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Conception

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PCOS Success stories please

29 replies

Staceyk · 06/07/2004 18:31

Feeling really fed up at the moment, Feels like we've been ttc forever (18mths) I have been told I have PCOS,and the doctor announced "it is highly unlikely you'll ever get pregnant" So wondered if anyone out there has any possitive PG with PCOS stories for me.

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AnnaK · 19/01/2005 08:56

I was diagnosed with PCOS when I was 26 at which time both ovaries were the size of tennis balls! I was told concieving naturally was unlikely. So I went to the GP who gave me a form for a blood test. I came off the pill and had that period, then I waited for another before I had the blood test but I was already pregnant. The shock of our lives but living proof that it does work sometimes. (Dh's previous partner got pregnant while on the pill - stong sperm...?)

edam · 16/01/2005 17:33

My sister's got PCOS and had tried for years with her previous boyfriend - then last New Year meets new man.. and surprise! She's due in April. Wonderful news as she tried everything, unsuccessfully, inc. Clomid and Metformin. So she'd assumed it would never happen for her. Not suggesting you ditch your partner, though . Actually, think it probably had something to do with losing a lot of weight - I know how hard that is with PCOS where your body is trying to make you put on weight, but it seems to have helped my sister.
Fingers crossed you'll be lucky too.

sassybabee · 16/01/2005 16:24

I was told at the age of 15 i had pcos, and i would never be able to have children.
In 1996 me&dh went through fertility test, which showed the pcos, but this consultant told me i would probably need clomid to help me concieve. I went away with the perscription, and it sat on my table for a few months. Just beofre my next appt to see the consultant i started having dizzy spells, falling asleep at work, and had a passion for dough nuts. one of the boys i worked with said your pregnant! but i replied"how can i be"? i thought something was seriously wrong with me so tested...and it was positive! didnt believe it so bought another, still didnt believe it i bought 14 pg tests in total!!
i now have 3 children and am ttc no4 so good luck to everyone xx

neetsmassi · 13/10/2004 13:58

Thanks Neena - I had Ovarian drilling to help me conceive my DD - didn't realise that this was a nother term for it.

regards

Neena · 12/10/2004 17:26

Hi ovarian diathermy is sometimes called ovarian drilling. They drill holes in your ovaries with a laser (key hole surgery). This is meant to kick start your ovaries into ovulating normally for six months or so. I had this procedure done twice and also took clomid. Each time I conceived a few months afterwards so it was definately worth the slight discomfort. The first time I had it done on the NHS the second time privately as there was a one year waiting list. It cost around £1,500 as I recall. Hope this is helpful

Chandra · 12/10/2004 16:48

I was told I had a proability of one in a million to coceive when I was 25, so I simply accepted the fact that I was not going to be a mother, when DH (then boyfriend) started to be serious about the relationship, I let him know that there won't be children and he accepted it as well. Five years later the gynecologist suggested to try and we tried not because we expected to get pregnant but because we thought we could not leave wth the doubt of not knowing if we had have the oportunity of conceivig and we had let it go away... so we tried... I fell pregnant at the first try. So good luck

PS. By the way, 30% of women had PCOS, so believe me, good research has beeen done about this and in most occassions than not, it works!

neetsmassi · 12/10/2004 16:42

Sorry to be dense but what is a "ovarian diathermy " - I have PCOS and am TTC. Usualy ok but feeling particularly down today - in the middle of my period and it feels like I'll never get pregnant . Whinge over

malinki · 26/07/2004 11:23

Hello Fells, I have PCOS and to be quite honest, everyones symptoms can vary so much, I have very iregular periods every 29 - 72 days sometimes longer, I weigh 16 stone and am 5'8", I have a few spots but only on my forhead and because my fringe covers them its not that noticable, but what is noticeable and I am so hateful at the sight of it is, I have a dark line of hair as thick as pubic hair, running downwards from my bellybutton, I would say about 15 hairs, but they are the most urgliest suckers you have ever seen, but thats all I have, I did have a dark line above my lip, but I bleach that about every 4-5 weeks

Staceyk · 26/07/2004 10:05

Hi Fells

Well I came off pill and didn't have any Af's went to docs who tried everything, then to specialist who discovered PCOS, other symptoms are excess hair, body & or facial. Acne. and irregular/missing periods.
If you are in any doubt do push your doc.

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fells · 23/07/2004 19:51

What are the tell-tale signs of PCOS? Know about a few of them but not all.

Staceyk · 10/07/2004 15:23

Thanks Alip
Doubt I'll get a month off work!!
Did you conceive just by using Metformin?
Good Luck with no. 2

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AliP · 10/07/2004 00:34

Stacey - just keep going and ask loads of questions - i also have PCOS and endometriosis(?sp!) but my dh was one last week.
one big thing my very sympathetic GP did was 'prescibe' me a month off work to just take things easy and calm down about everything - in that month i really looked after myself did lots of exercise and ate really well (I also take 1700mg of metformin per day and understand the grotty tummy scenario very well!). in that month i conceived. keep going the metformin does become manageable and its worth it. I am now back on the clomid as well as the metformin in the hope of having no 2!!

808state · 07/07/2004 18:53

Hi Stacey K,

Well what can I say about your doc except to say that he is talking absolute B***ks!!.

I am also a PCOS success story; like WedgiesMum I also had ovarian diathermy and conceived two months post op. Your situation is by no means helpless.

I would say one thing about the cystic follicles not showing up on the scan; they are not always visible to the ultrasound operator for one thing and can require a trained eye as well as good ultrasound equipment. The cystic follicles associated with PCOS do disappear - only to be replaced by further cystic follicles.

If you feel the hospital are dragging their heels you can ask your GP to be referred to another unit. It is fair to say that some units are far more interested and or able than others.

You will need to be persistant in order to get answers. Do not be fobbed off and keep asking questions of these people.

HTH

Hawaii

Staceyk · 07/07/2004 13:28

What can I say? Thank you so much, I feel like a complete whinger, I know we are all having our trouble, which is why we are here.
But your thoughts and kindness really helps me.
Love & luck to you all

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malinki · 07/07/2004 13:18

Hi Stacey

You know my story, you are doing great babe, hang in there!!! I know your feeling blue , but all you have to do is tell yourself, today i'm going to have a fab day , pick yourself up and dust yourself down , we're all here for you babe!!!

Staceyk · 07/07/2004 11:22

Thank you all so much for your positive stories, I really appreciate them, more than you know.
WM I have no idea if I am ov'ing I have heard that OPK are a waste of time for PCOS and not accurate at all, so I have never tried, and temping seems far too complicated. However I did get the egg white CM?? By rights I should have af about 21st-22nd this month! think I will wait til end of month before pg test, can't face dissapointment at the mo.

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WedgiesMum · 07/07/2004 01:48

Sorry not got back to this sooner hon! Left work just after last post and this evening has completely got away from me.

And losing a stone and a half is really quite an achievement - Well done you! What taramac said about exercise seems to make sense too, if you are eating healthily and exercising then your body is getting all the right things to kick it into behaving (relatively) normally.

From what I understand if your cycles are at 60 days it would seem unlikely that you are ovulating though. Have you done the blood test for ovulation?? It seems such a waste to make you wait until October if you aren't ovulating?? They could do a pg test before to check if you were/weren't wouldn't they?? Do you feel like the hospital are dragging their heels a bit??

Having regular cycles in a body not used to them can really knock you sideways though - you just aren't used to the ups and downs of hormones and it can make you feel really disorientated. I now get terrible PMS and can feel when I ovulate (bad, bad pain). Very very odd.

I'm off to bed soon but will check back on this tomorrow to see how you are.

WMxxx

katie37 · 06/07/2004 23:58

I had to fight to get treatment as I was told I was too fat.

I changed hospitals to one that specilised in PCOS and pleaded to be just given a chance with Clomid after 3 cycles I was pg!!

My doctor was amazed.

I knew I had PCOS from teenage years. I have hirsuitism as well.

princesspeahead · 06/07/2004 22:12

friend of mine had one child naturally and quickly, spent 18mths trying to get pregnant with 2nd to be told she had pcos, put on clomid and was pregnant 2 months later. due end august!

lou33 · 06/07/2004 21:41

Me . I went on to have 3 children after diathermy treatment in 95.

bran · 06/07/2004 21:08

A friend of mine is due to give birth in about 10 days despite having PCOS, she was going to take Clomid but concieved without any assistance in the end.

I have PCOS and had IVF which wasn't successful, but there were other problems too, both with me and dh.

I have had accupuncture for my PCOS too, and have gone from having one or two periods a year to being a bit more regular. It can be quite expensive though as I had 6 treatments in a row, and I think I may need to go back for more.

Don't give up hope and stick with the weight loss, my friend who's about to give birth thinks it made all difference for her.

hmb · 06/07/2004 20:30

Two of my friends were told that they had PCOS and that they would never concieve naturaly. They both stopeed using contraception, neither were trying to concieve at the time. They both became pregnant by accident! And one of the two has gone on to have a second child naturaly.

gothicmama · 06/07/2004 20:11

ignore your doctor I got preg with pcos and 1 fallopian tube - like wedgiesmum had diathemy treatment- also beware up to 12weeks after conception your body may reject it because of the hormones produced by your ovaries hang in there it is a frustrating procees

Staceyk · 06/07/2004 19:44

No, no more periods since May, I'm trying to resist doing a pg test, but really I should wait til the end of this month, as my last 2 cycles have been 60 days.

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Staceyk · 06/07/2004 19:41

I have lost a bit in Feb this year I was 16 st, now I am 14 st 8lb. but at 5ft5" think I have a lot more too lose. The hospital tried to do a hycosy in Feb, where they put probe in and use ultrasound, aswell as flush fluid into you, to test for blocked tubes etc, but problem was they couldn't get tube in, they said womb to far back, and I was too tense!!! So thats when they said kinder to put me completely out for lap &dye! which I think is for them to check tubes, I guess until tubes etc are given the ok or not, then not really worth tackling the PCOS!
I sincerely thank you for you thoughts and time, it is very much appreciated

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