says 10 weeks is really the crucial one, not 12 weeks. So hopefully you're out the other side now! You seem to ha e such a lovely NHS support system behind you which always helps. I had that with my mcs before Tallulah, but have since moved and they're not so personable and caring.
I've got my booking appointment tomorrow so I hope the midwife is a good'un. I know a few of them from last pg so I hope they're still about!

I think being late pregnant during winter is sooo much better than during summer! It's hard work being huge in the hot weather!!

Drttc it's so hard not to get attached isn't it. I told myself I wouldn't let myself think too far ahead but you can't help it. Each day that passes you want it that little bit more. For you to have reached this stage already is a great sign though, so fingers crossed you'll see some good news in 5 days time.

Thank you, my little one is waiting for her Alevel results so she doesn't disturb much other than when she is tidying up for me.
I have not had a follow up scan since the hospital confirmed miscarriage, and my gp is trying to get me another scan but when I go to the hospital they do bloods and because they are sort of normal they send me home but still in pain still feel like death warmed up.
My dr sent the referral to professor quenby last week so anytime soon. I am on a waiting list to see the other consultant but my rheumatologist trained under this gentleman so is awesome and very supportive. I do have Hughes as well so on Asprin too.
I keep trying because I want one more and I know the end goal will be worth it. It is a possible implantation/placenta as all end between 8-9 weeks

Also Sheepy, sorry if I'm giving you info you already have but there's this guy I've heard of. Your doctor can give you a referral. He specialises in Lupus, APS AND pregnancy! I think he's 'the man' for your Lupus issues.
If you have the energy, tell your doctor you must see him

www.lupus.org.uk/news-events/research/lupus-research-team/263-professor-munther-khamashta

Xx

Morning all 😊

Hi Kate and welcome to our lovely little group.
My heart goes out to you, how you've made it through all that and still have the spirit to keep trying is amazing ❤️

I have APS which is connected to Lupus, have you been tested for APS? (also known as sticky blood) The NHS test for it so I would think so. I think you should be on heparin injections when pregnant and definitely low dose aspirin throughout as I believe lupus also can create the little blood clots in the placenta that stop baby from developing, like APS.
I've heard of Prof Quenby, you can ask her about heparin. I think you'll be in great hands and she will hopefully put you on the right concoction if and when you feel ready to try again.

With the suspected incomplete MC, have you had an internal scan to assess the womb wall thickness? This should be able to tell you if you still have tissue to pass.

Stuckinstressville, I had a couple of drinks in that time too! But I think if that had effected anything it would have presented its self by now :) You've done so well to keep hold of this little one, it's obviously strong! And now your meds have started kicking in you're giving it every chance of success 😊 which is great. When was your last scan and when is your next?
Going back to pred, you asked about risks. The only risk I'm aware of is the risk of developing cleft palette which is very low. I remember Mr S saying he'd never seen one in all his years of treating 1000's of patients

xxx

Sheepy, Katie - oh hun, oh my goodness what horrors you've been through... I'm so terribly sorry 😔 Am I reading this correctly, 14m/c?? Is there a pattern to how and when you lose them?

Welcome and I hope you find this group comforting and helpful...

Did you have trouble conceiving your 1st child? I have a friend who has Lupus and our treatments (mine for aggressive NK Cells) are the same.

When is your appointment with Quenby? I hear she's one of the best the people to see...

How old is your little one? Are you also being awoken at the crack of flipping dawn?

Sending lots of love ❤️❤️

Hi I am Katie I am ttc#2 but have had 14m/c the most recent 26/7/17 and still suffering.
I have been referred to prof quenby and am on 20mg pred 400mg Hydroxychloroquine and 120mg Duloxetine I have Lupus and Fibromyalgia as well. I am waiting for my initial appointment but still playing hospital ping pong with what me and my gp think is incomplete m/c but no one will agree 😡 As blood tests are normal and obs but my temp is high as I bbt and I know my normal is the low end of 36

Just - sorry for your losses. I had 6 weeks natural unplanned last year ... then two mmc in Dec and march this year at 10-11 weeks, one stopped at 7-8 weeks and one was twins but 7 weeks- erpc for both - hence why we were taking a break as I get my body needed time and to lose
Weight as I hit 89kg. So went on a diet in June a strict 1200
Low carb one and hit 83 kg again allllll whilst pregnant, drank a lot in what
Would have been the tww as well! Aghh! Ds is 22 months.

Stuckinstressville, sorry to hear your harrowing story. You have come to the right place.

The Pred has some rubbish side effects including weight gain, disrupted cycles (not your problem at the mo) and mood swings. There are in fact loads but these seem to be among the most common in the group. Keeping an eye on your salt intake can help with the with the weight gain, as can increasing potassium to counter the salt. I read this and tried it and believe it works. I've been on 5mg then 2.5mg, someone on a higher dose may be able to better advise you. Personally I think it's all worth it because it seems to dramatically reduce miscarriage risk.

I do hope your scan goes well.

Aw thanks for welcoming me :)

I am on pred but no idea why!! he muttered about auto immune issues - I have hashimotos. But never was tested for other than The basic suite of nhs rmc blood results

Prednisone scares me as only been on
It for lung issues linked to asthma :)

Congrats on being 10 weeks!

Forgot to mention, I've had 3 MC's- 1x chemical at around 5-6 weeks, 1 missed which I passed naturally at 11 weeks and 1 missed that I had an EPRC operation on at 9-10 weeks. Both missed had stopped developing at around 6-7 weeks so I'm way further than I've ever been!

And prednisolone is sometimes prescribed to women with severe morning sickness to reduce symptoms so def masks sickness x

Stuckin, welcome to our chat ❤️

I'm so sorry you've been through so much, I have also heard it's common to lose a twin, but I don't know if that can help ease the stress and pain you've been through.

But congrats on your pregnancy and the little baby you're baking! Heamatoma are also very scary but thankfully there are many success stories with them. A best friend of mine had a huge one and thought she had MC'd but now has a perfect daughter of 5 years old :)

The birth of your first may have triggered something that's stopping your pregnancies. What have you been diagnosed with? NK cells?

Here's what I know about the side effects (currently 10 weeks pregnant here on 25g prednisolone, a shot of heparin as I have sticky blood clotting disorder and cyclogest progrsterone pessaries)
Cyclogest boost your progesterone and strengthen womb. With the hormone increase can come bloating and high emotions as well as probably increasing other preg symptoms.
However, your prednisolone will almost certainly reduce breast tenderness and nausea for a start.
Also can cause more bloating, weight gain, moon face and make you feel a bit boosted.

Basically, the meds do mess with you a bit and mask pregnancy symptoms and make you bloat like a whale!!! (They have done with me anyways)

I hope this helps and am excited for you!!

Welcome again xxx

Luna I also suffer from poor grammar , fast fingers , and verbal diarrhoea..... :)
9 weeks this week and they shoved me on the meds in the hope I will not
Mc. Losing a twin is very common so I am not dwelling. Seen a heart beat for the one I have and keeping legs crossed.

Off work for two weeks as gp was great but dreading side effects when I go back next week!

One thing that worries me is that my
Sickness has disappeared....

Sorry! Got it, 9 weeks 🙃

I'm yet to start the meds, so I'll let the other girls hit you up with tips and tricks - welcome 😚

Wowzers Stuck - WHAT a story! I'm terribly sorry for the loss of your dear twin, how sad for you Hun...

Welcome to our TTC, Pregnant Wobblers Club!

So, sorry I'm a little confused, how many weeks pregnant are you now? And, are you healthy after the loss of the baby, or still bleeding/suffering from the miscarriage?