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Immune/NK issues - aka Pred Thread no.20!

960 replies

harrietm87 · 18/07/2017 11:42

Hi all, thought I'd get the ball rolling on the new thread.

Welcome all with immune/natural killer cell issues.

It's been a while since a new thread so thought it might be helpful if we all added our stats:

I'm harriet, age 30, TTC#1.
3 mcs (2 at 5 weeks, 1 mmc at 9 weeks).
Hypothyroid and high NK cells.
Cycle 2 on pred!

OP posts:
Thread gallery
14
Seekingmiracles · 13/08/2017 21:27

Thanks ladies, I have read hundreds of positive stories about people in my position but I have a gut instinct. I knew it with the one before Tallulah too and I kind of know it now. For me brown cm has never ended well. I hope to god I'm wrong but I don't think I am. Will call midwife or go tomorrow to try and get a scan. I must sound like the most negative person in the world, which it really not, I'm just trying not to get my hopes up. DH is pretty devastated Sad

Good luck with your scan Just, I'm sure all will be well.

Really hope you're not at the start of awful sickness drttc, go to the gp of it continues.

Lovely to hear from you trying. Sorry you're not feeling great with sickness.but you're getting closer to the end, soon that precious baby will be with you Smile

JustLa · 13/08/2017 20:46

Oh Seeking xx I know you've not been feeling this pregnancy will be a lucky one but nothing definite has happened yet. Lots of women have bleeds and some big bleeds and are fine.
I know we are a pretty high risk little bunch, but it could and should still be totally fine for you. Hope you can call early pregnancy unit at local hospital or your gp first thing tomorrow and get a scan asap.
Sending lots of support your way ❤️

Trying, good to hear from you but sorry you're feeling sickly. Are you due end of October?

Harriet, glad you made it through! Sorry to hear you're having more concerns but you seem to be doing well not worrying too much, it sounds like just one of those random things. I had some brown at your stage, it went away and mr S couldn't see a bleed site.

Poppy you're right, I wouldn't want to take the risk after going through so much to make a success of this, so glad I can pay for the test- even if the price means it's beans on toast for tea for the next month ..

Xxx

LunaB · 13/08/2017 19:42

😰😰😰seeking.... I'm not counting you as out yet - let's see what the scan shows... hope you got an appointment or can get one first thing tomorrow 🙏🙏🙏❤️

Urg harriet early pregnant and at a raucous bday weekend - well done!

harrietm87 · 13/08/2017 18:53

Just back from very full on weekend away. I was so exhausted and had to try so hard to look like I was enjoying myself!

seeking please please don't say that you're out. I have just had yet more brown cm (it stopped about a week ago) and I've been telling myself it's fine and normal, which is what mr s's clinic said. Unless it turns into red bleeding there is no reason to worry. Hope you can get an NHS scan soon - have you heard back from them?

drttc I'm so delighted for you - what excellent news! It's so great that you trusted your instincts - don't think I'd have been brave enough for that. Hope you're feeling better now. Did you have morning sickness with your ds even through the pred? Other than extreme tiredness and hunger and bigger boobs I still haven't had any symptoms- no sickness or sore boobs. 5+4 today I think.

OP posts:
Tryingno1 · 13/08/2017 18:12

Seeking :(
Don't give up yet, mr s knows his stuff and he sounded very reassuring when he saw u. Keeping things crossed xxx

PoppyJ1 · 13/08/2017 18:04

Oh Seeking, the dreaded discoloured cm. It's so awful seeing it. We all know it could be fine but we've all been burned by it too and simply can't relax once it's there. Thinking of you and really hoping it's fine...xx Didn't you have this earlier in your pregnancy too?

Seekingmiracles · 13/08/2017 17:28

Haven't felt sick today or yesterday really and now I've got browny/pink cm so I think I'm out. Will call to try and get to EPU ahead of my appointment with MrS.
I felt like this was going to happen, so I feel weirdly ok about it. Obviously I'm sad but I'm not shocked.

PoppyJ1 · 13/08/2017 17:13

Drttc, you poor thing. One worry exchanged for another. Seems like it came on super suddenly though, does seem to suggest a bug.

JustLa, still extremely low risk though. And great you can get the answer from the Harmony scan as the amnio is a scary prospect for women with our history.

Harriet, how are you getting on?

Tryingno1 · 13/08/2017 16:26

Drttc great news re ur scan!!! Fingers crossed. Totally can see why ur drug free, I've often wondered the same if I ever tried again. Let Me try get one safely here first though!

Seeking when was ur next one ?

I'm 29.5 weeks now and still being sick! It's utterly hideous. It's only a few times a week but it's still gross. I had 10 days sick free at 22 weeks and that was it! I just chant "it's not forever" but I don't know how those women with hyperemsis gravidum cope!

Drttc · 13/08/2017 13:00

Oh my goodness Justla so exciting about your scan! I'm certain it'll be great results all around. Your baby bump fantasies are around the corner :-)

Drttc · 13/08/2017 12:58

7 times...

Drttc · 13/08/2017 12:43

Sheepy in my sleep deprived haze I didn't notice your gorgeous bunny! Congratulations :-)

Thanks for the info Poppy Have thrown up 6 times since 4am and feel absolutely horrible. Can't keep anything down. Nightmare. I'm hoping this is actually a stomach bug and that it passes as quickly as it came.

Sheepy1980 · 13/08/2017 11:29

We have a plan, the surgeon was a fellow and has worked with Professor Quenby as my case was discussed as there were a few ways to manage it and I am now able to have Heparin from the moment I suspect that I am pregnant and I am on Predisnolone, Asprin and High dose folic acid. I think they are bending over backwards because of the errors that the other hospital have made.

JustLa · 13/08/2017 11:26

Comforting for you to hear that about your cycles too!

JustLa · 13/08/2017 11:26

September sounds good Poppy, and not to far away 😊
I think my chances are higher than that, I'm currently 38. The nuchal should give me an indication of my chances based on a few factors including the nuchal scan, age, health, family history etc (I think)
Then harmony will give me a 99% accurate reading as to whether there are any problems so hopefully will be no need for amnio/CVS 🤞🏻
There are leaflets on it in Mr S's office, it's quite interesting. The harmony is pricey and ofc the NHS only offer nuchal and CVS

Xxx

PoppyJ1 · 13/08/2017 11:07

Hey JustLa, it's definitely looking like late September, unless DP needs to come back for a meeting. I cant easily get a visa for where he is for the next few weeks. But I do feel like my cycles are getting more normal every month and my endo says they will continue to settle, so maybe by September I will be on better form!

Fingers crossed for the scan on Tuesday. For your age group the chances of something going wrong are less than 0.5% right? I know it's worrying though. Would you have the amnio if they recommended it?x

JustLa · 13/08/2017 10:41

Cute wabbit Sheepy! Nice to hear you're feeling so much stronger 😊
When is your appointment with Prof. Quenby? Would be so nice to be on your new regime with her before you start ttc to give you some protection from going through this again.

Drttc, sorry you're feeling so sick :( If you were on prednisolone last time it may have been masking nausea but then again, you hear so many mums saying each pregnancy is different anyway! Hope you're just off colour and it eases off.

Poppy how are you? I know it's only been a few days but any news on your next hook up to try with DP?

I have a Nuchal with Mr S on Tues, then an NHS nucal on Friday (My fave NHS sonographer told me to take whatever I could get lol). It's so nerve wracking, if I can get through these with good results I'll feel like I'm closer to having a 'normal' chance of this pregnancy being a success (although it will always be high risk, ugh)

xxx

PoppyJ1 · 13/08/2017 09:24

Oh Drttc, how annoying that just as you got your reassurance about pregnancy viability you get immediately hit by a horrible symptom! Not wanting to scare you but have you read up on hyperemesis gravidarum? It oftens starts earlier than regular morning sickness and is pretty grim. Might be worth having on your radar?

What you said about needing the meds for your DS but prob not this one, that's interesting. I have a theory that the female body "learns" a lot of the pregnancy related stuff from one to the next. I'm sure mine now produces higher progesterone and a better endometrium since my first pregnancy, I can tell certain things have changed due to the impact on my cycles and even the recent blood test.

Sheepy, awwwwww, what a gorgeous bunny! So cute! Glad you're feeling better, you are doing so well.

Drttc · 13/08/2017 07:00

And now I know what it's like to throw up in a puke bucket as I'm walking (to the loo)... Multitasking at it's best. I've been ill for hours and genuinely concerned this is going to turn in to a hospital situation eventually :-(

Drttc · 13/08/2017 04:21

So now I know what it's like to wake up at 4am and puke in to the nearest container I could find (a vase from my SIL).... With DS I didn't throw up until like 8 weeks along and didn't feel right until nearly 20 weeks. I hope this doesn't mean I'm in for worse morning sickness this time :-(

Thanks seeking , Sheepy , Tee , and JustLa

Yes I'm going to go drug free on this one. Once again I know it seems crazy as I 100% believe I needed it to get me DS, but something just feels different now.

Sheepy so glad you've managed to rest and feel a bit better!

Sheepy1980 · 13/08/2017 00:23

Yay DrTTC so pleased, well I have been resting and chugging down the Laxido as I am impacted. I feel really well and pain free which is brilliant as I have not felt great for 2 weeks.
Christening will be fine as I am going to pick up a new fur baby. He has no name as yet and I am feeling positive going to wait for AF to rock up to ttc again as pretty sure I ovulated Wednesday and not sure what will happen after d&c to cycle

Immune/NK issues - aka Pred Thread no.20!
Seekingmiracles · 12/08/2017 13:13

Wonderful news drttc!! And amazing that they could see a heart beat already!! Now hold tight and relax a little. Are you going to see Mr S?

JustLa · 12/08/2017 13:00

Yay Drttc! Am so happy for you 😊
Yes you'll probably be back to worrying soon so enjoy the feeling lol.
Will you continue to go natural- drug free?
Brilliant news with the HB too, strong little bean!
Xxx

Tee4me · 12/08/2017 12:43

Amazing Drttc!! So happy for you, hope you can relax a bit now x

LunaB · 12/08/2017 12:40

Ffs. Tee, not Seeking lol

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