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Conception

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PCOS Success stories please

29 replies

Staceyk · 06/07/2004 18:31

Feeling really fed up at the moment, Feels like we've been ttc forever (18mths) I have been told I have PCOS,and the doctor announced "it is highly unlikely you'll ever get pregnant" So wondered if anyone out there has any possitive PG with PCOS stories for me.

OP posts:
WedgiesMum · 06/07/2004 19:25

Oh Staceyk it really sounds like you are going through the mill with this one. I have loads of sympathy for you, it is so heartbreaking and tiring to keep putting yourself through the whole hope/BD/period thing.

Why did your doctor say that though?? Does your hospital only offer non operation forms of treatment for PCOS?? With mine he told me that the diathermy has about 70% chance of working (don't know if you know much about it but basically it is keyhole surgery where they stick red hot needled into the cysts to pop them and leave clear areas of ovary that can then produce eggs). They also did a laparoscopy at the same time which showed I had some endometriosis too. I know that not all hospitals do it and I was lucky in that my local hospital did and that the hospital in nearby Sheffield has the UK expert on this kind of operation.

Any more periods since May?? I lost loads of weight before I was referred to the hospital as my Dr told me he wouldn't refer me until I had as the hospital would only send me away until I had lost the weight (5 stones). I did it through the Rosemary Conley clubs, which I found suited my style of eating and exercising. Losing weight didn't help me have periods though. Do you have much to lose??

WMXX

taramac · 06/07/2004 19:23

Staceyk I have had 2 ds's on my own - naturally!! My periods were always scanty and I never thought I would get pregnant - I wasn't actually diagnosed until after I had my first ds!

Since then I have tried metformin but hated it. I tried accupuncture and it worked for me I have had pretty regular periods for several years now even after finishing my treatment. Exercise also really worked for me - it seems to help the body kick back into action and regulate the hormones.

I have had 2 miscarriages whicih I am sure had something to do with my pcos but I have had 2 healthy ds's -so I am quite happy. Let me know if you want to talk @ it anymore - or have a moan - I'm here and I know how frustrating it is to feel that your body is not working as it should - especially as a woman.

Staceyk · 06/07/2004 19:12

Thanks Wedgiesmum,
I stopped taking the pill in Jan 2003, and after 8 months of no periods went to doctors, who tried giving me Clomid, for 3 months, to no avail, then another doc worked out if I took Progestrone tablets, it would make me have a period. I was still unable to do this on my own, I then went to specialist at Hospital who confirmed I have PCOS! Didn't know much about it, still don't really so many contradicting stories! My Hospital doctor told me it is highly unlikely for me to ever have children! Out of the blue I had a period on my own in March (04) I then started Metformin, I started on 1000mg a day, and am now on 1500mg a day! and yes it is awful, I find although this is my 16th week on Metformin, I still get very bad tummy. Nothing happened in April, and then in May 04 I had another period. I don't know if it's due to Metformin or just me? However I was hoping that Metformin, would help me lose loads of weight! thats not the case, I've stayed exactly the same, I don't understand, as I'm eating a lot less. I used to eat very big meals, but since taking met I cannot consume as much, and also with the upset tummy, you'd think I have to lose weight! I was booked in for a lap & dye in June, but as I had 2 Af's they postponed to Oct. I am feeling very very depressed with the whole thing. and very scared I might never be able to have a baby. I've tried reflexology and everything!

OP posts:
WedgiesMum · 06/07/2004 19:01

ME!!

I had several years of TTC before I was diagnosed with PCOS (and my ovaries looked exactly like the 'classic example' picture you get in the leaflets about it) at the local hospital fertility clinic. I had less than 1 period per year and did not ovulate at all.

I initially tried Clomid which didn't work and made me feel funny (hot flushes and dizzy). I was then told that my best chance of success was an ovarian diathermy which I had in May 1998. After that we had to wait for one period to start trying and so I was testing to see if/when I ovulated. I then had 'regular' periods. the first month of trying I didn't get pregnant, but the second month I did and had DS in May 1999.

From then on I had regular periods, but was told that I would need another diathermy to get pregnant and the one blood test I had showed I wasn't ovulating. As we knew we wanted another child we asked our Dr to put us forward to the clinic for an appointment to go on the waiting list quite early on and an appointment was made for October 2000. I found out in the September that I was pregnant completely naturally, and had DD in May 2001.

I now have regular periods (after 20 years of less than 1 per year this is wierd), know that I ovulate and a recent pelvic scan showed that I don't have any cysts on my ovaries - so go figure that one!!!

If there is any more information I can give about the treatment I got then please let me know. I hope that this inspires you and that you don't give up hope.

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