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Conception

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Immune/NK issues - aka Pred Thread no.20!

960 replies

harrietm87 · 18/07/2017 11:42

Hi all, thought I'd get the ball rolling on the new thread.

Welcome all with immune/natural killer cell issues.

It's been a while since a new thread so thought it might be helpful if we all added our stats:

I'm harriet, age 30, TTC#1.
3 mcs (2 at 5 weeks, 1 mmc at 9 weeks).
Hypothyroid and high NK cells.
Cycle 2 on pred!

OP posts:
Thread gallery
14
Sheepy1980 · 10/08/2017 15:54

Have been told to make a formal complaint. Off home for a hot bath some paper cutting and food..

PoppyJ1 · 10/08/2017 15:13

Tee4me, if it was me I'd start now, it can't hurt, right? My endo told me to start immediately and I wasn't even in my fertile window when I saw him.

Then again, I've used Pred for other things in the past, like cycle regulation (haha, doesn't exactly have that effect at first though!)

Tee4me · 10/08/2017 14:54

Sheepy I'm so sorry to read this. How frustrating that you knew all along. I definitively find some 'professionals' to be very dismissive of the whole process. I really hope you can get sone closure soon. I found my MMC very sad, as if my body wasn't ready to accept the loss when I was 'retaining products'. Big hugs to you x

CD11 for me and as suspected looking like an early ovulation. Got a positive opk today. The line wasn't there instantly, but it was definitely as strong as the control line within 5 mins. I'm expecting I'll ovulate tomorrow or early Saturday at the very latest (if I've just caught the beginning of the surge). Should I definitely start the pred tomorrow, or wait until Saturday??

Immune/NK issues - aka Pred Thread no.20!
JustLa · 10/08/2017 14:45

Sheepy I'm so sorry, I had 2 natural MC's and then opted for a d&c on my last one. I'm guessing you've had this procedure before?
I really hope they get you in soon. I cried with relief as they wheeled me down to the operating room. It's usually a 15 minute procedure under general if I recall correctly.
After the procedure I was able to start the recovery process and hope it works the same for you.
I hope this hell is over for you soon so you are able to see the light at the end of the tunnel xxx

Drttc · 10/08/2017 14:10

Oh god Sheepy I'm so sorry. It's so irritating that they didn't listen to you and this trait is one of the frustrating things I've repeatedly found in the NHS. It's not fair you had to live with this when you sought help before. I really hope things go as smoothly as possible from here on :-(

PoppyJ1 · 10/08/2017 14:06

Sorry to hear that Sheepy. It's a horrible position to be in. I went through it in January and the process took three weeks. I did manage to avoid a D&C though. I had initial bleeding, then a few days later it increased and I thought I'd passed it, then I had a scan say it hadn't completed, then I took the pill and passed most of it, then I had bleeding again three days later, then the next day one more solid thing passed followed by a week of lighter bleeding. Tests continued to show pregnant for another week but the next scan confirmed it was all gone. I did have a lot of pelvic pain for a few weeks and heaps of antibiotics. I'm glad I opted for that management but I totally see why in many ways it's better to just deal with it surgically.

It makes me so mad that we have to go through this trauma, many women repeatedly, and that there is so little awareness and often so little advice and support on what to expect, from medical professionals.

In Chinese medicine, miscarriage is viewed as as draining on the body as childbirth. In western medicine it's often treated like a bad period.

REALLY feeling for you Hun x

Sheepy1980 · 10/08/2017 14:05

I will be glad for closure on the whole thing, what's annoying me more is I said last Monday when I was taken to hospital that it felt incomplete but was dismissed as being paranoid because the tests were normal.
I even asked the dr when we were told that there was nothing there

LunaB · 10/08/2017 13:58

Sorry to hear that, yes they should listen more. Idiots. How do you feel about a d&c?

Sheepy1980 · 10/08/2017 13:39

Retained products, perhaps these Drs should listen to their patients a bit more am CD16 so over 2 weeks to wait to see if passes. Which is too long seeing as confirmed mc was 26/7 I am now waiting to be seen to discuss next steps. I don't think it will be anything other than a d&c as I have Lupus and Fibromyalgia

PoppyJ1 · 10/08/2017 13:16

Yes, hope the scan goes well, Sheepy and your get your results promptly x

Drttc · 10/08/2017 12:02

Good luck on your scan Sheepy x

Drttc · 10/08/2017 12:02

Thanks Poppy. Awww bless your DH! I agree with giving your body some credit and faith right now. It's hard to view our body as our friend in this situation but it really is the only one we have- So it's good to treat it kindly (I'm trying to do this!).

Thanks JustLa and Seeking!

Seeking I agree with you about the Doppler. This is as someone who used a Doppler religiously with DS and will probably use it again if I ever get the chance. It's nearly impossible to locate the heart beat in the first trimester and causes so much stress! I'm a glutton for punishment and did it anyways but I wish I'd let myself relax.

Ah Harriet we really are on the same boat. Except I'm an idiot and tested the clearblue at 4 weeks +4! I did end up getting 3+weeks and have now continued testing since as I'm terrified it'll go down. Today was my last test and now I wait until Saturday... ugh! I've also now noticed that I ovulated up to 3 days later in my cycle than I did with DS. So I really need to manage my expectations of what a positive scan will look like.

Sheepy1980 · 10/08/2017 10:48

Dh and I were talking about the christening, we are going to go but make excuses for not staying for too long, we are really good friends with the parents and they were one of the few people that knew we were pregnant as it was not easy to hide. The scan is going to be a thorough one and we want the results today. Or at least tomorrow.
Pain is worse today but the side effects of the pred are kicking in so sleeping less and hungry, still once this is all sorted I will be on the Miranda diet, move more eat less going to be tough on a 12 hour shift but I will do it. Did consider getting the bike out or putting it on the resistance bar

Seekingmiracles · 10/08/2017 10:46

Morning ladies,

Good luck with your scan today sheepy, hope you get some answers.

I did Tracy Andersons pregnancy project for maybe the first 4 months, then got bored and quit. But I did walk 3/4miles pretty much every day because I have a massive dog! Also did a bit of preggo yoga but I found it all a bit weird and hippy!
I probably put on about 2 stone but didn't really weigh myself too much.

Just I really wouldn't recommend a dopler. Midwives don't use them until 16 weeks and for someone who has no medical background it can be really confusing. You may be getting your own hb or if you don't hear anything you'll worry. From 18-20 weeks you'll start to feel movement which will reassure you. I know you just want to know that all is ok but I think having your own dopler is more likely to make you more paranoid.

Our reveal was at 16 weeks, with a very gorgeous baby grow from JoJo that has little rainbows on, alongside our scan pic.

6 days until my scan.... feeling very disconnected still.
Had my booking appointment with midwife yesterday who was lovely. Just hope I don't have to make that horrible call to tell them it's over.

Fingers crossed for you Drttc. Really hope you see a heart beat but you know that it's still quite early.

PoppyJ1 · 10/08/2017 10:44

Which auto correct wouldn't keep correcting pregnant to pregnancy! Both are valid 😣

PoppyJ1 · 10/08/2017 10:43

JustLa, a Doppler is bound to make you significantly more anxious, no?! I'm deleting all my apps now, I need to relax.

Never thought of having DP's sperm checked as he has 4 kids with his ex and got me pregnancy twice in recent months with just one shot each time. (I know this because of work schedules, opps were thin!) Although he did say it's always possible something could have changed x

JustLa · 10/08/2017 10:18

Harriet that's great! Nice to get a little reassurance, I never thought of doing that early on. I'm thinking of being naughty too and picking up a Doppler (baby heart rate monitor) online... I've read it can make you panic if you can't hear a HB but figure heck, my life is one big panic at the mo anyway so- meh! I could provide a little comfort when I need it, any thoughts?

Poppy I love the reveal look! I'm gonna go for the flowing pink dress that appeared below lol.... or maybe just sit a naked barbie on my tummy and go for the wrecking ball?
Has DP had his swimmers tested Poppy? Sounds like you are all primed and fertile which is great 😊

Sheepy, good luck today. Perhaps you could tell the parents at christening that you are ill and will come for ceremony but have to leave after so you don't spread the illness. This is one of those times that you are absolutely granted a good lie.

Drttc hope you're doing ok, 2 days until you know a bit more x

Seeking, how are you feeling?

xxx

LunaB · 10/08/2017 09:47

I remember the day I toook the same test and I'd gone down a week 😔😔 was frantically searching for a positive reason... but I know why... glad you are reassured harriet - what torture waiting for the results of that little bugger!!

harrietm87 · 10/08/2017 09:01

Love that reveal!!! Lol.

That's interesting about splitting the dose poppy. I was told to take it in the morning so as to be as far away from bedtime as possible because of the insomnia risk. Haven't had any problems with that mind you!

Glad your endocrinologist was reassuring- I agree! Sounds like you and your body are doing everything you can so only a matter of time before everything works.

sheepy good luck today. Get them to check you thoroughly while you're there. I really feel for you with the christening - don't suppose you can get out of it as a godparent.

I took a clearblue digital this morning, really against my better judgment as I know how unreliable they are, but thankfully for my sanity it showed 3+, which is bang on as I'm 5+1 today. Phew!

drttc I had pretty much the same with my GP. I phoned to book a thyroid blood test as my dose may need to be adjusted due to pregnancy. When the receptionist asked why I was booking it (normally only needed every 6 months and my last one was April before my mc) I actually lied and said I'd been having hypothyroid symptoms because I just couldn't bear to say I was pregnant!!! Will have to fess up at some point, especially if I do need to increase my dose!

OP posts:
LunaB · 10/08/2017 08:26

poppy, here here for giving our little bods some credit!! They are trying so hard - and our minds need to support the effort!!

And YES, exactly that Reveal - in fact, I shall be walking around holding my stomach like that all day every day from 6 months 😅

PoppyJ1 · 09/08/2017 23:59

Harriet, yes I'm on a lower dose than you, 5mg a day but split into two doses morning and night. My doc told me to split the dose because I complained about the symptoms. I've lost a couple of pounds already. We are probably using it for different purposes though, that why our doses are different. Swimming lessons would be a great idea! I loathed swimming until about three years ago when my friend got me into it on holiday. Changed my life!

Luna, I found this on Pinterest, this is kind of what you're going to be going for, right, for the reveal when it's time? There was on with a woman who had wrapped her bump in Christmas lights, but feel that is a step too far...

pin.it/yLsugRh

DrTTC, sorry to hear about your torturous phone call attempt. I reckon we have all developed some TTC/MC phobias lately and it's understandable. Not long now until you will have some answers. We are all thinking of you.

Heard back from my endocrinologist who said basically chill a bit with the cycle tracking and be reassured that the progesterone measurement is reassuring and he'd expect me to be successful soon. So I've decided that given all my blood results and previous pregnancies, my body is trying pretty hard to reproduce and I should give it more credit and have a bit of faith in it.

Told DP on Skype tonight hat I'm not pregnant. Apparently he'd been confused and waiting for an update since Thursday! Bless him! I thought he knew me well enough that he'd know within seconds if I was, but I think he thought I was still in limbo. He said he wanted to give me a hug but I felt like it's ok anyway. Much easier than last month.

Drttc · 09/08/2017 17:20

Sheepy not Shelly! Autocorrect..

Drttc · 09/08/2017 17:19

Shelly I'm so sorry to hear about this. It must be particularly hard putting on a smile for a christening at the weekend. Really hoping your scan shows things have completed and that you can have a good time this weekend x

Drttc · 09/08/2017 17:16

Harriet- glad to motivate you! I'd definitely encourage taking things very easy and not to push yourself at all. Only try to get the blood flowing while taking in the fresh air!

I'd be 5 weeks +4 during the scan and that's what I was for my first scan with my son. For him he was measuring exactly at my dates and we saw/heard his heartbeat! You wouldn't necessarily expect to see a heartbeat that soon but you should 100% see a gestational sac. So although I'd be thrilled to see a heartbeat, I'll also know this haven't worked out at all if they don't find anything in there (which happened once at a 6 week scan).

Sheepy1980 · 09/08/2017 16:41

Harriet I have an instinct that it might not have been completed my last miscarriage so insisted yesterday for a scan to confirm if there are either cysts or the miscarriage is as I think it was incomplete. The two nurses at the urgent care centre were brilliant and agreed with me but had to get approval from gynea first.
I have good days and bad days and thankfully DH is awesome and we support each other. I am currently designing my own MAR sheet to keep a track on my meds. I am dreading the christening as although they are extremely good friends and we are godparents I dont feel happy standing there

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