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Conception

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Recurrent miscarraige ? What tests are available before giving up?

59 replies

oinker · 08/01/2007 12:56

I have had 5 m/c's and 6 losses. All in the last two years.
I have undergone numerous tests including all the blood test for me and DH. This concluded that my blood wa too thick and therefore prescribed baby aspirin and two daily injections of heparin upon conception.
I still m/c a further two times.
During last pregnacy scan I was found to have two fibroids and scar tissue. A HSG test done (pump dye into uterus and take xray pictures). This concluded distorted uterus, fibroids and scar tissue. I was then told I would need a therapeutic hysteroscopy (camera/cutting gear thru uterus under general anaesthetic) to correct uterus and remove fibroids and scar tissue. before they would concsider op I was told to loose weight. I did and still am.
I had an operative hysteroscopy last thursday(camera into uterus and photos of uterus and fallopian tubes done) Conclusion.... I have tiny kink in utuerus,fibroids and scar tissue so insignificant the consultant doing tests stated that it would be more harmful to operate. She states this detection is not the cause of my m/c's and that it must be else where.... She is not recommending surgery. Should I be happy or even releived?
But where is the problem? What other tests can they do? Have I reached the end of this journey?
Is anyone else out there going thru or has been thru this?
I really need to hear from you..
I hope someone out there can help.

OP posts:
heresfor2007 · 08/01/2007 21:52

Hi Rahrah, So sorry to hear about your loss - I know how heartbreaking having an early miscarriage is, but can't even imagine a mid term one. It's one thing that really scares me about getting pregnant again as now that I know about my bicornuate uterus all I keep hearing again and again is that 'it isn't the cause of my miscarriages as it is usually associated with later miscarriage' - sometimes I wish that I had never found out about it as I could then hopefully get excited if I actually get to the pont of a heartbeat!!!
Out of interest, where have you had your tests as I am also from the midlands and have been treated at Solihull & Heartlands hospital.
Take Care. xxx

meysey · 08/01/2007 20:21

I really feel for you and hope you get some good advice on further tests. I have had several m/c's in recent years, though not in such difficult circumstances as yours, also the usual medical investigations (inconclusive), and I have been lucky enough to have two children too.

Interestingly both my children came after having some reflexology. I am not suggesting it is a miracle cure or a substitute for further tests. But I would recommend it as something to help with the stress of the situation and relax you.

Good luck!

rahrah1 · 08/01/2007 18:21

PS - I'm willing to go private...

rahrah1 · 08/01/2007 18:19

Hi there... I've been trying for 2 years and lost my pregnancy at 24 weeks, in Nov 06. I have had one lost pregnancy previously. Both pregnancies include bleeding on and off. However in my last pregnancy I had really bad periods of bleeding and cramps in from week 10 to 24. So have a different background to yourself. I have undergone all my tests now. They strongly thought I had a blood clotting issue, all tests have come back fine. I have had my tubes checked, all fine. My genetic and bio make up is fine. The baby was totally healthy and of good weight, so it is not the babies. (Main cause of M/C being abnormalities to babies, but with several M/C's must be another issue). I'm not overweight and have a healthy diet. I have had a scan today, which showed a small abnormality to my uterus (like a horn), but should not be significant enough to cause M/C and he found PCO, that will effect my fertility, as ovulation is being knocked out, but again can increase risk of M/C, but not at the stages that I start having trouble.

We have had all the tests the NHS at this point are willing to offer. Therefore we are having to go down the route of getting pregnant again and see what happens. They are saying it was just a one off... as they cant find anything...

Therefore I can understand your frustrations. I would certainly go to see Prof Regan. She is an expert in her field and by using her expertise she will be able to advise accordingly. The biggest thing I have realised through out my experience is that they don't have answers for everyone, for me it is driving me crazy not having answers and uncertainty. My bereavement midwife was hear the other day and told me lots of stories about people try and trying again and finely they have a full pregnancy. Stories like that really don't help,,, but do give you a flicker of hope.

How did you get to see Prof. Regan? I live in the Midlands, but would like a second opinion..Do you live in London?

heresfor2007 · 08/01/2007 17:16

Hi Oinker,
I am in a similar situation although with me it is 3 mc's in the last 18months. They originally did all the tests after my first 2 mc's which showed high levels of antibodies and I was put onto clexane for my last pregnancy but once again mc. I've since had the blood tests repeated and they are all normal but have found out that I have a bicoruate uterus. Had a HCG in Nov which confirmed the uterus and showed a 'mass' a the top of each horn - believed to be fibroids but the hysteroscopy showed nothing!! Waiting for my next appointment in 3 weeks. All of the consultants just keep saying that it's just 'bad luck' and that the shape of my uterus is unrelated to my mc's as they were all first trimester and bicornuate uteri is more associated with later miscarriage - something else to worry about.
So...I'm really sorry that I can't give you much of a light at the end of the tunnel, just to say, I am feeling a bit the same and don't quite know what else to do but just try and stay positive (as my dh keeps telling me!!). Planning to try again in Feb as the consultant who did the hysteroscopy said the left horn of my uterus looked healthiest and I should be ovulating on that side next month.
Planning to try acupuncture as it is supposed to help with stress and ovulation!
Good luck - hope you find some answers!!

oinker · 08/01/2007 16:46

It's gone quiet....

Any advice.....

OP posts:
Frizbe · 08/01/2007 13:09

sorry to hear this oinker, but your not at the end, I saw a something on the news on this a while back and mentioned it to another lady on my ttc thread at the time, I think it was Wendy11, (I certainly know it was a wendy) will check with the girls and get back to you, so you can cat her if need be. Anyway sorry to ramble, I directed her to a project underway at Nottingham University (Liverpool also are doing studies) and I do know that she's since been accepted onto the programme and is undergoing treatment, but what that involves I'm not sure, but it may be a route to go down for you? worth a look? HTH's and good luck.

oinker · 08/01/2007 13:05

Thanks foundintranslation.....

I should have mentioned I am under Lesley Reagans clinic at St Marys paddington. I have an appointment coming up next week and am due to see her. I keep thinking that she is going to say something like,I am sorry but sometimes we just don't find a cause.. I can't be good for their stats chart.
I am getting quite nervous..

OP posts:
foundintranslation · 08/01/2007 12:59

I'm so sorry for what you've been through, oinker.
I've had 3 mcs, only 2 consecutive so no tests, and no experience to help you. But I can recommend Lesley Regan's book 'Miscarriage: What Every Woman Needs to Know', in case you don't know it already.
Wishing you all the best - hope this nightmare ends for you someday.